Breast Cancer - It's Time to End the Fear
http://www.telegraph.co.uk/health/main.j./hbreast123.xml
Comments
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Thanks. That was really interesting.
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wow,loved that story!!!
Thank you for sharing! -
Liz,
Exactly what I needed to hear today. Thank you for sharing this!
Mimi -
Thanks for posting the article, it is very good. I too find the fear of recurrence is pretty constant, even though I do not talk about it with family and friends (only my husband knows how scared I sometime feel). But I have to admit there are a couple of things in the article that I don't think are true. Firstly, the term chronic seems wrong for breast cancer. Either we are in remission (nobody at my cancer center says "cured" to me - stage IIb)or if someone has a recurrence, that is active cancer. The stats on mets are not good, and the comparisons to diabetes or heart conditions are wrong. Those illnesses are chronic in a different way and can certainly be managed - mets cannot be managed indefinitely.
I do find October a bad month - constant daily reminders. I also don't like the names of the charity events - for example a major one sponsored by my hospital (Princess Margaret Hospital) is called "weekend to end breast cancer". Well most of the money raised goes to survivorship programs, which certainly do not "end" b.c.
Okay, enough venting.
Linda -
Thanks, Liz M, for posting that article. I found it very interesting reading. I think I'll share it with some of my non-BC friends.
Lots more uplifting than than article on Elizabeth Edwards someone posted the other day. That author mentioned EE's dying nearly every other sentence. -
Liz--very good article. What struck me the most was the comment that no matter what kind of bc you have, fear is what unites us. That's for sure.
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Interesting article. The emotional struggle was definitely the hardest part for me too. Cancer is what it is- no "happily ever after" unfortunately. I am "mostly happy, each day after."
My husband and I are doing well, but every time someone says "You are in the clear now right?" "Doctors got it all and are giving you the green light, right?" It kind of feels like a slap in the face because no- it doesn't work that way. -
"Alexandra is one of more than 44,000 women - and men - diagnosed with the cancer every year. "
This quote seems like a low number.....I thought it was 200,000 a year. Does anyone know?
Not sure how I feel about the article. I don't think of cancer as "chronic". Hmmmm....interesting though
Deb C -
The article is from the UK and I suspect those are stats of the UK not US. I found the article uplifting. I would love to think of bc as a chronic disease but I can't quite wrap my mind around that notion yet; however, I do believe we are heading in that direction.
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Interesting article. I am glad you posted it. Although since I fall into the category of young with aggressive cancer I don't think it really applies - unfortunately I'm still scared s*&tless of recurrence.
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That makes sense about the numbers Liz....thanks
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I think the optimism is encourging but I was a bit troubled. if it is a chronic disease that pretty much refers to mets, not folks who are NED. And women with mets, yes it should be seen as a chronic disease but those sisters need a cure and what we have now for them isn't enough. I just think about the women from these boards who have died recently and I don't want everyone to relax and think the battle is over.
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Alaskadeb....44,000 is the UK annual bc number. I suspect it will be a heck of a lot more per annum in US.
The Telegraph is one of our more 'brainy' papers, USUALLY articles by them are believable.
I still cannot ever believe that bc will become a 'chronic disease', still cannot ever live easy with this thing, it is just too big a thing, for me at least, to think I will still be standing in 10 years.
We are told there are 44,000 new cases a year, we are also told there are 12,000 deaths a year, so that means nearly a quarter of all diagnosed will succumb......maybe not straight away, but it IS still happening, and it shakes me to my core.
Maybe it means that here in UK our treatment is so shabby, and the medical staff so unconcerned about how it REALLY affects us that thats just something we have to learn to accept. I have come up against drs that don't want to explain, don't want to give us the best shot, because the best shot is usually the most expensive option. Drs that want you in and out of their office as quick as poss. Drs who delegate to their juniors, who are only on the bc dept. for 6 months, so why would they bother ? A bc nurse who wanted to 'come and help me put labels on all my possesions' and get my 'house in order' 3 months after my dx.,4 years ago.
OK, so I am off on a rant here, but I can't ever see the end of fear in this country. Maybe if the medics succeed in telling us all 'there, we got it all' (as I was told after my bilat,)enough women will start to believe them !!Apart from, that is, the unfortunate 12,000 who die of this disease each year.
Isabella. -
LizM,
Interesting article, thanks for posting it. Forgive my comment if it seems harsh but I'm 4months into this journey so everything is still new to me.
The article sounds to me like they think bc should go on a back burner since its a "chronic" disease that we just live with. Yes, in some ways it is and we try to just live with it. But for me everyday is different and I don't know what it will bring -- good or bad so that fear of the unknown is very real no matter how much I try to pertend otherwise. I feel like I'm an experiment every day so cancer doesn't have a formula on how to have successful outcome. I just hate the thought of other women who will develop BC going through the mental agony that this disease puts you through until you wrap your head around it enough to live and survive one day at a time. No one has said to me "if you take your meds and follow my instructions you can live a long life, or 5yrs, or 35yrs or whatever with this disease".
Yes, treatments are a lot better, we're living longer and its very commonplace but does it get to be routine? Do you consider cancer just a part of getting old(older), its no big deal -- would everything be okay if somebody just told you don't have to be afraid anymore even though there's no cure or way to prevent?
I want somebody to make it go away not just change the label. Just my thoughts -
I just spent some time looking for worldwide breast cancer diagnosis numbers and was amazed how little I could find, and how vague the info I DID find was!
Maybe it is just American arrogance, but I had never listened hard enough to the statistics I thought that the aprox. 200,000 women Dx a year was worldwide, but that is just North America.
I was further appalled that MANY countries have such poor health care and tracking abilities they have no idea how many women are dieing of breast cancer .it seems no one knows I guess that is makes sense that if a country is immersed in civil war, poverty or oppression, no one seems to know or care how many women are dieing. How awful! After a bit of poking around the internet I think I need to quit complaining so much about my treatment glitches there are thousands of women dieing of breast cancer that are going undiagnosed, untreated, even uncounted in their death..
On a personal level I was also spooked by statistics that broke the diagnosed people into states. It seems over half the folks Dx in Alaska die from their breast cancer! WAY higher than other states .I wonder why?? Maybe people living far from treatment options so they ignore symptoms? Maybe the high tobacco and alcohol use in AK??? It scared me I should KNOW better than to play around with statistics. I ALWAYS find something to worry about
Off topic a bit .sorry Liz. The article certainly made me think though
Deb C -
As much as I hate statistics - - - here are some interesting worldwide numbers:
http://www.imaginis.com/breasthealth/statistics.asp
One thing to keep in mind with the number on deaths vs. the number of new cases. The death numbers are for all survivors (not just the current year's numbers). I've seen the number somewhere, but can't remember where. I 'think' it was something like there are currently about 2 million (probably this is not the correct number) bc survivors in the United States - the number of deaths are out of that number (or at least whatever total number can be tracked) - not just out of the new cases for the current year. -
I live in Washington DC, which has THE HIGHEST rate of breast cancer in the country. So if you are thinking of moving away from Alaska, don't think DC (though I do love my city).
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OK, I just looked on the link of incidents by state and DC has one of the highest number of cases but it isn't a state, its just a city. So that confirms what i've heard, that we have the highest rate in the country.
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