So scared and worried

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Traceynacey
Traceynacey Member Posts: 8
edited November 2020 in Not Diagnosed But Worried

Hi everyone. Where shall I start the beginning and a bit of background. I'm 42 my mam died when I was 15 of recurrent bc. She fought it from the age of 40. I was told I don't need early check ups no idea why I thought I would.

OK onto my story. About 6 weeks ago getting out the bath I notice an indentation on my right breast ½ way up from the nipple. I thought that is strange so kept an eye on it. Then of course I googled it and I was devastated all that come up is ibc. There is no indentation if I lift my arms or bend over. Also if I look down at my breast you cannot see it. Only when I look at my reflection. Anyway i saw my gp who reffered me urgent to breast clinic. App is on 4th Nov. I am terrified and cannot stop crying. I now have a tingling feeling where the dent is and an ache in my neck and shoulder. So I keep thinking that's it. Google doesn't help but I cannot stop reading, looking at pics and hearing terrible stories. I cannot eat, sleep or function yet still go to work. I'm a nurse I have to. Seeing ppl laugh and talk of Xmas and all I want to do is cry. Is this normal


Comments

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited October 2020

    Tracey - you already know the most important thing. STAY OFF GOOGLE. There have been a number of posts recently about indents. You can go to the search area to read the stories on BCO. Much safer than google. To my memory, most were nothing to worry about. Best thing - don't look, don't poke & prod - leave it alone. Now you seem to be caught in a recurring fear/stress cycle. Stress caused tingling & aches. If you are really as messed up as you describe, do get a doctor to prescribe some anti-anxiety meds.

    Good luck on the 4th.

  • moth
    moth Member Posts: 4,800
    edited October 2020

    I'm echoing MinusTwo. Odds are it's nothing. Just do your best to keep busy, make xmas plans, do your online xmas shopping! Watch the Hallmark channel xmas movies. Stay off google - it doesn't know you.

  • moth
    moth Member Posts: 4,800
    edited October 2020

    Oh & also one thing you could do is get yourself on the cancellation list at the breast health clinic in case an earlier appointment comes up.

  • Traceynacey
    Traceynacey Member Posts: 8
    edited October 2020

    Having a total melt down at work today. Last night the indent seemed more noticeable and all morning my breast is tingling. I have convinced myself I have something nasty growing inside :(. The CA125 test that is just to find ovarian ca isn't it. Just I had that test a year ago and they said there was near enough zero chance of cancer in my ovaries. I sometimes wonder if that would pick up anything for my breast. I also had my thyroid checked about 1 yr ago that to was all normal. BUT NOW THIS.............

    Not sure how much more I can actually take. I got fluoxetine prescribed yesterday for anxiety but that can take up to 3 weeks to work. I wish I could stop googling and going onto forums trying to find the answers. The only answer I will get is on Wednesday. I really do not know how you ladies cope. Sometimes I do wonder if I get too cautious because of my mother dying at a young age with bc :(

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited October 2020

    Ovaries? Thyroid? Breast? It sounds like you are a chronic cancer worrier. It's somewhat understandable with your family history, but it's not healthy to think everything out of the ordinary is cancer. Perhaps a counsellor could help you.

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2020

    "I wish I could stop googling and going onto forums trying to find the answers."

    It would be better if you could stop googling, but if you can't, you need to change your approach on how you look at what you find. I have osteoarthritis and chronic sinusitis; with those two conditions (and various other on-and-off health issues), I have some ache or pain pretty much all the time. I google symptoms all the time. Yet I find that I am almost always reassured when I google, quickly realizing that I don't in fact have anything serious, other than my known conditions.

    You found a breast indentation. "Then of course I googled it and I was devastated all that come up is ibc." Okay, but did you read the rest of the symptoms for IBC? IBC has about 7 or 8 common symptoms. You have 1. And that 1 symptom is only noticeable under one condition. So why would you think that you have IBC when it usually presents with several symptoms, and you only have 1 (maybe have 1)? If it were me, I would look at that list and immediately think, "Good, I have the indent but I don't have anything else to suggest that this is IBC so I don't have to worry about IBC, at least for now."

    Tingling in your breast? If you google that you'll find it's not usually associated with breast cancer. In your case, given your worries, it's probably most associated with stress.

    An ache in your neck and shoulder? About the most common health problem in the world, and again, often the result of tense muscles and stress. Not a sign of IBC.

    As for going onto forums trying to find the answers, there is nothing wrong with doing that, but you have to listen to what people are telling you and pay attention to what you are reading. Is there anything that you've found in the answers or on this site that suggests that a single symptom of a breast indent is likely to be IBC? If you do a search on this discussion board for "breast indent", you will find thousands of posts - it's a very common concern - but you will find very few people who moved from the "Not Diagnosed But Worried" forum into the "Just Diagnosed" forums.

    Any breast change or concern needs to be checked out. You have an appointment scheduled for next week. That's good. In the meantime, since you can't stop googling and reading forums, pay attention to what you are reading. None of it suggests IBC as a significant possibility. Of course the indentation may be a sign of something going on but it could easily be something benign - perhaps a cyst that is displacing the breast tissue and therefore causing the indent. At 42, since you are probably in peri-menopause when cysts are very common. That's a lot more likely than IBC.

    Good luck on the 4th and let us know how it goes.


