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HopeHeal
HopeHeal Member Posts: 204

I have been lurking for a few days so thought I would come out and express how helpful and brave you all are for taking the time to post.

I have had a few other health problems which I successfully treated that I have been on alternate forums for, but I never dreamed I would be on this one. No-one in my family has had breast cancer so all of the terminology and stories I am reading are new.

After years of clean mammos, at 56 I was called back for a diagnostic, then recommended a stereotatic biopsy. I was more hopeful until I read the diagnostic mammo report: Mild pleomorphic calcifications at 3 o'clock in the upper outer quadrant that is a concern for DCIS, BIRAD-4. Additional calcification at 12 o'clock 1.5 cm long. I am scared about the biopsy and what might follow.

My feeling is that once this machine starts it doesn't stop, and even after treatment it can return once the cancer process has already formed. I don't have much of a support network and dread telling whatever family I have out of fear of scaring them. I have work to do but cannot focus; everything that was important is suddenly meaningless.

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Comments

  • moth
    moth Member Posts: 4,800
    edited February 2021

    Hi HopeHeal, one step at a time. You don't have a diagnosis yet, birads-4 is about 70% likely to be benign & DCIS is a PRE-cancerous condition.

    So tell those thoughts to just stop now. Get your biopsy, wait for results. The waiting sucks but really, there's no point in borrowing tomorrow's troubles. Have you got your biopsy booked?

    Hang in there

  • HopeHeal
    HopeHeal Member Posts: 204
    edited February 2021

    Thank you so much for responding, Moth. I just have this nagging feeling that after going through all of the radiologist's benign filtering, how could it still be benign? Plus I have been reading that Pleph is bad. Also worried about biopsy needle track seeding. The biopsy is next week.

    So sorry about your dx.


  • moth
    moth Member Posts: 4,800
    edited February 2021

    Well but birads-4 is 70% benign. It's just that they can't be that sure just by looking at it so they prefer a pathologist to look at it under the microscope. Tons of women have birads 4 and 7/10 are not diagnosed with a cancer. The biopsy needle track seeding is imo a theoretical thing. So many of women have repeat biopsies that if it was really a common thing, we'd know about it by now. Pleomorphic can really go either way.

    Try to distract yourself as much as possible and assume the best :)

    thank you for your kind words

  • LivinLife
    LivinLife Member Posts: 1,332
    edited February 2021

    Welcome HopeHeal! Try staying grounded in moth's info. Indeed most biopsies return benign. It is possible you do have DCIS if the radiologist wonders about that. You are talking about a small area so even if DCIS it would likely be pure DCIS. I had DCIS. All of this is overwhelming though DCIS (not to mention others) is very treatable. IF you have DCIS it is caught early which helps even more... Do what you can to keep yourself busy and focusing on good and enjoyable things while you wait - for biopsy then results. The waiting is so difficult....

  • tntnsd
    tntnsd Member Posts: 137
    edited February 2021

    Hi HopeHeal,

    I went through what you are being through right now not long ago. (I am still recovering from my surgery, but I am feeling much better, and more like myself each da) I remember the worry about possible outcome and how to tell loved ones with the fear of putting them through the same constant worry and scare as you are. However, the people on this board had helped me to realize that most biopsies with birads 4 are benign, and even if it turns out to be not benign, it is possible that it is DCIS (which is my case, and I had quite big area of pure DCIS on my small breast). On the other note, my sister had biopsy after screening mammogram many years ago, and hers were totally benign.

    I know it is hard to convince not to worry too much, but hope that you can distract yourself with other things. Hope that your biopsy will turn out to be benign.

  • ceanna
    ceanna Member Posts: 5,270
    edited February 2021

    HopeHeal, glad you have found support here. Worry is just human nature, and if you need to share your concerns with others, go ahead. Realize too, that you don't have to tell everyone should you need treatment. I'm one that feels the fewer people who know, the better! I hope you have the biopsy soon and have benign results. It will ease your mind to know, and if you need treatment, it will also ease your mind and bring hope once a plan of treatment is in place and the medical staff can schedule. Please ask here if you have any questions, and try not to do a google search. Too many false info bits there! Please keep us up-to-date, and hoping for best for you.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited February 2021

    Try to remember that "Nagging Feeling" does not have an M.D. after its name, so it's not a radiologist or a diagnostician, nor does it have any medical knowledge.

