The Chemosabe March Cruise
Comments
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Thanks for reporting back. It sounds like your onc has things under control and is watching you closely - too bad the ecco wasn't ordered earlier, though.
Your verse is beautiful. Thanks for sharing it. I will continue to pray for you. Hugs, Jacque -
Psalm 94:18 & 19 When I said, "My foot is slipping,"
your love, O LORD, supported me.
19 When anxiety was great within me,
your consolation brought joy to my soul.
Sending prayers for healing and comfort (and understanding bosses!) to you,
love, terri -
OH Miss S.....thanks for reporting in. Prayers and hugs coming your way. Sounds like you and your doctor have a plan...that is half the battle. Your faith is inspiring and will see you through this bump.
Love,
Nancy -
I just read what you wrote on the rads page Miss S but now I'm glad I also came here too. I hope this bump doesn't slow your speed down to much to recovery! You're in my prayers..rosebud
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Thank you all so much for caring about me. Please keep praying... I appreciate you so much!
Miss S -
A very dear friend sent this prayer to me. It was exactly what I needed to hear and I hope it helps bring some comfort to everyone.
Dear Heavenly Father
Praise be to You for your abundant love and mercy.
You have dealt generously and gently with us in our need.
You have been patient with us in our humanness, walking the walk, struggles and loneliness.
Lord, through the Holy Spirit help us today to be jubilant in hope, patient in times of confusion, and consistent in prayer and loving You.
Teach us all to wait with faith and expectation. Let our trials be times for abundant grace.
While awaiting treatment, be near us. Assure us of Your control.
Provide the surgeon and medical teams strength and wisdom through Your grace.
Heal us according to Your will in Your timing.
Surely goodness and mercy shall follow us all the days of our lives. Amen -
I was supposed to have my hysterectomy/oopherectomy last Friday and it was cancelled at the last minute. For whatever reason, God has decided that I need to wait until this Thursday to have it done. And I will have a different surgeon.
I am so happy for all of you who are finished or finishing your treatment. I wish I was there, too. Unfortunately, with all the delays, I haven't even started my radiation yet! I have my tattoos and will do my dry-run on the 13th. And then I will finally get to start my 7 weeks! It will be a joy when it is finally over.
I am never good at responding to every individual's posts but I just want you all to know that I am praying for your healing. All of the trials and tribulations that we have gone through and have yet to go through are just another part of God's ultimate plan. As hard as it is sometimes, we have to remember that He is in control and will use our struggles to bring glory to His name. -
Patti, you have a lovely attitude. Things happen for a reason - we just don't always know what that reason is. Hang in there - there is a light at the end of the tunnel. You will get there! Hugs, Jacque
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You ladies enrich my life.
Hope you're all having a great weekend. If my mum were here, she'd say, wear those white shoes, because once Labour Day is done, so are the shoes!
Christine -
Patti....thank you for sharing that prayer. Sorry that your surgery was postponed but there was a reason ....i'll be saying special prayers for you on Thursday, let us know how you are when you are able.
Christine....my Mom was the same way with the shoes as well as white pants!
Happy Labor Day!
Nancy -
Not me - a lot of my wardrobe revolves around white capri's. I am going to be 'new age' and ignore the old rules while the weather is still hot! Go White!
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Does the no white after Labor Day really still apply? I wear jeans so I guess I'm safe but what about a white T-shirt??? Humm fashion rules I must read about them..lol...rosebud
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Rosebud, I think a white t-shirt is always okay. In Michigan you might want to layer it under a wool sweater and a v-neck fleece pullover, but still. . .
Living in a 'resort' city, the no white before Easter or after Labor Day is a little more flexible, but having been brought up in a Southern family where Emily Post was a frequent 'consultant', I still don't wear white shoes out of season. I'll wear shorts and flip-flops in the afternoons, but no white shoes to church!
Lisa -
Hi Cruisers,
Just an update for ya'll. Seems so many of you are done with treatment and I feel I'm just starting.
I met with my oncologist, surgeon and radiologist all together today - unheard of, I know, but it made making a plan so much easier. I've already had 4 rounds of neo-adjuvant chemo (which gave me access to this cruise back in March) and a lumpectomy on Aug 1. Now the consensus is a mastectomy followed by more chemo, then radiation, and finally reconstruction.
I'm nervous, not so much about the mastectomy, but more about the reconstruction and the risk of lymphedema - and just the length of time to get through treatment. I'm not seeing an end in sight. I just want my life back.
