Call back from 3D mammogram for “dense” or “density “

Options
5ingys
5ingys Member Posts: 11
edited December 2020 in Not Diagnosed But Worried

hello, I received the dreaded call back after my 3D mammogram. I am terrified because I read that the new test have cut back onthe call back tests. I am so afraid. I do know I have very dense breasts. Anyone else had this happen and had good news?

Comments

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited December 2020

    I have dense tissues on my non-cancer side. This year in my screening with the 3D they called me back to do more films. I go to a breast center that specializes in this though affiliated through our hospital system.

    Because of my history they read it right away and then had me go do an Ultrasound right away as well. Then the radiologist came and told me about the are area that was of concern on the film and it was a cyst and we can leave it alone right now and nothing that was of concern right now. So for me, it was good news!!!!

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2020

    5ingys, I just replied to your same post in a different thread. Since this is your own thread, I will copy and paste my answer over to here, and hopefully all the responses to you are on this thread. Here's my other answer:

    5ingys, callbacks are extremely common - and 95% of them do not result in a diagnosis of cancer. Most often, whatever appears concerning on the initial mammogram is cleared up when the Radiologist reviews the callback imaging. Quite often the issue is just the way that the breast was squished in the mammogram machine, causing the appearance of distortion in the breast tissue when in fact there is nothing there. Or maybe there is something there, but upon further review it is clear that it's just a harmless fluid-filled cyst, which doesn't require any follow-up. Even if the callback imaging remains concerning and a biopsy is recommended, approx. 75% of biopsies turn out to be benign.

    Do you have a copy of your mammogram imaging report? And will you be having both a diagnostic mammogram and ultrasound? A diagnostic mammogram provides a close-up magnified view of the area of concern, and an ultrasound 'sees' into the breast differently and offers the Radiologist a different view and additional information. Usually both are done when a callback is scheduled. And when is your callback?

  • 5ingys
    5ingys Member Posts: 11
    edited December 2020

    thank you for helping me with my posts! I was confused how to post a new one lol. I am going for another “special view mammogram “ on Monday. The only paper they sent me said a new test was needed for further evaluation. I had already received the phone call a few days prior to schedule the follow up. The lady who I spoke with said that my paperwork said “dense or density “. I can’t remember which.

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2020

    5ingys, as the others said, callbacks are very common. Beesie provided you with some very good data, that should be helpful. Please keep us posted.


  • 5ingys
    5ingys Member Posts: 11
    edited December 2020

    Thank you to you all. I did read how common the call backs are. Wasn’t sure if they are still common with the new 3D. (I know the callbacks decreased with the new technology). I know only time will tell... ugh I hate the waiting. Well wishes to all.

  • 5ingys
    5ingys Member Posts: 11
    edited December 2020

    Just spoke with the imaging center, they told me I have a mammogram and an ultrasound scheduled. She said the findings are “focal asymmetry". Praying it's nothing.

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2020

    Glad you are will be having both the diagnostic mammogram and the ultrasound.

    We have a member on the site who is a Radiologist who specializes in breast imaging. He's not able to post these days, but here is a quote I pulled from one of his posts:

    "An "asymmetry" is an area of breast tissue (areas of white in the image) that is seen on one side and not on the other and does not appear to be a discrete mass. It is very often normal tissue

    There are two kinds of asymmetry, "focal and global", basically corresponding to "small and large"."

    So you have a small area on one side that doesn't look like the other side. Most often, this turns out to be nothing - it's just that one breast might have been squished in the mammogram machine a little differently than the other. Something like that is just as likely to happen with a 3D mammogram as any other mammogram.

    Good luck. And let us know how it goes.

  • peggysmom
    peggysmom Member Posts: 50
    edited December 2020

    Hi, to the OP:

    Brest tomosynthesis ("3 d imaging") is most helpful for women with scattered or heterogeneously dense breasts. It is virtually not at all helpful in extremely dense or mostly fatty breasts.

    For extremely dense breasts, adjunct screening with complete breast ultrasound and/or MRI (depending on other risk factors if >20% lifetime risk of breast cancer) is typically recommended.

  • 5ingys
    5ingys Member Posts: 11
    edited December 2020

    Beesie you're the best! I see your name on a lot of posts helping to calm and inform us. I thank you for your words of wisdom from the bottom of my heart! Now I pray for a positive outcome.

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2020

    5ingys, thank you!

    peggysmom, please be careful when you make definitive statements. There was one study from earlier this year that found that women with extremely dense breast tissue "may not" benefit from 3D mammos, but previous studies have found that 3D mammos may in fact be significantly better at cancer detection for those with dense breasts. Here is a large study published last year:

    Association of Digital Breast Tomosynthesis vs Digital Mammography With Cancer Detection and Recall Rates by Age and Breast Density https://jamanetwork.com/journals/jamaoncology/arti...

    "For women aged 40 to 49 years with nondense breasts, the cancer detection rate for examinations using DBT was 1.70 per 1000 women higher compared with the rate using DM; for women with dense breasts, the cancer detection rate was 2.27 per 1000 women higher for DBT. For these younger women, screening with DBT was associated with only 7 of 28 breast cancers (25.0%) categorized as poor prognosis compared with 19 of 47 breast cancers (40.4%) when screening with DM."