  • HopeHeal
    HopeHeal Member Posts: 204
    edited February 2021

    Thank you all responding so kindly, it means the world to me. This is not a condition I want to freely discuss with family or friends because there can be stigma and fear. The thing is with this disorder, everything happens fast. One does not have the luxury of waiting to choose an elective surgery. I am really not prepared for any of this to move quickly. In some strange way the waiting is better than knowing a poor outcome, at least I can hope during this time.

  • Jelson
    Jelson Member Posts: 1,535
    edited February 2021

    HopefulHeal - you are under no obligation to tell family and friends. I agree about their fears, but I have never experienced stigma. The only person I informed about my potential diagnosis was my husband, I informed family, including children, and select friends only after I had a treatment plan because otherwise all they would have had was their fears. Once you have your diagnosis, if it is not benign, you might feel pressured to move in one treatment direction or another, but it will be your choice. I understand that the limbo you are in now offers some comfort but Ignorance is bliss only up to a point and there is always hope.

  • Beesie
    Beesie Member Posts: 12,240
    edited February 2021

    HopeHeal,

    With luck you will get a benign result. But if not, what may surprise you is that the next few steps might not happen very quickly. With a few exceptions (inflammatory breast cancer, for example), breast cancer is not considered a medical emergency because breast cancer is usually relatively slow growing. It's estimated that most breast cancers have been in the breast for 3-5 years, or even longer, before they grow large enough to be detected. In that context, 6 weeks (it often takes that long to get into surgery) is not a long time. With DCIS, there is even less urgency, since DCIS is a non-invasive condition.

    So hopefully you are not diagnosed, but if you are, know that you will have time to talk to doctors (more than one, if you'd like) and investigate your options. As Jelson said, don't feel pressured to accept whatever surgery/treatment the first doctor recommends to you, if you are unsure about it.

    When is your biopsy?


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    HopeHeal - this is all great feedback.

    Just to add, I also didn't tell anyone until after I was diagnosed AND had a treatment plan mapped out. And I did go for a second opinion before settling on my eventual plan. We can be your sounding board for whatever you need to share or ask.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited February 2021

    HopeHeal, please look through posts on this forum and try to get rid of any thoughts you have about a so-called stigma attached to breast cancer. That word implies embarrassment or shame, and I doubt you'll see either of those emotions in anyone who has actually had breast cancer. And anyone else who would feel that way is several decades out of reality and does not deserve your consideration. As for fear? I believe it was our very own Beesie who came up with the best comment regarding fear: "You don't have to be brave; you just have to show up."

  • HopeHeal
    HopeHeal Member Posts: 204
    edited February 2021

    I appreciate your information about the timeline, Bessie. Nice to know I may have time to research a little. I'm also in the middle of some busy projects and I would love to be able to finish them. To all the other ladies, your posts are encouraging and helpful.

    I suspect & hope it's a fibroadema because that breast has always been the larger, fussy one. Over the years, since my early 20's, it sometimes hurt & felt so swollen in sensation that I imagined a needle pricking it to relieve the pressure. By the time DCIS would cause pain, I read, there would be other symptoms showing such as puckering, nipple discharge, presentations I don't have. My breasts were dx as dense, hence the possible fibroid. Maybe the thing calcified after menopause.

    The biopsy is tomorrow. After a few days I will know if it's door number 1 or door number 2. Took a picture of my breasts today, untouched before intervention injures it & leaves its mark.


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    Hope - just a little aside - some years ago before my first diagnosis & treatment, I took a picture of my breasts. Now I'm 10 years down the road and I'm not sure what to do with the picture. I sure don't want my grown son to find it if I'm hit by a truck. LOL

  • HopeHeal
    HopeHeal Member Posts: 204
    edited February 2021

    MinusTwo, LOL, I thought about where to store it while taking it, there's always that danger......

    I don't have a son, so whomever may find it, may they enjoy the image of my untouched glory.

  • LivinLife
    LivinLife Member Posts: 1,332
    edited February 2021

    Oh MinusTwo - had to laugh out loud at that one!!! He probably doesn't want to find them lol HopeHeal your response was priceless as well!

  • LivinLife
    LivinLife Member Posts: 1,332
    edited February 2021

    BTW - Best tomorrow!