My oncologist said not to think so much about tomorrow, next week, next month, next year but to concentrate on 20-25 years from now. I guess it's good advise, but not always easy to live by.
Lisa -
Lisa.
While I'm glad to hear your meeting with your 'team' resulted finally in a plan, I'm sorry it is such a complex and extended one. But never fear, there are others of us on this March cruise who are far from being finished with treatment.
Tomorrow I get to battle my way to LA and back (why am I not in bed?!?) for a second consultation with the plastic surgeon who will be slicing and dicing me. Supposedly I will be getting a surgery date at that time for my bilateral mastectomies and immediate reconstructions (DIEPs). Then, after being helpless as a newborn kitten for a month or two, just about the time I can reach into my kitchen cabinets, about the time I can drive myself around town. I get to have my oophorectomies. Then, just as soom as I am feeling nearly recovered from that surgery, it'll be time for stage II reconstruction surgery back in LA again. And this assumes everything goes perfectly according to plan, with no infections or mishaps or anything. I'm counting on that.
So, we'll be here, I know Jacque will be here, Patti has her surgery and radiation still yet to go, probably others. We may not see the end in sight, but we are headed in that general direction.
Step by step, we will get to that 25 yr. mark - and meet once a month as usual for our monthly BC.orgSanDiegoSisters brunch!
See you on the 22nd!
HUGS!
Lisa -
Put one foot in front of the other. I think what I took was baby steps and reached the goal. 20 to 25 years..thats a super goal! rosebud
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It IS a super goal! 3boys - I am sure this process seems overwhelming, but you will make it through, and one day all this horrible cancer 'stuff' will seem like it took place during another lifetime. I have said a prayer of healing, peace and strength for you.
I switched my chemo today from having Abraxabe (a new age Taxol) dose dense every three weeks to having a lower dose spread out over three weeks and then getting one week off. Hopefully the side effects will be less. Time will tell!
Hope everyone is doing well! Jacque -
I think it's fantastic that the two "Lisas" can get together and see each other once a month! I like San Diego - maybe I can swing a lunch date! Maybe in January, when the snow and freezing cold weather will be here in the Rocky Mountains!
I've been busy back at school this week, and so I've missed checking in. My DD also started back to Irish dance lessons and so it's all been rather crazy. The 2 classes of Kindergarten I have are really very sweet. Although, one of the little girls started crying yesterday cos she had to leave her new, "inside" shoes at school and she was worried about it! I told her if she didn't leave her shoes, the other new shoes would be so sad and lonely. She bought it and the tears left.
I think all you ladies in the warmer temps can wear your whites for a little while longer. The weather here is cool in the a.m. and warm in the p.m. So, you put on the car heater when you drive in the morning and the a/c when you come home in the afternoon. Crazy!
Glad to hear from everyone - will keep all you girls in my prayers. Especially Lisa and her huge surgery schedule. Keep well!
Christine -
Lisa (3boys4me)...good for you scheduling all your doctors in one day...that's amazing. You now have a plan....that's half the battle...we'll be right here with you...cheering you on. I here for the next 5 years (as of now)...1 year of herceptin and 5 years of arimidex. You will be in my prayers.
Jacque...I happy for your chemo change...prayers for fewer side effects.
Christine..2 classes of kindengarten...you are a saint! I'm sure that it is so fun and rewarding! Shoes lonely..lol!
Put one foot in front of the other! I like it Rosebud. How is work going?
Taurie, Angel, how are you doing?
Nancy -
Lisa with the 3boys,
Your upcoming schedule does sound rather daunting. I know what you mean about feeling like it's taking too long. I felt like I was on a never ending ride, but it's starting to wind down. Of course, I haven't even thought about reconstruction yet.
Hopefully, you will have smooth sailing and will be surprised at how quickly you arrive on the other side.
Lisa in SD,
Wow.... I do not envy you driving through that horrible traffic into LA. I am glad you found a doc to take care of you in the desired way. It does sound like a long haul. I hope you don't run into any more snags!
Keenie,
I know you're having a blast with your kiddies, although I'm sure they are wearing you out! Try to get lots of rest on the weekends!
Jacque,
Hopefully the new chemo schedule will work out better for SE. I have heard differing views, so it does seem to boil down to the individual. It would be wonderful if the SE could be kept to a bare minimum.
Nancy,
How have you been doing? Are you taking Armidex along with the Herceptin or do you have to wait til it's finished? Any SE?
I'm thinking about all of you and praying.
