My Husband, My Life, My Love, My Family, My Cancer

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  • Micmel
    Micmel Member Posts: 9,450
    edited March 2021
    Mara~yes he works very hard at his job. He just thinks his day is done the second he clocks out. Which we all know it doesn’t. I do not want the stress DH doesn’t deserve it. Neither does ds. If he had his own place I wouldn’t care. He has a car parts habit and I suspect that’s where the money goes. I’m going to keep trying to get through to him.
  • Karenfizedbo15
    Karenfizedbo15 Member Posts: 717
    edited March 2021

    Mel, none of us here are probably qualified to advise properly on your DS....although some of us may have our own family and professional experience. This is a decision for you and your family. If living is intolerable then changes must be made, even small ones and we ALL have choices. Respect is key though...any behaviour which is continuously and knowingly disrespectful IMO needs to be addressed and sometimes that means making hard decisions.

    If you feel you’ve tried everything and moving him out is out of the question just now- My personal instinct ( and I know many won’t agree so please don’t shoot me down too much) would be to speak with DH and both very calmly inform DS just in passing at a quiet time, NOT in a confrontation, that you love him and want him in your home but you’ll bag and bin/ burn all of his stinking laundry, as that’s the main issue, if not sorted in a couple of days and that you’ll continue to do that until he keeps his space clean.

    And then carry that out. NEVER threaten what you wouldn’t be prepared to carry out!

    He’ll probably go ‘Tonto’ the first time and as long as you can be confident he’s not violent you can put up with some shouting and banging doors etc. Remember it’s only stuff - You might want to quietly replace some of his basics in his space, just to tide him over so he knows you care but that way he’ll need to spend his money on replacing his clothes every time you carry that threat out, until he gets the message that you mean it. Might take a couple of goes and if too risky for you safety don’t do it!

    Promise I won’t interfere again, just my thoughts.

  • mara51506
    mara51506 Member Posts: 5,088
    edited March 2021

    Good luck Mel, all the best to you and your family.


  • candy-678
    candy-678 Member Posts: 3,950
    edited March 2021

    Mel- All the best to you and your family. And pocket duty for your scan tomorrow.

    I have had a rough mental health day. I don't know why really. It was sunny and in the 60's today. I had my windows open for fresh air. I just felt "defeated". Same stuff- loss of career, finances a worry. I have thought about some stuff I could look into to do-- volunteer wise. But then I don't feel really great to be too busy. I slept ok last night, but tired today. And tired most days. Icky feeling. I just cannot be as busy as I used to. I cannot see myself doing all I used to do. Then I think why try. Be at home with your cat and your comfy house and a good book and just be happy with that. Like I said before, in the winter when the weather is cold, I feel others are hunkered down too. But now that spring is in the air, I know people are out and about and it makes me feel lonelier. I know, I had the Covid shot. Go out and about. And you all have given good suggestions for hobbies or things I could do. I just do not have the desire. I think I am depressed. But I do not want to pop another pill (antidepressant). I don't know.

    I hope tomorrow is better for me.

  • Micmel
    Micmel Member Posts: 9,450
    edited March 2021

    thanks candy. Sending hugs for a better day tomorrow!

  • cowgal
    cowgal Member Posts: 833
    edited March 2021

    Micmel - I am wishing you good vibes for tomorrow for your scans that they are good and that your fall injury shows to be healing well.

    Candy - I am sorry. It is hard. I hope that you can figure out something rewarding that will work for you. I know that right now I am lucky in many ways. I am still able to do my job but I worry about for how long. For me, I will be glad to see winter go. That really cold snap we had a few weeks ago made me hurt in lots of places that don't normally hurt. I am sure it is arthritis but it doesn't matter, the livestock have to be taken care of so sitting in the warm house is not an option. March is always a really windy month and a month where we can get really bad blizzards so I am hoping for a quiet March.

