The Chemosabe March Cruise

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  • Keenie
    Keenie Member Posts: 258
    edited August 2007
    image


    Here is my hair, 15 weeks out from last tx!! I think it may be going a bit curly...
    Christine
  • jacqniel
    jacqniel Member Posts: 720
    edited August 2007

    You look darling. I hope you are going commando, because the short do becomes you!

  • playwriter
    playwriter Member Posts: 316
    edited August 2007
    Jacque -- i agree, you look great as a platinum blond.
    Christine -- you look awesome! what a kind face you have.
    i have hair envy! i'm 4 weeks out and have a few stray white hairs, but that's it. when mine is that short, i'm going in to get my ears pierced for a third time. and maybe at the top of the ear lobe, too.

    PET scan was ok today. not as bad as i had feared. she had trouble finding a good vein to stick, but i got to sit and read for an hour after she injected me with the radioactive stuff.
    then, since i hadn't slept well last night, i actually dozed a bit during the procedure itself, until she came in to tell me we were halfway there. i hummed hymns the rest of the time to pass the time. my left arm got tired of being above my head tho!
  • Keenie
    Keenie Member Posts: 258
    edited August 2007
    Well, I had to post a pic cos I couldn't let Jacque get away with all those hot new looks!

    Terri, I'm glad your PET scan was easy to handle. I have heard that cancer patients where I live do not get a PET scan unless they have liver cancer. Canadian, socialized medicine has its disadvantages. . . but I'm going to check about that. I see my onc Sept. 14 and I think I may only have blood work and another MUGA to see if the AC did anything to my ticker.

    We had a week away and I must admit it was nice not to cook supper for 6 days. I found myself feeling melancholy at times, wondering if we'd be back to this lake again in the future, feeling sorry for myself, surrounded by all that annoying bc baggage. But, I kept asking the Lord to help me relax and not be so melodramatic. And Terri, I loved that you sang hymns during your scan! I found myself singing Sunday School choruses as I walked to and from my rads. It's good to keep focused on how great a God we have. Our times are in His hands.
    Christine
  • playwriter
    playwriter Member Posts: 316
    edited August 2007
    Keenie, here is your memory verse for the week!
    Psalm 118:17 (NIV)
    I will not die but live, and will proclaim what the LORD has done.


    Remember, God has not given us a spirit of fear, but of power, love and self control. I hate to think of you being sad and fearful. I've had my moments, too, since my dx, so i understand feeling that way. But i want all of us to live in confidence in God's love and care for us!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Keenie,

    WOW!!!! You have loads of hair!! I have hope! I am about seven weeks out and I am very fuzzy. To think I may have that much hair in a few short weeks is very encouraging. Thanks so much for sharing your photo.

    I know what you mean about feeling melancholy at times. I think that is perfectly normal and even unavoidable! The important thing is we don't live there, we just visit every now and then. You are a witty and beautiful woman and you have made my way a little bit easier, as all the sweet ladies here have!

    Terri,
    Glad the PET scan went well. I hope you have great results from it, also!

    Miss S
  • Keenie
    Keenie Member Posts: 258
    edited August 2007
    Thank you Terri - and Miss S. I am so glad for that verse! I'm going to the Women of Faith conference this weekend in Calgary and I'm sure it's going to be just what I need. As well as you dear ladies, that is.
    Christine
  • Angelflight
    Angelflight Member Posts: 163
    edited August 2007
    Keenie,
    I admire your hair 15 weeks out. I only still have the brown stubles at 8 weeks out. I don't think I'll have that much by Christmas at the rate I'm going.

    Playwriter,
    I've been taking the Biotin since chemo started. I hear it helps promote thicker hair growth expecially for those of us who are taking the Hormone Inhibitors later that will thin the hair back out. I started my Arimidex about 2 weeks ago and havn't had a problem as yet.

    Had my ultrasound done today and it was just what I expected. Fluid. Now will just have to wait and see what they're going to do about it. I've had this since the drains were taken out right after the Mastectomy in Jan. Hopefully there will be a light at the end of this tunnel that WON'T HURT TOO MUCH..........lol.

    Jacque,
    How are the wedding plans coming along? When's the wedding? Soon I would think. Loved the pics with the new hairdos...hehe.