Miss S -
Just checking in. things are ok. i'm on my 2nd weeks of rads. so far, so good, tho having to go in every day is a pain. my appt is at 10:30, so i can't really get a project going before then, and it seems like afterward, i work out, go eat lunch, and it's time to pick up dd2 at 2:40.
sorry to hear about the surgery and chemo struggles some of you are having.
love u
terri -
Y'all, I just found a ton of BC shirts at cafepress.com
you have to enter "breast cancer" in the search field, but they have like 13,000 different designs, some of which i wish i'd known about during chemo. i'm thinking about getting "Coiffure by Chemo", and "Squish A Boob. Save A Life." they have "Bald Chicks Rule" and "Chemo. It's Not Just For Breakfast Anymore."
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Jacquie - good luck on the new dosage protocol. Anything that might ease the SE's is worth a try.
Keenie - where do you find the energy to keep up with dozens of five year olds? You are my idol!
terri - that does sound like a mighty inconvenient chunk of your day, but good for you for fitting your wookout in there! Much better than sulking on the couch afterward
Lisa, let us know how things are going. Do you know yet what chemo drugs they are proposing and what schedule?
My trip to LA was as expected yesterday - 10.5 hours altogether. But that's because they went ahead and did the whole surgical pre-op. The last thing before I hit the LA rush hour home was get 13 vials of blood drawn
. But, there were orders from my onc. and my rheumatologist, too - so at least it was all done with one stick. trouble is, I hadn't eaten since breakfast!The big surprise is, after expecting to wait 6-8 weeks, I'm scheduled for Sept. 25th at 7am!!! That's only about two weeks! For a 12-hour surgery! OMG! I have to get a plan in place here! I'm going to be useless for a month. I'm not going to be able to drive for a month! Lisa, when you see me on the 22nd, you will probably witness a full-blown case of the screaming meemies!
Lisa
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I owe..I owe..it's off to work I go. Every week I get a little stronger and the best things is my eye brows have started coming back!!! I told myself it was no big deal but when you don't have them you do look sick even if you're not. Not the thing is..not wax or not to wax..that is the question..LOL Rosebud
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Wow Lisa...10.5 hours and nothing to eat...you poor baby....but I know it was nice to get it all done at once. Surgery on Sept.25th....i bet in a way that you are happy that you are not waiting the 6 to 8 weeks. 12 hours...yikes, many prayers coming your way.
Miss S...yes, I'm taking arimidex along with the herceptin. Only se's...drippy nose I think from the herceptin (every week, I'm there for about an hour) and I have some joint pain when I first get up in the morning and after sitting for awhile that I'm contributing to the arimidex. How have your heart test gone this week?
Terri....good to hear that the rads are going smoothly...sorry that it is taking most of your day. Good for you on your workouts!!!! Love the t-shirts.
How's everyone's hair coming? Mine is about 1/2" but you can still see a shiny scalp, maybe by Thanksgiving. I've shaved my legs 3 times.
DMknanny....where are you?.....how you doing?
Thinking of you all and sending prayers
Nancy
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Hi Everyone!I got a stress test and they took a bunch of pictures of my heart and got another LVEF, but I don't really know anything yet. They were looking to see if I had any blockages that would be contributing to my very low LVEF.
The tech did tell me if the doc found anything that gave him grave concern, he would call me last night or today. I haven't heard from him, so I am assuming nothing new was found. I go to see him next Thursday.
My body is killing me after going to work all week! I am such a wimp. I anticipate each week getting easier. I am so glad to be back at work and it feels like I have never been gone. That is my second family and my home away from home.
Glad the rads are going well, Terri.
Lisa, wow... suddenly everything is happening! I'll be remembering you in my prayers.
Hope everyone has a great weekend!
Miss S
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Okay, so the news is good. I had my hysterectomy/oopherectomy yesterday. I got home early this morning and am feeling quite well. The mass was determined to be a teratoma. The surgeon called me this afternoon with the final pathology. Benign, benign, benign!
I was also told by the doctor this morning that I was the poster child for post-operative!
Praise God!!!!!
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Okay, so the news is good. I had my hysterectomy/oopherectomy yesterday. I got home early this morning and am feeling quite well. The mass was determined to be a teratoma. The surgeon called me this afternoon with the final pathology. Benign, benign, benign!
I was also told by the doctor this morning that I was the poster child for post-operative!
Praise God!!!!!
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yay Patti!! I am so happy for you. be careful, though, and don't overdo it. It's so wonderful to see things going well for you!
God Bless,
Miss S
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Patti.....indeed Praise God!!!! Pamper yourself.
Nancy
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