What helps you through....

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KarRGB
KarRGB Member Posts: 14

I just started posting again after being diagnosed last September with extensive stage 4 bone mets after 15 years of being NED from original breast cancer diagnosis in 2004. I shared my story in the stories post, but wanted to start a new topic. There may be a thread on this, that I didn't see. The topic is what helps you get through this whole challenge. It can be anything from my dog, to my spiritual beliefs, to a yoga position, etc.

I just wanted to hear from others on what gets you through the difficult times and brings you joy.

Today, I am going to list just one thing for me. Writing poetry helps me, I get to deal with many issues and many feelings. Over the past few months I created a photo poetry book of my poems and nature photos to share with friends and family, and actually put it on Amazon and Blurb. I hope that a poem or picture would resonate with the person. I put one of my poems on the other post . I will be adding another below.

I hope others will share what you do to find joy in the day.


"This Body"

This body

Was given

To me

To experience

Life

To Taste

To Touch

To Smell

To Feel

To See

To Give

And When Done

I Will

Give it Back

Willingly

With Gratitude


Stay safe, stay sane, stay well

Karen

Comments

  • lehrski
    lehrski Member Posts: 94
    edited July 2020

    Thank you Karen. I needed to read your poem. I've been a in a dark hole since diagnosis last Friday. This helped me see a perspective of gratitude.

  • KarRGB
    KarRGB Member Posts: 14
    edited July 2020

    As they say - been there done that ( lots of times) - that dark hole is the Pitts, literally, lehrski. Glad the poem helped a bit, and hopefully you will find ways and people to help you climb out.

  • Kjones13
    Kjones13 Member Posts: 1,520
    edited July 2020

    I don't come here often anymore, but honestly this site and “meeting" so many others who understood how I was feeling was the most helpful for me. It's been almost 8 years for me so looking back I wish I would have found something to help me through the hard times because I got stuck in that dark hole for 3 years (combination of sickness, meds, and depression/anxiety)...so this thread is a great idea!! I enjoyed reading your poem. Keep writing!

  • 3-16-2011
    3-16-2011 Member Posts: 559
    edited July 2020

    Thank you Karen for starting this thread. I don't have much to add. You are correct many different things may help depending on the day. Today, you helped. 🙂

  • KarRGB
    KarRGB Member Posts: 14
    edited July 2020

    Glad you enjoyed the poem and thread.
    Today, for me, what helped me through the day was m&m's; I know not the healthiest, but in my defense they are the dark chocolate ones (yum). I tend to get up every two to 3 hours thru the night with a trip to the bathroom. I usually keep some type of snack, a cracker, trail mix, now m&m's, take just one or two,occasionally a handful 😉, helps me and makes me happy.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2020

    beautiful poem, thank you for sharing!

    I find that keeping busy with productive work and creative pursuits keep me on an even keel

    I “act as if” and “fake it tilI I make it” and just focus on what’s right in front of me

    Seems to work, mostly

  • 3-16-2011
    3-16-2011 Member Posts: 559
    edited July 2020

    I do believe in the power of m&ms! My favorite quote is from Dean Kootz "where there is cake, there is hope." I am on Piqray now so my sweet tooth is satisfied with a nearly daily dose of artificially sweetened homemade whipped cream. And it does help me get through.

    Mary

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2020

    Kar, I'm not an M & M's kinda gal but came across "coffee nut" M & M's while putting in my Walmart order earlier this week, and was literally munching on them when I read your post!

    A couple months ago, I took a free, online course offered by Yale University called "The Science of Well-Being". It's a subject I've always been interested in and the class was insightful. One of the numerous things I learned was you can boost well-being by taking time to savor the good things, big and small, and that surely includes delicious little treats!

    Living with mbc for 9+ years has taught me many coping mechanisms. I especially love to read true stories of people who deal with difficult circumstances or have overcome tremendous odds. While that includes ones dealing with bc, other forms of cancer or illness, such as "The Unwinding of a Miracle" I also read accounts of people who've been incarcerated, or swindled out of life savings; have lost children to violence at the hand of someone they know or survived a plane crash, and more. It shows me the human spirit is tremendously resilient, and I admire and draw inspiration from that. In addition, I also love reading autobiographies of famous athletes. They reach the pinnacle of success through not just talent but drive, focus, determination and often overcoming failure and hardships. I'm not a tennis buff by any means, but I tennis greats Andre Aggassi and Maria Sharipova each wrote books that I totally loved.


  • cyathea
    cyathea Member Posts: 338
    edited July 2020

    Thanks Karen. Here are a few of my favorite things that make me feel strong:

    -Talking to my Mom and Dad.

    -Hugs and kisses from my DH and feeling loved when he brings me a snack when I’m working.

    -Petting our cats, brushing them while they their purr motors go into overdrive because they are SO happy.

    -Seeing pictures of family living in other cities (especially the kids) on Facebook.

    -Listening to music, some of my favorites are “Smile” by Sidewalk Prophets”, “Keep Me In The Moment” by Jeremy Camp, “All In” by Matthew West, “Almost Home” and “I Can Only Imagine” by MercyMe.

    -Finishing a project that helps one of my clients in their business.

    -Learning how to do something new with the data analytics and mapping software that I use for work.

    -Taking a nap when my body tells me it is done and waking up happy that I took care of myself.

    -Losing myself in a movie or Netflix show.

    -Reading articles or listening to TED talks and learning new things.


  • KarRGB
    KarRGB Member Posts: 14
    edited July 2020

    Listening to you all is terrific, as it adds more ideas for ways to deal.

