The Chemosabe March Cruise

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  • jacqniel
    jacqniel Member Posts: 720
    edited July 2007
    White Cotton - I encourage you to do the bone strengthener study. The shot is simple - it causes bone pain for a few days, but nothing horrible - and looks very promising. You are right - the being watched is awesome!

    I am so happy that most of you are done or almost done with your TXs! Yea! Rads is a breeze compared to chemo - at least it was for me!

    My onc called last evening about my scans last week. If you remember, he is out of the office because of surgery. He has reassured me and I have to say I am SO happy! He said as far as he was concerned I was responding well to the chemo. He said he thought the spots in my lungs were the same spots we have been looking at for four years - that he thinks my radiologist was perhaps a little lazy in checking my old scans - and he has a call in to him to reread them comparing to old scans. I realize that I may have new spots, but the fact that my onc doesn't think so at least gives me hope - and made taking my treatment today so much easier! I am also thrilled as he will be back in three weeks when I go for my next treatment! Now, I just wait to here the redone radiologist's report. I am praying that he was lazy!
  • LisaSDCA
    LisaSDCA Member Posts: 2,230
    edited July 2007
    Oh, Jacque - this is great news from your oncologist! I am sure he knows your 'spots' after four years. And how cool that he will be back next time you go in for tx. It sounds like you have a special connection with this doc.
    Melissa - glad you checked in, girl! See, it only took seeing your LAST TIME in Nancy's post to remind you of how far you've come. I certainly began experiencing more difficult SE's and a bit of a funk right about where you are in tx. and the encouragement of these ladies has really been a boost.
    Holyy - what a turnaround you have had these last couple of weeks! Hearing you're "feeling great - able to do most things" made me grin. You had some tough times, so you earned this bit of GREAT! I'm one of the Chemosabe Cruisers not having rads. I think the plan is to keep this thread and our little community going right here, while some stop off to work on their 'tans' ashore over in the rads thread, too. Just as we have some sisters who still will be having infusions for months to come, and I'll be having some big surgeries. Different itineraries and shore excursions - same cruise.
    Christine - you've got real hair growing already?!? Cool!
    Max - I haven't lost my eyebrows either (maybe 50% left), but like you, they are doing weird stuff. Not grey - almost as though they have lost their pigmentation and seem almost clear Glad to hear your fatigue is lifting. May you have several good weeks before the rads fatigue sets in! I'm also encouraged that your neuropathy is slowly dminishing. I am counting on mine doing the same.
    Angel - I'm looking to Christmas, too as my goal for having enough hair to 'show'. Wish I got the same cleaning and cooking bug that you do right after trmt. I come home and crash! I do admit that Day #2 remains productive thanks to all the drugs.
    Diana - how's that funk you were enduring? I saw a therapist for the first time today and it was mostly information-gathering. See the psychopharmacologist next week to start trying to find an RX that might work with my resistant brain chemistry. I think I am just a smidge better - didn't cry yesterday or so far today.

    BTW - my BiL is still in ICU. My poor sister is there from before 7am until 10 at night, trying to encourage a cranky, frustrated, non-compliant DH to do what he needs to do to get outta there. She is a SAINT.

    Lisa
  • Keenie
    Keenie Member Posts: 258
    edited July 2007
    Nothing says "happy" like a lazy radiologist!

    Really, Jacque, we'll be praying for great results!

    And Lisa, I really do have hair. It's sorta lying listlessly on my wee head, and some of it is really white, but it's hair, baby! It's been really hot here today, so I drove home from town - topless! The a/c felt so nice on me and I enjoyed the stares I got from other motorists.

    BTW, here's what happened while I was waiting for my dd to get her Starbucks today. . . I was parked, topless, and 2 older teens sat down on the bench in front of my car. They proceeded to light up 2 cigarettes and then they smoked in silence for a couple of minutes. They kept looking my way, and then after a bit more time went by, they moved to a bench about 15 feet away from me and my bald head!

    Must have been hard to smoke those Cancer Sticks in front of the Cancer Lady! My dd thought it was pretty funny too!
    Christine
  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited July 2007
    Jacque, I'm so happy you got to talk to your onc and he had good news for you. I'm sorry you rad tech was being lazy and caused you so much concern. Just keep plugging along and know that we are all praying for you.

