Just Diagnosed 3 Days Ago

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Scaredbutstrong
Scaredbutstrong Member Posts: 11
edited October 2020 in Just Diagnosed

Hi everyone. Brand new here. Was diagnosed on Tuesday with bilateral invasive ductal carcinoma stage II. Still in shock. I raise and show poultry and am today finding homes for most of them which is tearing me up inside because I love them. Next week on Wednesday, I'll be meeting with the surgeon to discuss what will be done and when. I don't know yet if I'll have additional treatment besides surgery, but assume so. Can anybody give me any advice as far as mentally coping with this in the early days ? Are there any particular questions I need to ask next week ? Any help would be appreciated.

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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2020

    Dear Scaredbutstrong,

    Welcome to the BCO community. We are sorry for your recent diagnosis. We are very glad that you made the decision to join our community and reach out to out members to share your story. We encourage you to stay active here and build a network of supportive others who can provide information and care as you begin your treatment. While you are waiting to hear from others you may want to check out this link with some sample questions to begin your list as you prepare for your appointment next week. Keep us posted on what you learn. Let us know how we can be of assistance to you.

    The Mods

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited October 2020

    Scared, you will likely have additional testing before you have a full diagnosis and treatment plan, so hang in there. Staying busy doing things you enjoy can help take the edge off and your mind from going to dark places. If you need anxiety meds, tell your Dr. I would suggest taking a trusted person with you to your up-coming appts if you can. I know that is difficult with COVID restrictions. If your surgeon does recommend a specific surgery, ask why that is the best option vs another? Ask what options you do have and the pros and cons of each. There will be several hard decisions down the road and you have to do what is best for you. Try not to rush and make knee-jerk decisions, based on fear. Gather all of the information you need before moving forward. Get a second opinion if you need to. Keep all of your medical records as you go. If you are in the states, the American cancer society has a lot of resources that you may find helpful. Best wishes moving forward!:))

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited October 2020

    Scared - you need to get the reports of your diagnosis. They are yours by law and that way you will have the correct information. Depending on the size & grade and hormone status, HER2 status,etc. - the treatments could be very different. For example - if you are HER2+, you will likely have chemo before surgery. There will be more testing & imaging and likely you can meet with an MO (medical oncologist) before making final decisions

    I'm recommending that you do NOT visit Dr. Google. That information is often out of date and certainly inflammatory. Try to distract yourself with binge TV watching, reading, walking. If you are super anxious, call your doc and talk about some mild meds. We'll be here to support you. Do post when you get the rest of your information.

  • LivinLife
    LivinLife Member Posts: 1,332
    edited October 2020

    Welcome Scaredbutstrong! Good advice the others gave you. I'm just chiming in here to offer support. This site was extremely informative and helpful when I first signed onto this site at the beginning of my journey, as well as throughout the process. I hope this will be your experience as well. As Minus said keep us posted as you either have thoughts or feelings to share/get feedback on or have additional information.....

  • Lille
    Lille Member Posts: 34
    edited October 2020

    There's little I could add to all of the wonderful ladies here. More so and I'm picking up information myself from each of them. I do however want to say that I am sorry that you are here as well. But you aren't alone, these ladies (and some men on this site, let's not forget them!) have been down this path or one not too far from it. Like others for me, waiting was and is the -worst- part. You'll have decisions to make, some might seem or be harder than others but once you get a plan that often helps. As for coping, I have no magic bullet. Some days you don't have to cope well. You can be a wreck. Some days you just have to survive the mental waiting game. But it's ok to not be ok. Beyond that I decided that I would let myself break down in tears...but only for 5 minutes at a time. In those 5 minutes I was allowed to let my brain think whatever it wanted. But when those 5 minutes were up, I made myself dry my eyes, breathe in, and force myself to do something. Go out for a walk, picked up a room, played with my cats to tire them out, something to make myself move even if for just 15 minutes. I actually got some decent cleaning done since I made myself do it each time! Everyone's coping mechanisms are different. That was mine.

  • arabiansrock
    arabiansrock Member Posts: 98
    edited October 2020

    Scaredbutstrong everyone has already given you great advice. I am going to address your poultry hobby/passion. Instead of rehoming your favorite birds, maybe try to hold onto the most special ones, and before you have surgery just anticipate what adjustments you might need to make in your poultry keeping. You can anticipate not being allowed to lift more than 2 lbs for at least 2 to 3 weeks if you have a lumpectomy. A mastectomy would give you longer time on lifting restrictions. So try to adjust your set up so that all your feed is on the ground. Get a small bucket for carrying it to limit how much you try to lift. Do NOT try to shovel and lift poop into a wheelbarrow!!!! That's a big no no. Maybe hire a local teen to come and clean the living areas 2 or 3x a week for you. Lay your water hoses out so they are right where they need to be so you don't have to drag and tug them around. You will only be limited for a relatively short period of time. Don't lose what you clearly care so much about. Just being able to go outside and sit and watch your birds may be very relaxing and therapeutic for you.

    I have horses, and even tho I couldn't ride for 3 weeks, just going out and sitting with my boy and giving him some treats, really helped to keep me calm and thinking positive.

    Good luck for you going forward. You will feel better once you have a treatment plan. The waiting and thinking the worst really is the hardest part.

  • beach2beach
    beach2beach Member Posts: 996
    edited October 2020

    I also can't offer much more helpful advise than the other lovely posters. Once you have all the info and a plan,,you get some control back. You love those animals.I would hold onto to some of them if possible. Maybe enlist a neighbor as a back up if necessary to help for a week or two. I think they will give you great comfort to see, hear them while you are going through this. We need things that make us happy.

  • Scaredbutstrong
    Scaredbutstrong Member Posts: 11
    edited October 2020

    Hi Beachtobeach

    I actually did as you suggested. I kept my very best ducks, my old 9 year old rooster that is the first champion I raised and my geese. I've reduced down to 7 pens from 40+. It takes me 20 minutes to feed and water vs 2 hours. I knew I couldn't give them all up and be happy, but I believe, once I'm mobile, I can manage. I miss the ones that are gone, but they all went to people I know and all will be well cared for. This has actually made me consider just how much time I had been spending caring for so many and how many other things I enjoy that I had no time for. I think some of these changes I'm having to make may be a good thing and are helping me to evaluate what is really important to me. This could actually be life-changing in a good way. At any rate, I'm at peace with my decision. I did it because, those birds that I have put my heart and soul into, deserved to be where they could get the best care.

  • Cutie
    Cutie Member Posts: 67
    edited October 2020

    Scaredbutstrong,


    Sorry to hear about your diagnosis. I was scared and shocked when I found it because I was not expecting it as I did pay attention I ate, exercise etc and non o family history. These days, treatments are better and be strong. If you have to do chemo, don't be scared. This board has a lot of information you can find. Also pay attention what you r eating now and during treatment. No sugary food. If possible. take turmeric powder. A lot of ladies living more than 30 years after treatment. BE STRONG. If you can, meditate to calm your mind.

    Good luck

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