Depression while being treated for Stage IV Breast Cancer

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SandiBeach57
SandiBeach57 Member Posts: 1,617

How are you handling depression while undergoing treatment for Stage IV/metastatic breast cancer?

I would like to hear collective wisdom from my peers on their strategies with dealing with depression.

Please kindly provide input on your experiences: Counseling, medications and coping techniques.

Comments

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited January 2021

    I am trying to decide between Wellbutrin and Lexapro and will be meeting with either my primary care physician or palliative care NP to discuss the best fit for me. I am also searching for a counselor that specifically treats terminal cancer patients.

    Just because I am being treated for metastatic cancer, does not mean I should not fully enjoy my life.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited January 2021

    SandiBeach,

    Of course you should fully enjoy your life! My medical facility refers most cancer patients to a psychiatrist who specializes in cancer patients and let's the patient decide whether to see him or not. I chose to see him and have been on Effexor for many years. Can your treatment center recommend a therapist who works with cancer patients?

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited January 2021

    Thank you exbrnxgrl. Yes, my palliative care team has given me a name of a counselor who works with cancer patients.

    I am hoping that collective wisdom from us metastatic folks will help others.

    I need to research Effexor. I believe it is similar to Pristiq which I have had before when i was first diagnosed in 2006, but had difficulty coming off the drug. I will ask about those two. Thank you for your input..means a lot.

  • illimae
    illimae Member Posts: 5,710
    edited January 2021

    Sandibeach, I probably won’t be very helpful, as I am naturally very optimistic, but I have learned to go ahead and have a down day or two, when it hits me. My only rule for myself is that I don’t stay down. What works best for me is having something to look forward too, it can be a delicious meal, a new fun T-shirt or a weekend out of town (state parks mostly during covid). I also watch a favorite movie or tv show guaranteed to make me laugh.

    Sometimes, especially after getting bad news, I dwell on all the things MBC has and will take from me, the biggest being the next 40 years. But after I’ve had a good cry or angry fit, I remind myself of all the great experiences I’ve had and will still have. I’ve been so lucky in my 45 years and really appreciating that makes me happier than most “healthy” people. The life motto I adopted from my BF’s family is EGBOK (everything’s gonna be ok), the ok part doesn’t mean cure to me, just ok, acceptance and having as much fun as possible.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2021

    Light exercise, fresh air and sunlight may also help. Sadly COVID makes getting out of the house more complicated these days, but going out for a walk during daylight hours really helps improve my mood.

    I also use a light therapy lamp in my computer room and set up next to a window facing East so I can catch the light even when I’m indoors and working.


  • lehrski
    lehrski Member Posts: 94
    edited January 2021

    I had fairly severe depression for the first 4 months after diagnosis. Initially, I saw a therapist, but she wasn’t familiar with dealing with illness and she wasn’t helpful at all. I’m in a small town and there are no resources with the cancer center. I then switched to self treating with “bibliotherapy”. I worked through the exercises in a couple of books including “Feeling Good” by David Burns. I also started yoga and worked on breathing techniques. I focused on exercising outdoors in nature at least 3 times a week. And while I understand not everyone is religious, I benefited from a couple of prayer circles at church. The depression is now about 90% gone. I’ve had bouts of depression most of my life so it will likely return, but I feel like I have more resources now.

    I also have to say that this board and the wonderful women on it have also helped a lot.

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited January 2021

    I am overwhelmed by these kind words. If they help me, then hopefully, others will benefit.

    I am a planner, so trying to figure out my game plan. Firsr, get thru the biggest hurdle of getting out of bed and put on clothes and stop crying.

    Then get myself to a therapist and find an appropriate antidepressant that fits me.

    The suggestive techniques all of you have mentioned are wonderful ideas and I will write them on my list..things to do while healing from this depressive episode and techniques to try afterwards.

    I am researching bibliotherapy now..looking at suggestive literature readings under Goodreads (depression-bibilotherapy). This will make good conversations with my therapist. I might even try it on my own to gain insights. I love to read, but lately, my books sit unopened.

    Your stories make me feel that I am not alone. Dealing with metastatic cancer is hard just by itself..adding a debilitating mental health "side effect" is just plain harsh.

  • Bestbird
    Bestbird Member Posts: 2,818
    edited January 2021

    SandiBeach57, you are far from alone dealing with depression. As can be seen from the varied responses, there are some excellent suggestions.

