June 2007 Chemo

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  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007
    I think the TC is destroying some of the cells that line my tummy and intestines. Feels like an ulcer. Good times!
    But my boyfriend Phil is a pilot, and right now he is in Korea, scoping out Asian herbs to help me
  • TerryNY
    TerryNY Member Posts: 603
    edited June 2007

    Lisa, some of the other women who've been through this before swear by yogurt with probiotic, not sure what it is exactly, a live culture? Anyway, it's supposed to be helpful to restore the good bacteria in our digestive tracts. Good luck!

  • sdstarfish
    sdstarfish Member Posts: 544
    edited June 2007

    Got some probiotic. I'll start today. Anyone know of anything I can do for a constant, lethal headache?

  • miknikmom
    miknikmom Member Posts: 31
    edited June 2007
    Well I got knocked down on Day 6 Day 7 still stayed home. I got the worst Headache and had to pee every hour for two nights in a row. Lost 6 lbs. I am trying to hydrate. Doctor gave me some meds for headache. Today is day eight and I am back at work and besides getting tired I feel pretty good. I only have 4 tx and I was about to quit after the 6th day. I am doing A/C how are others doing this type doing? Is my next tx more intense or about the same? This Chemo makes me really anxious.
    Diana
  • mkl48
    mkl48 Member Posts: 350
    edited June 2007

    I have the same reaction. My onc nurse seemed so surprised since the the first days were good, but by day 5,6,7 I felt crummy and very anxious, even more so than on dexamethezone.Beth I have now had 3.Beth

  • mkl48
    mkl48 Member Posts: 350
    edited June 2007

    Ask about using Prilosect OTC. It made a huge differenc for me.Betb

  • DebbieK
    DebbieK Member Posts: 116
    edited June 2007
    Terry, so glad to hear you are back on track. So you will go in on the 2nd for your 2nd treatment, and I will be going for my 3rd. Taking the Emend last time made my tx soooo much easier to handle. No nausea and less diarrhea and other side effects that I had with the first tx. You might ask your onc about it. You have to take one befor the tx so you'd have to ask ahead if you wanted it.

    I don't know what to say about you gals with problems on day 5, 6 and 7. My first three days are always the worst for me.

    Take care all,

    Debbie
  • b445
    b445 Member Posts: 1,325
    edited June 2007
    #6 is done and I feel really tired today. Could be that I did 5 hours of overtime this week. Think I will go back to bed but wanted to see how you all were doing
    hugs & prayers
  • TerryNY
    TerryNY Member Posts: 603
    edited June 2007
    Lisa, I'm sorry you're having such a rough time with the headaches. I have no suggestions for this except to call your doctor, maybe they can prescribe something for you. Are you on decadron?

    Debbie, I did take Emend the first tx and it really worked so I'm hoping it holds true for the rest of my cycles. I take Zofran also and decadron in the IV before the Cytoxan. Good luck with number 3! You're almost done with AC, right?? Hooray!

    Diana, my first week after AC I didn't eat very much either, just a lot of fluids. I lost quite a bit of weight but have since put it back on. My worst days seem to be 3,4 and 5. Also, I asked my onc for some xanax and it does help. I only take it when I absolutely feel very anxious but it helps to take the edge off. I usually take it before any new procedure and I did before my first chemo tx. Not sure if I'll take it for my second one yet...we'll see how it goes Sunday night. LOL

    I don't really have any advice for those who are not doing well...maybe check in on some of the other threads and post your symptoms there. They are a welcoming group, those who have gone before us.
  • b445
    b445 Member Posts: 1,325
    edited June 2007
    Well a bit of sleep and I feel much better.

