please help
Comments
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Hi Sue,
You know what's so fun about following your story? You are exposing to all the world the feelings we each felt but sometimes just couldn't find the words or the courage to speak them. It is so refreshing to read the honesty in your posts...no attempt to sugar-coat or feel obligated to reassure us that you are okay. You're not okay! None of us was anywhere near okay while we were wating for surgery.
For our part, reassuring and supporting you through this nightmare reminds us how far we have come and how much strength we have managed to rally in ourselves.
Sitting beside you as your carriage nears the top, comforting you with a nice back rub, warm hugs, and faith in you.
Towhee
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Sue, another night has passed for you. You are getting there - I know the time is going so slowly but we are there with you. I can't wait for this surgery to be behind you. Each one of us beside you on this ride - can you sense us all around you?
I hope your pain has eased. The Diazepam will help you through the last few days so it's only until Friday that you have to endure the intense, non-chemical-assisted waiting.
I didn't know this site existed when I was waiting for my surgery so I used to knit, knit, knit - it was like a meditation and somehow soothing. I knitted myself a comfort shawl and I finished it the night before my mastectomy. It was warm and cosy and easy to drape around my shoulders when I was still stiff and sore. I wish I could drape it around your shoulders now but I think all of our prayers, love and empathy are a bit like a warm shawl - draw it around you and feel us close to you.
love and hugs,
gb
ps - Karen - I honestly didn't feel excluded. These threads shrink the space between us and I just feel part of a wonderful community. You like the puppy? I wish it was mine! It's a beagle. I really want to get a puppy next year, when I get a better fence around my yard. I haven't really decided what breed yet but beagles are gorgeous. My last dog was a blue heeler cattle dog.
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Like Shirley said the surgery is not that bad, I had my bilat mast done June 1 and the following Saturday (8th) I went to the local survivors bi-yearly breakfast. I was toting drains but had a wonderful time. The group meets monthly at the wig bank but twice a year we go to Cracker Barrel restaurant for Breakfast.
I totally agree with you about the roller-coaster and wanting to scream my head off. I want to be right by you screaming (either in fear or relief) and holding your hand.
Sheila
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Just checking in to see how you're doing today, Sue. I wish I could speak about mastectomy from personal experience, Sue, but I can't. I had a lumpectomy and SNB. I do have several friends though, who have had mastectomies. I've heard that afterward, the area is kind of numb and there really isn't much pain. Hard to imagine, isn't it? The drains are the most unpleasant part, apparently. You'll be fine. I wish we could all be there with you for moral support and hugs.
Take care, Sue. Check in later to let us know how you're holding up today.
Hugs,
Karen
gb, I love beagles. I'd probably have one myself if my husband wasn't so intolerant of barking and howling. They are so cute!! I could use a snuggly little puppy and some warm puppy breath on my face right about now!
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Hi Everyone....My gosh....you are all too absolutely thoughtful ..... I cannot have made up the amount of support you give me....
Well I have just got in from work....had the fear up me a couple of times....had to shhush my boss on the phone as he spoke about it...I have told him off for mentioning it at work LOL....as soon as he starts I say deedededede Tom you didnt say a word....and today he made me laugh dededeeedeeee back after he started....
He is going on hols a week after my op and has asked me to keep an eye on things from home.....he has been an absolute godsend to me...in the early days his mum offered to come with me to the hospital...obviously I declined as I dont mix work with personal life...in fact if I am in hopsital for long I will insist the nurses dont let any of my colleagues visit...I would die if they saw me wrecked!!!
Time is dragging right now...tick tock ...the mornings drag out at work.....but before I know it another day has passed and I get a sick feeling...cant wait for Friday so I can take some diazepam and float for the weekend..although my last day of work will be Saturday....
I have a day off on Thursday and will call the breast nurse up and explain my fears and ask about flying high for the last few days...
Karyll...I cannot think of a big enough F word to use ...lol....and Towhee....I cant wait to look back at these posts and see how far I have come...I am feeling less of a burden to you all...as it has helped massively to vent this nightmare..on here ....and recieve such phenomenal support....
I guess the nxt stage will be the result waiting and the treatment and so forth...but I know in my heart that in the future and for now I have a need to meet up with such special people....names without faces ..... but with the warmth and kindness I would walk the earth for....
Got no appetite tonight....I am off to pester my sons for a while....and pass some time...time that will wait for no man come next week...
Much Love xxx
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Hi Sue:
Could you please let me know if you received my private message on Sept 29th? I'm having problems with this new format.
Erika-Canada
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Hi Erika...Gosh I never knew I could recieve PMs here
....I have just read your beautiful message....Thankyou from the bottom of my heart ..... you are an amazing strong soul xxx .. I hope I have as much courage xx
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Hey Sue, I know you are probably in bed, where you belong! But I just wanted to tell you please feel totally free to post any old time you want to or need to.
We all love you and can't wait for you to be well and helping other gals. This will be sooner than you think.
God bless you, Sweet Sue, Shirlann
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"To-morrow, and to-morrow, and to-morrow, creeps in this petty pace from day to day, to the last syllable of recorded time" Macbeth, Act v, Sc.5
William Shakespeare, England 1606
"I am off to.... pass some time...time that will wait for no man come next week.."
