Can we talk about oseoporosis?

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abbadoodles
abbadoodles Member Posts: 2,618

Since I was diagnosed with osteoporosis a few months ago, I have been reading about it.  Just within the past day or two I have come across some things that have really given me pause. 

Specifically, there are references to the machines that do the DXA scans as being pretty inaccurate.  Something about the manufacturers leeway in what amounts to calibrating them and so on.  This has led to false reading with diagnoses of osteoporosis resulting.  Yikes!  What do you know about this?

Also, have been reading about osteo on Dr. Christiane Northrup's site.  She claims that it's not strictly the density of the bone that matters, but the quality of that bone.  In other words, just because you have low bone density, it doesn't mean that you will experience any adverse effects.  It's a lot for me to explain, but you can read it yourself here:

http://www.drnorthrup.com/womenshealth/healthcenter/topic_details.php?topic_id=60

After you've had a chance to read it, I'd appreciate your thoughts.

Tina

Comments

  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited September 2007
    Sorry, I was typing so fast I misspelled osteoporosis in the thread title. Frown Embarassed  Now, did I misspell MISSPELLED?  LOL
  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited September 2007

    I've read that also about bone density.  Asian have less density then we do, but their bones are strong.  I guess they would have to have a different callabration on the machine for them.  I agree, it's probably not how dense our bones are, but how strong they are.  

    Another thing that goes on, is to get a prescription for fosomax or one of those drugs, before being told about taking calcium and magnesium, D3 etc. and get some exercise, to see if that will stem the tide first.   I never took calcium before being dx'd with osteopenia.  Maybe taking the big 3 would have done the job for me alone.  Who's can say now cause I got the prescription for Actonel and didn't know any better at the time.   Regrets, I have a few...

    Tina,  I want to add, what an excellent article you've found.  Thanks for finding it and bringing it to us.  I'm still reading it.

  • caaclark
    caaclark Member Posts: 936
    edited September 2007

    Great article.  I just had my first bone density test and it shows osteopenia.  I need to talk to my onc. about how and if the new drugs really do help.  I am slightly skeptical about them.

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited September 2007

    Carol,

    If you do wind up with a prescription in hand, next stop is at the dentists office.  Make sure you don't need any major work done before starting the drug.

  • ADK
    ADK Member Posts: 2,259
    edited September 2007

    Hi,

    This is very topical for me because I just learned last week that I require treatment to prevent osteoporosis for a multiple of reasons - the density test results were -1.5 in both places, my Mom died at 66 from complications of osteoporosis (her breathing was compromised because her neck was so bent forward, she couldn't take a deep breath). I have taken multiple courses of steroids for Crohn's disease, once as long as two years.  I smoke.  You get the picture.  I will not be able to do the pills as I have gastrointestinal problems, so I will probably have to do the infusions.  I can't start this stuff until I get my tummy issues cleared up - how important is it to start treatment right away?

  • mke
    mke Member Posts: 584
    edited September 2007

    That was an interesting article.  It seems reasonable that there are more aspects to bone health than just density.

    I was diagnosed with osteopenia some 5-7 years ago.  It wasn't much of a surprise my mother had pronounced osteoporosis and my bones are on the small side,  "little birdie bones" my sister-in-law calls them.  I take calcium and Vit D and try to do a fair amount of walking (although taxol neuropathy has interferred with that).  My bone density has actually inproved so unless the situation changes I'll hold off on the medications.  Being of a certain age (61) many of my friends are in the same situation, most of them are on one of the meds but my results are just as good with Ca and the vitamins. 

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited September 2007

    Anne,

    "Your test results will be in the form of two scores:

    T score - This number shows the amount of bone you have compared with a young adult of the same gender with peak bone mass. A score above -1 is considered normal. A score between -1 and -2.5 is classified as osteopenia, the first stage of bone loss. A score below -2.5 is defined as osteoporosis. The T score is used to estimate your risk of developing a fracture.

    Z score - This number reflects the amount of bone you have compared with other people in your age group and of the same size and gender. If this score is unusually high or low, it may indicate a need for further medical tests.

    Small changes may normally be observed between scans due to differences in positioning and usually are not significant."

    Your 1.5 score sounds like your at the beginning of osteopenia.  Have you tried cal/mag/d3 first, w/exercise?  I'd give them a try first, then on to round 2,... drugs... if it gets worse.

    http://www.radiologyinfo.org/en/info.cfm?pg=dexa&bhcp=1

  • ADK
    ADK Member Posts: 2,259
    edited September 2007

    Thank you Rosemary,

    The scores I gave you were the T scores - my Z scores were blank which I am assuming that 1) I was not compared to my own age group or 2) that I equaled my age group and the actual number was 0.  I take calcium with vitamin D daily.  I fell and broke my wrist in 1999 and have taken the calcium with vitamin D ever since.  I had a bone density scan done in 2000 and I was fine.  I fear the lack of estrogen is starting to undo me. I had TAH with ooph last November.

    Thank you for the links.  

  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited September 2007

    Anne,

    Since you have a family history of this, did you get the vitamin D blood test done?   I keep forgetting to ask for it myself.  Next time for sure.  (I keep saying that).

  • ADK
    ADK Member Posts: 2,259
    edited September 2007

    Thanks Rosemary.

    I didn't know there was a test for vitamin D.  My mother's arthritis was a genetic form and my brother had it as well.  He died at 39 from unknown causes (his wife would not allow an autopsy, but he did have alcohol addiction problems).  Supposedly, this form of arthritis presents in women in their thirties and men in their twenties.  That is exactly what happened with my mom and my brother. 

    I will look into it, I see my primary care physician at the end of October.

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