  • Micmel
    Micmel Member Posts: 9,450
    edited March 2021
    Cowgal~thank you. Taking care of horses and or live stock is a lot of work. Amazing you can do that. I find every year my body gets weaker. I notice it slowly,but I notice it’s there. My balance, neuropathy chemo induced. I still can’t believe you work. Amazing to me. I also cannot stand windy cold weather. Ready for that to be gone. Like you said though, March is very tricky. We’ve had big snow storms in April before. Let’s hope it’s all over for the season. Let’s prepare for allergies. Next. Covid lingering. I’m hearing less and less about it daily though. Like people are forgetting about it. I hope they don’t become too lax. And it starts to get bad again. I hope hope not. I’m going to try to get some sleep. I’m a little anxious. Up early to be there by 830. So goodnight ladies.
  • SeeQ
    SeeQ Member Posts: 884
    edited March 2021

    Mel, we are all with you for your scans tomorrow.

    Candy, Sending cyberhugs your way to build you up. You may not be able to do all you did before, but you will find your niche as COVID things relax a bit.

  • GoldensRBest
    GoldensRBest Member Posts: 447
    edited March 2021

    Virtual hugs to all on this board. Mel - pocket duty (full of your favorites). Praying your scans will give you good news 🙏🏻🙏🏻

  • booboo1
    booboo1 Member Posts: 1,159
    edited March 2021

    Mel,

    I have no advice to offer since I don’t have kids, but I will pray for God to show you a solution. It sounds easy to say just throw him out, but you love him and want the best for him. There are no easy solutions. I am also in your pocket today. Think positive thoughts, my friend.


  • candy-678
    candy-678 Member Posts: 3,950
    edited March 2021

    Ok, so I got up this morning thinking about my mental well being. I called the food pantry I used to volunteer at. I have not been back to them since summer of 2019--- pre Covid era. I spoke to one of the directors (she remembered me) and explained my situation-- cancer, continuous treatments with low counts, Covid vaccine done. She said she thinks she could use me. She agreed I need a "behind the scenes" job so I would not be around everyone that comes in. She is going to discuss with the others where I could be used the best. I told her I had scans the end of the month and I want to see if I am still stable. Also, warmer weather. So next month??

    We will see what becomes of it. Just wanted you all to know I am trying. I need to try.

  • mara51506
    mara51506 Member Posts: 5,088
    edited March 2021

    Good for you Candy, betting even the behind the scenes will be very helpful just to run into people to talk to in person.

    I am doing something different for myself exercise wise, though I cannot really stand long walks on the treadmill, I find 15 minutes is good to get me pumped up and not bored. I have also had two tiny servings of beans in between walks to help rev up my metabolism a bit. Think this could be a manageable morning routine for me, give me some energy to want to do more without it being a struggle to get motivated. It is tough to find motivation, even for me.

  • 50sgirl
    50sgirl Member Posts: 2,527
    edited March 2021

    Candy, Good for you for taking the step to call the soup kitchen. I am proud of you. WOOHOO! I hope that good things come from that call. I know that they will be lucky to have them back with them. I sense that you are a thoughtful and giving person.

    Good luck to everyone with scans, tests, and treatment. I will be hanging out in your pockets.

    I will have my second Covid shot next week. This is huge to me. One of my sons, along with his wife and both children, have recently recovered from Covid. Another son and his wife are getting their second shots next week. Guess what that means- All 6 of them can come here for Easter dinner. My dh and I haven’t been with family for holidays for an entire year. I feel like a 5 year old waiting for Christmas morning. I wish my other sons and grandchildren could join us, too, but they haven’t had Covid (thank goodness) and haven’t yet been vaccinated.

    I am doing okay. I have been on Verzenio as monotherapy for the past four weeks. I don’t like the SEs and my MO is still trying to find a solution to that issue. He might have to reduce the dose.

    I have to get caught up on this thread. I hope everyone is doing okay.

    Hugs and prayers from, Lynne


  • mara51506
    mara51506 Member Posts: 5,088
    edited March 2021

    I am glad for the people getting their shot, it is good to hear for sure.

  • moth
    moth Member Posts: 4,800
    edited March 2021

    hope your scan appt is going smoothly Mel!

    I'm in waiting room to see my RO. Just finished rads 2/5. I've been feeling good.

    No shots for us - nowhere near yet. Oh well. We wait. I got a kick out of this t shirt...the introverts like me are worrying already about ending lockdowns lol



    image

  • mara51506
    mara51506 Member Posts: 5,088
    edited March 2021
  • Rosie24
    Rosie24 Member Posts: 1,046
    edited March 2021

    Mel, I hope you’re home and resting comfortably after your scan day today.