Sue, a.k.a "Sueps", England 2007
We love you both, Englanders!
Tender -
Sueps - This is my first post here and I just wanted to tell you that you don't have to apologize, you can cry,rant, scream, laugh and say just about anything on these boards and someone will understand you!!
Bottom line is CANCER SUCKS but you will get through it. The waiting is always the hardest part. Once you have surgery and start treatment in a weird way it kinda all falls into place.
Just know you are not alone and all these lovely ladies ,including myself, are here for you.
Stay strong,
Valerie
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Hi Sueps! Just letting you know I am thinking about you and hoping your getting some peaceful rest. I'll ride that roller coster with you anytime. And we'll scream our heads off!!
And we'll feel soooo much better. I hope your sons are well and being a comfort to you. I know my son always seems to calm me down when he is around.
Well , I'm praying for you my sister , and sending you positive vibes and invinsible strengh for the days ahead. xxx Melody
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Hi Sue. I think this was the first day we didn't hear from you. I hope all is well. Maybe you're feeling better and didn't feel the need to post?? I hope that's the case.
Take care. We're all thinking of you.
Hugs,
Karen
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Hi Sue,
I hope you are ok. Have been thinking of you today. It's Friday tomorrow. Time is passing. I think I read that you are working on Saturday. Perhaps that will be a bit of a distraction? Please know that we are all with you in spirit.
love and hugs,
gb
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Morning Sue!
How did you intake nurse phone call or visit go yesterday? We're you able to get through to her some of your fears?
Like the others, just wishing to let you know we're pulling for you. TGIF by us means Thank God It's Friday.
Never has this sounded more pleasing to my ears than THIS Friday!
Tender -
Hello Everyone....thankyou for your thoughts....I was on here last night...but I am so in turmoil that I couldnt bring myself to post....I just cant get my words out when my thoughts are so dark....I am also feeling really unwell with the stress.....my dad turned up to see me today all the way from the Lake District and by surprise....a day after his first chemo finished...he just wanted to be with me in person...and I couldnt stop breaking down...he is and always has been an unwavering rock...
I called my cancer nurse up and explained my fears....I really wanted to hear the words 'its ok Sue you dont have to come in you were just dreaming' unfortunatley she didnt tell me anything I 'wanted to hear' shes called Claudia...so very nice but I dont want to be in Claudias' club when I feel so down and sad....
How can I get through such a dark rubbish time....
I really wanted to post ..... so you know that I am still hanging on with my fingernails....even though I have bitten them all away ..LOL...not funny .... my oh my OH MY
Help crumbling and sick today again...
Sorry Everyone ..... I might take a chill pill ..
Much Love xxx
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.......and yesterday I was in a lot of pain on my right side...aching under my arm and ribs and everywhere..I couldnt even sauce the subs.....So from then on in...it is dawning on me just how serious and evil it is...I cant even say the word as it brings such miserable feelings...but it does suck ....everything about it sucks......
Today I think I may die from it....I have lost all faith..x
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......today I am hacked off to say the least...
Am I allowed to be hacked off ..... I am well out of sorts....
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Sue you need to keep the faith. Look at your signature, 'I will never complain about my wrinkles when I reach 80'. You need to keep your chin up and not worry so much so you can reach 80
I felt the same way you do now right before my surgery. I wanted to scream at the top of my lungs, 'DON'T DO THIS TO ME!!!!!' My husband was on the road trying to get home early the night before surgery but he was held up by a shipper delaying the loading of his truck for over 2 hours and he was 4 hours from the house. I called him at midnight and cried for an hour and he was still 2 hours away. We will keep you in our prayers that you find comfort and peace before, during and after surgery.
Sheila
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It's always o.k. to be hacked off, Sue. It's a dastardly time for you.
I see the pain is increasing. I've been thinking about it; hard to sleep under the circumstances. Just got to have it out. "Out, out, damn spot"...
Any skin changes, Sue? Any bruising, or "cords" like little ropes developing in the breast or under the armpit? Any thing different which might require your surgeons attention early? God, this wait is insufferable.
Just vent. We understand.
Tender -
Hi Tender....The pain has got steadily worse...the whole area feels bruised but is not bruised..and there are loads of little ropes going under the arm from it...but it may be PMS thats making it more painful..and the lump is definitely bigger and much harder...but again there is no space on the waiting list...and it is only a few days away....
I asked Claudia again today why are they taking all the lymph nodes out and this time she admits that the tumour is bigger than most and told me that I didnt catch it in the early stages...as it wasnt as minute as other women whom have screening...
I have never felt such intolerable stress....I cant think straight...Claudia says it will be 2 weeks till prognosis...'prognosis' I said...I dont need a prognosis I'm only 38.....what the hell went wrong....
I have never broke the law...