    Exercise has been proven to help, but getting started when feeling "down" can be a challenge. That said, setting an exercise routine for 6 days a week and trying your best to stick to it can make a world of difference!

    I find that I have more anxiety than depression, and that the anxiety can linger. A bad night's sleep makes it worse. When anxiety hits, I take Lorazepam. When it eases, I stop the medication with no problem.

    Talking to a cancer-specialist therapist has done little for me, although many others have been helped by one.

    Hoping you feel better soon!



  • nopink2019
    nopink2019 Member Posts: 329
    edited January 2021

    I'm with you, SandiBeach...Try to read and don't care. Get out of bed because dog needs out of her crate. Beautiful days, but doesn't seem worth the effort to go outside. Put on good face on the rare occassions when I see people, but mostly still isolating from people, nothing open to do anyway...no restaurants, music, events etc. Haven't exercised in over year, previously 5x week (it was social-- weight lifting classes, dog training class, group hikes, group skiing). Workbook suggestions would be great if anyone has some to help me see possibilities. I have a list of "to do" in my head but don't even care enough to write them down. Started a painting on wall of house, but thinking of just covering it up and forgetting it.

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited January 2021

    Thank you Bestbird. The whole dx, treatment, progression, treatment, progression cycle is harsh to the mind and soul. Yes..agree, exercise..just need to do it..I will get there.

    I want to fully live with my cancer dx and depression is blocking that positive frame of mind. Refuse to give up.

    Nopink2019..I understand that place of pain. It is hard to be reminded everyday of not being yourself. We can be fixed, so hold on to that art project. When you are ready, it will be there for you.

    S


  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited February 2021

    First, I will say that I definitely needed medicine to help me find my new normal after the mbc diagnosis. It took awhile to realize I felt anxiety, not depression, and was finally prescribed buspar which helped immensely. After a few years, tho, I felt more down, and started on Wellbutrin in addition to the Buspar. Honestly, I don't know how effective it is. I don't feel up or down, I guess perhaps I'm sort of leveled out but in an okay way. (Effexor, for me, caused more anxiety due to something called the seratonin uptake.)

    Illimae, your post is so well written, and I feel much as you do, tho I describe myself as a realist, not necessarily an optimist.

    Sandi, you've received great advice. I'll also say a year living through a pandemic leaves me feeling more blue, so do take that into consideration. I do my best to make the most of the situation, but it is frustraing and trying at times.

    One main thing I learned was try to do something new every week. It could be as simple as trying a new food, listening to a new kind of music on the radio, driving a new road you've never been on, buying something you've never purchased before or wearing an article of clothing that's different from anything else you ever wore. The pandemic makes this more challenging to come up with ideas, but it's still doable. These activities get your brain focused on the newness and learning or discovering the unknown and gives your mind a break from mbc and creates new memories.

    I also guess I am a fan of bibliography, tho I didn't know what that meant until I saw it here and looked it up. But I read non-fiction and surprisingly, I love reading autobiographies of world class athletes. Two of my favorite books were by Andre Aggassi and Maria Sharipova, and I don't even watch tennis! But it was fascinating to read of how they always rose above their many, many struggles, setbacks and defeats, just staying focused and determined! I will read books by people who've overcome horrific tragedies in their life. The human spirit is simply awe-inspiring at times.

    Another helpful activity for me is journaling, especially when I feel low. Write knowing no one will ever read it, and write what you feel, however your writing style is. Some say write three pages a day in the morning. I may not always do it quite that way, but there's something to be said for taking quiet, personal time to write your thoughts down, I find it therapeutic.

    The last thing I'll mention is ask yourself what *you* really want to be doing. I realized I used to spend much of my time doing what others wanted or what I thought others expected of me or making others happy. I can still fall into that habit. But I had to figure out the things that made me happy, brought me joy, and learn how not to feel guilty putting my wants and needs before others. And this too can be as simple as, the other day at 10 am I felt rather blah and when I checked in with myself, found what I really wanted was to take a nap, which I then did until 11, even tho I'd only woke up at 7 am that day! But I felt better after. This philosophy has me turning down things I really don't care to do, either. When I am doing what really appeals to me, life can be a bit more fun.

