anyone starting chemo in Nov 2005

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  • Margerie
    Margerie Member Posts: 526
    edited August 2007
    Odalys,

    Has your sister heard yet? I am so sorry you are going thru this. I have 2 sisters and it kills me to think this could happen to them. I am hoping nothing but benign for your sis!

    Kim- how are you? I hope you are not too worn out from the summer and the new treatments. Have you had your other scans yet? I am routing for you girl!!

    Anna- you must be having too much fun. We haven't heard from you in a month!! I hope your trip is good for your soul.

    Love the pics Mary Lou. I get a little choked up when I see pictures of me when I am young and innocent, not knowing what wave is going to crash down on me in 2005.

    Doing well my Nov sisters. My plastic surgeon told me at my last visit that I am one of his favorite patients. He is sympathetic to my situation, with no pity. I figure he must really love his wife. A pleasant surprise from a big-time surgeon.

    Speaking of marriage- I thought this would be hard on it, but we are better than ever.

    Best wishes everyone,

    Margerie
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  • kim825
    kim825 Member Posts: 284
    edited August 2007
    I wrote this whole post and it disappeared.

    I am done with the WBR and it was the toughest thing I've had to go through. I have a 2 week rest and then a BRAIN MRI to see how well it worked. We may be doing boosts to the big spot. Still on the steriods and face is swelling by the day. My PET/CAT scan which was supposed to be this past Monday got switched to tomorrow. The machine was down and they couldn't fit me in until tomorrow. I will get those results on Tuesday and start a new chemo. Probably will be Gezmar and Navabline (not sure if I am spelling them correctly). Because of the skin spots coming out that is why he is changing chemos. So that is where I am up to with all the crap. I gotta tell you as much as I been strong and positive the last few days have been tough emotionally. Sometimes I feel my back is against the wall and there is nothing they can do for me. I know this isn't true and as long as there is a chemo to try I will do it. It just sucks.

    Odalys, I am so sorry to hear about your little sister. This must be so hard for you and your family. It sucks to go through it yourself, but when you see a love one go through it now it just plain sucks. (sorry to be using that word so much but it just does). I will be thinking and praying for her and your family.
    Margerie, glad everything is going really well with the surgeon and your marriage. I have read so many horror stories about marriages breaking up over this.
    Deb- glad you had a great time when you went "home". I am sorry to hear about the woman at church.
    Anna, we miss you.
    ML- welcome back. I am glad you were able to help out your friends and spend time with the grandson.

    That is it for now. Will always keep you updated. I pray for good health and happiness for all of you.

    Oh by the way, yeah come to PA.

    Love,
    Kim
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  • Margerie
    Margerie Member Posts: 526
    edited August 2007
    Oh, Kim- I am sorry to hear you have been having a rough time. WBR and steroids do not sound like a lot of fun. Please don't envision the wall. During your MRI imagine yourself running free from that wall!!!! I do hope August 17th is your lucky day- a bit overdue in my opinion!

    Thanks for keeping us updated. Will be thinking of you tomorrow.

    And Odalys, I hope you and your sis did not get bad news. I don't even want to think about it.
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  • Odalys
    Odalys Member Posts: 2,103
    edited August 2007
    Thanks ladies for worrying about my baby sister. I really appreciate all the prayers and well wishes. I still think of her as my baby sister since there is such a big age gap. But, she is 35 years young. Anyway, she had her bx today and all went well. She is very positive it will be B9. I too will hold on to that thought. We won't know until Monday or Tuesday.

    Dear Kim - you are going through so much. It's okay to vent. I'm with you it sucks big time!!! Like Margerie said, imagine yourself running away from that wall. I will continue to pray you get good news. How are the kids? Are they ready to go back to school yet?

    Margerie - it sounds like you had a good summer. When are your kids going back to school?



    Well, I had bilateral mammograms done this week and got the all clear. But, today I saw the breast surgeon and he thinks he felt a swollen gland around the clavicle area on the surgical site so he did a needle bx and sent the specimen to the lab. He thinks the gland is swollen because of all the radiation I had to that area but he wants to be certain it’s not mets. For now, I am holding on to the thought that radiation is the culprit. I’ll keep you posted.

