I hate having a BC history...

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Fitztwins
Fitztwins Member Posts: 7,969
edited June 2014 in Life After Breast Cancer
Today, I took one boy in for his tonsils, another for his eyes...we had to discuss his family medical history and my BC.

For some reason it just makes me sad. To have to list that on normal medical stuff. Cancer? yes, BC. mother.

I feel like my boys have lost thier family history of good health.

I remember being so proud my great grandmother lived to 99. My grand parents all into their 80's. Gosh, will my boys have that? The Fitz side is pretty much cancer free. They have anerysms (sp) and heart issue, but otherwise okay.

I was talking to my MIL yesterday her mom (DH grandma) died of BC. WTF???

Okay, I am off my soapbox today.

Janis
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Comments

  • Emelee26
    Emelee26 Member Posts: 569
    edited July 2007
    I'm sorry
    I come from a family history with a ton of cancer and it does get me down sometimes..but I did have family that lived old with the cancer....you will also...BC will be a thing that your boys can say..look, my mom overcame it
    Gentle hugs
    image
  • djd
    djd Member Posts: 866
    edited July 2007
    I can relate...

    Everyone on my dad's side of the family died from High Blood Pressure/Stroke related causes, no one lived past age 70 until my dad, who is 72. He is only still alive and with us, I am sure, by virtue of bypass surgery, a pacemaker, and lots of medicine.

    I don't have children, and, short of adoption, will never be a mother. Interestingly, my mother was given heightened scrutiny when a recent mammogram showed a suspicious area -- the reason being that she now had a family history, thanks to me! Thank goodness her biopsy was B9.
  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited October 2009
  • nosurrender
    nosurrender Member Posts: 2,019
    edited July 2007
    I don't have children Janis, but I know what you mean. I always used to cruise right down those little boxes checking no, no, no, no- now I have to stop and say yes at the cancer question.
    And if they ask for a surgical history I need to request more paper!

    Love,
    g
  • Margerie
    Margerie Member Posts: 526
    edited July 2007
    Me too. Not so much in the medical arena, as I know the history is very important in every aspect of my medical care, dental too. the docs know where I am coming from physically, and most know emotionally. I had a thyroid nodule and the doc understood why i wanted it out!

    But what I hate is the "etiquette of cancer". For instance, why am I bothered that a new aquaintance already knows my history that she heard thru the grapevine? I am tired of being cancer lady- I just want to be Margerie.
  • wallan
    wallan Member Posts: 1,275
    edited July 2007
    I can relate. However, my sister, who is two years younger than me, is really really freaked out about her chances of getting breast cancer now. She wants me to get genetic testing to know how much risk she is at. She is getting yearly MRI's of her whole body to make sure she catches cancer early AND she is scheduling a bilateral mastectomy and oophorectomy... she has gone bazurko!! And all because of my breast cancer history...

    Wendy A
  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited October 2009
  • gmarie
    gmarie Member Posts: 30
    edited July 2007
    Like TIna I don't tell except on a need to know basis. Sympathy has its place but is best given by those who really know and care about us. I don't want to have colleagues and students knowing too much about me and second guessing my every problem. That sounds so paranoid! I was raised to think LBJ had gone too far when he exposed his appendectomy scar on TV! So maybe I'm just old-fashioned. I do tell all doctors and dentists full hx since I think it goes a long way towards getting better care. I too was taken aback the first time I filled out a medical questionaire for my child's dentist and had to claim a bc connection for her. I felt so guilty for despoiling my children's relatively clean record!
    My best to all,
    G. Marie
  • LisaAlissa
    LisaAlissa Member Posts: 1,092
    edited July 2007
    Quote:

    I can relate. However, my sister, who is two years younger than me, is really really freaked out about her chances of getting breast cancer now. She wants me to get genetic testing to know how much risk she is at. She is getting yearly MRI's of her whole body to make sure she catches cancer early AND she is scheduling a bilateral mastectomy and oophorectomy... she has gone bazurko!! And all because of my breast cancer history...

    Wendy A




    Hi Wendy.

    I don't suppose there's much you can do to rein your sister in...but I was wondering if she has seen a genetic counselor? I suspect she could get a better sense of her real risk and appropriate monitoring--and maybe since it would be from an "expert" she would believe it.

