Breast Cancer Outcome inherited

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AggieFan0606
AggieFan0606 Member Posts: 20
edited June 2014 in Life After Breast Cancer
Did anyone else read the article posted on this website? A study done that shows outcomes are similar between mother/sister, etc. Great if your mother and sister made it....my Mom died within a year (30 yrs ago). Not too comforting for me. I find so much valuable info on this site but then something comes along (ex: this study, the vegetable/fruit study, etc.) and tends to knock me off my "positive". I am just over a year out. I do realize treatments have changed tremendously, though, and not all studies are accurate. I struggle with how much I should read or "not read". It can be overwhelming at times. Anyone else feel like this?
Mimi

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    Mimi,
    I know its really hard, but try to focus on the fact that you are in the "new age" of treatment options that your mom didnt have 30 yrs ago....

    I struggle with the "what to read/what not to read" issue as well...I am the first in my family to ever have breast cancer...there are many other types of cancers in my family but I for some reason got to be the one with BC...I try to only read things that I think might pertain to me and the rest I leave alone, but it is really hard...

    I hope you are able to find your "positive" again!!!!!!

    There is a thread here that is called the "positive girls club" Ive been positive pretty much since joining this journey of BC and have participated in that thread from the beginning....we would welcome you there if you would like to post there....we all try to go there and post our positives for the week....sometimes one or two of us cant find a positive so the rest of us pick her up, dust her off and try to help her get re-centered...there are weeks that we all have a "huge" amount of positives to post too .....sometimes it helps to have a little push to find a positive when its been a rough week....

    Hugs
    Jule
  • nosurrender
    nosurrender Member Posts: 2,019
    edited July 2007
    Mimi, I saw that too.

    It is hard to compare you to your mother because there are so many variables... like how far advanced was her cancer when they found it- was it in her nodes- was she HER2+ - what kind of chemo did she do???

    People died from cancer at a much higher rate thirty years ago because of lack of screening and not having the advanced technology and drugs we have now.

    I think the only way to compare is if you and your mom had the EXACT SAME dx... and then take into account this was only a study. And as we have seen lately every study they have released in the past couple of years is soon turned on its head and we are told the opposite is true.

    Jule, I like your idea of being positive. I need more of that this summer I think!
  • Hattie
    Hattie Member Posts: 414
    edited July 2007
    I didn't read that study but I wonder how that could really be. Different indviduals, different treatment, different tumor characteristics. Some genetics the same, different environments.

    You do not have your mother's cancer. You have your own.

    Take care,
    --Hattie
  • AggieFan0606
    AggieFan0606 Member Posts: 20
    edited July 2007

    Hard to explain...."logically" I understand my situation is completely different than my Moms.... it is just sometimes the "emotional" takes over. . I know you all understand this and I appreciate your positive posts. Jule- I love the idea of joining the Positive Girl's thread! Somehow I missed this!

  • AggieFan0606
    AggieFan0606 Member Posts: 20
    edited July 2007
    No Surrender,
    Wanted to let you know you are such an inspiration! I checked out your website a while back and loved it!! Great information and your writing talent is amazing. I really haven't posted much on this site but I when I have the support that comes back is incredible. Hey...maybe I should go post this on the positive thread
    Mimi
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    Mimi,
    I would love to see you on the positive girls thread...and any of you ladies here that would like to join there are very welcome as well!!!!

    I will find the thread and bump it up so that it is easy for you to find....

    Hugs
    Jule
  • ravdeb
    ravdeb Member Posts: 3,116
    edited July 2007
    I don't believe it. Most of these studies coming out are inconclusive and irrelevant because of the way the cancer is treated today.

    Unless there are several studies coming out that are scientifically designed correctly, I'd say, read it with interest but remember that much of this is too hard to prove.
  • Shirlann
    Shirlann Member Posts: 3,302
    edited July 2007
    I'm 100 percent with RavDeb, these stupid studies are useless to us. The people they are talking about were treated in the "dark ages" of breast cancer treatment.

    We won't have good info on our treatment for another 20 years. BECAUSE they can't tell what has happened to us until then.

    AND I strongly suspect that there is so much grant money out there that they keep doing the same things over and over.

    Just don't read them.

    Hugs, Shirlann
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    And what a waste of money!
    Shirley
  • StefS
    StefS Member Posts: 157
    edited July 2007

    I read this, but looking at it a little differently than Mimi. I wanted more details: were the cancers both er positive or negative, staging similarities, etc. How could they compare my mom's Stage 1 er+ with my Stage 3 triple neg? I wouldn't think that would make a comparision. So Mimi, do look at the positive. You've done everything to beat the beast, don't let the worries get to you, too much. We all have the worries and what if's. Just can't let them rule us.

  • Toronto
    Toronto Member Posts: 118
    edited July 2007
    Yeah, I feel like you Mimi. I know enough to know that I don't know enough. I've done graduate level statistics, worked in medical quality assurance, and have several co-authored papers in medical journals. But I don't know enough to judge the worth of many of the papers/articles I read, especially those on the net or stuff in the newspapers. So mostly I don't read them anymore.

    This I am sure of. You cannot inherit an outcome. You cannot inherit anything from a sister. What you can inherit and share with a sister/cousin, etc. is a genetic tendency to a particular kind of cancer. The outcome of that cancer (should it occur) depends on a whole lot of factors.

    For breast cancer a 30 year difference in treatment possibilities is huge. You are not your mother. 2007 is not 1977.

    By the way I liked that veggie/fruit study - one less thing to feel guilty about. Now if they would just publish something that found that chocolate and scotch were cancer suppressants I would be a happy woman.
  • Dar1
    Dar1 Member Posts: 146
    edited July 2007

    And what IS the purpose of some of these studies? My mother also had breast cancer, and the doctor asked me is she died of it - before this study. But really, they didn't do mammograms or have the awareness we do now, so I would think that more women were diagnosed at a later stage and didn't receive the same treatment - as everyone else has said. I agree, after 8 months of reading this stuff, I don't take it to heart.

  • sns
    sns Member Posts: 60
    edited July 2007

    Another garbage study. Seems to me there are way too many variables involved for them to draw any valid conclusions.

  • Jorf
    Jorf Member Posts: 498
    edited July 2007
    Hey, you guys, this is what I depend on!! My mother's a 30+ year survivor who, as I like to say, has lived long enough to have every other disease in the book, and my sister is a 10 year survivor and is now the age I was when I was diagnosed. I know it's all wishful thinking that I would follow in their footsteps but I need all the wishful thinking I can get. After all, my cancer was completely different than theirs - mine was ER/PR+, I had a positive node, I had chemo. Mom had 2 radical mastectomies. Sister had DCIS. Between the three of us we have 2 real breasts, 2 saline implants, 1 deflated saline implant and one tram-flap (below which lives the only flat belly in the family!).

    Let me dream that my family history will do me some good, that my vegetarian diet will do me some good, that my regular exercise will do me some good, that my normal weight will do me some good, that my not smoking will do me some good, etc etc etc.

    What else do we have to go by?

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