    Hi everyone 👋

  • Micmel
    Micmel Member Posts: 9,450
    edited March 2021

    It was an interesting morning. I arrived at the “old" hospital at 830 on time. And had my port accessed everything great moving along nicely. So I go to radiology, she looks at me and says you're scheduled in the “new" hospital. I was like why would I get my port done ten minutes away from my scan. It wouldn't be safe to leave and travel with an open port. So the tech was sweet enough to fit me in even though thursdays are heart scan days. They takes lots longer. So I waited and had it done. So now I wait. Thanks for all who showed for pocket duty! Much appreciated! I'm tired tonight. The building of my anxiety wore me out. I hope you're all ok. Thanks again for caring.

  • moth
    moth Member Posts: 4,800
    edited March 2021

    Mel, glad it got done in spite of mess ups of new v old hospital!!


    fun fact for the future - you can actually leave ports accessed and saline or heparin lock them just like you saline lock a regular IV. I've seen guidelines of up to 7 days from the manufacturer of mine but my health authoritiy recommends 48h. At my place they often ask if it's going to be accessed again in the next 48h because it's actually apparently safer to leave it accessed and locked than to re-access....

  • Kittykat9876
    Kittykat9876 Member Posts: 346
    edited March 2021

    I'm scheduled for petscan in April and I'm having my port accessed at the hospital 20 minutes away then going back after to have it locked again after, I'd rather do that than have them searching for non existing veins. Glad you got it sorted anyway, try not to stress too much, it doesn't chang the outcome and just makes us feel bad, that's what I've found anyway, although I realise it's a lot easier said than done.

  • mara51506
    mara51506 Member Posts: 5,088
    edited March 2021

    I once kept a port in and locked because I had a scan two days post infusion. It was a pain because I had to be careful while cleaning my top half, just did hospital baths with cloth and water to keep clean, had the scan and then got the port deaccessed.


  • BevJen
    BevJen Member Posts: 2,523
    edited March 2021

    I don't have a port in, but I didn't realize all of these complications of the port. I mean, I guess once you get it done you get used to it. And yes, it's a pain for them to access my overused veins. But all of this access stuff, etc., freaks me out. I guess you get used to it.

    Anyway, Mel, happy that you were able to get your situation worked out, and that tech was an angel to fit you in. Hope you get your results soon, and that they are good.

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited March 2021

    Mel..always in my thoughts.

  • candy-678
    candy-678 Member Posts: 3,950
    edited March 2021

    Mel- When do you get results/see MO?

    I have a Port. We access it monthly for flushes, that is it. I have good arm veins (right arm only), so we use arm for blood draws and scan dyes. I wish I could have Port taken out (been in over 3 years now), but I think they want to keep it in if doing ok. In case I need IV treatment. This week when I went in for flush, it would not draw blood (nothing new) so I had the clot buster instilled. Not the first time.

    BevJen- You get used to it. But I do think it is an unnecessary pain, for me anyway.

  • GG27
    GG27 Member Posts: 2,128
    edited March 2021

    I have a port and it gets left accessed every week from Thursday morning labs to late Friday afternoon chemo, there is no issue having it accessed.

  • mara51506
    mara51506 Member Posts: 5,088
    edited March 2021

    No real issues for me either. Would far rather have it used for drugs than my sad vein on the left arm. Right arm would be good for needles but I will not allow it due to fear of lymphadema. I had to have TVA put in recently due to no blood return on it and it worked well from there.

    Hoping to hear results from Mel soon as well.

    Having trouble getting motivated to do anything much today. Just too lazy I think.

  • moth
    moth Member Posts: 4,800
    edited March 2021

    I just finished with my zoom metastatic support group meeting. I appreciate my group so much. It's sort of like us here - everyone free to share what's going on & how they're feeling. A really open space to have things validated.

    Now lunch and then I'm off to rads. This having cancer thing does take up a lot of time which bugs me .... I want to have time to do other things!

