June 2007 Chemo

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  • daphne98
    daphne98 Member Posts: 22
    edited July 2007
    Hi Linda
    I saw your post and thought to ask how you are getting on with your treatment. I am having the same treatment with you for stage I, IDC, triple negative. We are in the same boat. I hope it will work out. Are you having 4 cycles of TC and then 2 cycles of Taxotere or 6 cycles of TC ?

    Best wishes

    Daphne98
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  • TerryNY
    TerryNY Member Posts: 603
    edited July 2007
    I'm so sorry, Susan, that you're feeling so bad still. I hope they can get your meds to work or try a different regimen. I found out something new today while at the pharmacy getting my pills refilled. Last time I had the Zofran that were melt-aways but this time the pharmacist gave me regular pills. I questioned the difference (wanted to make sure the script was filled correctly!) and she said the ones that melt on the tongue are for people who are extremely nauseous....maybe you could ask about this? I've never heard of that before, I just assumed that's the way this drug came. Apparently it comes in many forms.

    I don't think I have lymphedema, I was commenting about air traveling several ladies are planning. I have heard to be on the safe side that we should wear the sleeves. Just adding my .02 to the conversation. LOL

    Since I've been on restrictions for this infection though, no stretching, reaching, lifting etc I have been babying my arm and have noticed more numbness in the pit area...ugh. I'm hoping once I get released for full activity it'll go away!
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  • dino
    dino Member Posts: 9
    edited July 2007

    I was just checking things out on your website. I am happy to report that I am one year away from what you all are going through. I started chemo in June of 06. I did okay with it. I had some bad days but most of the time I could get up and do what I needed to do. I just wanted to let you know that there is a light at the end of the tunnel. I am a year removed and I feel like my old self again. I wore scaves most of the time and now I have a head full of curly hair. And, I mean curly hair. It's fun though since I always had straight hair. I want to wish you all good luck. Take good care of yourself.

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  • sdstarfish
    sdstarfish Member Posts: 544
    edited July 2007

    Melody, soooo sorry to hear about your experience! Hope you're resting now.

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  • SusieSwan
    SusieSwan Member Posts: 111
    edited July 2007
    Terry, I do have the meltaway Zofran. I think they do work pretty good but they really coat my tongue, maybe that's part of the idea! I'm going to call today and see if they can give me something the day before my next tx.

    My Mom & Dad are coming to clean my house today so how exciting is that!?

    Hope everyone has a great weekend!
    Hugs,
    susan
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  • Charlie451
    Charlie451 Member Posts: 69
    edited July 2007
    Melody and Susan I hope you all are better and have no reapeat of the treatment nightmare. At my last tx (#2) they said I had managed to flip my port over. So the male nurse called someone else over and they made an executive decison to turn the port over to the right side. Ouch. Afterwards the male nurse used about a ton of freeze spray stuff that burned like heck.
    Daphne, a fellow triple neg. I was first diagnosed at 1.9 cm, stage 1 IDC. Then after an MRI they changed it to 2.1cm which would squeak it by for a stage 2 IDC. Either way, I count myself lucky it was found early with no nodes involved. My onc says that, because of tumor size and the nature of these triple neg cells, he would like to see me go for 6 treatments of TC three weeks apart. One treatment modality calls for 4 tx but unless "the wheels are falling off" I get 6. I get anti-nausea meds, steroids and then taxotere followed by cytoxan in each treament. They are allowing my immune system to bounce back on its own before each treatment - no shots unless necessary. So far I'm bouncing back but I don't know if cumlative effects will cahnge all that. Hope this helps you compare treatments. It seems like each of us has a different treatment plan.
    Linda
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  • lastminuteD
    lastminuteD Member Posts: 333
    edited July 2007
    Dino - thanks for checking in with our group! No light at the end of my tunnel yet but it is so nice to hear that it will show up at some point!

    Linda - I wondered about flipping over the ports when I find myself sleeping on that side but I thought the surgeons attached the port to the muscle?!?! Hope it didn't hurt for very long!

    Susan - congrats on B9 biopsies & hope your next treatment goes better - nice picture!

