Callback
Hi all, new here. I had my screening mammogram last week (have to go every year after a Melanoma diagnosis) and I received a call to now get a diagnostic mammogram and an bilateral US. I have had biopsies in the right breast twice (ended up being Fibroadenomas) and have clips but they found a mass in my left breast this time. It is at the 1 O'clock position upper quadrant. After reading some of the symptoms you ladies have talked about I realized, thinking back that I also have some other things going on. Night sweats, weight loss of about 10-15 lbs in 2 months, extreme fatigue, terrible dry skin in my ears with extra fluid leaking and swelling in my ears and my breasts have been tingling like they fell asleep. I have read all the positive statistics about how many women have been called back and it is usually benign but I am no less worried. I guess that is to be expected. My DX mammo and US is next Tuesday and I am expecting another biopsy. I have also been told I have very dense breasts so that is not reassuring either. Do any of you ladies have any calming words of wisdom to share with me? I guess I just need to get some other opinions that are not from my husband or best friend. They are always going to say I will be fine, but that doesn't quell the worry in my heart. Thanks all!
Comments
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Okay, you know you have fibrocystic breasts from previous biopsies, so statistically, odds are it is more of the same. Almost all of us who are not very elderly have heterogeneously dense breasts. Your dense breasts have not precluded identifying places that need to be biopsied, right? As for symptoms, maybe, but likely not. Can’t see that ears or tingling have any significance Most women, including women diagnosed with de novo stage four cancer, had zero symptoms, aside from maybe feeling a lump. Often not even that.
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Thank you. I only just felt the lump last night. I had raised my left arm to see if I could feel it and WOAH! Its not small. I know with the Fibros they were much smaller and moved around a lot. This one is shaped differently and moves a little but feels more like it is stuck with gum or something. I know, weird analogy. Thanks for the positive words. I am probably worrying myself for nothing.
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Hi Seneca, and welcome. We're so sorry for the worry that brings you here, but we're glad you found us and decided to reach out. We're all hoping that your symptoms are nothing to worry about and your callback confirms this!
Please keep us posted with what you find out. We're thinking of you!
--The Mods
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Seneca, sorry you are in this situation. I don't know your age, but if you are anywhere near peri-menopause, this could just be a cyst. Those often start to develop in women with fibrocystic breasts when they hit peri-menopause. I had so many cysts that I lost count - and while some were tiny, some were huge and seemed to show up out of nowhere. Like you I've also had a couple of fibroadenomas, but mine were very big, and I could have described them exactly as you've described your lump, it "moves a little but feels more like it is stuck with gum or something".
So don't assume that this is something serious. That's possible, of course, but it's much more likely that this is something benign. And if it shows up on an ultrasound as a either a simple or complicated cyst, a biopsy won't even be required (although larger cysts often are aspirated, just to get rid of them).
Good luck next week and please come back and let us know what happened.
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I am currently 43 years old. I know with my firbros, they have only shown up on my right side. I guess I'm just more worried because my left side has never had any issues.
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43 is a prime age for peri-menopause. Doesn't mean that this mass is a cyst but you are at the age where cysts are extremely common. Hopefully that's what this is.
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Your story is somewhat similar to mine - the beginning and middle anyways. I was told I had extremely dense breasts from the time I started having mammograms in my mid- 40's. My right breast was the one for most of the last decade + leading to several call-backs and two stereotactic biopsies - all benign conditions. Just prior to me hitting menopause (sadly in my late 50's) I was called back for my left breast which really got my attention. We watched that for over a year and one-half. they wanted to biopsy it many months earlier though I was on the road a lot (mostly weekly) to spend time with my sister who was terminal (and I would not change my decision at all about that). Then my next diagnostic mammogram this past late March was canceled due to COVID...of course this ends up being the time there actually was a problem... thankfully it was DCIS vs. IDC or something more serious - though we didn't know that for several weeks for sure. I don't share this to worry you more to be honest and to stay on top of these things which you are.
Focus on most things usually end up being benign. If for some reason yours is not this time then we are here with information and support and you will find your way..... I wish you the best next week! Please let us know....
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I started having call back diagnostic mammos & ultrasounds from my very first mammo at age 29. Every two years I had the same call back & every time I worried. I was not diagnosed with DCIS until age 67 so I had 38 years w/no problems. As stated above, concentrate on anything that will distract your mind. Hopefully it's B-9.
