My Husband, My Life, My Love, My Family, My Cancer

SeeQ and BevJen- Today is both your birthdays? Happy Birthday.

SeeQ and BevJen, happy birthday, hope you both have a great day.

I did have supper at DB house last nice, chicken parm was really good, tried artichoke and had massive dessert. Peanut butter cookie and krispy kreme donut, oreo kind.

Not much going on today, laundry, grocery store and a few outdoor walks as well.

Mel in your pocket too, brought the nachos.

Pocket duty this week. I made chimichangas at my daughter’s request. They’re even better warmed up so I’ll bring some with guacamole and chips

Hi Ladies

I'm not great at keeping up around here. I apologize for that, but I do read alot.

I had PET and CT'S a month or so ago. PET showed stable, but the CT shows something new on my illiac bone. My MO says it could be disease, but not sure. So we will rescan in a couple months. Is it common for CT and PET to show different active areas?

Also, I'm not sure I am jiving with my current MO. He's a good doctor, but I dont really have a good report with him. I think he has too many patients and I worry I'm being sidelined a little. Idk, just wondering how people relate with their MOs and if I'm expecting too much.

I was floored by how many patients were in the infusion room today when I went to get my Faslodex. It makes sad to see so many struggle with cancer. I feel sick at my stomach seeing them and remembering my first dance with cancer and chemo.

Blessings and love to all.

Happy birthday SeeQ and BevJen, I hope you both have lovely days.

I made four fruit muffins for Mel's pocket duty. I have infusion number 3 tomorrow, I hope it goes without the drama of the last one. I've been slowly weaning off the steroids, down from 40mg to 10, I'll be glad to be done with them.

I get it about not seeing your regular MO, it's just not the same, I've been with mine for 3 and a half yrs now and don't feel right when she is away.

Good luck for anyone that has infusions, scans, or any other medical appointments.

Well time to start my day, but first, coffee.

Mel, good luck with your scan on Thursday. I'm aboard for pocket duty!

Happy birthday ladies !!!! Two in one day!? Happy happy

Thanks for the birthday wishes. I still count mine. My age has never bothered me - probably because I'm the youngest of many. 🙂

Sondra, glad you had a good visit with your MO. It's nice to be heard and truly responded to.

Tang, I'm sorry you're not connecting with your MO. I didn't connect with my first (interim) MO. When things finally got sorted out for me to see my current MO, it made an incredible difference. Our appts feel more relaxed and conversational, and he explains more. I can go through my list of questions, and add others that come to mind, getting good answers without feeling rushed. I would have switched away from the first one, one way or another.

Signing up for pocket duty for Kitty. Goldens is bringing the chimichangas. I made chile rellenos this week, so I'll bring those.

Moth- Good to see ya back. Hope your CT goes well and you can get back on the immunotherapy. And the rads gets scheduled for soon.

Tangandchris- IDK about MO rapport. I know with my previous MO our rapport was not good. She told me to stop reading/researching and just do as she says. My current MO is nice, but very businesslike. We discuss the scans and she even turns the computer around for me to see the scan images. Like I know what they mean. Not. But she is all business. Not seen any warm fuzzies from her yet.

Kitty- Pocket duty for your infusion.

Today is Lupron shot, Port flush, and blood tests. Easy peasy, but wish it wasn't in my life though. Good thoughts for all today.

celebrate ALL the birthdays and days in betweeen and half birthdays

In Poland we also celebrate name days. It's linked to the Catholic calendar for the day of a particular saint. Sometimes they pop up more than once on a calendar (cause churches cannnot agree on anything really) and traditionally you're supposed to pick the one just after your birthday, but I think it makes more sense to pick the one that's further from your birthday. Name days are more popular among adults to celebrate than birthdays - cause everyone knows your name & thus the day. For really popular names, the flower shops sell out of flowers on their days.... Colleagues and friends will buy flowers and cakes for your name day. My saint girl has 15 days lol so at almost any time of year it's my nameday....

Hi Mara, I took the battery out of mine and put it away for the same reason, I only ever use it at home and was worried about the battery getting too hot and starting a fire. I'm sitting in the chair waiting for my infusion to start. I really hope I can avoid another stay in hospital but I'm going to pack my bag when I get home just in case.

I had a fun few hrs with Finn yesterday, we went for a walk and had fish and chips on the foreshore then we came home and built some lego helicopters and planes.

Thanks everyone for pocket duty and I'm here for anyone who needs it this week.

Moth~I learned something today ! Thanks for sharing about the name day. Interesting. The cake makes me want cake.

I hope the birthday girls had some delicious sweets for their special days.

I'm trying to deal with my ds , he's making it so hard to even talk to him. I don't want to feel this way. I love him. I just want him to realize he needs to be on his own. It's driving me crazy . It's affecting family dinners. My son is acting like an ass. I have to admit. I don't know what to do with him. It causing me great stress. Which I really don't need. Not one little bit. But I don't want to kick him out. But he makes it hard to deal with. I need him to wake up like soon. My poor DH doesn't deserve this either. He works his ass off. So frustrating

Jhl~we gave him a chance for college. He didn't like it. He wanted to work. So he did. I've talked to him a million times about his laundry and how it can't pile up because that's not clean for him. I've tried every possible way. It's just upsetting me that he's acting out towards me because I expect things from him while living in this house. When he doesn't he just doesn't want to hear it. He's a mess. No respect for our home or us even really. We are stuck. I keep getting my feelings hurt DH it's both. Son just has this attitude that he doesn't really care what we think or want he'll just ignore it. I don't want him struggling. That's why Ive allowed him here until 24 With expectations of saving. Which also hasn't happened. He plays Xbox and screams at the monitor. There is no reason my DH has to work 12 hours and when his long day is done. To have to hear nothing but screaming and yelling. If he wants different things than us. The relationship would improve with him on his own. Maybe he would get a clue. He's not the only person in the world. I’m trying everything and anything. Pandemic. Good point

Mel, does your son have a job now? If he does and the living situation is awful, perhaps he can move out to a wee apartment of his own. As much as it is heartless sounding, you and your husband need to think of yourselves. Even if you get him started with a little money to help initially pay for it. You cannot keep him at your place if he won't abide the rules of the house and looking after his area among other things should not have be an issue. He should just do it. Too much stress for all of you. Perhaps you need to start looking for apartments together. If he had his own place, he could scream at the monitor all he wants to and let his clothes get dirty enough to get up and walk around.

Myself, I took a lazy day today and happy to do it. Did some laundry and housework and that was it. Starting to think about doing taxes since all the tax forms are on my government website and I just use Turbotax free. It is not complicated for me to do.