    Angel
  • pmarsh34
    pmarsh34 Member Posts: 108
    edited August 2007
    Jacque, I agree, the blonde look is definitely you!

    I have just enough hair at 6 weeks out to make my head look like I have a five o'clock shadow. But that is still better than shiny bald!! Also, my hot flashes have let up some. I don't seem to have them quite as often and they don't seem to be as intense. Of course, after the hysterectomy and ooperectomy the end of this month, that could all change again!

    I loved the idea of having a party for all the people who helped along the journey. I might have to do something similar when I actually finish treatment. Maybe a pancake breakfast at church or something. Hmmm, I guess my brain is starting to work a little better, too!!
  • dmknanny
    dmknanny Member Posts: 60
    edited August 2007
    Hello Fellow Cruisers!
    I haven't been here for awhile, so I am spending the afternoon catching up with everyone. Glad to hear of so many treatments ending, tests and scans being positive, hair growing back and SE's diminishing, and positive outlooks. I finished chemo June 28 and started rads July 23. I will be done rads August 30 - having 28 with no boosts at the end because I already had the TRAM flap recon Feb 6 when I had my bilateral mastectomy, and my rad onc & PS don't want to push it. Did not think I would need rads, but the 5.1 tumor changed THAT in a hurry....then thought I would not start until mid-September after vacation, but then Dr decided to get it all in BEFORE vacation September 7. SO here I am. It's not too bad, but I'm starting to get itchy and pimply in my upper chest area where the nodes are being radiated. They added cortisone cream to the calendula cream I've been using, so hopefully that helps. Otherwise I'm glad it's summer and I can wear lower cut tops that leave the irritated area exposed - although sometimes I feel like I'm exposing TOO much! Oh well. they aren't real anyway, right.......
    I was in a real funk most of July. I feel better now, but am still tired and lack motivation to do much of anything. I also have been seeing a massage therapist for 3 1/2 weeks because of pain and stiffness in my neck - had a cervical spine xray Tues which was OK and am waiting for results of a bone scan I had on Wednesday. The MT says she things I just have lots of kinks in my neck and back that she is working out -- I think that when they tell me my bone scan is OK and I don't have bone mets then I will feel alot better! Also having very numb feet from the Taxol, and my legs feel very heavy, but I managed to walk about 2.5 miles today, so that was good! Am including a picture of my self - hair started out white, then turning darker, now kinda salt n'peppa...I'll take anything at this point! Will send the picture next as I need to review Terri's instructions first.
    Considering laproscopic oary & tube removal as a precaution - whaddya you girls think? Also, going to Univ of Mr for genetic counseling & testing Aug 29....have any of you done that? There is a strong history on my Dad's side (that I'm just recently learning about!) and I have an older sister, a daugheter & 2 granddaughters....sister & DD want to know, so..
    Terri - I hope you are not being affected by the hurricane.....please let us know!
    Think of all of you and pray for us all often......
    Diana
  • dmknanny
    dmknanny Member Posts: 60
    edited August 2007
    This is my hair 7 weeks out......... image

    GEEZ! That's scary! It looks much grayer in this photo than in the mirror! Sorry it's so big........
  • jacqniel
    jacqniel Member Posts: 720
    edited August 2007

    You look 'mah ve lous'. Another one who looks great in the short do. It's fun seeing your Moss paintings in the background, too!

  • maxgirl
    maxgirl Member Posts: 407
    edited August 2007
    Love seeing the hair progress. Christine and Diana -- you both look great. No fair, Diana -- you ended chemo two weeks after I did and you've already got hair that stands up!
  • playwriter
    playwriter Member Posts: 316
    edited August 2007
    love your hair, Diana!
    we are keeping posted on Erin to see if she is going to hit here or veer off....
  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited August 2007
    Playwriter….good luck with the Pet scan….glad it was uneventful.

    Jacque…I love your different looks…I’m going to try that….probably the only way I see myself with hair for awhile.

    Keenie…I agree with Jacque….commando….you look great! I think we all have our times of worry…but I must agree with Terri…she said it beautifully.

    Angel…happy to hear that your ultrasound showed only fluid…but what a pain in the but that is…hope they solve that problem quickly…you’ve been putting up with that for a long time.