    One thing I learned when I did chemo last year was that pineapple help releave constipation. so if you can tolerate it the juice or the fruit it helps!

    hope everyone has a great weekend!
  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited June 2007
    I feel so much better today...wouldn't you know it? Two days of feeling kind of normal, then tx #2 on Monday

    I'm also trying the Emend this time, I hope it does better than what I did last time...and have a prescription for Kytril along with it.
  • DebbieK
    DebbieK Member Posts: 116
    edited June 2007
    Gracie, I am so glad you are feeling better. I really hope that the Emend helps you this time. I know tx 2 was much easier for me, don't know if it was all because of the Emend or if the second time around was just a little easier.

    I'll be thinking about you Monday. Take care, Debbie
  • MsLisha
    MsLisha Member Posts: 1
    edited June 2007
    Hello Ladies
    I am writing on behalf of my mother who was diagnosed with breast cancer on April 19th and just received her first chemo treatment yesterday June 29th. She is receiving A/C every two weeks. Has anyone had treatment every two weeks? This seems like a lot to me.
    Here is a little info.
    IDC 2.5 centimeters stage II her2-
  • TerryNY
    TerryNY Member Posts: 603
    edited July 2007
    MsLisha, a lot of us here are getting it every two weeks, it's called dose dense therapy. I'm sorry to hear your mom had to join this 'club' but hope she is doing well with her treatments so far. This site is loaded with great info and great women.
    Good luck to both of you.
  • sdstarfish
    sdstarfish Member Posts: 544
    edited July 2007
    Hi, Terry and Girls:
    They give me Decadron day before/during/day after. The pharmacist at my hospital says that you can actually experience drug withdrawl symptoms from Decadron, because they give you so much in such a short time. He thinks that is happening to me. I found these things called Tiger Balm patches. They are expensive - $7 for only 5 in a pack - but I slap them on the base of my skull and my forehead while I sleep. What a hot look! But at least I don't wake up every half hour.
  • LMJP
    LMJP Member Posts: 9
    edited July 2007

    Be careful that they don't interfere with your treatment, Lisa! I live in Asia, and one of my doctors told me to only consult a naturopath who is skilled in helping chemo patients. For example, reishi mushrooms are good for the immune system that is being destroyed by our drugs, but kava is not. This is my first time on the discussion board and I wonder if any experienced users can help out with suggestions? I had my first treatment of TC on 21 June and have found the Dexamethasone side effects worst of all! Apart from the racing, mood swings and sleeplessness, I erupted in boils and oral thrush. Revolting. As for the TC? So far, a slight numbness around my left hip and three days of slight fever. Has anyone used a less viruent steroid? Or has anyone done without steroids altogether? I have found that taking the spice turmeric in warm water three times a day cleared the boils, and lathering myself inside and out with live yoghurt helped the Nystatin clear up the thrush - plus garlic tablets (the non-smelly kind). Any suggestions? Luv n hugs

  • TerryNY
    TerryNY Member Posts: 603
    edited July 2007
    Cy, so glad to hear you're doing better!

    Gracie, good luck with the Emend. Hopefully it will give you more than two days of feeling well. Looks like we're on the same schedule now.

    The decadron to me was the worst experience after my first tx. I asked to be taken off it and felt much better. They will still give it to me in the IV before the Cytoxan but I don't have to take it again after that, thank goodness!
    Ask your oncologist if you need it at home, you might not!
  • LMJP
    LMJP Member Posts: 9
    edited July 2007
    Dear Terry,

    Thanks! Will do....

    Lorna
  • DebbieK
    DebbieK Member Posts: 116
    edited July 2007
    I too only have the decadron in my IV, but my onc. has not sent it home with me. I do not like the way it makes me feel even on the day of the treatment so I can' imagine if I had to keep taking it. I am not trying any herbal remedies as I worry about interacting unfavorably with the chemo.

    I will be so happy to get tx 3 under my belt tomorrow!

