Nephrostomy tube

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melmcbee
melmcbee Member Posts: 1,119
edited May 2020 in Stage IV/Metastatic Breast Cancer ONLY

Well the stent they put in my ureter isnt working so come Monday I will have the pleasure of receiving a Nephrostomy tube to drain the hydro in my kidney. The stent has caused me pain for the entire 3 weeks it has been in. I am kinda scared and was hoping for some advice.

My only mets (bone) has been stable for 3 years on faslodex. In November I found out that my ILC cancer has spread to my colon and is compressing the ureter. My new mets changed to ER negative. So now I will be treated as triple neg. A lot of changes in the last few months and I am having a hard time finding any info on my situation or anyone that can relate. Does anyone have peritoneal mets ir mets to colon or has anyone had their cancer change to triple negative or does anyone have experience or advice about a Nephrostomy tube? Any advice or thoughts would be so appreciated. Thank you. Praying for all of us

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  • likestobike
    likestobike Member Posts: 16
    edited April 2020

    Melanie,

    My mom has had a ureteral stent since April 2019. She's had 3 stent replacements since then. The latest one (in Feb) has given my mom a lot of bladder irritation and UTI. The urologist is strongly recommending a nephrostomy tube because the stent is not adequately draining and is irritating her bladder. What has been your experience so far with the tube? My mom has lot of questions about whether the site or bag can get infected and how it will affect her quality of life. Would love to hear from you about your experience.

    thanks! Andrea

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  • melmcbee
    melmcbee Member Posts: 1,119
    edited May 2020

    Im sorry I just saw your question. The Nephrostomy tube is a pain but I like it better than the stent. It has been infected. You have to get it swapped out routinely. Its a challenge to hide it. I cant lay on that side. Always have to be careful to not let it get pulled out. No swimming or submerged water. It is very challenging but for me personally it was a better choice then became my only choice. I hope your mom is healing and feeling better

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