    Diana…good to hear from you. Prayers for clean scans…bet you are enjoying those massages. Your hair is really growing….are you using anything special? I finished chemo on June 26th and don’t have near as much as you.

    I would like to ask you girls for prayers for one of my daughters and her family. She was 4 ½ months pregnant and lost the baby. They live in Virginia and we immediately came up (why I’ve been missing for the last couple of days)

    Prayers and hugs to my sisters….don’t know what I’d do without you.
    Nancy
  • Keenie
    Keenie Member Posts: 258
    edited August 2007
    Nancy, we'll have you all in our prayers. What a loss for your dd and her husband, and for you as well. I have been where your dd is and it is a very sad time, but trust that her faith, as strong as yours, will help her through. Sending you some cyber hugs,
    Christine
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Nancy, I am so sorry to hear about the baby being lost. So very sad! My best friend just lost a baby three days ago.
    SHe is trying to keep her eyes on the Lord, but you still have to work through the grief.

    I'll definitely include you and the family in my prayers. May God touch you all with the comfort only He can give.

    Miss S
  • jacqniel
    jacqniel Member Posts: 720
    edited August 2007

    Oh, Nancy, so sorry about the baby. It is a hard thing to go through - I, too, had to grieve through two of my own. Prayers for comfort and peace for you and your family.

  • BettyeE
    BettyeE Member Posts: 267
    edited August 2007
    Jacque,
    I love you as a blonde # 2 and also the last one. You go Girl!!!
    Bettye
  • maxgirl
    maxgirl Member Posts: 407
    edited August 2007
    Nancy: I was just thinking about asking where you were. My sincere condolences to your daughter and your whole family. It's such a hard thing to deal with, and the hormones are going crazy too. I'll be holding all of you in my thoughts.
  • playwriter
    playwriter Member Posts: 316
    edited August 2007
    So sorry about the baby. the group Watermark has a song called "Glory Baby" that she (it's a husband/wife duo) wrote after she lost a baby. i don't know if maybe that would help?
    such a sad thing to happen. i pray for her comfort. sending you hugs.

    where's Taurie?
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    terri,

    Thanks for posting this song. I sent it to my friend who lost her baby and it meant so much to her!

    Miss S

    Watermark \ Glory Baby

    Glory baby you slipped away as fast as we could say baby…baby..
    You were growing, what happened dear?
    You disappeared on us baby…baby..
    Heaven will hold you before we do
    Heaven will keep you safe until we’re home with you…
    Until we’re home with you…

    Miss you everyday
    Miss you in every way
    But we know there’s a
    day when we will hold you
    We will hold you
    You’ll kiss our tears away
    When we’re home to stay
    Can’t wait for the day when we will see you
    We will see you
    But baby let sweet Jesus hold you
    ‘till mom and dad can hold you…
    You’ll just have heaven before we do
    You’ll just have heaven before we do

    Sweet little babies, it’s hard to
    understand it ‘cause we’re hurting
    We are hurting
    But there is healing
    And we know we’re stronger people through the growing
    And in knowing-
    That all things work together for our good
    And God works His purposes just like He said He would…
    Just like He said He would…

    BRIDGE:
    I can’t imagine heaven’s lullabies
    and what they must sound like
    But I will rest in knowing, heaven is your home
    And it’s all you’ll ever know…all you’ll ever know…
  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited August 2007
    Christine, MissShapen, Jacque, Maxgirl and Terri,
    Thank you for your prayers and hugs..they mean a great deal to me and my family. I too have experienced this loss with a miscarriage and a stillbirth. My daughter and her family seem to doing okay. Thank you Terri for "Glory Baby" it says it perfectly and is a great comfort.

    You girls are so special!

    Love to my sisters,
    Nancy
  • jacqniel
    jacqniel Member Posts: 720
    edited August 2007
    Hey everyone! I am going to post even though I don't have anything interesting - I just miss hearing from you all!
    I had tx a week ago yesterday and have felt just pretty darn good the last two days. I am going to go visit some of my old students (they attend the district's Young Adult Program) today at lunch, so that will be fun. I still haven't gone up to the high school to visit my former students and coworkers as the first few weeks are nothing but chaos - and I don't want to add to that!

