What has cancer done TO you? Pink ribbon frowns..
I'll start.
I hate cancer. My giant wardrobe of CANCER SUCKS t-shirts is by no means a big enough of a statement as to why I want to wipe out this disease.
Cancer did so many things to me.
My first one will seem insignifacant but you have to see how it leads to the bigger ones.....
It took away my wonderful, long, thick, straight without a hint of curl hair. My hair was my identity. I HATE that I had to be bald and wear those wretched hanky hats while I had non-stop hot flashes from chemopause.
Yes, chemopause. I hate that cancer changed the very map of our lives that we had planned out so carefully in the fall of 2005. I was SUPPOSED to be pregnant. I thought the sore boob (notice I say boob and not boobs), the nausea, and the fatigue was all symptomatic of a beautiful pregnancy. Who would have thought I was giving birth to a monster called cancer.
I thought I was in control, and that I got to make those choices in our life. Nope. Cancer took that away from me.
I hate that cancer made me incapable of holding my son for weeks on end when I was recovering from the port placement, SNB, bilateral mastectomy, and radiation. I hate that cancer took away my holidays. I couldn't take my son trick-or-treating that year because that was the day of my first surgery.
I hate that cancer altered my intimacy with my husband. Thank GOD for the mojo thread. I'm learning now to be a little more....ummmm....wild.....but for the longest time, I was ashamed of my body. I felt like I was no longer a woman.
I hate that cancer makes people afraid to talk to me about cancer. I have survived for nearly two years now, and my crazy in-laws still don't say a word to me about it.
Cancer tried to take away my dignity, pride and faith many times. But, on the flip side, it DID do a lot of good.
I don't want you thinking I am a woman who knits pink ribbon bears, and has pink ribbon wall paper, and a pink ribbon purse.
I do agree that it is important to confront both the good and the bad sides of this disease.....
Who's next?
Love and prayers, Deb
Comments
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Cancer has made me an angry person. It has stripped me of my dreams and plans for the future. I no longer care about saving for retirement since I don't think I will ever see it. It has made me angry that it has inflicted its wrath on so many nice women on this forum. It makes me angry that the doctors don't find the cause and cure. I know they have made great advances on treatments but that's not good enough. It makes me angry that we have no control of our bodies and don't even know that the beast is in us until we get specialized tests. I firmly believe that breast cancer would be cured if the medical field really wanted it to. We BC victims keep a lot of them in big $$ by needing all our treatments. I guess you could say I'm just plain angry and don't see any bright side to cancer.
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Cancer has made me age faster than I should.
Cancer has cost me at least $5000 a year paying for co-pay and travel and will continue to do soas long as I live.
Cancer has taken away my belief that I will live to be an old person (there are pretty good genes in the family - thought I'd get to be old and healthy too.)
Cancer has made me afraid to go get a job - don't want to mess with SSDI.
Cancer has made me feel like a welfare case for taking SSDI.
Cancer has caused DH to be afraid of losing his wife.
I'm a happy, positive person, but not because cancer taught me to live every day - I already knew that. With the exception of taking the Disney cruise, little good came from cancer that I wouldn't have had in my life otherwise.
Oh, yeah, and the hair thing - not sure it'll ever come back all over. -
Cancer has also aged me.
It has made me feel older. I hope this changes.
I am so tired after minimal exertion.
Chemo stomach.The hair thing but Ok now. Wore baseball caps. Learned how to be strong and look over peoples faces as they stared when in public places.
Laying in bed in the fetal position after day two and neulasta shot thinking I was going to die from the pain that put me into a knot.
My poor kids.
They think I'm a rock and so strong. I had to be after they just lost their dad.
I felt so alone. I think feeling so alone may be the worst.
But. . .I am taking my family on a beautiful trip in the Fall.
I hate lab tests, scans, all of the above.
I love life even though mine has changed dramatically this past year in more ways than I could have ever imagined.
I think we all agree there is no pink ribbon on earth to make up for what we have all been through or are going through. -
I aged. I gained weight. I had a good run, but damn, I am only 53.
~Dorie -
Oh, the wretched Neulasta shot. That was the hardest thing to endure over the pain of mastectomy, or radiation.