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited February 2021

    Mae, Olma and Divine..thank you for your kind words and suggestions. It is comforting to be surrounded by such compassionate people who understand the emotions that metastatic cancer can cause.

  • illimae
    illimae Member Posts: 5,710
    edited February 2021

    Living with MBC, lol

    image

  • moth
    moth Member Posts: 4,800
    edited February 2021

    I think I probably could have used meds in 2020 but my brain chem has self-regulated a bit and I think I'm ok now.

    But I was talking with my GP last week and saying that really, I should be thinking now of strategies for future, for when things go sideways again...cause they probably will, right? And I suspect crawling out these holes gets harder and harder each time. I tried meds twice about 20 yrs ago but didn't have a good response (I instead ended up doing CBT and about 5 years of talk therapy). I'm open to trying again in the future though, esp since I've seen the newer meds and how well they are working for people in my family.

    CBT is effective imo. Also, I think it's important to say it's ok be damned mad, sad and just downright depressed about what is happening. This really really sucks.

    I'm glad you started this thread.

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited February 2021

    Moth..I wish my brain would regulate faster. But alas, I need a jump start. Started Lexapro today, counseling this Wednesday.

    Mae..I swear you just made me laugh.

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited February 2021

    After 8 days on Lexapro, I consulted with my family physician. I was getting worse..that is, not getting out of bed or eating.

    So he is tapering me off Lexapro and put me on Wellbutrin immediately. My 1st counseling session is next week.

    I still feel hopeful and want to live a productive and happy life. I will get there.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited February 2021

    Sandi, sorry to hear about your experience with Lexapro. I don’t remember the name of the different antidepressants I tried, but with one of them, I literally couldn’t get off the sofa. Sat there all day. I explained it to the NP and she said, “It made you flat.” which basically means emotionless. It took a few tries to find what works. I hope that things go better with Wellbutrin.



  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2021

    I’ve heard Wellbutrin is a good drug...effective and few side effects. I used to work with a nurse who took it to help quit smoking and a couple of women who took it to help with PMS mood swings.

    Sandi, hang in there, hope you will find some relief soo

  • amontro
    amontro Member Posts: 504
    edited February 2021

    I just want to add that for years I was on many different drugs which didn't help. A funny thing happened. I was on Prozac a few years ago and it stopped working a year or so later. I was put on different drugs for more than 6 months, and I was told to go back on Prozac. I've been on it this time for more than two years. This won't work for everybody, but if you have success with a drug and then its not working, give it a rest.

    I dread the day that I have to go on something new. The depression gets so bad for me, and weaning off one drug to try another is exasperating. I pray that you all get the comfort you need, just don't give up.

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited February 2021

    Great topic! I’ve tried several meds, talk therapy, journaling and CBT. What works the best for me long term is fish oil and a light therapy box in the winter.

    I told me current MO I had some depression but she didn’t wAnt me on anymore meds. The therapist comes to see me each week while I’m in the chemo suite. I’m on cymbalta but originally started it for hip pain.

    Effexor made me flat but it was great for hot flashes.

    I believe diet and exercise play an important part too. Unfortunately new meds, Covid and homeschooling don’t have me exercising. I think it would make a difference with my fatigue and mood.

  • Shar2020
    Shar2020 Member Posts: 234
    edited February 2021

    SandiBeach, in addition to the helpful suggestions posted here, there are also useful suggestions at the following thread:

    https://community.breastcancer.org/forum/8/topics/833863?page=1


  • Shar2020
    Shar2020 Member Posts: 234
    edited February 2021

    Also, the Mindfulness Based Stress Reduction programs originally developed by Jon Kabat-Zinn are helpful. Many hospitals offer these programs. I have been participating in one since January that is usually offered in person at a local hospital, but it is on Zoom during the pandemic. It includes CBT, Hatha yoga, walking meditations, standing meditations, sitting meditations, body scan meditations, etc. It is a great program and the facilitator is fantastic. The reclining yoga is especially helpful on days when depression and anxiety make it difficult to get out of bed.

    Here's a link to an online MBSR program that people can do on their own, but I would highly recommend a group program facilitated by a professional who can answer questions and provide additional feedback, information and insights.

    https://palousemindfulness.com/

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited February 2021

    Shar2020, thank you so much for your kind input. It will help others. The more info to help us that suffer from depression, the faster we can get back to our lives.