    Bonnie - Nice picture also! You are a lot braver than me - I don't think I want anyone seeing me bald except my DH and DK's!

    Pam - totally aggre w/people staring and double takes and I'm in a medium sized town! I find myself looking for others in scarves or turbans and I see very few. Maybe others just go for wigs or have people running their errands for them................

    Litig8or - sorry to hear you were hospitalized - thanks for the warning - hope you are feeling better.

    Terry - great idea with the straw since some drinks taste so gross! Has your incision finally closed up or are you stilling having the visiting nurse come in?

    Garnet - hope you are feeling better each day!

    Melody - Is it okay that they leave the needle in the port or are you going to have to have it replaced?

    Hope I didn't offend anyone with sharing the Britney Bald pictures of other stars - I just thought it was funny since stars are made up and their pictures are touched up and they look so different without hair.

    Had my #3 A/C yesterday - took the relpax before leaving the infusion room and my nurse dripped the Cytoxan more slowly and I didn't get a headache!! Such a relief!

    Hope everyone has a good weekend!

    Dawn
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  • SouthernCheryl
    SouthernCheryl Member Posts: 10
    edited July 2007
    Hi Gang!

    I haven't posted in a few weeks, cuz I was thinking about not continuing on with the chemo. Life events and the doc have changed my mind.

    If you don't wanna get completely depressed, skip the rest of this. I had my second tx on 7/3, then the morning of 7/5 I woke up in the middle of the night and couldn't sleep. I went to hubby's nightstand to get the remote to watch TV. There was a strange phone on the floor by his jeans. Long story short, he has had a girlfriend for over 6 months, and was using this secret phone to stay in touch. They spent hours on the phone daily. Reading their text messages made me more nauseated than chemo ever could.


    Now, this happened BEFORE my dx. He says he wanted to tell me about it, cuz he wants to go be with her, but then the dx, and he wants to help me through the cancer and help me get set up with the house before he goes. We've been married 15 years, have three kids, one of those is autistic.

    I'm still so angry and hurt.

    Of course, my blood work was terrible and they're making me take more shots, and I'm suppose to stay away from the general public.

    I need this like I need a hole in the head. I'm so angry I have to depend on him for the next 6 months when what I wanna do is whack his maleness off.

    For some funnier news -- when it was time to shave the ole head, I shaved it into a mohawk first. My 14 year old has one. Then got some cool pics of us together. It was so fun. Took some of the sting out of being bald. As soon as I get them developed, I'll post one!
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  • litig8or
    litig8or Member Posts: 54
    edited July 2007
    IF VULGAR LANGUAGE OFFENDS YOU, SKIP THIS POST!!

    Cheryl---HOW AWFUL for you! I don't know what your situation is, but I'd tell that jackass you call a husband to pack his shit and get the fuck out---NOW! I'm a single mom with a 17 year old and a 22 month old and I'm now working part time (I have my own solo practice law firm, so I can set my own schedule around the chemo)--money's tight, and I sometimes have to ask for help with my toddler, but I'm making it. He shouldn't stay with you out of guilt.

    You poor thing! The good news is, in spite of everything else, it sounds like you have one cool 14 year old!

    My prayers are with you.

    Kathy
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  • honeygirl
    honeygirl Member Posts: 1,718
    edited July 2007

    SouthernCheryl, I am so sorry you are having to go through this. Nothing like kicking you when you're down. Please think carefully before you stop treatment. You are hurting so bad , but you also have a 14yr. old that depends on you and loves you. You know you can sound off to us all you need to. We are here for you. I will say prayers for you.Hugs to you. Melody

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited July 2007
    I totally agree SouthernCheryl, you need to send him packing!

    AND you need to continue your treatment and get well for yourself and your son.

    My thoughts and prayers are with you.

