Which special doc I need to talk to for 2nd opinion?
I am thinking of paying out of my own pocket for a 2nd opinion on my chemo treatment. But I am confused with all different specialists.
Should I meet a medical oncologist or Hematology doc? Are they the same?
here’s a link to the doc I am interested https://www.uchealth.org/provider/diana-c-medgyesy-md-cancer-oncology/
is she the right person to talk to?
thank you!
Comments
-
you want a medical oncologist. Some MOs also have hematology training so you often see the credentials doubled. That Dr's reviews sound nice
Have you had an oncotype or mammaprint done yet? If not yet, I'd wait till you have that so they have all the info
-
Yes, But don't wait to make the appointment. Find out when your test results ought to be back and then get on the schedule. The good docs fill up.
You will need to gather records or sign a release, so start now to give the second opinion office time to to receive and process them. I always hand carry copies because sometimes they say the records have been sent but the doc doesn't have them. It's great when you can whip out your copies.
-
Hi,
I am in the Springs and it appears that doc is in Ft. Collins. I can tell you we have been in the UCH system for many years and my husband had a transplant even in Denver. We trust them totally. They will make sure you are directed to who need to see. My breast surgeon was in the system as well down here as well.
Best wishes to you.
-
thanks everyone.
I am still waiting for the pathology report and they never mentioned about getting tested for oncotype or mammaprint. I will ask when they call.
Also my insurance is with kaiser so I’d have to find doctors myself
-
To my posts in your other thread, your first step should be to talk to your MO (or surgeon, since your MO doesn't appear to agree) about getting an Oncotype test. The results might confirm that you would benefit most from an intensive chemo regimen or might suggest that a shorter regimen would suffice, or could even put into question the need for chemo (although this 3rd scenario is less likely given your age and nodal involvement).
The discussion in your earlier thread provides important information for those reading/responding here: https://community.breastcancer.org/forum/69/topics/877316?page=1#post_5579704
Edited to add: July15, We were posting at the same time. Previously you said "My Oncologist said if I have any node positive, then he won't even use oncotype score because it's not accurate." Did your MO confirm with you since your surgery that he won't be getting an Oncotype score for you or has it just not been discussed since? At what point (and based on what results) did you have the discussion with your MO about the 4 + 8 chemo (AC-T, I assume).
-
hi @Beesie,
Thanks for replying. I read your other reply as well and it's very educational!
I met with the MO before my surgery so our discussion was based on a lot ifs. I had MRI and pet scan and biopsy but nothing is conclusive about node involvement. They think there's at least one but they won't sure because the Lymph node tissue they got from biopsy was very little but they did find some cancerous cells in that little bit of tissue, that's why they think 95% chance I have node involvement and they ordered pet scan for me for that reason to see if it has spread. My surgeon told me after surgery that he took about 10-12 nodes and he said they look fine and he was hoping I have no node involvement at all. He also felt my armpit before the surgery and thought they felt fine but you can't really tell from just looking and feeling right?I was also told that at kaiser if I push to have some tests done I can get them. But I need to know what tests to push to have. Looks like it'll be oncotype and mammoprint at this point.
I am waiting for the nurse to call me and let me know the pathology result and I will see the MO again soon. But like Shetland mentioned, good doctors fill up fast so I want to start finding another doc for 2nd opinion now.
EDIT: I also feel like even if I don't have node involvement I'd still want to get chemo because I am still young but I am just not sure if the aggressive treatment is necessary.
Update: just got a call from nurse, I have two nodes positive and biggest one is 0.6cm. And my tumor is 1.7cm. They also found aDCIS 0.6cm -
I'm also in Colorado and was treated at UCHealth, main campus at Anschutz. Not sure where you are located, but if you can make the drive to Aurora, I would highly recommend you consult with any oncologist at their Breast Center. https://www.uchealth.org/locations/uchealth-diane-o-connor-thompson-breast-center-anschutz/
They have multiple oncologists, all specializing in treating breast cancer, which is what you want. My oncologist is Dr Borges, she has a lot of research into young women's breast cancer, and I trust her 100% (I was 40 years old when DX)
-
hi farawaytoo,
I live in boulder too. I will check the one in aurora. I basically just need to get a second opinion on treatment plan. I guess once the plan is finalized, it doesn’t matter where I get them right? -
Yes, I agree that you can get chemo (or not) anywhere. I was on a clinical trial, so had to go for chemo to Anschutz. I'm assuming it works the same with radiation, and if I had to get rads, I would probably have done it in Boulder. Too much hassle driving to Aurora for 15 minute session every day.
Do you know hormone receptors status yet?
-
I am er+80% pr+40% Her2-
-
Hi July,
I am a Kaiser patient in Northern CA. I had my second (outside of Kaiser) opinion at Stanford. They are an NCI facility and actually have a procedure set up for second opinions. My case was presented to a tumor board and then I met with one of their mo’s and someone else (sorry it was 9 years ago). Most of my records were sent electronically but I did hand carry something (forgot what). It was, of course, self pay but it helped to put my mind at ease. I have been stage IV almost since initial dx and that was 9 years ago! Wishing you the best
-
Hi exbrnxgrl,
Thanks for sharing your experience. I have an appointment setup with the nci cancer center on 9/11 and another one setup with my own mo at kaiser on 9/3. I am hoping they agree on the treatment. (Fingers crossed).
-
hello July.... I am also a kaiser Colorado patient but I’m in the southern region and so we don’t have any kaiser offices that take breast cancer patients....kaiser only has primary care docs down here. I receive my care through UC Health and am beyond pleased with the care I have received I highly recommend them for breast cancer care in Colorado. I did not like the first radiology oncologist I saw and it was not a problem to get a second opinion which was covered by kaiser. My husband has some health issues and has never had an issue getting a second opinion at no additional cost to us.
As you can see from my signature I was diagnosed 2/20/20. At my initial appt with my breast surgeon she did a manual exam and had concerns with a swollen lymph node she felt and did a biopsy on the spot. It had some cancer cells and that changed my treatment plan. She had me do genetic testing at that time which showed I have the PALB2 mutation which raises my risk for breast cancer (and ovarian and pancreatic) and so the plan to do surgery first changed and I went to a multidisciplinary team. They didn’t do an onocotype or the other test due to my lymph node and genetic mutation and after all the scans to make sure it hadn’t spread I started AC-T chemo 4/1. I just finished and have surgery in September and then rads. An aggressive plan but I want to throw the kitchen sink at this. My medical oncologist is also a hemotologist.
Not sure if any of that is helpful. Advocate to get a second or third opinion if you want. My thoughts are with you as you go through this.
Heather
-
- Hello fellow BRCA2- person! Do you know if they did the Ki-67? If that was high, plus the nodes, plus the grade 3 you are probably looking at a higher oncotype score and then for sure chemo.
when you get your 2nd opinion def. ask the MO if she has experience with BRCA mutations and if her treatment philosophy varies when a patient has them- -
hi heather and 2019,
thanks for sharing your experience. I for sure am getting chemo even if the score is low. My MO said the treatment would remain same but I will confirm with my 2nd opinion MO just to be sure.Now I am just waiting to get scheduled for dmx.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team