STEAM ROOM FOR ANGER

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2021

    alice,

    Here is my message to those folks, who have enough to deal with :

    STOP IT, JUST STOP IT RIGHT NOW! YOU DID NOT CAUSE NOR ARE YOU PERSONALLY RESPONSIBLE FOR DEVELOPING CANCER, PERIOD.

  • Jinx27
    Jinx27 Member Posts: 238
    edited November 2021

    People are so inconsiderate and try to help by sending articles about cancer that are wrong. Sad thing is its from one of my parents who just doesnt get it.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2021

    jinx27,

    My father was always sending me articles and news clippings about all sorts of cancer tx. These were all conventional tx but for every type of cancer under the sun. After he sent me an article about tx for prostate cancer, I tried to explain to him that each type of cancer is most often treated differently. But cancer is cancer was all he could say. Cancer is much more complicated and nuanced than most people imagine unless they’ve been touched by it intimately.

  • Jinx27
    Jinx27 Member Posts: 238
    edited November 2021

    Exbrnxgrl, so Im not alone in this? Thank goodness, it just seems like people need a class on how to speak to someone you love who is diagnosed and or/ going through treatment.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2021

    Not alone at all. My mother is a retired physician and sends me these stupid articles. I ignore all of them. My brother told me he just considers her emails as "proof of life". We all live far apart.

  • illimae
    illimae Member Posts: 5,710
    edited November 2021

    Jinx, you’re definitely not alone in this. When I was first diagnosed, my mom sent me tons of stuff about lemons and alkaline water. I knew it was coming since she also bought me shoe inserts, which were to help me lose weight somehow, lol

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited November 2021

    Oh, I totally get it. Fortunately, I haven't heard from the guy who has a "Ministry of Healing" and can cure any cancer. Bleh!!! I'm still waiting for him to show up at my door.

  • KIDI919
    KIDI919 Member Posts: 425
    edited November 2021

    Sunshine99, after he bonks you on the head you will be fine!Afterwards you can send him to my house.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited November 2021

    Oh I had someone give me a book by someone who was to be "inspiring" and she definitely did not read it or pay attention enough. The lady dies in the end from breast cancer. Real encouraging when you are first diagnosed and trying to figure things out yourself and worried enough. Shoved in a closet once I figured it out.

  • SF-Cakes
    SF-Cakes Member Posts: 316
    edited November 2021

    One of the phlebotomists, while attempting to draw blood for my labs, proceeded to tell me about her family member who was dying from breast cancer but had a really positive attitude! That's when I appreciate wearing a mask, so I can mouth "please fuck off" underneath it.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2021

    Another good reason for masking 😉!

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited November 2021

    Regarding the blaming yourself, I do believe my lifestyle was/is a contributing factor to my health (as to what percentage it's probably not that high?). I don't know. Over this past year my wine consumption was way up. There were weeks I was having a few every night. Mostly so I could sleep and not remember my dreams. I'm sure grief and being alone, you know the whole life adjustment, had something to do with it. Eventually, I cut back to a few nights per week and started noticing on the nights I don't drink, I can't sleep, and I wake recalling wtf was I dreaming about? Then, I find out my liver is enlarged (which isn't a disease in itself, but a symptom of something causing it), and thereby treating that will hopefully not lead to further damage or disease. I am on day 5 of no drinking at all, and sure enough, I can't sleep. I have trouble falling asleep, and once I do, I am up every 2-3 hours so a couple of times per night. When I feel I can finally have a good dose off, it's then time to get up.

    I've been reading some on all this stuff.. Taking the AI has been talked about here. I am on year 3 and it is metabolized in the liver. I am also on a statin. Year 4 or 5 of that. Plus, the wine. Which one is it, or is it a combination of all three? Or something else? Going for a liver function blood test soon (never had this before), and I'm also considering buying some melatonin, but not taking it until after I do the test. Also read it may be beneficial to the liver, and it may help the sleeping issue. Anyone take melatonin?

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2021

    ctmbsikia,

    I have taken melatonin for more than 10 years, so pre-mbc. My advice would be to start with the lowest dose and see how it goes. Most brands sell tablets, gummies, or sub-lingual dissolving tabs on 3 or 5 mg doses. Some brands make 10 mg doses. Play around with the dose until you get the effect you want. Most people build up a tolerance for melatonin so there will probably be a point where you have to increase your dose. I am holding steady at 20 mg a night and it works very well for me. My older dd tried it a number of years ago and it gave her strange dreams. I have heard others mention this. She tried it again not too long ago and had no problems. Take care

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2021

    Apparently my years of taking NSAIDs plus smoking gave me kidney cancer. My dad also had kidney cancer, non-smoker, only took a few prescription meds. But I guess it's easier for doctors if they have a way to blame people because they don't want to say "We don't know."

