Cytoxan and Taxotere ?
Comments
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Eve, do you take emend or prevacid? I have taken the emend days 1,2,3 and they help the nausea though there are still many foods and scents I can't tolerate for days. About day 4 I don't eat much at all.
Lisa, not sure where we go from here. Now I have whacky radiologists saying maybe I could get radiation even though I had a mastectomy, but I had one positive node. If only this were less of a guessing game! I suppose if I head down that path that would be my next board. I guess your next one is the mastectomy boards. I have found lots of helpful info in some of those. You are scheduled in a couple weeks I believe?
I guess it never hurts to stop in here to give some info to those still making their way thru the trials of TC. though.
Joanne -
jean,
So sorry you are having trouble...
Thinking of you
HUGS
HARLEY -
My wife had a bad reacton to the taxotere, hands and feet swelling then the skin peeled off. This was after the first taxotere, we are waiting to talk to another oncologist, our present OC says to go on weekly taxoyl.
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Bill
I have not been on any other cocktail but TC and have found the Taxotere to be just awful. I am on day 8 (TX #3...my last) and still feeling terrible. I will be having surgery on Sept 26 and then will be placed on TAC.
I have been nausiated most of the time. The Taxotere has done a job on my intestines, stomach, month and nose. Sores start developing all over my body, especially on my head, on week 2 (started yesterday) .If your wife's onc has changed her tx...she's lucky. I am now waiting for my nails to fall off. (I have heard the horror stories) I started having pain in one of my toenails, so guess that nail will be be the first to go.
I also switch onc, my new one told me....I should never have been placed on chemo before surgery and never on TC, not even following surgery. -
Bill,
Does your wife take steroids before and after tx? I think they are supposed to help reduce these SEs.
Joanne
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Hi, I am to get my 1st treatment of Taxotere and Cytoxan on thursday. My onc. said it had less side effects, etc and gave the same results for someone with my situation. 2.2 cm no node er&pr+ her -. Oncotype test low intermeideate risk of recurrance in 10 years. why did you receive T and C only? Side effects?
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Hi Karen,
I have the same scenario as you. I chose to do chemo because the tumor was grade 3. I had my first TC on 8/29, and I tolerated it pretty well. I didn't have any nausea, but the taste in my mouth is horrible!! I also have had a little heartburn/indigestion. I ended up the hospital the last 2 days because I had a fever and was neutropenic (very low white blood cell count). My suggestion to you would be to stay away from anywhere/anyone/anything that may infect you for at least 10 days after. Just be extra cautious. I wasn't, but I will be next time. I will also get Neulasta or Neupogen next time which will help. Good luck! You'll make it through.
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Hi... I have had 2 of 4 txs with Taxotere and Cytoxan. It used to be used only for advanced breast cancer, but they have found that it is also effective for early bc, like us...
Post anytime you have any questions... there is also a thread for Taxotere side effects, or Taxotere & Cytoxan, I don't remember which, but you can post there, also, to read about others' experiences with the same chemo that you are getting. Everyone here is nice! It is a great place to go for support.
Good Luck! Keep us updated! When is your first treatment?
I'll be thinking about you, and hope all goes well.Hugs,
HARLEY
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postalchick, I have the exact same size, oncotype result as you. How did you do on Taxatere and cytoxan? I start this Thursday. I am very anxious about it. Thanks, Karen
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Harley, My first treatment is THis thursday and I am very nervous about it, but I know I have to do it. Are you completed with your chemo? how did it go? hair loss? Thanks, Karen
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Karen,
A couple of us just finished TC. You will get through it! It seemed for a few of use days 3-5 were the worst in terms of fatigue. I lost most of my hair after tx 2 and still have maybe 20? of it left. Will you take steroids before and after? how about neulasta?
Joanne
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Karen
I had my last TC tx almost 2 weeks ago. I noticed the tx se got worse with each tx. I felt lousy for about 5-6 days after my 1st tx...and had a heck of a head ache during that time.
Tx #2 was worse, I felt terrible for about 12 days, but no headache. However I developed sores on my shoulders, chest and my bald head. I also experience very bad instestinal and stomach issues.
Now 13 days after #3, I still feel tired, and the sores got worse, this time but mainly on my hands and feet. The stomach and intestionals problems retuned.
Iam so glad I am thru with TC. I will be having surgery in 2 weeks, and then more chemo. My onc said it will most likely be TAC. That is that darn taxotere again only with that nasty "A" drug.
Good luck, some people, like Harley, have been very lucky and have little to no se, maybe you'll be like her. -
Karen,
I have had 2 of 4 txs with Taxotere and cytoxan. I will have tx #3 on Tuesday, Sept. 18th. My 4th and LAST! will be Oct. 9th.
