Feeling nothingšŸ˜ž

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aprildawn714
aprildawn714 Member Posts: 32
edited August 2020 in Breast Reconstruction

I had a double mastectomy last June. My final surgery to replace my expanders was December 30th. My breast are cold. I still have so much numbness which I really wasn't prepared for. My nipples are numb but uncomfortable to touch. It's weird. I miss feeling my husband's hands on my breast. It's so uncomfortable now. I have no desire for sex. I'm not sure if it's the surgery or the tamoxifen. Before all this I had a healthy sex drive. It's such a bummer. My plastic surgeon told me there is a nerve surgery she can do for the numbness. I'm just over surgery for right now. Any suggestions on how you all cope with this? Is it the dreaded medication

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited August 2020

    AprilDawn - I was told not to expect any feeling after a bilateral mastectomy and subsequent surgery to exchange expanders for breast implants. And 9 years down the road - that's totally accurate. I have no feeling. My implants aren't cold but I understand many people have that side effect. I agree that it's a bummer since my breasts were my major erogenous zone & most important for stimulation. I've had to learn new ways to play - but still miss the lost breast sensations.

    That said, I was ER/PR negative so can't speak to the effect of tamoxifen. I'm sure someone else will chime in.

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  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited August 2020

    April sorry that youā€™re feeling this way and that you maybe werenā€™t really warned about everything. It really does suck. I donā€™t think people realize how much this affects us physically/emotionally.

    I had Bil NSMX and was completely numb for months after surgery (which I was warned of to an extent) especially on my left side/axilla. I didnā€™t think it would ever get better and it was so uncomfortable at first. I now have a lot of ā€œsurface/skin sensationā€, except a few areas on my LT side and a little area on my back. I donā€™t have that cold feeling that many women complain about. So Iā€™m sorry you are dealing with that as well.

    Hopefully you regain some feeling and your implants start to feel more a part of you. I donā€™t blame you for not wanting to go through more surgeries but if itā€™s that important to you maybe itā€™s worth looking into again down the road?

    I do not have to take any meds but Iā€™m sure other ladies will chime in to help.

    Hang in there :)

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  • Rah2464
    Rah2464 Member Posts: 1,647
    edited August 2020

    Aprildawn please speak with your MO because tamoxifen can greatly impact all of your emotions and your mental as well as sexual health are equally important. Maybe you can adjust dosages or try a different medication that doesn't dampen you down so.

    My foobs felt cold to me as well initially, I think I have just gotten used to it now. Although sometimes when there is a distinct temperature change, like walking from air conditioning out into high humidity, they feel for lack of a better word, clammy, for a bit.

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