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I am glad to see this thread. I understand that the pink ribbon thing has raised awareness, and that's good. But it's such a girly, cutesy, romantic thing. And there is nothing girly, cutesy, or romantic about bc. It is a nasty disease. I now have a 9 inch scar instead of a breast, and I am bald, and I am having to fight back to get my flexibility and conditioning. I went thru six months of toxins, my nails are black, and I am scared. I didn't need this to appreciate my life. I have always loved my life. I always felt blessed. I go nuts when people talk about attitude ... my attitude was fine. This was a train wreck ... no hidden blessings or messages. It could have been worse, I get that, but it could have been better too.
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Cancer has pissed me off!
I am afraid I won't see my boys grow up.
I thought I did all the right things. SBE, mammos, good diet, exercise..Cancer taught me that it doesn't mean crap.
I hate the weight that I have gained.
I don't feel sexy anymore.
I hate that I have lost my mojo. I keep trying.
I hate living with fear of dying young.
I HATE Hot Flashes.
I hate the question, History of Cancer? -
Let's see what did it do to me:
Numb feet and hands
Funny frizzy hair
Achy joints
18 months of being poked with needles
Assorted scars
Mild lymphedema
Enough radiation it's a wonder I don't glow in the dark
A year's lost wages
Crappy splitting and peeling fingernails (toes too)
Sure there are things I'm grateful for. I'm alive and, although I may wobble a bit, I am walking. Being in Canada, the cost of my care was not a concern and it was exemplary. My husband's excellent drug plan covered my drugs, my employers were most understanding. My family was supportive.
I didn't have any insights or other "gifts". I was sick, and for the moment I am not sick. I'm not bitter, I don't think God or the medical establishment is out to get me. I think bad stuff happens and it doesn't mean diddly squat. -
Cancer's done a lot of s***ty things to me but the worst is that it's taken away my innocence about growing old. Even though I've always known that any one of us could be taken out at any second, BC is always looming... waiting for it's chance to come back and kill me. That sucks.
Erica -
I posted on the other thread about what cancer has done for me. I am one of the ones who says that cancer has changed my life for the better and it has brought about a lot of good things in my life. Just because I feel that way doesn't mean I think my fight with cancer was all lollipops and gum drops. I can also post here and say what it has done to me.
It has made me afraid that it will come back. It has made me watch my husband and kids be strong when I now realize they were absolutely terrified and didn't want me to know. It wreaked havoc in the mojo part of my life. I also learned to look over people when they stared at my bald head under a baseball cap. I have seen good people get weaker and weaker from this hated disease. I also have the scar and dog ears instead of a breast. The fatigue, the weakness, the list goes on and on. I did not get the anger though and for that I am thankful. Cancer has done a lot to me, but I am so glad that it has done more for me.
Thank you for starting this thread. It gives us a place to be honest with others as well as ourselves. Bonny -
I love my bc sisters.
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I lost my breast and replaced it with a non-feeling grapefruit that I hate.
I lost my hair and now have a short Diana-doo.
I hurt all the time.....my joints are so painful
I have the midriff my great grandmother had.
I have a feeling of impending doom while trying to live each day to the fullest. How crazy is that?
Scared my daughter will get it.
Scared my sister will get it.
I am 44. A single mom and with this sad shape and short hair, I think that my possiblities of EVER getting married are slim and he just left the building! -
hey rock, love that name, i empathize with your fears.. the comment about the non feeling grapefruit however, made me laugh, because i refused the non feeling orange size mini waterbeds, for the same reason. somehow, i would rather look at scars or tattoos. but i do respect those ladies who choose to have them and indeed are happy with the results.
your humor shines through even the bad things, you are a survivor.. -
Cancer just took my best friend away from me. She died last night of non small cell lung cancer. We have the same birthday, were diagnosed around the same time; even went through the various treatments at the same time.
Then I was diagnosed with mets last May.
Cancer is a horrible thing. -
I posted my thoughts on the other thread, and they really belong here. Thanks Band Teacher for starting this one too.