    Love and hugs,
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Hi sisters,
    Just a quick update and prayer request...I have been having some pain on the affected side lately. It is pretty centralized and tender to the touch. I called my PS and he is having me get a mammo done next week "just to be sure," so of course my mind is running wild. I have been having a weird thing in my throat lately, too. Kind of the need to cough at times, sometimes feeling a bit hoarse, just a sort of discomfort that is sort of there (make sense?). My onco. put me on a z-pack, I saw a clinic doc yesterday because I thought I had an UTI (I don't), and I pelted her with questions too. She assures me it is nothing, too. I just want to know why it is sort of there, and not going away!

    Kim-oh MAN! That is all I can say. Cancer really sucks. I am just sorry that you and your beautiful family are getting slammed with one thing after another. Someday, you will be running free from that wall and not feel like this is just sucking you in constantly. We love you.
    Love and prayers, Deb
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  • kim825
    kim825 Member Posts: 284
    edited August 2007
    Odalys, I am praying for B9 results for your sister. I hope and pray that the radiation is the culprit. Radiation does funny things to your skin and what is inside.
    Deb, I know this must be very stressful right now. I hope and pray it is nothing to worry about.

    Lots of hugs, prayers and great thoughts for all of you.

    Love,
    Kim
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    image
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  • LAT56
    LAT56 Member Posts: 79
    edited August 2007
    I haven't been able to post as there were problems with my password! But I have been reading your posts and ALL of you have been in my thoughts & prayers.

    LAT56
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  • Odalys
    Odalys Member Posts: 2,103
    edited August 2007
    We finally got results...B9 for both of us. Yeah!!!!!!! Thank God. We are so happy it's going to be difficult coming down from this adrenaline rush. Thanks for all the prayers and well wishes.

    Love and hugs to all,
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Oh PRAISE GOD!!! I am so happy to hear of your wonderful news! You must feel so relieved for the both of you!

    Ok, now can everyone send those prayers in my direction for a few days....I have a chest x-ray, mammo (??? don't ask, I don't know why my ps is having me do that with implants?!?!), and ultrasound on Friday.

    I love you all!
    Love and prayers, Deb
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    Deb, sending love to you....

    image

    Marg, great news!
    image
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    Kim ,

    image
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  • kim825
    kim825 Member Posts: 284
    edited August 2007
    Hey all,
    Odalys that is such wonderful news. I am so happy for you and your family.
    Deb, lots of prayers and positive thoughts coming your way.

    Now...
    Not good news with me. The bottom line of the PET/CAT scan was progression EVERYWHERE. My oncologist was pretty somber this time. Different that I've seen him before. It just boggles my mind how things can be on the upswing in May and 2 months later so bad. When we asked for a copy of the report he gave it to us for our files, but actually said, you probably don't need or want to read it. Athony and I haven't read it. It is back everywhere, that is all I need to know. (actually I'm not sure about the breast). Our next chemo is Gemzar and Navelbine (sp?) It will be every other week. My platelets were too low to get the Gemzar so I only got Navelbine. I just don't know how many more chemos there are out there for me to try and how much more can my body take this poison? THIS JUST PLAIN SUCKS. Wish I could have come here with better news and I hope the next time I will.

    Thanks for all the prayers and good thoughts.
    Kim
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    Kim,
    I wish I had the magic words (and the magic potion) to ease the worries that you and your loving husband are feeling. I don't. I can only share with you my love and support. You are truly loved and prayed for on a regular basis.
    Love and TONS of prayers, Deb
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  • Odalys
    Odalys Member Posts: 2,103
    edited August 2007
    Kim - It's not fair. You are going through so much and are fighting so hard. I want good news for you too. You deserve it. God bless you and your family.

    Love and gentle hugs.
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007

    Ok, can you guys say a few prayers for me-I get my tests done today. Love and prayers, Deb

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    First, I have to say,
    Anna-I miss you!!

    Second, my tests really sucked. I was sent to the wrong building, 20 minutes away from where I was supposed to go. Then, my orders were faxed in last week, and on Monday, but nobody had them, at either location. Then, my docs kept having to re-fax them and they still got lost. Then, I was put in the middle of a big battle between the staff at each location. They were having words, and kept venting to me about how "stupid" the other people were.

    Slightly better news, my sonogram was CLEAR, I have to wait till Monday for results of chest x-ray, and they would NOT do a mammo. I knew it!