    Dawn
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  • honeygirl
    honeygirl Member Posts: 1,718
    edited July 2007
    Dawn , the needle broke off into the catheter end. Thank God , and not my port. She still had to flush threw the cath. before she could remove it from my port.I had a headache after treatment also.
    I went to work today , wish I would have stayed home. I feel so flu like. And my stomach was worst today. It seems to come and go in waves. No fever , just feel kinda "raw" from my neck down. One more to go. I hate when I just start to feel better and its time to do it again. I start feeling so anxious then. But I will make it. I didn't lose my hair for nothin'!
    Pam , I hope your doing ok.
    Susie , hope you're feeling better.
    Oh , has anyone else lost their ability to taste? My sense of smell is so heighten , but I can't taste anything right now. I hope this is only temporary.
    Terry , hope your breast is feeling better and healing well.
    Linda , so good to hear someone is bouncing back without shots. Hope it stays that way trough out your treatment.
    Well , hope everyone has a peaceful and good weekend. Hugs and prayers to everyone.Melody
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  • HollyHopes
    HollyHopes Member Posts: 497
    edited July 2007
    Hello Dear June Women...just a quick shout out from the March Chemosabe Cruise! I finished up with chemo on June 15th and am beginning rads on Monday. You all will be a wonderful support to one another. If I can be of help to any of you - please feel free to PM me...you may also find it helpful to check out the threads of those who have gone down this road a month or two ahead of you. I had a lumpectomy, no nodes, Stage I, Grade III, Triple Neg tumor 1.5 cm. I had dose dense A/C and T. I live alone...kids were away at school and significant other lives out of state. Friends and the women I met here got me through.

    Hugs to all of you, from Holly
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  • sdstarfish
    sdstarfish Member Posts: 544
    edited July 2007
    Cheryl: So sorry you are going through this. I'm with Kathy. Send him packing! I have been working with kids with autism for over 10 years, and my best friend's son is autistic.I think they are some of the coolest kids in the world. If you ever need any perspective in that regard, just ask.
    Holly, so grateful for your post!
    I hope everyone is doing as well as possible. I am sporting my new crewcut, soon to be cue ball, head. 2nd treatment 7/16/07.
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  • shrink
    shrink Member Posts: 936
    edited July 2007

    You certainly can't depend on this guy for emotional support, but, before you send him packing, make sure you know your rights regarding financial support for you and your children. If you're covered by his insurance plan, it would be important to stay on it. You're right, you needed this like a "hole in the head". Sorry.

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  • tos
    tos Member Posts: 376
    edited July 2007
    Cheryl I am so very sorry to hear about your situation at home. What a time for this to happen but sometimes it usually works that way. Troubles in clumps. I wish I could give you a hug!
    I agree w/Shrink, make sure you know your rights regarding the financial support for you and your children and the insurance coverage, you need it!
    Do you have other support around you, family, friends?
    You need to get well, your health is important for you and your children and those who love you so concentrate best you can on that.


    I just had treatment no. 3 and starting to slide but wanted to check in and say hello to everyone and see how we are doing.
    I am getting swelly belly and swollen feet so having a hard time getting dressed so got a script for a diruretic and another pill for your kidneys, guess they work together and was told that will help the swelling. More pills on top of pills but for now that's ok.

    Best wishes to all of you,
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  • TerryNY
    TerryNY Member Posts: 603
    edited July 2007
    {{{Cheryl}}} You are in my thoughts. The most important thing to do now is to take care of you! Do whatever you have to do to ensure your health. Please check back in soon.

    Dawn, the visiting nurse still comes everyday and probably for the next two weeks. It's been a long time! Four weeks since I started noticing something was wrong. Enough already!! LOL

    Melody and Pam, hope you're both feeling better. Pam, what drugs are you on? I can't remember...is swelling a common SE? Hope the diruretic helps.

    Linda, I can't imagine flipping a port, did you notice it when it happened? And how it happened?? You ARE woman to endure that pain....amazing what we handle, huh?

    Dawn, I did look at the celebrity bald site, some of them were stunningly beautiful. Think we could get the names of their make-up people?

    Holly, thanks for checking in with us newbies. Your dx is very similar to mine except I'm PR +....can't ever get a straight answer from anyone if that is 'just as good as ER+'... Good luck with your rads!