    My son's wedding plans are on hold while he and his fiance get settled up in Minneapolis - she starting a new job and he starting law school. It seems so odd to have a child old enough to get married, etc. Where do the years go?

    I have started looking at dresses for myself, but just looking. Since my weight can fluctuate so much depending on what chemo I am on, I am going to have to wait for awhile.

    Rosebud's daughter got married last weekend - and wow was she a beauty (from pics on Rosebud's blog). You'll have to fill us all in, Rosebud!
  • Keenie
    Keenie Member Posts: 258
    edited August 2007
    Hi everyone!
    Had a wonderful time at the Women of Faith conference this past weekend and it was a great boost. I recommend it. Sandy Patty sang and she was amazing. She was my mum's favourite and it made me so happy to hear her, live and in person. Also heard a hilarious comedienne/singer, Anita Renfroe, who did a piece on mammograms that was great.

    My niece has pestered me sufficiently to sign up for a 5K 'Run for the Cure'. We'll do the race on September 29.

    Now, I'd prefer to 'Shop for the Cure', or 'Luncheon for the Cure', but she really wants to run. So, I shall try not to embarass her too much by turning the race into 'Crawl for the Cure'. Right now, I can run for 7 minutes and then walk for 3. I've never been the runner in our house - my DH runs marathons - so a brisk walking pace should be fine too! My DH, DD, SIL, and two nieces will come with me.

    Hope everyone is feeling well. I've been setting up my classroom this past week, and I over-did-it yesterday and felt crummy last night. I had nausea again and had to take an anti-nausea med before bed. I've been feeling so well that I forgot it hasn't been all that long since I finished tx.

    Jacque, I'm glad you're feeling well. How often are you having chemo?

    Taurie, where are you?

    Christine
  • rosebud1962
    rosebud1962 Member Posts: 196
    edited August 2007
    Fill ya in..where do I start??? First thing we had to do was stop at the gas station for Kleenex cause I started crying before we even got to the church. I couldn't help myself. I've come so far to get to that point and I cried. I cried when I did see her and then again helping her dress and then again..again..again..I was a sobbing mess..LOL I think I could cry right now..LOL She looked beautiful!! I couldn't believe that I made something that beautiful. I did ask what she had done with my daughter. Weather was perfect and we all had a great time.
    I hope everyone is feeling good these day...Hugs..Rosebud
  • 3boys4me
    3boys4me Member Posts: 319
    edited August 2007
    Hi Ladies,
    Just checking in. I have a 4 pm today dcotors appointment to find out if I get more surgery or if they will leave things as they stand and move on to chemo. I'm bracing myself for news of a mastectomy and hoping I'm wrong. I just don't want to be disappointed. Either way, I know I'll get more chemo (4 cycles of AC) and it's just a matter of timing.
  • jacqniel
    jacqniel Member Posts: 720
    edited August 2007
    3boys - what did you find out? Sometimes the waiting is worse than the reality of what we have to face. Please keep us informed!

    Keenie - I have tx every three weeks right now. It may change to weekly the next time (Aug. 4) as my side effects were starting to get so bad - but this time, while I felt very punk last week I have rallied quickly this week. Go figure. I guess I will let my onc make that call.

    Rosebud - I am still waiting for a pic of you and hubby in your finery!
  • Keenie
    Keenie Member Posts: 258
    edited August 2007
    I can't imagine having tx every week. Mine was every 3 weeks and when I read about you girls that were going "dose dense", I was so impressed with how well you handled it. By my last cycle, I didn't even feel halfway decent until the third week!

    Jacque, you continue to be an inspiration.

    And Rosebud, I'd love to see you in your mother-of-the-bride duds too!
    Christine
  • jacqniel
    jacqniel Member Posts: 720
    edited August 2007
    Actually, Keenie - I think you were (and I am) doing the dose dense. We took/ take one big hit and then wait three weeks. When it is done every week, they take the same dose we had/have and divide it up so the body takes less of a hit. Make sense?

    Four and a half years ago, when I went thru my first tx I had A/C and taxol all together every three weeks. I was one sick puppy. My friend, who got the beast a few years after me, got A/C first, then 12 weekly infusions of taxol. She did SO much better on this regieme without as many of the SEs - but it was drug out over a longer time. Either way - it stinks - but it is what keeps up going.

    3Boys - still waiting to hear?

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