    Just an idea, but if she's spending all that money on MRI's, etc., maybe spending a little on a session w/ a genetic counselor could help.

    LisaAlissa
  • Toronto
    Toronto Member Posts: 118
    edited July 2007

    Wendy, why doesn't your sister get tested herself? It makes much more sense than you getting tested.

  • linny
    linny Member Posts: 204
    edited July 2007
    Since I have two daughters (and two sons) starting a family history of cancer has been very distressing for me. I do not have the BRCA gene, but I still know that they are at increased risk. I also agree that I don't like being defined by cancer. So many people know I have had it, and I really regret that, because I know how I used to think about others with cancer before it happened to me! I know how much my family worried about me and it sort of a "double edged sword" - I am so grateful for their love and support, but so sad that they had to go through it with me.

    Linda
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    WEll, my DDs have to fill out their own family history as they are all adults now. However, I don't believe me having bc ups their risk. I was dxd after meno. But their gyn still wanted two of them to have a baseline mammo.

    There was no family hx of bc in my family either. However, how dumb was I to think I'd be in the clear!? Eight percent of women with no family hx gets bc.
    Shirley
  • Jorf
    Jorf Member Posts: 498
    edited August 2007
    Yes, do tell your dentist if you want the best care.

    Family histories are tough - mine involves all 4 grandparents dying fairly young of heart disease, my father having his first MI at 35 and dying 8 years after his second and stroke during CABG, mother having every part of the metabolic syndrome except diabetes plus "every other disease in the book". I felt nice and cozy about breast cancer even tho mom had it twice and my younger sister had it. (Turns out mom is BRCA neg.)

    We didn't choose our parents.... But do have to learn to live with our genetic predispositions.
  • threadbear
    threadbear Member Posts: 50
    edited August 2007

    I had no history of bc, and my relatives all lived (and are still living) long lives, into their 80's and 90's. I have 2 sisters, and I'm concerned about the younger one, as the older one had a benign lump removed years ago. Fortunately, she has been very good about getting her mammos on time. Still, somethimg could pop up within that year that could get to a big size. My 24 year old daughter now says "Gee, getting old sounds like SOOO much fun!" She currently has no medical insurance that covers office visits. She just graduated from college and is looking for a job. I hate that med. ins. is tied to employment!

  • abbadoodles
    abbadoodles Member Posts: 2,618
    edited August 2007
    Jorf, just curious. How do you think knowing my bc history would change my dental treatment? I'm not being argumentative, just think I may have overlooked something obvious.

    Tina
  • wallan
    wallan Member Posts: 1,275
    edited August 2007
    Well, my sister told me she went for genetic counselling and they told her it would be FREE for me to get it. So, she is pushing for me to get it.

    I don't really understand her over the top anxiety. I think her family doc is fuelling some of it.

    All I can do is offer her lots of cyberhugs. We live across the country from each other.

    Wendy A
  • lvtwoqlt
    lvtwoqlt Member Posts: 6,162
    edited August 2007
    My mother is a 6 yr bc survivor and her sister died in 78 with ovarian cancer. My mother had the genetic counselling and testing done after her surgery because she was told that the person dx with bc needs to be tested first. If she is found with the BRACA gene then is easier to find the gene in the siblings/daughters. My mother had the test and was negative, this year I was dx with DCIS so much for genetics.

    Sheila
  • Toronto
    Toronto Member Posts: 118
    edited August 2007
    Ya'll know this just makes me wonder?

    So just what does a mother's BC have to do with a son's eyes? So if Wendy is BRAC free what does that say for her sister - darn close to absolutely nothing. Nice that it is free but you get what you pay for. Why does everybody and his uncle need to know what my great aunts died of?

    I have a great nephew with hemophilia, probably one of the most famous hereditary diseases of all time. Well after much testing - it is a mutation. His grandmother, his aunt his mother don't have the gene. It's just him. Mutations happen, it isn't all inheritance.