    I am off to a local garden walk this morning with a friend. Hope everyone has a great weekend!
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  • DebbieK
    DebbieK Member Posts: 116
    edited July 2007
    Good Saturday morning to all! This was a good week. I traveled from Portland to Washington DC for a meeting and made the trip fine with no complications. I am so relieved since my job requires lots of air travel. This was my first trip since I was dx in March. I had asked my doctor if I should get a sleeve, but he said that if you don't actually have lymphodoema, the sleeves can cause some issues themselves and he did not recommend it. 12 of my nodes were removed so hopefully the remaining ones are still working. I made sure I was very well hydrated before and during the flight and got up and moved around if I could. I was also told to wear loose fitting clothing which I did.

    Monday is tx 4 for me. I will be so glad to say goodbye to the AC part of this. I will be halfway through. Last Sunday I began having a lot of pain in my sternum which lasted several days. I treated it with ibuprofen and it gradually got better. I usually get a little of that earlier and closer to the neulasta shot. I hope it doesn't happen again.

    Cheryl, I am so sorry for your troubles. What a terrible thing to happen during this difficult time. You will have some tough decisions; just remember to think of yourself and your children first. My thoughts and prayers are with you.

    Well, I need to get to my chores. Take care, everyone! Debbie
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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited July 2007
    Susie, am glad to hear you are feeling better. Could you send your mom and dad my way when they finish with your house?

    Honeygirl...so sorry you had to put your cat down...what a hard thing to do with all of this chemo stuff going on. My thoughts are with you

    Kath, milk is about the only thing that tastes normal to me too. I wish I could drink other things, but NOTHING tastes good.

    Lisa, I wish I could drink ginger ale, but I've never liked it much..oh well, I'll find something, eventually.

    Terry, thanks for your hugs ealier Hugs back (((Terry))). Am glad your wound is finally healing up.

    Dawn, how was #3? Let us know.

    Garnet, how are you feeling? Hope you're doing better.

    Shrink, I dont' have any taste left either. Nothing tastes right. I get a craving for something and then can't eat it. Sucks.

    Pam, hope you are doing ok with #3, let us know how it's going, and thanks for your support.

    Sharon in MO, How was your #3? I hope it was ok. I'm hoping Taxol is easier too. 10 days of nausea each time with me, and it's awful, but I'm still alive, that's a plus.

    Linda, I've never heard of flipping ports, sounds really painful.

    Cheryl, wow..what an awful thing for you to have to go through on top of chemo. I feel so bad for you. I guess the only advice I would give you, is you do whatever you have to do, whether stay with him, or not, so that you can get through this chemo. I hate to tell you to be selfish, but I think right now, with your chemo, you have to be a little selfish, so you do what you have to do to get through, and then deal with all of the other later on.

    Dino, thanks for coming in and reminding us there is life after chemo.

    Debbie, I am SO glad you are doing well, it gives me something to hope for. You'll be the first one for Taxol, right? You will have to be our sounding board.

    Holly, thanks for your support. How was taxol for you? Was it any easier than the AC? I hope so...AC has been really hard for me 10 days of nausea. Four days of feeling kind of normal, then the next tx.

    Well, girls, as you can see, I'm finally feeling a little better, Thursday I had very little nausea, and yesterday felt pretty good. Today almost normal again, and of course my next tx is on Monday...#3 for me of AC. This nausea thing sucks. And wouldn't you know it, during this one, I lost my hair, I gained bleeding hemmoroids, lost weight, gained mouth sores Aw well...tomorrow is a new day. Hope you all are doing well, I keep you all in my prayers, even though I'm not on here posting much. You all rock.

    We are woman, hear us roar....EXCEPT on day three and four, when we kind of meow, but the INTENT is there, lol.

    Gracie
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  • DebbieK
    DebbieK Member Posts: 116
    edited July 2007
    Gracie, I really enjoyed your post. I also can drink gallons of milk. I have always been a milk lover, but I even like it better now. I do have other things I can drink, but I have to agree that milk tastes the best. I have also found that my taste buds are really out of wack. Also lots of foods don't look good to me.

    I hope you are better this time around on your nausea. That is really awful to have it last so many days.

    We are all winning this battle tx by tx. Keep up the fight!
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  • HollyHopes
    HollyHopes Member Posts: 497
    edited July 2007

    HI Gracie - Taxol was MUCH easier than the AC...very few SE. Hope it goes well for you....