I haven't had too much trouble with it. Just some diarrhea, stomach cramps related to the diarrhea, and that second week, when the white blood count goes down... I have fatigue, achey, fever and chills... I take my temp, and drink lots of water, and orange juice and Ibuprofen, and just rest!! That low wbc is what scares me the most!!
The hair... sigh... well, at first, I had A LOT of hair falling out, and it was all the grey at first... so I didn't mind so much. Then it started falling out in clumps! The man at the wig shop shaved it to about 2 inches... Then, I had the receding hair line that men get... then that area filled in with WHITE hair! Then, the rest of my head was spotty... my darker hair seemed to be falling out, but filling in WHITE!, so now it is just about ALL WHITE! I hope it changes color because I don't want to be ALL WHITE!!
Be kind to yourself, pamper yourself. If you have others who can help you, ask for help... don't try to be a superwoman! This is the time to just rest and take it easy...
WE WILL get through this... Good luck on the 13th... that is your first treatment, correct? I'll be thinking about you!
Hugs,
Harley
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Hi everyone of the TC therapy group. I have had 5 of my 6 treatments now and so far it has been a rlatively mild treatment. I was scared out of my mind and after the 1st treatment have had a positive attitude. The worst feeling I have had was "gastritis" like drinking 3 too many glasses of red wine the night before! I am a nurse practitoner and have been at work every day except for when my white count dropped to 1.5 and I was afraid to get near anyone sick. I have lost only about 45% of my hair, I cut it into a short bob thinking it might help and it did. I also took alot of Vitamin E about 3 weeks prior to the treatments as I read it would help as well. I don't take it now as my onc recommended no antioxidants during therapy... I am estrogen andprog positive,margins clean, but the tumor(less than 1 cm) was so far under the arm, one of the sentinel nodes was 30%positive, so I am a stage 2A. I have one more treatment but I almost feel this stuff is really protecting me now and I hope I don't freak out when it is over! Lots of love and luck to my fellow sisters! Barb
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Hi Barb,
Glad to hear that you didn't have too many se's from the TC. I also had mild se's from the txs. I am having tx #3 on Tuesday, and will be having my last YEAH! on Oct. 9th. I'm having implant surgery on Nov. 7th.
I have been very positive through all this, also. My bc was also ER+/PR+, so I'll be getting hormone treatment after the chemo. I'm not looking forward to the hot flashes...
I can't wait for the txs to be finished!!!
Harley
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Harley,
I am so glad you didn't experience the bad side effects of treatment either! Did you lose your hair or only partial? When do you think it grows back all the way?
Daphine, I am so sorry I didn't respond to your message back in July but I lost this site!!! My MD wan't to do the standard AC followed by T dose dense, and when I bulked, he said 6 treatments of TC. I don't think anyone knows for sure if 4 or 6 are better, you just have to trust your instincts and doctor and if the side effects don't hurt you too badly, Id go for the gusto! -
ghw123
My tx got worse each time.
With tx #1, I felt sick for about a week.
Tx #2 took me over 2 weeks and I never really felt good after. I developed sores on my head, shoulders and chest. felt nausiated all three weeks.
Tx #3 - I am on day 14 and still feel like cr-p. I have not only had the sores, but they effected my hands and to a lesseer degree my feet. I emailed a photo to my onc on Monday. He said if it did not go away the next day or if I wanted him to check it, to come in his office. It got better the next day and is now completely gone...but I still have sores on my head, chest, shoulders and my back is very itchy...so I guess they are they too.
I am so thankful that #3 was my last tx, I will be having my mast in 10 days. I hope my Onc does not place me back on Taxotere following surgery. I am not sure TC worked. It appears I had 2 more tumors (not informed of by my firct Onc, I changed after TX #2.) and I think they have continued to grow. I have been in a lot of pain for the last few days and it hurts to place my arm next to my body. -
Hi Barb
I haven't had too many bad se's from the tc, but I have been alot more tired lately... my next tx is 9/18... Tuesday!
I have lost my hair... but it has been strange! I started with having lots of hair on the brush, mostly my white hairs. Then I had the receding hair line that men get, and it filled in with white hair. Now, I notice that I seem to be getting darker hairs all over my head. Not sure if it is growing out or what is going on. It is still VERY SHORT! I look like SLUGGO, from the comic books with Nancy & Sluggo...Will you be getting hormone treatment after the chemo? I am going to be getting Tamoxifen for a few years, followed by one of those AIs I keep hearing about... worried about the se's, though.
I will have my next tx on Sept. 18th and the last is Oct. 9th. Then I have my reconstruction on Nov. 7th... things seem to be moving right along...
Good Luck!
Hugs,
Harley
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Jean,
I am thinking of you, and will be praying that your surgery goes well.