    Whitecotten...I am so happy that you are about to finish this chemo journey....you've had it tuff. Just think when you go to bed Wednesday night you will be DONE!!!!. Prayers being sent you way for few se's.

    Rosebud...we'll be waiting to see you dancing, singing and shouting tomorrow. Hope things go well!

    Lisa, looks like the news continues to improve with your BIL. I do feel sorry for your sister,,,,men are such babies when they're sick. I'm happy that you are feeling better!

    Christine, how long have you been out of tx....wondering when I should start looking for hair?

    Playwriter....where are you?
  • Keenie
    Keenie Member Posts: 258
    edited July 2007
    Hi Grammy,
    I'm now almost 9 weeks out of tx. I had 4 rounds of AC and my hair was gone on Day 14, as predicted. My eyelashes and brows lasted until after my last tx! I thought that was weird, but the rad nurse mentioned it could happen.

    In the last 2 weeks, I'd say it's grown about 2 mm / 1/4 inch. My hair dresser advised me right after my last tx to shave my head a little so that the regrowth would be more even. I think it was a great idea. Plus I'm using that Nioxin shampoo/conditioner/scalp therapy stuff too. Every day I think I'm seeing some "thickening"!

    It's not in my eyes yet, but I'm hoping to return to school in the fall, hatless and definitely wigless. I'll be teaching Kindergarten and I'm sure my kids will look once and then move on to play!
    Christine
  • maxgirl
    maxgirl Member Posts: 407
    edited July 2007
    A late Happy Canada Day to our northern cruisers!

    Angel: Looks like we were posting at the same time the other day. Congratulations on that last tx! Now we want to see you doing the Snoopy Happy Dance.

    Did the Dr. say why you had to wait 5-6 weeks to get on the treadmill? I've been trying to do 10 mins a day just to get myself started -- hope I'm not doing anything wrong.

    Holly: Wow -- what a turnaround. It's wonderful to hear you sounding so strong.

    White Cotton -- I was also asked about being in the bone strengthening study, but after looking up the SEs for the meds they would prescribe, I decided not to sign up. Many women who take the drugs for osteoporosis have a lot of complaints about them. You may still want to join the study -- certainly not everyone has these SEs -- but I'd urge you to get some more information.

    And congrats on finally hitting that last treatment!!

    Keenie: Did you have your last treatment the first week in June? I got some new hair after the A/C, then it seemed to stop. Now I've got just enough to make my scalp look a little darker, and some stray blonde or grey hairs about 1/8 inch long.

    Jacque: What reassuring news from your regular onc -- hope the confirmation comes through quickly.

    Lisa: I hope that between the therapist and the psychopharmacologist that you get some relief from the depression. You've got enough to deal with without that dark cloud bugging you.

    I guess the good news about your BIL is that he's feeling well enough to be a cranky patient. Always a good sign!

    rosebud: Good luck tomorrow! Your performance of the Happy Dance is scheduled for 7 pm.
  • Keenie
    Keenie Member Posts: 258
    edited July 2007
    Hey Max,
    My last tx was June 2. I really noticed my head looking darker in the last two or three weeks, though. Most people have said that your post chemo hair is darker and curlier than before. Right now, mine is more light and straight! But hair is hair, people! I'm want to hear everyone's hair stories once it starts!
    Christine
  • whitecotton
    whitecotton Member Posts: 106
    edited July 2007
    Christine
    I am pre menopausal. Since I am er - and pr - I am not able to take any hormone therapy. This is why the doc thinks this study would be good for me. My mom has been on the same drugs they want to give me and she seems fine. The drugs are all the same but there are three different ways to take them. One is intravenous and the other two are pills one and day or two a day. If I choose to go on the study the computer decides. Yes it has been really hard working though all this. I get staff that come over to my house and sometimes I have to work with them from my bed. geesh! I bet you are the best teacher and I am sure the kids will not take a second look at you. My daughters always said they loved there kindergarten teachers because they always smiled.
    I go topless all the time. Must be a Canadian thing. lol

    Jacque
    Thank you for your words of encouragement. I really appreciate it. I am sure your radiologist's is just being lazy!

    Lisa
    Thank you for your kinds words as well. praying for your BIL and your sister.