    I am now thinking I know what tipped me over the edge. It just came crashing down fast. All these suggestions are wonderful, but first you have to get out of bed. That was really, really hard. I kept saying over and over "GET UP, GET UP". I swear if someone put a blue pad under me, I would not have gotten out of bed to use the bathroom....

    I do believe that I have been severely impacted with the isolation from COVID19, the current political environment and not working my beloved part time job. With a terminal illness and wanting to live quality days, I felt like I was losing precious time. I am an extrovert and I suffer from the isolation. It only took the result from a PETCT scan to send me over the edge. And it is so strange, as it was just one stubborn liver met that is still minimally active. I should have been celebrating all the dead widespread liver mets.

    Somewhere deep within my soul and strong desire to live, I forced myself up, got dressed and drove myself to my family doctor. He placed me on Wellbutrin immediately and tapered off the Lexapro (which was sedating). I am now almost 2 weeks on Wellbutrin and I feel SO much better. I had a Zoom counseling meeting and cried the whole time. But my therapist was able to give me suggestions when I go "dark".. meditation. She also mentioned that most folks always give support to others and see the good they are doing, but rarely we transfer that positivity to ourselves. She suggested that I write a mental letter to myself as if I was a friend who was sending encouraging words. So now I am going back to all these wonderful suggestions for those who have had similar acute depression.

    Anyways, I am in a good place now and healing. A sincere thank you for everyone who reached out to help. Maybe this will help others with MBC, especially during COVID19.

  • illimae
    illimae Member Posts: 5,710
    edited February 2021

    Sandibeach, that letter to a friend advice sounds really helpful, glad you’re not staying dark.

  • Sadiesservant
    Sadiesservant Member Posts: 1,995
    edited February 2021

    Sandibeach, so glad that things are improving for you.

    I am sure you are not alone in feeling the impacts of COVID. I have not experienced depression in the past but have to admit that this unending pandemic, when combined with a wet and dreary west coast winter, has set me on my heels this year. I was definitely feeling down despite continuing to work remotely. I am fortunate that I have a dog so staying in bed is never an option (well, that and the fact that by morning my back is screaming) but can say that I am SO done with this virus. For those of us stage IV folks it’s put limitations on us when time is so darn precious.

    As I said, so glad you are on the upswing. Thank you for starting this thread as I know many will find useful suggestions here.

  • Bestbird
    Bestbird Member Posts: 2,818
    edited February 2021

    SandiBeach57, really happy to hear you are beginning to feel a bit better! Hoping that each day is a bit better and easier than the one before it!

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited February 2021

    Sandi, how great to hear of your improvement. Self kindness and self care are vital. Don’t put yourself down for letting the Pet scan put you over the edge. You are allowed to get upset. Sure, you could try to only look at the upside of the scan, but embrace all your feelings and don’t berate yourself for having them. That’s part of being kind to yourself.

    So glad the Wellbutrin is effective. Sometimes people think if they pray, meditate and exercise enough they can pull out of depression. It may work for some, but my experience, having tried all the above, taught me I couldn’t do it on my own and needed meds. I don't go around all perky. I still have all the emotions but find I can re-direct my thoughts easier because of the medicine.

    I want to tell you to be especially proud of yourself for saying, get up, get up and get to the doctor. It is very impressive that you found and listened to that inner drill sergeant in yourself along with tapping into the deep parts of your soul and strong will to live. You is tough, girl! Don’t be forgettin’ that.



  • Kattysmith
    Kattysmith Member Posts: 738
    edited June 2021

    Although I'm thinking about going on either Lexapro ( a family member has been on this since 2005 and it has been very tolerable) or Wellbutrin, a friend of mine who also has low serotonin levels has been taking these supplements for a while and swears by them, so I may give them a whirl first. Does anyone have any first-hand experience with them?

    The ones sbe takes are: 5-HTP, L-Tryptophan. She says vit C, folic acid, B6 and B12 help them to be really effective.

    Thanks!

  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited June 2021

    Kattysmith, I started with Lexapro, but did not feel it was working fast enough for my situation. My sister, also stage IV cancer patient, has does well on it and it helps her to sleep. My daughter is also on it, plus Wellbutrin.

    I switched to Wellbutrin and it helped my mood quickly and I also started to visit a psychologist specializing in csncer patients.

    Hope you find that balance you need..

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