God Bless,
Harley
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harley, hI had my 1st t&c treatment yesterday, it went well. I came home and took a long walk with my dog, felt good. about 2 in the morning I woke with the worst heartburn but was able to take a pepcid and it went away. Today has been a day basically on the couch. It sounds like from this site that the tx se get worse. has that been your case? I will also start Tamoxifin after my 4 treatments. My last treatment is November 15th. Can't wait my 1st grandchildren (twins) will be born right before that and I hope I participate helping my daughter. How are you doing now?
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Hi Karen,
I'm glad to read that you tolerated your first tx so well. I had my first TC on Thursday, 9/6. I did very well on Thursday, Friday and Saturday. My worst days were Sunday and Monday. I was achy all over, my lower back ached so bad that I could barely walk. My doctor thought this was from the Neulasta injection. My new se is the tingling in my hands -- not too bad, but definitely there. I also have diarrhea (ugh!) and it seems that I have developed hemorroids. My doctor has never heard of anyone developing hemorroids -- anyone else have this complication? I have never had them in my life! So, in a nutshell, one week later I am doing pretty well. Karen, keep me posted on how you are doing.
Laurie
1.7 cm, Stage 1C, er+/pr+ her-, mastectomy w/reconstruction
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Jean - best of luck with the surgery. Keep us posted.
The worst days for me were 3-5. I also had severe GI distress which got worse with successive treatments and lasted for about a week. It definitely awokened my hemorroids.
My onc recommended taking a B complex vitamin for the tingling hands and feet and sometimes stabbing pain.
She also prescrived prevacid for the hearburn.
Hugs to all of you,
Joanne
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Hi. I took Cytoxan & Taxotere for the first time Thursday (September 13, 2007). I was confused because I was under the impression that I was to do chemotherapy every two weeks for four treatments but then the nurses told me that I was every three weeks for four sessions. I've called my doctor six times, I've e-mailed and I've had no response. Is CT usually done FOUR times? I don't know how I got it all so wrong. I wrote down every two weeks/four times.
Has anyone taken this combination CT every two weeks rather than three? If not, I'm wondering if he changed his mind and why... -
Hi,
My CT treatments are every three weeks for four treatments. Originally, I was hoping to do treatments every two weeks, but my onc said that the usual course for CT is over three weeks. Hope this helps.
Laurie
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Hi Karen,
Glad to hear from you! I'm glad your 1st tx went well!
They say that what you experience from the 1st tx will probably be how the rest of your tx go... that has been true for me. I haven't had too many se's from the txs... But, I have noticed that I am feeling more tired as time goes by. I am not sure if it is from the tx, or my thyroid disorder...I have my 3rd TC tx on Tuesday. So, I will only have ONE more left! My last tx will be on Oct 9th.
Congratulations on your new soon to be newborn grand-babies!
hugs,
Harley
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Hi, I did not get the neulesta shot, is that reccomended with the 1st tx?
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It seems they don't give Neulasta with the first tx. I heard it was because of insurance reasons as it's so expensive. I guess they wait to see how your wbc count does. I will get it with my next 3treatments because of neutropenia which put me into the hospital. Just try to stay away from germs during that 7-10 day period after chemo. I didn't have any bad se's the first time, and I'm hoping it's the same after my next tx on Monday.
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I had a neulasta shot after my first tx and will get one after the next three. They first checked with my insurance company, though. But the Neulasta really made me feel like I had the flu, really achy everywhere. But you don't run the risk of getting neutropenia with this shot. I think the worst I felt has been from the Neulasta not the side effects from the CT.
Laurie
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Karen,
My 1st tx, I did not get Neulast, either. You would get it the next day, following your 1st tx... but, I think, alot of times, your dr. may just wait til 7 - 10 days after your 1st tx to do bloodwork and see where your wbc is... Mine was VERY LOW, so they gave me Neupogen shots, I had one the day of my b/w, and they gave me 3 more to take home with me, as I had to give myself one shot each day, to help boost my wbc...After that, the 2nd tx, I got a Neulasta shot the day after my tx... which was MUCH better! I had the worst lower back pain after the Neupogen shots!
If your dr. sees that your wbc drops considerably after the 1st tx, maybe he/she will give you Neulasta after the next tx...
Hugs,
Harley
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Laurie,
The worst se I had was from the Neupogen shots I got, after my 1st tx... I am hoping to get Neulasta after all the rest of my tx, because it was a lot easier to stand. The pain was just AWFUL!! after the Neupogen shots.... just be glad you got the Neulasta shots... Also, my chemo nurse told me to take Claritin after the Neulasta shot, for about 3 days. It is supposed to help with the bone pain, and maybe it helped me, since I didn't have as much pain as I had with the Neupogen shots. Maybe Claratin will help with Neupogen, too, but my nurse never told me about it... each tx, I get a different nurse administering the IV transfusion, and a different nurse gives me the shots afterward, too...
Just a little advice...
Hugs,
Harley
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