    GrammyNancy
    Thanks for the prayers for no SE I will need all the prayers I can get. It has been tough but one of us had to have the rough ride and I feel honoured to be the gal that had to take it. Just glad no one else has had it as bad as I have. Taking one for the team so to speak.

    Max
    I have a lot of info to read on the study as well as going to the web sites to read more. I promises to read it all and make my decision wisely

    Rosebud
    Good luck girl! Last one!
    Melissa
  • rosebud1962
    rosebud1962 Member Posts: 196
    edited July 2007
    Last one and due to the steroids, I can't sleep. So, I thought I'd come here like I have from the beginning and read and write. I've put off talking about my hair coming in till now cause I didn't want to jenks it..lol It started about a month ago and is now about a half inch or so in places. It looks either blond or white and a little dark here and there. It's really fragile (comes out if ya tug it a little) so I don't know if it's staying or going. I go topless everywhere now cause I am sick of wearing hats and scarves just to make others around me feel comfortable with my baldness. I'm just a bald rebel..LOL
    I bought my onc nurse a framed saying instead of baking cause it's just too warm right now to heat up the kitchen. "There are two ways to live life. One is if nothing is a miracle and one is if everything is." I thought maybe that would uplift her spirits a little cause they seem so down there. I can understand why, that must be such a hard job to do. Oh, and the card is one of those Hallmark ones that play music..Simply The Best. Hope she likes it. Have a great day everyone and I'll be thinking of you ladies today..you all have gotten me through this and I am greatfull..rosebud
  • HollyHopes
    HollyHopes Member Posts: 497
    edited July 2007
    Everyone sounds so good! Hooray!

    I have gone topless since the beginning. I did buy a wig - and it looks fine, but I feel that this is what I am going through right now and others can just deal with it if my look makes them uncomfortable! I discrovered that I have two big moles on my head which have gotten darker from the chemo... the freckles on my arms have darkened also and the creases around my ankles. Ah well...I also have the remnants of the big gash I got on the side of my head when I fell, hit the corner of the dresser in my bedroom and landed in the hospital. So - my bald head is less than perfect. I plan to go back to work on July 9th - the same day I think I start rads and will go back bald....I'm a social worker in a pediatric hospital for kids with burns. Many of them have lost their hair so it won't be an issue for my patients - may be for Administration though...we'll see!

    Have folks started eating fresh fruits and veggies yet? I had been told to avoid those while my white count was down. I am longing for a salad....what about swimming in a pool or the ocean? Anyone tried that yet?

    Happy 4th!
  • whitecotton
    whitecotton Member Posts: 106
    edited July 2007
    I have been in the pool everyday since the weather was warm enough to get into it. I was just told to avoid it in the later days of rads.
    may irritate the skin
    Melissa
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    I got marked for rads today. I ended up being at the cancer center for quite a while, because I had to wait an hour to be seen and then I had to wait for the CT scan.

    They drew all over my chest and taped wire down on me. Then they put me through the scan. Afterwards I got my tatts. I got three, with two of them being on my sides and one right in the middle. I have a feeling I have more to get when I go back for my first tx.

    Holly, I have been eating lots of fresh fruits and veggies. So far, so good. I didn't get the Neulata shot after my last chemo, so I am probably down pretty low about now. I suppose I'll find out when I got to get my Herceptin on Thursday.

    Starting Sunday, I have a week with no medical appointments and I'm thinking about leaving town. This will be my only chance for a vacation all year. I'm just not sure how much energy I have to go off alone. I'll probably either do nothing, or something very last minute. I love being spontaneous. Anyone remember that?

    No one has offered me any trials. I guess lots of that stuff depends on where you live. I live in a small city. I'm not sure that I would have said yes anyway. I suppose you have to really research the offer first. I do want to say thank you to all of you who are in trials, though. I appreciate it so much!

    Happy 4th of July everyone!

    Miss S

    image
  • maxgirl
    maxgirl Member Posts: 407
    edited July 2007
    I've been eating fresh fruits and veggies ever since my mouth settled down enough to be able to eat them, but except for one cycle, my WBC held up with the Neulasta.

    I started swimming a couple of weeks ago -- heavenly! I'll do it as long as I can through rads.