  • runor
    runor Member Posts: 1,798
    edited March 2021

    Mel, it sounds like you're having a crap time of it. Let me slide in beside you on the sofa and offer a hug and pat on the hand and to say I have been exactly where you are with DS (mine was DD). Please forgive the following advise and discard as needed. I'm pretty sure I've said this before, so I apologize in advance. 

    When life at home became a constant war zone, when I learned that the taste of blood in my mouth was from me biting my tongue, staying quiet, tip toeing around to keep the peace, to avoid that unreasonable, ignorant violent backlash from someone who was an ADULT at the time .... I one day realized that she was not the problem. I was. 

    It was my mother's heart that was the traitor. It was my inner dialogue that kept the ball of misery bouncing in the air. It said things like "If she moves out all her money will go to living expenses and how will she ever save to go to school or buy her own house one day? She will feel lonely and vulnerable, like no one loves her, like we don't care about her. Bad things could happen to her! If only she'd smarten up and clean up a little and learn how not to swear at me and be an asshole, then I'd be happy to have her here..."  There was an endless list of why my precious baby was not responsible for her actions, why she should not have to feel the consequences of her behaviour, why I should be the one to smooth the water and make things better so she could continue to live at home and be an immature asshole. I was the problem.

    I had to ask myself, do I respect my kid? I know that I want her to respect me (obviously does not) but do I respect her? And I realized in that tolerating, without consequence, everything that I found intolerable, I was disrespecting her in every way I could. Because to respect her meant I would step back and let her actions, her choices, hit her full on in the face. No mommy filter there to save and protect her. We offered  her a good home and care and support and food and everything else and all that was asked was that she be a considerate adult in this space. We got a screaming, door slamming, dirty, unhelpful, miserable dickwad. Her choice. She's free to make it. She's free to feel the result. And the result was GET THE HELL OUT!! Not because I hated  her but because I respect her enough to let her deal with her own shit. The shit she made. Of her own free will. When other options had been offered to her. Live at home if you can be civil and helpful - she chose to decline that offer. I had to quit feeling bad, had to quit worrying about her feelings and finances. As for pandemics, your son is not in an age group that is at risk. He's at more risk every time he gets in his car!! So, I'd not give it a 2nd thought. He's obviously not worried about it! If he was he'd know that he was facing eviction if he didn't smarten up, but he's not smartening up, is he? If he's not worried, RESPECT THAT and let the boy go. But doing this starts not with what you say or do, but by giving yourself permission to open the door and hurl him out (metaphorically). Start by bringing home lots of empty boxes and telling him it's in his best interest to start packing now so when he finds that rental he can snap it up and move right in. Be happy. Be positive. Be helpful, but start packing for him if he doesn't for himself. Write recipes on recipe cards and tell him, lovingly "Hey son, I'm tucking this recipe for hotdogs (boil water, insert hotdog) in your box so you know how to feed yourself. Tomorrow I will get you some pots and pans from the thrift store."  Smile. Hug him. Tell him you love him. KEEP PACKING HIS SHIT!  If you have settled, in your heart, that his life is in peril for being an adult male still living with his mom playing XBoxx.... then you will know that what you're doing , kicking him out, is the biggest gift you can give him. The gift of growing the hell up. It's so bloody hard to do that it isn't funny. But when you let go of the worry and the guilt ... you will free both of you. I decided that I did not want those negative feelings towards my own kid and to fix that, to start liking her again, to find a way for us to be okay with each other, she had to go. And I had to make that possible by being ready in my own heart. 

    Hugs - this whole thing sucks. And I apologize for my outburst of advice. I'm bad for that. 

  • candy-678
    candy-678 Member Posts: 3,950
    edited March 2021

    Do you guys every feel like your mind is an Etch a Sketch. Good grief. I have to write everything down. I forget stuff all the time. This is so frustrating. I used to multi- task at work and kept the balls in the air for a 12 hour shift. I could never do that now. Hard to handle all my personal stuff now--- bills due, insurance stuff, etc etc. And I am just at home with no kids, job, etc. Good Grief.

  • moth
    moth Member Posts: 4,800
    edited March 2021

    do you guys know the phrase "pass the bean dip"? We used it a lot in another community (online & IRL) when we hear something and disagree but just want to move on & change the topic. Pass the bean dip.

    I'm constantly passing the bean dip image


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