Personally I haven't yet to find the silver lining of having cancer. It scares the living hell out of me some days. And to be honest, I really didn't care to be faced with my own mortality in order to gain a new perspective on life. I had a good perspective on life before BC. I loved my life and want it back. But at the same time I'm scared to go back to my normal self. Something there gave me cancer and I don't know what it was, did I do something to cause this? I always hear everyone saying you did nothing to cause your BC, but until they find the cause, can you really say I did nothing with 100% certainty? I'm petrified of everything, and long for the day when I don't have this nagging thought in the back of my mind with everything I do, "did you cause me to get BC"? I've changed everything I eat, drink, etc..
I just finished all treatment end of July and just fresh into the 'wait and see' phase of cancer recovery. Maybe in time I won't be so scared and be able to relax a little more. But right now, I'm not happy about it at all . -
I feel that this new thread invalidated the honest feelings I posted on the other thread. Cant imagine anyone saying they are glad they got cancer cause it made them a better person. For those that are positive - guess you are blessed. Me? This whole experience is just awful.
Dont particularly like being told to keep things positive and then starting a new thread for negative. My feelings are what they are, and I dont like being told to be careful where I write them.
JMO
NIcki -
Quote:
Cant imagine anyone saying they are glad they got cancer cause it made them a better person.
I definitely think the BC journey has led me to be a better person but I would NEVER say I was "glad" to have gotten it! I don't know that I'd believe anyone is happy to have gotten cancer... for any reason.
Hugs
Erica -
Nothing negative for me because all of the less than positive things pale in comparison to not being here any more. When I feel crabby or crappy I just think about one of my close friends who fought so hard to live until her last day and how much she would have traded my "bad day" for not being alive any more. It puts live into perspective.
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I gotta be honest about this and say I'm with Amy....what cancer took from me is small stuff compared to what it gave me. I certainly am not glad that I got it, but that's a moot point because I did. I guess if I had to come up with some negatives, I'd point to my wrinkles and sparser eyelashes from chemo and my empty bank account from copays and random, I-don't-care-I've-got-cancer spending. But I'm still richer than most of the world's population...in every way.
~Marin -
There are a number of good things that have happened to me because of cancer, but I would trade them all to go back to the pre-cancer innocence.
What cancer has done to me is turn me into a LIAR.
I lie to acquaintances and reply with, "Good!" when they ask me how I am.
I lie to good friends when I tell them the same.
I feel like I'm lying to my children when they talk about the future with the assumption that I'll be there with them.
I lie to my mom when she asks how I am from so many miles away. She's supposed to be enjoying retirement years with her husband and instead is draining their finances with frequent visits here and help with our bills. So, in her case, cancer has made me a THIEF,too.
I lie to my husband when he hugs me by not telling him it hurts.
I'm lying to myself by putting off things I know I should do sooner rather than later.
I don't think anyone knows how I really feel; how utterly exhausted, scared, angry, and in pain I am.
I am constantly fighting an internal dialog that has my faith on one side and the cancer fears on the other. I can honestly say that the thought, "I have cancer" has not left my mind for more than five minutes since hearing the doctor tell me, "It's cancer." I DO have faith in God and trust him in my situation. I trust that I have cancer because there is a greater plan than I do not understand. But, maybe that greater plan means that my kids will grow up without me...maybe there is something better for them that having me around would be an obstacle to attaining. I do TRUST what God is doing with me...of course, trusting and liking are two different things.
Cancer (treatments) have stolen my memory. I used to have near-photographic recollection and could quite easily tell you exactly where I was and what I was doing on a specific date even years ago. Now, I frequently ask the same question over and over again and forget the answer every time. My children suffer because of what I forget, but also exploit it--sometimes to their detriment. I used to have brilliant communication skills and an extensive vocabulary. Now, more often than not, I sound like an english-as-a-second-language first grader struggling to put a sentence together.
I fight. And fight. And fight. I will continue to fight as long as I can. And, I will probably lie to someone down the line when I tell them, "I am ready to go," because I will NEVER be ready to leave my husband and my babies. I will be ready to go because I will have grown weary and tired of the pain cancer has inflicted on them.
Cancer slapped me in the face and said, "HAH! You're not going to live forever and you'll likely leave this earth much sooner than you'd thought." I think cancer causes two deaths: the first being the immediate the death of one's security and the second, literal death that follows in many cases.