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  • lastminuteD
    lastminuteD Member Posts: 333
    edited July 2007
    Right there with you Melody - I did not lose my hair for nothing!! We all will get through this and it is so helpful to hear from Holly and the others that have stopped by to encourage all of us.

    Pam - I hope the added drugs help with your swelling.

    Terry - I can't imagine having a visiting nurse EVERY freaking day for a month!! Hopefully this will be over for you very soon. I don't think I could sit still long enough for a makeup artist to work on me - might be interesting ONE time AFTER my hair comes back though!!!

    Debbie - glad to hear your flight to my area went well and how awesome that you are almost done with A/C!

    Gracie - #3 A/C went smoothly on Thursday - felt good yesterday and hit the tired wall today! DH and I took our daughter (she is 25) to the airport last night - she flew to England to visit friends and her dog Charlotte has latched onto me so everytime she moved last night on the floor beside my bed she woke me up! DH has a cold so he is staying in the other end of the house as much as possible so hopefully I don't catch it. I think tonight the dog can sleep with him!! LOL

    My A/C treatments are every 3 wks so the next one will be 8/2 - my youngest DKs 17th bday!! I'm not having many issues with food - although liquids taste different. The nausea meds seem to be working fairly well. I take Emend, Aloxi in my IV, Decadron in my IV, Companzine & Ativan as needed at home. I sure wish yours were helping you more also. Have you asked them for different ones?

    Hope everyone is having a nice weekend - the weather here is beautiful - only wish I had felt awake enough to play in the garden - damn weeds................

    Dawn
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  • kath11
    kath11 Member Posts: 102
    edited July 2007
    Dear Cheryl,

    I just want to send you love and strength. You sound like a wonderful woman. Be selfish, as Gracie said, and do whatever it is you need to do to get through treatment, and deal with the other crap later. Keep up your strength and enjoy your children and friends. You'll be in my thoughts and prayers.

    xoxo
    Kathleen
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  • TerryNY
    TerryNY Member Posts: 603
    edited July 2007
    Holly, do you still have to take the anti-nausea meds or neulasta while on Taxol? I'm hoping I can quit some of these meds, most notably the decadron.

    I have AC #3 tomorrow, just one more! I can't wait.

    Kathleen, I think I'm jealous! LOL I hope your last AC goes well with minimal SE. Great news on your cross country trip.

    I too have a funky taste problem after tx. It lasts about the first week but by the second week it is some better. Fluids and cold items are about all I can handle the first few days...oh and chicken and rice soup with oyster crackers. I've stocked up for the coming week.

    I had a wonderful time on the garden walk yesterday, perfect weather and perfect company. It felt great to be outside and seeing all the beautiful efforts people put forth in their yards. We had a horrific snow storm last October and we lost about 70% of our trees so it was heartbreaking at the same time to see some of the damage still.

    GRacie, I'll be thinking of you while I'm hooked up tomorrow. I sure hope they can fix your nausea for you. Ask them!! I know I've been very fortunate in that the first mix of drugs tried worked. There are so many drugs for them to use, hope they get it right this time!

    Everyone have a good Sunday!
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  • GracieM2007
    GracieM2007 Member Posts: 1,564
    edited July 2007
    Debbie, I hope number three is better. I am relying on milk and ice cream. They get me through the first five days usually...I hate to even look at the scales

    Dawn, am so glad number three went well. Let us know how you are doing as you go along. Get some rest.

    Terry, I wish the drugs worked as well for me. I'm using Emend now, the first three days, Aloxi by IV, then Zofran, Compazine, Ativan at home, along with Some green pills that coat my stomach..yuck. then also have Phernergren if it gets too bad.

    I tried Kytril, it didnt' work very well. So I think I've been through the mill on what they have available.

    I can't use the Decadron at home, it tore my gut up the first time, I ended up in the emergency room, doubled over in pain from it.

    I'm scared stiff to go outside. We've already had the first case of West Nile here in Kansas. And we have mosquitos terribly..they are everywhere...so I'm staying in. And my white blood count is low, so..no mosquito bites for me. I would love to go out and sit...but oh well. My taste is off too...wish I could taste things
    I hope you do well tomorrow with your tx...let us know how it goes..I get number three tomorrow.