    None of us has bequeathed our children a perfect genetic make-up - such a thing doesn't exist. People need to stop beating themselves up, family history is just information - not destiny.
  • ginger2345
    ginger2345 Member Posts: 517
    edited August 2007
    Tina,

    I like the "need to know" approach. I can't see how the dentist knowing you had bc helps him. Now if you're on a med that could effect the kind of painkiller he uses when he deadens your gums for a procedure--that's another thing. I've also seen an orthopod who had this long history form--what surgeries? I didn't mention bc.
  • LizM
    LizM Member Posts: 963
    edited August 2007

    Janis, I now hate filling out those medical forms and having to list my cancer history. It makes me sad. I had genetic testing done and tested negative for brac1 and 2; however, the letter I received from the genetic counselors indicated my daughters have a 30% chance of recurrence due to a mother diagnosied at 49 and aunt diagnosed at 53. I am hoping they can start mammograms and MRI's at 30. My oldest daughter is 28 and yes it bothers me that my daughters will be listing having a mom and aunt with bc on medical forms a lot in the future. I just pray that they will have good insurance for all the tests ahead of them. It saddens me that I have passed this worry on to them.

  • LizM
    LizM Member Posts: 963
    edited August 2007

    Oops, that should have been 30% chance of getting bc not recurrence. Guess that tells you where my mind usually is.

  • Margerie
    Margerie Member Posts: 526
    edited August 2007
    Your dentist is not trying to be nosy. Breast cancer treatments are systemic (whole body) and can affect your oral health. Also as mentioned, important to tell dentist of all your medications and why you are taking them.

    Even after active treatment, you will want to watch your teeth and gums closely. Your dentist can also help if you are having trouble with oral hygiene if you suffer carpal tunnel, or joint pain from hormonal therapy.
    http://www.cancerwise.org/june_2006/disp...&color=blue
  • GreenHeron
    GreenHeron Member Posts: 85
    edited August 2007
    Tina,
    I have implants and so need to take prophalactic antibiotics prior to dental work; and the chemo affected my gums, so I did tell my dentist.

    I don't have as hard a time sharing, I guess. I have no family history of cancer, but have been found to be BRCA2 positive, and so i WANT the kids' doctors to know and check skin, etc. more closely.

    Pragmatically,
    Flashdif
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited August 2007
    I'm just hoping it stays HISTORY!

    Margerie, sounds like you know a Dentist...Hmmmmm ,LOL
  • slanderson
    slanderson Member Posts: 152
    edited August 2007
    I feel kind of like a medical outcast with regard to my bc. I used to have a donor card signed in my wallet, in case I got in a car wreck or something, I always felt good to know that my heart or something would go to help someone else. Now, after bc, nobody wants my donation, if you will. I just threw my card in the garbage a few weeks ago.

    Shannon
  • magsandmattsmom
    magsandmattsmom Member Posts: 424
    edited August 2007

    I hate it too. I hate that everytime I have a new dr I have to explain the whole thing. I really hate it when I meet new people - like co-workers - and I have to eventually explain it to them. I wonder at what point I won't feel like they need to know or that I should tell them. When it will be far enough in my past that I doesn't "matter" anymore if that makes sense.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007
    I think about this alot. Hate filling out new medical histories and having to write yes to breast cancer. Somehow it brings back reality to me everytime.

    My dentist is a big part of my healthcare team. Ever since bc and chemo, she has me come in for a cleaning every 4 months. When I went to her last week for a cleaning, she found a white spot on my gum. Immediately said, "normally I would worry about this but with your history we may suggest you get it biopsied!" Ohhhhhh I hate that "because of your history."

    Nicki
  • linny
    linny Member Posts: 204
    edited August 2007
    Margerie, thank you for the link, that was very interesting - I have a fair bit of trouble with my teeth, lots of crowns, just had a root canal done, but it is over a year and a half since treatment - I always tell them about bc.

    Linda
  • Fitztwins
    Fitztwins Member Posts: 7,969
    edited August 2007
    Yeah, for my eye exam the Dr. said because of your history we should dialate every year. I said, if it does hit my eyes then what? Seriously at that point it would have spread pretty much every where. BC is one of the few that mets to eyes. Although rare.

    still sucks.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2007

    I hate having to list all the cancers in my family just because it really makes me feel sad, but as far as the doctor or dentist, they need to know your whole medical picture in order to give you the best medical care possible.

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