Cancer has changed the way I think about the term "progression". Usually, making progress is considered a good thing. Progressing where cancer is concerned is a very negative thing, indeed.
The possibility that there is a time in the not-so-distant future wherein drugs or the cancer itself may cause me to say horrible, hurtful things to those I love at a time when they are least able to hear it scares the hell out of me. I have been told I did so when in the hospital under heavy medication for a spinal fracture that was compressing my spinal cord. I said awful things to people I love and I don't even remember it!
I am willing to accept that I have no control over cancer. It horrifies me that the cancer can cause me to lose control over myself. What if the last thing I ever say to one of my children is hurtful and caused by the disorientation and affects of some drug I have taken to make it EASIER for me? I will fight and likely suffer more than I need to just to avoid such a possibility. I mean, it's bad enough they should lose their mother. How much more horrible would it be if she hurt them with her own words on her way out of this world?
I've probably said too much and very possibly sound like a lunatic.
Of course, these are also things that cancer did to me. -
badboob67-
I wish i knew your real name so I could use it here....you, my dear did NOT say anywhere near too much. You just spoke words right from the heart. I wish I could send you a real hug....
I have not posted on either of these threads. I had a post all written that was mostly negative things that cancer has done TOO me and then saw the reminder that I should not voice my true feelings on the other thread....so I hit delete instead of posting anything. I felt like a looser because I couldnt come up with any little positive things to wrap in a pink ribbon and be proud of.
Yes, I have made the best of a very shitty hand I was dealt. Yes I still love my family and am glad too still be here, but I felt all those things before. I was a good person before cancer. I didnt need a devastating illness to show me how blessed I had been I already knew it.
I could list dozens of things that cancer has taken from me, but after reading what you all have written, most of you have said it better than I could, so I will nod along and say ditto.
Deb C -
badboob67,
That was beautifully written. It was straight from the heart and very poignant. I think your writing skills are alive and well! As far as saying something terrible to your kids on your deathbed one day - I have a feeling your kids know how much you love them and would have no trouble disregarding it and even forgetting it (if that happened). You are a beautiful person.
Now for what cancer has done TO me.
It took away my left boobie and 31 lymph nodes.
It gave me lymphedema.
It gave me a heart that has an EF of 36%.
It gave me almost a year off from work.
It took away my expectancy of getting old.
Then there's always the baldness, the illness from chemo, and the radiation burns, but most of that is temporary.
Miss S -
Quote:
Im in awe just reading some of your passionate responses to what cancer has done for you.
Im still waiting. Ive had no great epiphany in my life with cancer. I was strong before, I was caring before, I had a relationship with God before, I had great friends and family before.
Ive been through a lot of medical crap that sucks and I will my entire life. But I havent changed one iota since cancer.
Am I doing something wrong, do I not see some big picture here? Was I supposed to learn some lesson that I never got?
Was it supposed to make me wiser, grateful, more sure of myself? Of course, but not in what Id call Biblical proportions and honestly I think that comes with age anyway.
This is how I feel today, dont remember how I felt yesterday or how Ill feel tomorrow.
~Pam
this sums it up perfectly for me. Cancer didn't do squat to make me a better person. If it did anything "for" me I guess maybe it made me a little bit more aggressive in making my needs and wants known. It made me aware that I have far fewer real friends than I thought I did, tho those real friends are the best in the world. It made me realize that living on coffee and cigarettes was probably not the healthiest choice I could make. I haven't given up either but I have added regular meals into the mix.
What did cancer "Do" to me?
Well that list could go on forever:
It gave me ugly scars
It gave me crappy bones
It gave me lousy skin
It took away my sex drive (haven't made love to my husband in two years, feel for the guy)
It made me fully aware of my husbands faults.
It gave me constant pain
It gave me bone crushing fatigue
It gave me this ridiculous roll of fat around my middle
Anywhos I could go on for hours and hours. But each and everyone of one of us know that of which I speak.