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Thank you ladies, since having to have mammograms every year because I had Melanoma, I am watched carefully. There are a lot of doctor appointments every year for check ups. I know that I have never had a problem on my left side so I worry. I am trying to stay positive and think this is nothing, I am fine, but in the back of my mind is that nagging "what if?" I am glad I found this site to talk to ladies like you that can help me find my focus. Thank you.
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Joined: Nov 2020Posts: 5Latest activity: Nov 20, 2020
Seneca43 wrote:
So I picked up my mammo report this morning and I know that BIRADS 0 means need more. I am just wondering after seeing other ladies reports on here, my report is not that specific about the MASS.
Mine simply states: Comparison is made to prior mammorgrams
FINDINGS: Routine mammographic views are obtained of the breasts in combination with digital breast tomosynthesis.
The breast tissue is heterogeneously dense, which could obscure small masses.
In the left breast 1 o'clock position at mid depth is a mass for which further evaluation in required.
No suspicious microcalcifications, architectural distortion, or mass in the right breast.
Computer-aided detection was utilized by the radiologist in the interpretation of this exam.
IMPRESSION: Mass in the left breast requires additional evaluation.
BI-RADS Category 0: Needs additional imaging evaluation.
RECOMMENDATION: Additional evaluation of the left breast to include mammography and possible ultrasound. Consider complete bilateral breast ultrasound due to tissue density at time of follow-up examination.
There is no idea of the size of the mass or anything. Is this just because they could not tell from the screening? That is what I am assuming. Just when reading other reports on here I see a lot more detail. Thanks to anyone that can shed some positive light my way.
Seneca, there isn’t more detail because they can’t tell without more imaging. That is about all the takesway from this is.
I copied and pasted your post to this initial one because the prior information is pertinent and it is useful to responders to have it all in one place, rather than starting new threads for each question.
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Thanks. Sorry about the second thread. I will keep everything here from now on.
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"There is no idea of the size of the mass or anything. Is this just because they could not tell from the screening?"
Yes, that's precisely why the assessment is BIRADs 0 and why you are being sent for more screening. If more information was available about the features of the mass, the assessment would be a BIRADs 2,3, 4 or 5, depending on the appearance of the mass.
Melissa, thanks for transferring the post over to this thread.
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Why am I more worried then last time? I have my DX mammogram and US on Tuesday. Last time I went through this I thought no big deal, I'm fine. This time I am so worried that it's more than fibroadenomas. I have never had a cyst anywhere. I know that the risk for BC is higher since I've had Melanoma, not much higher, and I have had some weird health issues lately. I don't understand why its different this time.
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I am going through something similar. I got a call back after my 3D mammogram and all I was told is my paperwork says for “density” or dense”. I am terrified. I have very dense breasts. I am hoping and praying it’s nothing. How was your test results?
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The fact you've had melanoma may be why this is more anxiety provoking for you this time... I think once you have something like this one's alert is higher even if at the same time you may be a little better prepared though this really is soooo different than melanoma so...... I hope you will check back in and let us know how things went....
5ingys- Where are you at in your process? You mentioned a call back after 3D - what are they recommending at this point. This beginning part of things is indeed scary - really important you focus on relaxing and enjoyable, distracting things during this waiting. The waiting in between is so difficult....
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Seneca had her callback more than a week ago and has not signed in since before that date. Usually when someone doesn't return, it means that the results were fine.
5ingys, callbacks are extremely common - and 95% of them do not result in a diagnosis of cancer. Most often, whatever appears concerning on the initial mammogram is cleared up when the Radiologist reviews the callback imaging. Quite often the issue is just the way that the breast was squished in the mammogram machine, causing the appearance of distortion in the breast tissue when in fact there is nothing there. Or maybe there is something there, but upon further review it is clear that it's just a harmless fluid-filled cyst, which doesn't require any follow-up. Even if the callback imaging remains concerning and a biopsy is recommended, approx. 75% of biopsies turn out to be benign.
Do you have a copy of your mammogram imaging report? And will you be having both a diagnostic mammogram and ultrasound? A diagnostic mammogram provides a close-up magnified view of the area of concern, and an ultrasound 'sees' into the breast differently and offers the Radiologist a different view and additional information. Usually both are done when a callback is scheduled. And when is your callback?