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I'm Kathy LaTour, a 21-year breast cancer survivor and editor-at-large for CURE and Heal, award-winning magazines that take you through the cancer experience. I wanted to share with the breast cancer community what we're doing in December at the San Antonio Breast Cancer Symposium, one of the largest breast cancer meetings in the world where the latest in research is reported annually. This year, the CURE and Heal staffs will be there, reporting and blogging on the breaking news and advocacy issues. To get our daily reports and webcasts, sign up at www.curetoday.com/eupdates. If you sign up before Nov. 1 we'll give you a free year's subscription to Heal: Living Well After Cancer, the magazine for all cancer survivors. We're excited about bringing you the news that may bring us one step closer to a cure. We hope you'll join us. Kathy
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I do not have any faith I lost it all right now...I dont know where I dropped it or even if I threw it away...I just know all the strength is going I dont have an ounce left ..... I ache all over with sadness for my children...I am on a down day today....
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I'm sure you do Sue. It's a difficult down time right now. Completely legit response. Wish I could help more. Do wish you'd consider some meds to help fight the down, yet realize until this is out, it's reality.
Try not to sit alone. Dad still around? Take a walk. It's six some, boys home? A walk with one of them?
Praying for you Sue. Sending you an arm around your shoulder, holding you up. Do you feel it from us?
Tender -
Oh sue, I am so sorry you are so sad today. I too have been waiting for surgery. I have been doing chemo for almost 5 months so they could shrink the cancer enough to do surgery. I worry so much, and I wish I could just KNOW what the future holds. I wish I knew how long until the cancer starts growing again. I will have surgery the beginning of november, and I dread it. It is nice to know that I am not alone and that others have the same worries and fears as me. Hugs to you! you are not alone!
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Sunneedazee ..... you are very brave! Maybe I dont have it too bad ...... I just feel like it is chomping away at me...
Tender it is almost 6pm....one of my sons is still at school...the other is doing his homework....I think I will go sit out the back for ten mins...I try to grapple with my head...I feel like I have been laden with my arms full of ping pong balls for a few weeks and I have dropped them all over the floor...I cant seem to pick any of them up LOL.....
Come on Sue get a grip ladee get a grip....OK I am going outside for ten to have a one to one with her ..... see if she has any strength left for the rest of the day....4 more hours I will take a nice little sleeping tablet...
Oh working Friday and Saturday. Food Shopping Sunday, pre op Monday..and in between that I will be looking for some slippers...So thats me mapped out......
On Tuesday Morning what time will it be over there.... xx
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Sunneedaze.....I thoroughly commend you for your bravery ...I have just read your profile.... xxxx
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Oy! It is morning here, and I have to get through a whole day to get through! Love your ping pong ball comment. I can just see them bouncing all over the place, and trying to catch them. LOL! That sounds a lot like my life.
Staying busy for the weekend seems smart. Try to keep your mind off things.
I think once you can have your surgery, you can start the healing and moving on. I was so relieved when I started treatment so I could feel like I was doing SOMETHING to get rid on the terrible thing inside of me.
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Sue,
I've been following your posts and I feel that I must comment. Everyone here on the boards are the best in emotional support. Even though I don't post too much, I've gained soooooo much from the ladies here. But I must ask you to do something - take your fear of this horrible disease, turn it around and make yourself angry. FIGHT THIS BEAST!!!! I know you can do it - we've all seen what a strong, wonderful caring person you are. Now it's time to stand up to it and make it known that you are the boss. I know that you have 2 boys and a father to help you through this journey. I also know that you feel that you need to be strong for your kids, but remember that you need to be strong for you. Concentrate on yourself for a little while. Focus on healing. I have no idea of the pain and fear that you are going through. I had my own issues of fear -" my dcis is now what? what do you mean invasive? what do you mean mast and recon?" But that's another story. I have taken the posts from the wonderful women here - a true godsend - and fought this beast (still fighting). Sorry to ramble, but just remember that it is now time to be strong and fight - for you.
May God surround you and yours in His Loving Arms.
Trish
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Sue, I'm so very sorry that you're having such a difficult time today. It frustrates me so much that they've made you wait such a long time for your surgery. I know how anxious I was to have my tumor removed after being diagnosed. I'd wake up every morning and immediately bring my hand to my breast to feel for the lump. Every morning I prayed that it would be gone, but there it was. If anything, it felt a little bit bigger with every passing day. I had a ten day wait and I felt like I was losing my mind. I can only imagine how you must be feeling. You are such a wonderful, sweet, and caring person. It just doesn't seem fair, does it? I often wondered what I'd done to deserve this fate. I'm beginning to see some good that's come out of this ordeal (if that even seems possible). I've never felt so loved in my life. Also, I'm so unbelieveably GRATEFUL for every single day that I'm here and able to be with my family and friends. I don't sweat nearly as much of the small stuff anymore. This is having such an impact on my entire outlook on life.
Take care, Sue. There are only a few days left of this ungodly wait. It will be over before you know it and you'll feel SO much better!
We love you and are praying for you.
Hugs,
Karen
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Hi Sue! Its Shirlann. Honey, don't be so down. This is not going to kill you, it is not even that bad. I think what we all hate the most is the time it takes to get things over with.
Remember, we are all here for you and wish you well and are sending our love across the pond.
Love you, sweetie, Shirlann
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