Discouraged and depressed

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pianolady
pianolady Member Posts: 19

I know all of you are familiar with this feeling. I've gone through Arimidex, Ibrance/Faslodex, Affinitor/Aromasin, and now Xeloda in three years. Now waiting for insurance company to approve scans so I can find out where its moved to now. Probably looking at having my port put back in, unless Picray or Keytruda is an option. Going to IV chemo somehow feels worse than going to another pill. And Xeloda was a very easy drug for me.

I'm not looking for anything in particular, just want to say that this whole cancer thing sucks. Also. How do you update your treatments? I haven't been on here in ages!

Pianolady

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  • KBL
    KBL Member Posts: 2,521
    edited July 2020

    Hi, Pianolady. I'm sorry you're feeling discouraged and depressed. I have not been where you are, so I can't really offer words to help, but I can give you a virtual hug.

    To add a treatment, you can click on the three bars at the top, go to the bottom and click on My Profile. It will have where it says My Treatments, and you can add or edit there.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2020

    pianolady, I’m sorry to hear about your progression and can understand your discouragement and depression. Plus all that in the middle of a pandemic. It’s very unfair. I’m glad you reached out to let us know how you’re feeling. How are you spending your days? I hope you can find a few bright spots here and there. Last year, I went through similar feelings and I just let myself feel them, tho I was able to find a few distractions from time to time. And I did my best to pamper myself. Let us know when you find out what your next treatment is. Many hugs to you.


  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited July 2020

    PianoLady, Have you considered a trial? in the clinical trials thread, SusaninSF was just saying that the Tropics-2 trial was quite tolerable...

  • arolsson
    arolsson Member Posts: 118
    edited July 2020

    pianolady, I think we all know what you're going through, even though of course all our experiences are highly individual. Sounds like you have been on regimes that seemed to keep you stable and now have to move to other options. My two cents after 8 types of treatment (not counting the first bout in 2013)-1) ports are great, they will save you so much hassle . Sounds like youve had one before, odd that they removed it? 2) there is a general feeling that chemo is harder than targeted therapies etc and that tablets are easier than infusions. My own experience is that the pills have been the worst and my next and last treatment-the parp inhibitor Lynparza, is a tablet form targeted therapy that is rumored to be a really difficult one. Stage IV is a roller coaster, but if you have options left then fingers crossed. I'm incensed to hear that you have to get insurance approval for a scan????

    I'm always really apprehensive when starting a new treatment. But as long as we can halt it or decrease the dose I guess I'm willing to try anything.

    Do something nice for yourself today and try to take an hour off from being a cancer patient. And use this community as much as you like.we are here day and night : )

  • pianolady
    pianolady Member Posts: 19
    edited July 2020

    I had my port taken out after my initial round, in 2014. I felt that it reminded me of cancer and, after all, I was done with all that! HAHA. So now I have to get it put back in. I'm hoping they can use the old scar!

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