    Hugs, Debbie
  • mikeysmom
    mikeysmom Member Posts: 137
    edited July 2007
    I started AC on June 23. My name is Cyndi and I'm in Las Vegas, NV. I'll have 3 more AC, 4 taxol, rads, herceptin for 1 year. My tumor was 2.1cm, ER+++, HER2/neu borderline. I had a lumpectomy on May 23 with sentinal node biopsy. Wide margins and no node involvement.
    Cyndi
  • sdstarfish
    sdstarfish Member Posts: 544
    edited July 2007
    Hi, Cyndi:
    Welcome I think you will find that the women on these boards are great - maybe even better than a support group, since at times it is a chore to get out of the house.

    Thanks, Debbie. Maybe I will ask if I can stop taking the Decadron.

    Thanks for your input, LMJP . My oncologist is not up on anything homeopathic, unfortunately. He seems like he thinks it is all a placebo effect, so it makes no difference to him as long as I take all my drugs like a good patient. Infuriating...so I have been educating myself to make sure that I am being safe.
    Where in Asia do you live? Were you born there, or did you relocate?
  • honeygirl
    honeygirl Member Posts: 1,718
    edited July 2007
    Welcome Cyndi and Mslisha , hello everyone. LMJP , I don't take any herbs so I can't be of any help.
    I stayed home from work Friday. I was having some really bad heartburn. It would burn up into my throat and my mouth would water something terrible. Didn't get much sleep as it got worse when I laid down. I called my onc and he prescribed zantac 150. It worked!! So I had SEs' longer after my second tx than the first. I hope thats not an indication for me of how tx 3 is gonna be.
    Debbie , good luck tomorrow with tx 3. Gracie good luck to you with tx 2. Cy , thanks for the pineapple tip. I can use that the first two days after treatment! Hope everyone had a good weekend. Good luck to everyone this coming week. Hugs and prayers , Melody
  • b445
    b445 Member Posts: 1,325
    edited July 2007
    WHen I did the CMF treatment last year they gave me the decradon in pill form about 30 minutes before the chemo. It works like an antihistamine, so you might ask if you can take something else! I don't take anything with the Abraxane I'm on this year.

    Heartburn is one of the side affects you can get with chemo so Zantac or something similar is a good idea if you get heartburn.

    You may also notice that your eyes may water a lot for no aparent reason and that you get a runny nose a lot. These are also side affects from chemo. eye drops may help and an antihistamine may also help.

    The biggest thing is to remember to keep drinking even if you don't feel like it!

    hope all are doing well and can enjoy a good week!
  • Robbin65
    Robbin65 Member Posts: 251
    edited July 2007
    You guys WILL get through this! I started my chemo in Jan 07. Just finishing up my rads. You guys will be there before you know it...

    This is a great place for friends and support. We are very fortunate we have online help today. I can't even amagine 20 years ago having BC and no computer...

    You can do it!!!
  • mikeysmom
    mikeysmom Member Posts: 137
    edited July 2007
    Thanks for the welcome! Today was day 9 since my first AC. I felt great! Not tired, no upset stomach. I even took the dog for a 1 mile walk. It was the first time I really felt "normal" and that I will get through this. I hope each tx doesn't get worse--I've heard that it does but I'm remaining optimistic.
    I never get heartburn although I did while I was pregnant (yes, my baby had a full head of hair ). I have had a runny nose ever since I started chemo though. I heard about herceptin causing that but I haven't started that yet. I thought it might be allergies but maybe not since others have experienced that.
    My hair hasn't started to fall out yet but I'm expecting it any minute! I have cut it short and one positive is that I love it short and probably will never wear it long again. It's been shoulder length or longer for 30 years.
    RobbinJaye, I too can't imagine not having the internet with BC. Besides the support, there's so much easily accessible information (sometimes too much ).
    I'm feeling so good that I will spend the 4th of July at a friends cabin in So. Utah (out of the heat!). I hope everyone else has a great holiday!
    Cyndi
  • tos
    tos Member Posts: 376
    edited July 2007
    Hello and welcome to the new June chemo members!

    I notice I too am getting the drippy nose, I thought I had read that was a chemo se. I'm still pretty draggy but nothing real bad so really can't complain. The Neulasta shot sure did make a huge difference in my 2nd treatment.

