Need to hear success stories!

hi there - Sorry you have to be here but welcome to the board.

I'm also HER2+ with bone Mets only. Three years in and “no evidence of active disease" for over a year.

I responded right away to Taxol-Herceptin-Perjeta, with no serious or lasting side effects. Last year, a single bone met became active . I was referred for radiation, which put me back to NED status.

Like you I continue on H&P indefinitely...I get the Herceptin shot and a perjeta infusión until my center starts giving the new shot that combines both. Im also on anastrozole because I'm triple positive.

HER2+ with bone-only mets has a pretty good prognosis if you respond well to Herceptin. Many of us get a good long run on first line treatment and there are still a few more good options if/when it fails.

A few stage IV ladies from the original Herceptin trials in the 1990s are still alive, that's about as successful as it gets 😊

I consider myself “lucky" although of course I don't take anything for granted. I live an active life and other than achy joints and some fatigue now and then, I don't feel hugely impacted physically by my treatments or the disease so far. The only thing I'd truly love more, is if I didn't have to be tethered to cancer center appointments every three weeks.

I've travelled more and spent more quality time with family since diagnosis than I did in the previous ten years.

Life didn't end with my diagnosis —- there's a thread here with a title like thatand it's one of my favorites.

https://community.breastcancer.org/forum/8/topics/818931?page=109

I hope you have the same response to treatment as I did and you get many more years with your babies.

hi Awheeler,

I just joined today. I am coming up to 6 years (March 2021) living with stage IV cancer to lungs and bone. I am estrogen positive and her2 positive. I am on Herceptin and Perjeta every 3 weeks. With zometa every few months and I take a daily anastrozole. I did nine rounds of Taxotere back in 2015 rather then six. Life is good and all is well. A few side effects but everyone is different so just go with your flow. My only suggestion is to take exercise everyday (walk), eat well and laugh a lot.

Hello!

I could almost copy Olma's post as we are so similar. I am Triple Positive with bone mets. I had 3 months of chemo and then a lumpectomy and ovary removal in July this year.

I am happy to share that a recent bone scan showed No Evidence of Disease in my bones!

I think there is a little in the original breast but since I will stay on H and P forever, the plan is to keep that at bay. I'm also on Anastrozole. I am also tolerating all the meds pretty well! I have infusions every three weeks. Looking forward to a combo shot being available here.

This diagnosis is scary but I try to stay even keeled, not going to high or too low. I am also using this as a kick in the rear to LIVE more. Of course I need to wait for COVID to end. Honestly I have more energy now than before so I need to go out more, engage more.

You can do this!! These boards are a lifesaver.

All the love, Heather