    Check my posting in moving beyond cancer. We had a HORRIBLE flood in our basement, and we didn't sleep at all last night, so I am going to snatch a little nap.

    Kim-I prayed for you and your family a lot while sitting in the doc offices. Hope you are doing ok. We love you.
    Love and prayers, Deb
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007

    Kim, I wish I could be there for you to lay your head on my shoulder. I have tears of sadness rolled up in my eyes, so I can't see to post more. Know that we all love and pray for you.

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  • Margerie
    Margerie Member Posts: 526
    edited August 2007

    I am hoping that navelbine and gemzar work their magic. I am so heartbroken, but hopeful! Big hugs and best wishes for a even a small victory soon for you and your family.

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  • Odalys
    Odalys Member Posts: 2,103
    edited August 2007
    (((((Kim))))))

    image
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  • kim825
    kim825 Member Posts: 284
    edited August 2007
    Hey all,
    I went today for the results of the Brain MRI. ALL CLEAR. The big spot where he thought he was going to do some boost is showing all dead cells. No need to do boosts. He sees nothing else up there. LOL!!! I am on the steriod 1x a day for another week and then will stop them. Yahoo! So I can rest up the next 20 days and enjoy my Disney trip.
    Thank you for the email, prayers and positive thoughts. I love you my chemo sisters.

    Kim
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    KIM!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

    That is the most wonderful news you've had lastely, isn't it!!!! I want to type more but my kitty keeps walking in front of the screen so I can' tsee!!!! I mean, I can't see.....
    Kim, enjoy your trip! Have a blessed time!

    I got a tidbit of good news today, too. My chest x-ray came out clear too! See ladies, God does listen and answer prayers!

    I love you all!
    Love and prayers, Debbie
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  • Odalys
    Odalys Member Posts: 2,103
    edited August 2007
    Oh such wonderful news Kim and Debbie.

    image

    I have a great big smile on my face and feel such joy right now. Woooooohooooo!!!!! Thanks for sharing the good news with us. I will continue to pray.

    Kim enjoy the magic of Disney.
    image

    BTW- has anyone heard from Anna. She has been MIA for a while. I sure hope she is having a great time.

    Love,
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    KIM!!!!!!!!!

    That is just the best news.....I'm so happy for you.

    image
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    Anna,

    image
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    Thinking of you all tonight.

    image
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  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    What a happy string of posts!


    Some cute Daniel things.....
    We were walking through the store and he was holding some Pirates of the Carribean "guys." The store lady walks to him and goes, "What toys do you have there?" He looks at her like she's crazy and goes, "They aren't toys." She says, "Well, what are they?" and he goes, "Guys."

    and did I tell you this one?
    I was cooking his mac-n-cheese and sweating up a storm. I said, "Oh, Daniel, Mommy's hot!!!!!" and he looks at me, puts his hand on me like I am the stovetop and says, "no, you're ok!"

    I walked in the house this weekend after getting a haircut. The lady styled it "differently" by parting it on the opposite side. Daniel runs to greet me at the door, stops dead in his tracks and goes, "Mommy, I don't like your hair."

    Oh, I have more where that came from!!!!!
    Love and prayers, Deb

    PS-I have been wondering/worrying about Anna too!!!!!!!!!!
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    Deb, that was to funny....They're so cute at that stage.

    Glad you liked the picture post....

    Anna, now that is enough hiding....Come out where ever you are. We need a report!
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  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    I added this to my Myspace page today. They're are over 100 friends on there now, I wish all of you were too.

    Click the link, also in my friends, click the pictures and it will show you the're page.

    Some really awsome ladies. Some are here on the boards with us.

    I thought this said it all

    image
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  • Odalys
    Odalys Member Posts: 2,103
    edited August 2007
    Deb - those stories are priceless. I love that age. They are so honest and loving. Please give him a big hug from me.

    Yeah, Anna. I know you are just having a blast but we really miss hearing from you. Please check in and let us know how you are doing.

    (((((Kim)))))

    Got to go to bed now. School started here since last week and schedules are crazy again, oh and traffic is an absolute bear in the mornings. Geeze, one of these days we are going to pack and move to the country.

    Pleasent dreams everyone. Love and hugs,
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