    I had a surprise visit from my oldest daughter who is starting her rads soon and my sister, they flew down from another State and I didn't have a clue, what a thrill and a boost to my moral and support system.:)

    My sister dusted and did a little cleaning for me, they went to the grocery and brought back loads of food, cooked, did the dishes, pampered me, it was just wonderful.
    Seeing my daughter meant the world to me too since I hadn't seen her since before her chemo treatments and she just looks great. Her hair is starting to grow back, still very short but we convinced her while she was here to leave it off and she looked adorable.

    Hang in there gals, we're gonna kick butt!

    Hugs
  • TerryNY
    TerryNY Member Posts: 603
    edited July 2007
    Yep on the nose dripping and watery eyes. I've been using eye drops and it helps for a bit. I've learned to carry tissue with me as well. Who knew??

    I'm off to my 2nd tx in about 30 minutes. Good luck to all who have chemo this week, DebbieK - hang in there, one more after this, right?

    Cyndi, welcome, hope your trip to UT is all you hope, it sounds wonderful. Glad you're doing well.

    Thanks to all who've been down this road before us, the encouraging words are very uplifting and help me realize that yes, I CAN do this.

    Pam, what a wonderful surprise for you! I'm sure it did give you a much needed morale boost. I'm glad your daughter is doing so well, kudos to her!

    Best of luck to everyone this week!
  • DebbieK
    DebbieK Member Posts: 116
    edited July 2007
    Good Monday morning to all,

    I am so glad to hear the watering eyes is related to chemo. My left eye particularly waters all the time, and I was wondering about that.

    Terry, you are probably getting your chemo right now, I go a little later. Hope you feel well afterwards!

    We are hoping to get down to our beach property later in the week so I hope the meds keep my se to a minimum.

    I too can't imagine this without my laptop. This board is the best support group I can ask for. Early on I researched bc a lot until I just couldn't stand anymore information. Now I just get on this site and enjoy all the chatter and information.

    Take care and have a great Monday!
  • burquie
    burquie Member Posts: 129
    edited July 2007
    Good morning everyone!
    Hope you all had a great weekend. I woke with a headache this morning..... I think it's just one of those sinus things... with all the pollen and crap floating in the air.
    I go for 2nd AC tx tomorrow.... I hope he can give me something different so I don't have the nausea for 3 days like the last one. I am really having to psych myself up to go... I know I HAVE to do it, and that it will be one more under my belt....still I'm having a little anxiety again. It does help to come here and read everyone else's post.... reaffirms that unfortunately I'm not going through this alone!
    I almost forgot to tell you about my Saturday morning; I woke up and no one was home..... oldest son at work and I thought my husband and youngest went to watch Kodak implode one of their buildings. But no... they went and got their heads shaved!! Getting ready for when I'm hairless! At first I couldn't stop laughing, they looked so different! My hair was starting to come out a little... like 10-15 strands when I ran my hand through it; so my SIL came over Sat night and cut it really short for me, seems to have settled down with the coming out.....but I know it will probably happen sometime this week that I'll be in the "bald bunch"! My oldest had me buzz his head yesterday..... he didn't go totally bald, just very close buzz. But they all look great, and I'm touched by the sentiment.
    Debbie K & Terry.... thinking about you today.... good thoughts!!

    Bonnie
  • miknikmom
    miknikmom Member Posts: 31
    edited July 2007
    I go for my 2 AC tx on July 5. I took the Emend and had no real problems with nausea. I do get really tired and have a cough and sore throat since the first tx. I have not lost any hair and I am on day 12. I check my hair all day long. I am having a hard time with drinking my water on some days. I make sure the days around chemo but some days I just cant do it very well. They do hydrate me the day after chemo. I also had my ovaries removed 1 month ago and I am getting hot flashes. So with all these changes to my system I am just a mess. I wake up every morning and feel as though there are rocks attached to my chest. Oh I can't wait til this is all finished. Good luck to everyone else out there.
    Diana

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