So heres a toast to all of us no matter if we see our lives as blessed or cursed by the monster we call cancer. -
hi badboob67,
i think you expressed yourself in a very honest and signifant way..i say "ditto" to so many thing you said.
i guess i am a bit jealous of some of the things you do have. your mom and dad, your kids, and your hubby. i have none of these people in my life to share with.
i am a single woman, and have had to face many of the things you talked about..alone. not easy at times. don't know which is more difficult, being afraid you won't be around to see your kids grow up, or never having any at all. (i had two miscarriages) parents and brother dead.
best friend of 30 years, died of kidney cancer recently.
so badboob, take every smile and every hug that your share with them now, as a gift. hugg to you b/c sister, for you honesty and for sharing your fears with us. something that is difficult outside these boards. -
You wrote so beautifully, so eloquently what I and so many others feel.
-
Quote:
and random, I-don't-care-I've-got-cancer spending.
~Marin
LOL-- I hear you on that one. -
TO THE DOCTORS, BREAST SURGEONS., PLASTIC SURGEONS, ONCOLOGISTS, NEUROLOGISTS, PCP'S, RAIDOLOGISTS, ENCROCRONOLOGIST, AND ALL THE REST OF OF THE MEDICAL COMMUNITY;..YOU MIGHT SAY,"IT'S ALL IN YOUR HEAD, YOUR JUST IMAGINING THINGS, YOU SHOULD BE OVER IT, YOU SHOULDN'T HAVE ANY SIDE EFFECT FROM THIS DRUG, WHY ARE YOU DEPRESSED, YOUR TREATMENT IS OVER. BLAH,BLAH,BLAH!
WELL, I WILL TELL YOU, WE B/C SISTERS LISTEN TO EACH OTHER, AND WE, YOU CAN BE SURE, WILL ALWAYS VALIDATE EACH OTHER, EVEN WHEN YOU REFUSE TO.WE STICK TOGETHER. SO THERE! -
Yeah, Biondi, I wonder why so many providers look you square in the face and lie through their teeth? Do they not know? Or do they not care?
I had my GP tell me my on-going rib pain was not due to rads, and I know it was. My whole arm hurts if I do anything strenuous.
Oh well, Shirlann -
I hear you bc friends and think this is a great forum... what has cancer done to me?
It allowed me to re-group and re-assess the people in my life.
It made me aware of the fact that I definitely chose the wrong people
It reinforced my mental strength that I could go it alone and have
It took my two boobs and replaced them with smaller but firm and perky ones
It took away my youngest sister when she was 32 years old
It made me the 3rd of 4 sis to have bc
It gave me the brca gene
It gave my daughter the brca gene
It gave my 3 nieces the brca gene
It raised my stress and anxiety levels and caused months of sleeplessness
It may have given me hypothyroid and high blood pressure
It has made me decide to have my ovaries and uterus removed within a couple weeks
It has allowed me to take the last 17 months off work and several more to come ( disability leave...I am a teacher)
It has allowed me to re-think my profession which I am not happy with
It has allowed me the time to take graduate courses and focus on them without having to work( I was accepted into program prior to dx)
It has allowed me to see that even without working I am ever busy
It has shown me that I definitely can survive on my own and am happy with my own company
It has shown me that my daughter truly does not have love for me ( she called but didn't ask if there was anything she could do to help... didn't make any special effort to visit..she lives out of town, and didn't want my granddaughter to know because it might worry her)
It made me realize that there haven't been too many concessions made for me
I think it's made me stronger but also more of a loner
It also made me aware of one or two people I know who did come through and surprised me
But most of all it brought me into contact with the lovely friends on this site. I have learned so much and feel that this site has been a lifeline for me.
Thanks for setting up this forum. -
WOW, I have been reading the two threads here and really hesitated to comment. First off the very title of the threads is so off putting to me! I absolutely REFUSE to give breast cancer this kind of power over me. I am not giving "it" credit for one good thing. I give MYSELF credit for overcoming the experience of having had breast cancer. When I look at my life and see the beauty and joy of every single day, good or bad, I give MYSELF credit for that feeling. Cancer is a mindless, uncontrolled growth of some cells. To give it a personality or credit it with "positives" is giving to much of my own power away. When I lost my hair I didn't blame cancer. I said "thank God, looks like the chemo is working". I am taking the initiative to have as much of the breast tissue in my body removed, radiated, poisoned etc. Because I was a strong person before and am a strong person after.
Really it is the EXPERIENCE of a life threatening situation that has the power to make us stronger or take us under.
JMHO as always. Marsha
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