  • Traceynacey
    Traceynacey Member Posts: 8
    edited October 2020

    Thank you for your words of wisdom. Oh as for the ovaries and thyroid. Those where tests not related to any cancer worry. The CA125 test is what I got as a routine that's all. This is my first concern I've had x

  • moth
    moth Member Posts: 4,800
    edited October 2020

    you know, a concrete reasonable thing for you given your history would be to be genetically tested for hereditary cancer. Not the CA 125 but a genetic panel that looks for BRCA and other mutations.

    Then, talk to your doctor about your screening schedule. My MO told me that given my history, my daughter should start screening 10 years earlier than whatever guidelines there are and do 'high risk' screening instead of normal - so MRIs &/or mammogram + ultrasound, whatever the imaging radiologists decide gives them the best views.

    And I do think you have a bit of anxiety. That's ok. So many of us do! I do! But it's important to understand you might be super sensitive to certain inputs & be over-reacting. CBT is type of therapy that is very focused and can help with this (ti's not about 'tell me about your childhood' type of therapy, no navel gazing required).

    Also the tingling in the breast is super common if you're stressed and experiencing pain in neck and shoulders. Several of the nerves that enervate the breast and nipple come from the upper spine area and if the muscles there are tense, the nerves will be slightly pinched leading to pain which can be tingling or shooting. If you have one of those exercise rollers try rolling out your upper back or just lie lengthwise on it (or on a skinny bolster or folded up blanket) and let your shoulders relax and fall back a bit. Have a bath with espom salts. Convince someone to give you a massage or go to a massage therapist. Treat yourself a bit.

    while waiting for fluoxetine to kick in, L-theanine capsules might help. I have been told it's compatible with SSRIs but as always, check with your health care team. It's a supplement derived from tea.

    deep breaths!

  • Traceynacey
    Traceynacey Member Posts: 8
    edited November 2020

    So the indentations are deeper and now if I turn a certain way my skin seems to have an outline. Kinda like a patch. Also woke up with a burning sensation in it this morning. I'm night hift tonight and I don't think I can cope. I know Wednesday is going to be bad news

  • Traceynacey
    Traceynacey Member Posts: 8
    edited November 2020

    Well tomorrow is D day. I've took myself out of the house for the day to try and keep my mind off it but can't help but think why on earth I never got my ovaries removed when I had my hysterectomy. I'm also looking into getting the brca test done to. I'm going to ask all these questions tomorrow

  • kathabus
    kathabus Member Posts: 205
    edited November 2020

    Glad your appointment is near so that you can work on getting some answers to your concerns. You received lots of good info and advice above. I can't do any better than they did! If you reread the posts, it may help to ground you again. Good luck tomorrow and keep us posted.

  • Elctrcldy
    Elctrcldy Member Posts: 14
    edited November 2020

    Hang in there! As a chronic worrier myself with my mom having breast cancer at the same age I feel you! I have a follow-up diagnostic U/S in 2 weeks and like you I'm in an anxious tailspin bc this the second time in two years. The ladies here have offered really sound advice (most of which I should be following too). I have been acknowledging my anxiety and recognizing I am creating my own personal hell with plenty of cognitive distortions. I am working on positive affirmations and trying to re-focus my energies in other things to keep me busy. Sometimes I'm successful, other times not so much but I am giving myself some grace. I am telling myself that last year's excisional biopsy came out benign and most likely this year this too will be nothing and my breasts are just extra special (fibrocystic). Hang in there, you will have more clarity and hopefully peace tomorrow!

  • Traceynacey
    Traceynacey Member Posts: 8
    edited November 2020

    Back from appointment. So the consultant noticed the problem straight away. She drew a circle and cross. She said it felt more nodular. Mammogram clear and ultrasound showed fibroadenoma and fibrocystic changes. They said keep an eye on it but they are not concerned at the moment. What a relief x

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2020

    That's great news. A benign mass, such as a cyst or fibroadenoma, can cause an indent.

    I am a little surprised that a biopsy isn't being recommended. Fibroadenomas are usually quite easy to identify on ultrasounds and they are benign. With younger women - fibroadenomas are the most common lump in teens and women in their 20s - watching is normally the recommendation. But once a woman in her 40s, more often than not a biopsy is recommended, just to confirm that the fibroadenoma is a fibroadenoma. It's a BIRADs 4A biopsy - less than 10% risk - but it's done as an extra precaution once a woman has hit the age where breast cancer is starting to become more common.

    I'd suggest that you get a copy of the imaging report to see exactly what it says, then then maybe talk to your doctor to see whether this extra step would be advised just to be on the safe side.

    From the information pages of BCO:

    Fibroadenoma

    "If you're under 30 and diagnosed with a fibroadenoma through ultrasound, biopsy might not be needed. Your doctor can check on it with physical exams and ultrasounds to see if it changes or grows. If you're in your 30s or older, your doctor may recommend a needle biopsy to confirm the diagnosis. In many cases, fibroadenomas are first picked up as women start having mammograms in their 40s and often they are biopsied, notes Dr. Alan Stolier, a breast surgical oncologist at St. Charles Hospital and the Center for Restorative Breast Surgery in New Orleans."

  • Traceynacey
    Traceynacey Member Posts: 8
    edited November 2020

    They consultant said it was too small to biopsy and just to keep an eye on it. But sure its just aging process. I'm happy with that so

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2020

    Traceynacey, so happy it's nothing to worry about. Now, the next time you think "I know Wednesday is going to be bad news" when it's a health matter, remember that it WASN'T bad news this time. Don't let your anxiety guide your reality. But do have any oddity checked out, just don't let it freak you out until you have the facts. And even then, freaking out doesn't help! :)

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