    The e-version of my photo poetry book can be downloaded for free next weekend on Amazon - Friday August 7,2020 through Sunday August 9,2020. It is called Lost in a Book, Flights of fantasy. They let me give it away a few days over a three month period. If you do look it up please be very careful as the hardback and soft back still cost money, it is only the digital e version is free as well as free for this who have kindle unlimited.

    Monitors if you think this post is iffy, let me know and you or I can delete it.

    PS coffee m&m's sounds pretty good😁

  • Tinkerbell107
    Tinkerbell107 Member Posts: 281
    edited August 2020

    As crazy as it may sound I like to live in the land of denial. One night a week going out with my spouse and friends (yes at a restaurant during Covid 19), having dinner and throwing back a few apple martinis . Some how I appreciate this normalcy as long as my mental and physical well being allows me....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2020

    Tinkerbell - that is my approach as well, only I don't call it denial, I call it 'living in the now' :D. Usually I can fool myself long enough until I get home and think about how lovely the evening/activity was, and then wish I wasn't sick. But that thought is fleeting now more than it was before, so I think I am getting better at it. I mean, why borrow trouble from the future?

    I've also rediscovered my love of learning and new things - lately I've been watching a lot of older Oscar-winning performances, and reading books I wouldn't have considered before, including Chuck Yeager's autobiography. In another life I would have been an engineer I suspect, but now I find myself looking into a quick online course on the basics of aerodynamics and rocket propulsion. Or just googling concepts when reading about space flight. Its long been a personal interest but so far out of my normal day to day work that its rather fulfilling.

  • cyathea
    cyathea Member Posts: 338
    edited August 2020

    Thanks for the tip on your poetry book, KarRGB. Now I have something good to look forward to for next weekend. 😁 It’s important to have plans for good things

    SondraF, I loved your “living in the now”. It is so cool that you are googling all that heavy technical stuff. “Rock on”, sister!

    Tinkerbell107, I also love that land of denial. I go there as well. 😉


  • JFL
    JFL Member Posts: 1,947
    edited August 2020

    What helps me most is to have something to focus on that is not my cancer and to have purpose in something I am doing. I treat my cancer aggressively, research incessantly but spend a lot of time living a double life in denial. I have continued to work and focus on that makes me forget many times throughout the day about the bigger picture. I am also able to focus on accomplishments, challenges and continuing down my career path which makes me feel “normal”.

    The other way that is a sure fire to get me out of the dumps, at least temporarily, is helping others with BC. For some reason, focusing on supporting others energizes me and gives me purpose.

  • KarRGB
    KarRGB Member Posts: 14
    edited August 2020

    I keep reading all these amazing posts and wish I could respond to all them, but then I would suck up to much airtime😉.

    Tinkerbell - I keep thinking about what you brought up - the land of denial. For me I can see this topic as one to mull over and to be a poem in the making😊. It seems that with the privilege of being born, comes the reality of ones own demise, which most of us push to the back of our minds. Unfortunately with this diagnosis and our treatments it brings it back to the forefront. It's hard to live there 24/7, so figuring out how to push it away for a while and enjoy our life, so denial or taking back my joy, seems to be a very useful option.

  • Tinkerbell107
    Tinkerbell107 Member Posts: 281
    edited August 2020

    Thanks for the validation of those who enter into my land of denial . Despite it's temporary existence, the land of denial is my place I call home. This is where I feel free of cancer, it's my identity, not MBC. The longer I keep this persona, my world continues as "is" , and this is the place I want to be....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2020

    RGB - you just put to words some of what I have had bouncing around in my brain the last few days, or reading about "normal" people now worrying about the "new normal" of living with the Covid risk (meaning mostly - you don't know which type you are going to get and the potential for severe and long lasting side effects). Our timelines to recognize our mortality just got pushed up sooner than others but that doesn't mean it has to be all encompassing.

    There will be a time and a place for All Hospital, All The Time. Until that is the reality I have to manage, I would much rather manage the current time and place reality.

    Some really awesome thoughts in here ladies - thanks RGB for starting the thread as its really inspirational!

  • KarRGB
    KarRGB Member Posts: 14
    edited August 2020

    Sondra - so true.

    Well, time for me to post another poem, this one originated from you ladies that got me in that musing mood.

    A mention again if you do get anything from my words my digital e-version of my book will be free to download this Friday Saturday & Sunday on Amazon.

    (For My Breast Cancer Buddies)

    When I

    Help

    You

    It Helps

    Me

    When I

    Hurt You

    It Hurts

    Me.

    When

    We Connect

    This Way

    We Understand Each Other's

    Joy And Pain

    Our

    Love And Sorrow

    And

    So Much More.

    We Share

    Our Loneliness

    As Well As

    Our Need For Connection

    We Embrace

    Our Humanness

    As We Embrace

    Each Other.



  • 3-16-2011
    3-16-2011 Member Posts: 559
    edited August 2020

    KarRGB

    Thank you for the beautiful poem. Your direct simple true words really spoke to me. Thank you again for starting this thread.

    What is helping me get through today

    good thoughts from lovely friends,

    Wonderful cup of coffee,

    Anne Cleeves mysteries








  • KarRGB
    KarRGB Member Posts: 14
    edited August 2020

    I am always grateful when a poem touches someone, sounds silly, but kinda like a fledgling pushed out into the world, you hope it opens its wings and takes flight.


  • KarRGB
    KarRGB Member Posts: 14
    edited August 2020

    Been a rough few weeks, so trying to think of things that get me through. Thinking of a few days at the beach, hoping I get a chance, when we come out of lockdown and can safely do some small trip to see the ocean

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