  • Jelson
    Jelson Member Posts: 1,535
    edited November 2021

    SF-Cakes - You could have responded to the clueless phlebotomist, "Your point??" and it would have also been a pun!

  • tinkerbell65
    tinkerbell65 Member Posts: 51
    edited November 2021

    That Martha Stewart article -

    Did I possibly get cancer because of the air pollution caused by leaded gasoline, and that I lived on a busy street in an urban area my whole childhood, with cars and buses going by 24 hours a day? Lead in the water pipes? Dust from lead paint? Other toxins in the air and water, since it wasn't regulated in the 1950's and 60's? Parents who smoked ALL THE TIME?

    No it was probably because I don't dust my house often enough, and I don't eat enough vegetables.

    Environmental exposures contribute to cancer - but these aren't the same as "Lifestyle choices". The article pissed me off, I don't like the attitude of superiority implicit in an article like that.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited November 2021

    ctmbiska I take melatonin every night for a long time. I had sleep issues for other health issues and I use the Nature Made ones and they are gummy flavored so you just chew them like a gummy bear. I take them and in about an hour after I take them I am able to sleep all night. It was recommended actually by my neurologist who know about my breast cancer history as well. Safe to take as well. Without it I am up and walking the halls at night.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited November 2021

    Is anyone else having trouble accessing some sections on this forum? Since yesterday I have been getting “internal error” for the stage iv threads and active topic section.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited November 2021

    I got that too. Thought it was my phone. Had to beat around the bush to get on this am.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited November 2021

    Saw a message on there they were working on it last night. Have a feeling a server crashed or something.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited November 2021

    Thanks bcincolorado.

  • GR4C1E
    GR4C1E Member Posts: 159
    edited November 2021

    Asshole at work: Do you drink alcohol?

    Me: Yeah, occasionally. I like a glass of wine every now and then. Why?

    Asshole at work: See? It's your own fault you have cancer.

    For real. She totally said that to me, then went outside the building and chain-smoked cigarettes for fifteen minutes, as she does three times a day, every day. For a moment I thought, I would never ever say something that cruel to anyone. Mostly because I'm not an asshole, but mainly because I don't believe anyone brought this on themselves. I don't deserve this. Neither do you. Neither does that asshole, really.

    THEN, I started thinking. If SHE were ever diagnosed with cancer and I found out about it, I defininitely wouldn't be a dick about it and gloat or blame her, and I truly hope she never has to go through what we're going through.

    I WOULD, however, have to MENTION that many chemotherapy formulations contain ethanol (alcohol) as a solvent. You know, just to see the look on her face. Karma's a bitch.

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited November 2021

    GR4, seriously??? I mean, who does that??? Well, I guess there will always be that type. Sheesh!

    ctm, I'm with you. I "need" my wine to go to sleep, but am thinking that every night is probably not a good thing for me. I've started taking melatonin, too, but am not sure how it's working yet. It would probably be better if I enjoyed the wine a little less frequently. I hate not being able to fall asleep or to stay asleep.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2021

    Sunshine,

    What dose of melatonin are you taking?

  • Sunshine99
    Sunshine99 Member Posts: 1,680
    edited November 2021

    exbrnxgrl, right now, I'm taking a 10 mg quick dissolve tablet. I started with a 3, but didn't notice a difference with that dose.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited November 2021

    I use 10 mg of melatonin and it works for me. I know my bottle says that is the dose on mine. If it stopped though I would ask my doc before taking more I imagine. I think anything in too much is not good no matter what. I know without it I get up and walk the halls at night and do not sleep.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2021

    bcincolorado,

    Melatonin, like other supplements, is not subject to the same regulations as otc or prescription meds. Doctors are often not as well versed on these things and there may not be a lot of info on how supplements effect conventional cancer to. That being said, it is always a good idea to let your doctor know what you’re taking .

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2021

    GR4C1E, Well, you could tell her that wine keeps you from being an asshole, then look at her VERY directly and say, "I HIGHLY recommend it."

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited November 2021

    Alice, excellent suggested reply to Gr4cie's asshole of a coworker!!!!


  • GoldensRBest
    GoldensRBest Member Posts: 447
    edited November 2021

    My husband and I share a bottle of wine each nite. He has a glass - I have the rest. Been doing this for years and won't stop because of my damn MBC. That has stolen enough already! Liver values are fine.

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