Edited to add: 5ingys has started her own thread so it's best to answer her questions/concerns there rather than in Seneca's thread. I have copied over my response to that thread: https://community.breastcancer.org/forum/83/topics/878336?page=1&post_creation=true#post_5616937 -
Beesie- a diagnostic mammogram does not necessarily provide a close-up magnified view of the area of concern. It's simply a "catch all" phrase. Depending on the abnormality, additional views are obtained to work it up.
In most institutions spot mag views are typically obtained for calcifications- NOT for masses, asymetries or distortions.
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peggysmom
Since you're new here, you might not realize that Beesie is the primary resident researcher here and has earned her credibility (and other members' respect) over several years. It's fine to come in and offer differing views, but I think we'd all like to know a little more about your background and credentials as a researcher.
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Hi ladies, sorry I have been super busy. I am in the Army so I always have a lot going on. I went for my US and they didn't do another mammogram. I apparently have an egg size cyst on the left and some "probably benign" masses in the right that I have to get another US on in 6 months. I feel relieved but at the same time still worried. What if those "probably benign" aren't and when I go back in 6 months it isn't good and they could have caught it now instead of in 6 months. I am also getting ready to move to another state while my family stays where we are now so everything has been crazy stressful lately. Thank you ladies for all your input. I am always grateful for strong women.
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AliceBastable, peggysmom mentioned (in response to my question in another thread) that she is a breast radiologist. I'm always happy to learn. And she is correct that a "diagnostic mammogram" doesn't always include magnified views; it might involve taking images from different angles or spot compression. So I could have been clearer. That said, I know that I've had magnified views for more than just calcifications, and I recently rewatched a video that djmammo posted about architectural distortion that showed the use of a magnified view to look more closely at the area of distortion. In fact, in explaining the difference between screening and diagnostic mammos, djmammo said this:
"A diagnostic study is one that focuses on a problem either found on a screening exam or found on physical exam. It is most often a unilateral exam that will include spot compression views and magnified views of the area of interest"
And from Radiopedia (https://radiopaedia.org/articles/magnification-view-mammography):
"A magnification view in mammograpy is performed to evaluate and count microcalcifications and its extension (as well the assessment of the borders and the tissue structures of a suspicious area or a mass) by using a magnification device which brings the breast away from the film plate and closer to the x-ray source. This allows the acquisition of magnified images (1.5x to 2x magnification) of the region of interest. "
So I guess there are differences of opinion on this even between radiologists.
Seneca, a 6-month follow-up means that the radiologist assessed the imaging as a BI-RADs 3. This means that by his (or her) assessment, there is less than a 2% chance that this is cancer. If there is a change in 6 months, then further testing will be necessary, but most often whatever is being watched remains stable or shrinks/disappears/dissipates. And if it cancer? From what I've read (and perhaps peggysmom can verify or correct), most breast cancers have been in the breast for 3-5 years before they become large enough to be found be screening. Some have been present for even longer than that. As a general rule (with some rare exceptions), breast cancer is slow growing. So the reason why radiologists are comfortable with a 6 month follow-up is because 6 months isn't likely to make any difference in the diagnosis and prognosis. As someone who has had my share of 6-month follow-ups, I can say that I always preferred that to having a biopsy (I've have enough biopsies) and none of my 6-month follow-ups ever even required a biopsy. Hopefully that's the case for you too!
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Beesie, thanks for the info on Peggysmom. I hope she'll include her professional status on more threads, along with links and citations. She's too new for most of us to have seen, much less memorized, her background.
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Hi Ladies, I initially stumbled upon this forum not as an MD, radioogist, or Breast Imager, but as a patient- seeking support and "strength in numbers" and getting a new persepective now that I literally find myself on the other end of the biopsy table. If I can be of help to anyone, that's a plus- but right now i'm dealing with my own diagnosis and finding it difficult to navigate reconstruction options.
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peggysmom, whatever your profession and experience, you are in no way obligated to respond to other posts.
If you are posting here as a breast radiologist, I will gladly defer to you on questions better answered by someone with expertise.
But if your primary role on this site is as a patient, then please understand that the handful of us who do respond to newbie's posts are trying our best to provide accurate and helpful information, even if our answers aren't quite to the standard of a medical professional. That said, if you see advice or information that is dangerously wrong or very misleading - and believe me, that sometimes happens when patients start offering advice based on their own experience, not understanding how different someone else's situation might be - please jump in to offer the correct information.
Good luck deciding on your reconstruction choice.
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