The Beast & Me: Round Two

Deb you are unreal with those buttons... thank you so much!!

OK-
I can't believe I am going to write this but-
I went in to see my PS this morning- SUNDAY- and instead of getting a drain pulled- he put in ANOTHER ONE! AND started me on new antibiotics.

I kept saying to him "ARE YOU KIDDING ME??? ANOTHER ONE??"

So maybe on Tuesday one will be removed or another will be added. It is anybody's guess at this point.

I thought that the swelling I had was funkier than supposed to be. Apparently my radiated side from my first cancer is troublesome because that tissue doesn't absorb as well and the scar where they had to remove the necrotic skin from rads is pretty thick. He also said the LE is not helping.

But other than that, he said things look great- LOL!

Sometimes you just get to a point where you just have to laugh-

Love,g

Thank you so much for the prayers and for everything you girls have done!

Tomorrow I go to the PS again but I think he will put in another drain... not take one out. I am swelling up a lot.
I attempted driving today to see how it would feel- not good! But I have to drive myself tomorrow because I really need to get my life back.

I am also seeing my onc who no longer takes my insurance. He wants to talk to me. But I have to tell him I can't wait around for us to "figure out a way" to do this like I did with my former BS. I lost over a month that way.

I have only one path report and that is on the lobular tumor. I am still waiting on the path for the IDC tumors. Don't you think they would do them all at the same time?

There is a lot of mention of metastasis but I believe that they are referring to the positive nodes- however there is a big note on the bottom that reads: Evaluate Patient for Metastatic Disease

I have been trying to research chemos- but they are confusing and contradictory when it comes to lobular. Some say that lobular doesn't respond to chemo. I, however, being the overachiever I am, have just discovered that I have the "bad" lobular- I didn't know there was a "good" one!

Well, tomorrow I will have hopefully some answers, a few more drains, a new onc or an old onc--- who knows!

Love,
g

Oh Julia that was SUCH A KIND OFFER!! Thank you!

Well, on Tues I went to see the PS and he did not remove any drains and let me know that I may have them for a while...
then I found out that my onc DEFINITELY cannot take care of me. But we did talk about treatment, and he wants me to start chemo ASAP- but I can't until I am healed, and get a port. AND of course find a NEW onc. This is a very hard thing for me. I had my team and they are all gone. Now I have to break in a new team... and the one thing about my old team was they were all in my comfort zone- I knew what to expect... now with a new onc and a new place to get my chemo it will be the first time all over again. Even the wig place I used the first time is out of business!
Has anyone ever bought one online?

I was really hurting for a couple of days. I have some blood clots in the right arm along with the LE. I got them last time in the left arm, but not three at a time. I am back on the Plavix so I hope that helps. I cannot extend the arm though and it hurts like hell.

SO TODAY i went in to see the PS expecting to get another drain put IN because of the swelling and he surprised me and said he was going to try something else, take two out and give me my first fill up of the expanders. That way the fill up may push some of that excess fluid OUT.

OK! No one told me how big the needles were for fill ups!!!!
And it makes you sore! but I am a bit fuller looking. I feel like a preteen again watching myself "develop" as my mother used to call it.

I want to get the ball rolling here. The sooner I get an onc the sooner I can start my chemo and the sooner it will be done. He said 6 sessions so, if I start in April I will be done in July. But now I have to see what my yet to be named new onc will have to say.

Then they reminded me that they would also like to do an ooph before chemo. So hot flashes AND chemo side effects....

Well, at least THAT will be over with too.

I also told them I want the port taken out the day after my last chemo.

They though I was kidding.

I am not.

Ha!

One more drain to go.... got to get a wig... and I think a heavy duty fan for the bedroom!

If anyone knows about online wigs please let me know... and if anyone knows how long fill-ups hurt that would be great too.

It is time to start killing these cells and get on with it. I refuse to let the Beast ruin my summer!!

Love,g