  • peggysmom
    peggysmom Member Posts: 50
    edited December 2020

    Beesie, there have been numerous studies that demonstated 3D tomosynthesis highest "yield" is NOT necessarily for women with extemely dense or fatty breast tissue. Tomo is most helpful in cancer detection for women with scattered or hetereogeneously dense breast tissue.

    The study you have linked does not prove your point. In this study, patients were either classified as "not dense" (mostly fatty and scattered) or "dense" (women with hetero and extremely dense). That study did NOT look at outcomes based on specific breast density. Make sure you read the METHODS section.

    As I stated before: For women with extremely dense breasts, supplemental screening with complete bilateral breast sonography and/or MRI (depending on their overall lifetime risk of developing breat cancer) is recommended.

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2020

    peggysmom, yes, I am aware that the study did not separate extremely dense from heterogeneously dense. But the benefit of 3D mammos was so significant for those 40-49 with dense breasts, and 30% of those women have extremely dense breasts, it's hard to believe that all the benefit would accrue only to those with heterogeneously dense breasts. But I suppose that's possible.

    I understand that for those with extremely dense breasts, supplemental screening is recommended. I've explained this in posts on this site many times. But unfortunately not every one can access supplemental screening. Pretty much every reputable site I've seen (Mayo Clinic, Cleveland Clinic, ACS, Harvard Health...) recommends 3D mammos over 2D mammos for those with dense breasts. I'm always learning, and if you have studies that show that 3D mammos are no better than 2D mammos for those with extremely dense breasts, I'd love to see them. I am familiar with the JAMA study, but I admit I discount the results a bit. While the results reflect that there was no statistically significant benefit of 3D mammos over 2D mammos, there was a directional benefit, particularly for those 50-59 but to a lesser extent also for those 40-49. So based on that, as a patient, personally I would still opt for 3D over 2D, if given a choice, and I would recommend the same to friends and family - particularly if they have extremely dense breasts and are unable to get supplemental screening.

    5ingys, sorry for taking your thread off track. To get back to your situation, I have a question for you. You mention that you have very dense breasts. Do you know if this is Category C Heterogeneously Dense, or Category D Extremely Dense?

  • 5ingys
    5ingys Member Posts: 11
    edited December 2020

    Beesie,I did ask the mammogram specialist who I spoke with yesterday and she said that by quickly looking at my records it looks like I had “moderate density”. She said basically middle of the road! I am going to ask more questions on Monday.

    Since my last mammogram I dropped 50 #s by dieting and then gained 25 back during the last few months (darn Covid eating, lol). I am praying that could be my reasoning. I did read that weight gain/loss could be a reason for focal asymmetry. Time will tell...

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2020

    5ingys, ah, with moderate density you can ignore all the earlier comments about whether or not 3D mammos are more effective on extremely dense breasts! I would guess that your moderate density is probably Cat C, Hetererogeneously Dense, which ranges from 51% - 75% density. That's the most common level of density, at least until women are well into menopause. 3D mammos are definitely better for those with moderate density.

    Good luck on Monday, and let us know how it goes!

  • 5ingys
    5ingys Member Posts: 11
    edited December 2020

    Update: had another “spot” mammogram and an ultrasound today. Thank goodness... it was all good. Just an area of density that made them question it. I received the letter saying “negative” come back in a year! Also asked about my density. I was told that they use letters from A to D. D being the most dense. C would be over 50% dense. I am a B. So some density but still a lot of fat. The only time I like to hear I have fat, lol.

    I am praying for everyone here. I have read your posts and you’re all in my well wishes.

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2020

    Wonderful news! Congratulations!

    And thanks so much for letting us know.


  • LivinLife
    LivinLife Member Posts: 1,332
    edited December 2020

    Wonderful! Thanks for checking back in! Have a great next year!

  • Shellyhusch_43
    Shellyhusch_43 Member Posts: 2
    edited December 2020

    I got focal asymmetry on my Mammogram the letter said no malignancy but they want to take another look. I'm freaking out@

  • 5ingys
    5ingys Member Posts: 11
    edited December 2020

    I was in your shoes this week. I completely understand your anxiety. Remember that it is common for woman’s breast density to change. They just see something that they want to make sure it is normal. I would be relieved that my letter said “no malignancy”. However I find it odd that they would say that when they have a focal asymmetry and no definitive answer yet.
    Wait for the other women to chime in... They are wonderful! Keep everyone posted and praying for you.

  • LivinLife
    LivinLife Member Posts: 1,332
    edited December 2020

    Welcome Shellyhusch! I don't think I've seen you post before? You've mentioned just getting news of a callback after mammogram. If you haven't started your own thread you may want to do that - you'll get feedback specific to your situation. There's also a section for new members on the homepage that may be helpful to you. I'm not good at technology though believe it will be easy for you to see. I'm not the one with medical expertise, less in this area than other diagnoses, though others will come along.

    I just wanted to reach out to you. Please keep us up on where you are in your process. Do you have a date for your diagnostic mammogram yet?

Categories