    MissS: Spontaneity? What an exotic idea! Hope you can get away for your "free" week.
  • whitecotton
    whitecotton Member Posts: 106
    edited July 2007
    Miss S I hope you get away! go for it girl.
    Max I love the swimming too it makes me feel so good when my body aches. I have to confess I keep the temp and 85-88. lol I guess it is more like a hot tub.
    geering up to the last chemo for tomorrow I am so so scared and so so happy. hard to really tell how I feel
    melissa
  • jacqniel
    jacqniel Member Posts: 720
    edited July 2007
    Miss S - Go for the trip! Maybe you can find some place that would pamper you. You deserve it!
    HAPPY INDEPENDENCE DAY EVERYONE!!!
    image
  • rosebud1962
    rosebud1962 Member Posts: 196
    edited July 2007
    Happy Day..Happy Day..No more Chemo my way!!! Stick me with a fork cause I am done ladies and I couldn't be happier!!! Had I great time and I didn't even mind the mind numbing wait. And with all said and done, I got some flowers and I'll see you in a month to start the hormone treatment.
    I am half way now with my rads and it's been going well too. So far I've had some slight color (pink to red) on my breast and it's itched a little. They gave me some cortisone and told me that was super. My skin is reacting great..Yeah
    Now this Friday I am off to get something out I have hate during all of this..THE PORT. I know it made all my tx easier but I hate that darn thing sitting there in my under my skin..Wish me luck and I hope everyone's last tx goes well with little or no side effect. Happy 4th of July ladies but Happy Cancer Independence Day too..rosebud
  • dmknanny
    dmknanny Member Posts: 60
    edited July 2007
    Angel - YEAH! Welcome to the NoMoChemo group........the dancefloor is getting really full - isn't that AWESOME!
    Rosebud-CONGRATS to you too! I am jealous, though.......mu Onc said the port has to stay until after my 1 month check up
    Whitecotton-thank God you are Done! You've had a rough ride, but you've made it through with flying colors!
    Jacque - so glad you have such a great Onc who takes the time to look at YOUR case and also takes the time to call you and let you know what's happening
    MisS-I sure hope you get to take a trip - I would love to join you if I could - we had so many similarities throughout. Take us all along by knowing our thoughts are with you.....treat yourself to a nice spa or something...you deserve it!
    Lisa-I hope your BIL is getting better.....the black cloud is still hanging over me, but I am supposed to see my girlfriends who I go to the beach with tomorrow, so hopefully they can cheer me up!
    Holly-so glad to hear you are doing so well. I have been eating fresh fruits & veggies all along - I think I avoided them the first 2 weeks, but then I kinda forgot that they told me to watch them, and since my appetite was fine I ate whatever I wanted to! I also have been swimming a few times in pools, but only toes in the ocean - too cold!
    GrammyNancy-thanks for keeping us al on track - take some time off now and enjoy yourself!
    I am not starting rads until September - I hope I will be able to find a thread then, but I might sneak in on the July one just to see what's happening, and of course I'll stay in touch with my Chemosabe sisters
    Is anyone from this thread going to Pinkstock? I found it today and was reading about it - if it wasn't the same weekend as my granddaughter's burthday party and a wedding I think I'd be there! Sounds like a great time!
    Diana
  • rosebud1962
    rosebud1962 Member Posts: 196
    edited July 2007

    The port has ported and I'm glad. It didn't hurt except the shot. There was some tugging and such and I almost passed out but it's done and that's all that matters...Think I'll go lay down for a bit..Hugs around..rosebud

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    Do you have a port hole now?



    Miss S
  • maxgirl
    maxgirl Member Posts: 407
    edited July 2007
  • GrammyNancy
    GrammyNancy Member Posts: 666
    edited July 2007
    Oh Rosebud....that sounds eeeeeeeeeehhhhhhhhh! I'm wondering how securely mine will be after a year of herceptin. So happy that you have it out!!!!

    Nancy
  • pmarsh34
    pmarsh34 Member Posts: 108
    edited July 2007
    I have officially finished chemo and am doing the nomochemo dance. At least as much as I can considering I am having hellacious hot flashes! I asked my onc about getting rid of the port and he said tomorrow if I wnted!!!! I am scheduled to get it out on Tuesday (7/10). I will be so glad to get rid of it. I was afraid I would have to keep it in for many more months! I am set up for my radiation simulation on 7/17 and will be starting the last week in July. Last week of rads, I start Tamoxifen. Onc said probably for 10 years to keep me in menopause. That doesn't sound fun but what the hell. Might decide to just have an oopherectomy instead! There is an end to the journey.