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited February 2021

    HopeHeal and MinusTwo, you could always photoshop two wreaths on those pictures to use as holiday cards. 😀

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2021

    ALice - that's the best response yet. My son is 50 this year and he was my care giver through both surgeries. Still - I covered my breasts (or foobs) at all times, even when he was helping me strip the drains. And OMG - I wrapped my surgical wounds with Glad Press N'Ply before showering and insisted that he wasn't in the room - although I needed help to get into the shower. What a PITA.

    Holiday cards - LOL

  • LivinLife
    LivinLife Member Posts: 1,332
    edited February 2021

    Ohhhhh too funny! You come up with some doozies Alice!

  • HopeHeal
    HopeHeal Member Posts: 204
    edited March 2021

    The pix were good to take. It's IDC. They don't know what stage it is or whether it spread to the other breast or elsewhere. Doctor wants to send me to an oncology surgeon to do a workup which will involve an MRI. I thought the worst would be DCIS. It was hiding during the biopsy, doc couldn't get the calcium via the guide until he went to another area. Now my whole life is interrupted. I have to drop everything. Looking at surgery, radiation, & possibly more. And tell family; ugh. All I know now is, whenever I'm stressed, that left breast still burns.

  • moth
    moth Member Posts: 4,800
    edited March 2021

    HopeHeal, sorry to hear of your IDC diagnosis. This is the toughest part - the tests, the scans, the planning. Once you actually have a plan in place, it will feel better.

    Staging isn't usually done till after the surgery but they should have an idea of size? And hormone marker status?

    Hang in there.

  • HopeHeal
    HopeHeal Member Posts: 204
    edited March 2021

    "Favor Nottingham combined histologic grade 3 of 3" whatever that is. "Associated ductal carcinoma in situ, high grade."

  • HopeHeal
    HopeHeal Member Posts: 204
    edited March 2021

    I should have had the biop done at a breast center rather than a radiology group. Don't know how good this lab is.

  • moth
    moth Member Posts: 4,800
    edited March 2021

    Grade 3 tells you how fast the cells are reproducing. When you see 'Grade" in our siglines, that's it. You're Grade 3 (highest. Means tumor is relatively fast growing & the cells are dividing sloppily). These slides all have to be read by a trained pathologist so it will probably be all right - doesn't matter who gets the sample, so long as it's a good sample & they can stain it & stick it under a microscope.

    The DCIS at this point is not really relevant honestly for your prognosis, though it may affect surgical options. The IDC is the more serious diagnosis and it will dictate systemic treatment.

  • HopeHeal
    HopeHeal Member Posts: 204
    edited March 2021

    Thank you for your invaluable replies, Moth.

  • ceanna
    ceanna Member Posts: 5,270
    edited March 2021

    HopeHeal, I hope you are able to get into the surgeon soon and can get a plan in place. A medical plan will help you know what/when/if to tell others of your need for treatment, and then you can determine if you need to "put your life on hold." I know it's hard now, but being able to make treatment choices will determine how long you will need for recovery. All the best, and please let us know your next steps.

  • HopeHeal
    HopeHeal Member Posts: 204
    edited March 2021

    Thank you Ceanna. I was just advised by an acquaintance that went through bc that I need surgery soon. That is not going to give me time to look around. So glad to see you didn't need chemo and that you are doing well (dx in 2014 and it's 2021!). The chemo scares me. I have other health conditions that might respond that could complicate things.

  • ceanna
    ceanna Member Posts: 5,270
    edited March 2021

    HopeHeal, everyone's plan of treatment varies by your diagnosis and options chosen. You may find that a surgeon gives you time to make choices, and not everyone needs chemo which is based on BC type and stage (based on pathology report), node involvement, etc. I did not need chemo, had a lumpectomy, and was back to work in three days wearing a breast binder under a fleece jacket so I did not need to tell everyone. I had SAVI radiation over 10 days and didn't miss any full days of work--only hours. You will want to talk about your other health concerns with the surgeon and any other doctors you are referred to. They may have other patients with the same issues and will probably be able to reassure you about treatment plans. Hope you can go to a the breast center that has a nurse navigator, as that person will be your go-to person for your specific needs, questions/answers, and reassurance. Otherwise, keep asking here!

  • HopeHeal
    HopeHeal Member Posts: 204
    edited March 2021

    I will have to become familiar with the language of the treatments. So much to learn. I hope I have such a good treatment plan as you. The way things have been going I am on a bad roll; first the mammo callback, then the biopsy, now the dx of invasive instead of just DCIS & grade 3 rather than grade 1. I ask, is there anything willing to give me a silver lining somewhere, anywhere?!

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