    Blessings,

    Gracie
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  • HollyHopes
    HollyHopes Member Posts: 497
    edited July 2007

    Hi Terry - I continued to get the neulasta and procrit shots while on Taxol and also the anti-nausea meds. I never really had a problem with nausea. The Taxol seemed much more gentle on the body than the A/C. I did get some neuropathy in my hands and feet which is slowly diminishing....

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  • mikeysmom
    mikeysmom Member Posts: 137
    edited July 2007
    Hi all! I have tried to post a few times and either had a computer problem or just couldn't stay focused enough to finish...hope I can finish this one!
    Cheryl, my thoughts and prayers are with you. Do whatever you need to do to get throught this and remember, this too shall pass.
    Gracie, I am from Las Vegas and mosquitoes aren't much of a problem but I'm on vacation right now in North Carolina and I'm a little concerned. I kind of thought that with all the chemo drugs in my system I wouldn't be appealing to them. I haven't discovered any bites yet.
    Linda, I hate my port almost as much as getting tx. Sometimes when I sleep on that side, it pinches and freaks me out. I can't imagine it flipping.
    Kathleen, I also just flew across country after tx. I was told to wear a sleeve (I only had the sentinal node removed) as a precaution but after spending $55 on it I forgot it. Didn't have any trouble anyway.
    My trip was planned way before dx and I really didn't want to miss it. We are at a beach house in Kill Devil Hills, NC with my husband's 2 brothers, his sister and their families. 15 of us! I had AC #2 the day before we left and a neulasta shot the day we left. Traveling was fine but when I got to my BIL's house in MD (we drove down here together) I was so sick. I spent 2 days in the guest room and threw up for one whole day. This did not happen with tx#1 so I was really not prepared! It was the first time I really considered not having more tx's but I'm feeling better now that we are at the beach though. Also, as someone said, I didn't lose my hair for nothing! And I have a 9 yr old DS and really must get through this for him.
    Nothing tastes that good to me in the first week after tx but when something does taste good, I eat a lot of it:( I have gained weight during tx.
    I am lucky that water is still okay for me. I know I should be drinking more but at least I'm getting some down.
    I apologize for not responding to all individually--I am still thinking of all of you--I just can't stay focused enough. I'm blaming chemo brain but it could be my usual ADD.
    Cyndi
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  • garnetann
    garnetann Member Posts: 158
    edited July 2007
    Hi all
    I am doing great. I had three nasty days of nausea from tx#1, but they are taking me off the compazine and giving me zofran next time. So far my hair is firmly attached, but I imagine it will be gone by the end of the week. After the first three days of feeling like crap, I started feeling better and 2 more days got my appetite back. I think I ate everything in sight. The neulasta shot did not affect me at all, no side effects or anything. I did get mouth sores about a week after my chemo and than a UTI. That magic mouthwash stuff is really great. The mouth sores are gone for now, and the UTI is clearing up with antibiotics.
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  • TerryNY
    TerryNY Member Posts: 603
    edited July 2007
    Cyndi, I hope you're able to enjoy your vacation, it sounds glorious to me. I understand about making plans before dx and wanting to follow through, dang cancer isn't gonna get in our way if at all possible! Relax and enjoy your family.

    I had #3 AC today, they gave me half a dose of the decadron before as I was having a such terrible time with it, jittery, racing heart, high BP. Hopefully it won't happen this time around.
    Anyone else have a heightened sense of smell?? I noticed it today, usually my 'smeller' isn't that sensitive (except to perfumes, cologne, etc) but man, it's working overtime today for some reason.

    Gracie and Kathleen, how did your treatments go today? I hope you're both doing well. If I missed anyone, I apologize.

    Garnetann, thanks for your update, sounds like you're doing well! I wasn't bothered by the neulasta shot either, minor pain the first time but the second was easy cheesy. I feel so very fortunate!!
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  • mikeysmom
    mikeysmom Member Posts: 137
    edited July 2007
    Terry, I've noticed an increase in my sense of smell too. I'm already pretty sensitive and now it's like certain smells will make me a little nauseous. What's decadron and what is it for?
    Cyndi
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