    I pray for each and every one of us everyday.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2007
    Congrat, Patti! Wooooohooooo!!!!

    Rosebud, hope you're feeling better!!

    Miss S
  • rosebud1962
    rosebud1962 Member Posts: 196
    edited July 2007
    I have hair image Hugs Rosebud
  • rosebud1962
    rosebud1962 Member Posts: 196
    edited July 2007

    Congrats on everyone who's done this week. What a great feeling! My port hole is taped up..LOL I almost wet my depends laughing at that one..LOL Well, have a great weekend ladies, I'm off shopping for my daughter's wedding . I can finally think about something besides this stuff..Hugs Around Rosebud

  • jacqniel
    jacqniel Member Posts: 720
    edited July 2007
    Rosebud - congrats on hair! Love the pic - isn't it frustrating that the nose hair is the first to come back?

    Tell us more about your daughter's wedding! Did you go dress shopping for yourself?
  • Angelflight
    Angelflight Member Posts: 163
    edited July 2007
    Maxgirl,

    I have bad knees and hips and have been having problems after the Taxotere. Have also been having major problems with weight gain from the steroids. The Dr. suggested I wait a month till the se's from the chemo start going before doing anything major with the weight loss that's all. I had problems a couple of months ago with the knees after trying to use the bike and treadmill. I'm determined to get this weight off though so just hope the Armidex doesn't cause problems in that area. Besides he said the steroids will keep making me eat until they start going away anyway. See everyone at the skinny farm in a few months hopefully.

    Love,
    Angel
  • HollyHopes
    HollyHopes Member Posts: 497
    edited July 2007
    Angel - Skinny Farm??? Where do I sign up??

    -H
  • taurie
    taurie Member Posts: 84
    edited July 2007
    Hi all,

    I know I havent posted much lately, just hit a bad downfall. But before I go into that I will say the good news. Onc.switched things. Thursday I had my last chemo. YAY! But its hitting hard this time. Must wanna send me out with a bang. I also have gained with the steroids and I hate it. Ten pounds between last two chemos. I was told a month too before side effects all go away Angel so at least we are getting the same advice.
    There is some peach fuzz creepin back on my head as I quit shaving it the day I found out I was almost done. And OMG, its a little dark hair with mostly white coming back. I am talking albino white. Whats with that? I had some gray before, but not like this.
    Bone pain has me bad from Taxotere all the time, does not get better in between so looking forward to that going too. And the big D, I would like to finally go normal and not have it hurt when I sit down all the time. They also tell me I have lympodema, but now it has spread into a third quadrant of my body. My feet swell so bad I cant see my toes, and just normal sitting leaves creases in my ankles. So now I go monday for a bilateral doppler to check for blood clots. Onc wants to go to rads next but says my body needs a little break first. Dont know how long the break will be. They have decided I think for now to also skip the hysterectomy, and put me on hormone pills for five years. I still get yelled at to quit the smoking, but omg if i did that yet I would look like an oompa loompa. Only thing that stops me from putting something else in my mouth.
    I am so happy to see all that has finished too, I have to admit I was quite jealous when I seen all those LAST ONEs, then I found out my news. Girls we are getting through this, been a tidal wave this boat has sailed over but I think maybe I see some calmer waters ahead.
    Lets keep this going, I have become so close to everyone here I dont wanna lose touch yet.
    Love you all,
    Dawn
  • maxgirl
    maxgirl Member Posts: 407
    edited July 2007
    Dawn: Good to see you post again -- you really have been going through a lot. Congratulations on the last tx!! Hope the SEs surprise you and go away sooner than you expect. I loved the image of the tidal wave -- perfect!

    rosebud: Congratulations on finishing tx and getting the blasted port out! And thanks for the belly laugh with your pic! LOL

    This week I've sprouted odd hairs in all the places where it had disappeared. The only place they've gathered together is the front of my legs -- oh, goody, I can shave again.

    Patti: Welcome to the finish line! And great news on the port, too!

    Angel: That would make sense to wait for the SE's to calm down before you try exercise. I couldn't have done the treadmill when I was getting the SE's from Taxol -- hurts just to think about it!

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