Delay doc appts to avoid med facilities during COVID pandemic?

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  • jcerroni241
    jcerroni241 Member Posts: 5
    edited March 2020

    thanks salamandra!

    We are trying to be as careful as possible like you described- guess it’s the best we can do! Still doesn’t help with the anxiety!

    Hope you are doing as well as possible in NY and we all can get out of this sooner rather than later!

    I hate to say this- but I wish NC would go to a shelter in place so I do t have to be the one to make the decision- I’m tired of making decisions!!

  • sweetp6217
    sweetp6217 Member Posts: 365
    edited March 2020

    I used to know someone who had a shower in his garage so that he could strip and wash off any contaminants before entering the house. The garage was not attached and he had a few sets of clean clothes waiting for him in the garage as well. He also wore protective gear at work.

    P.S. I also knew someone who used to work a dirty job and had an outdoor entrance to the basement. A shower and WC were down there for his use before entering the house proper.

  • ChemicalWorld
    ChemicalWorld Member Posts: 172
    edited March 2020

    The local hospital where I normally go through outpatients to receive my Lupron injection called me late last week and told me I was no longer allowed to go there to get my injections, and that I'd have to make other arrangements. My doctor's office is remaining open and apparently only letting two people in at a time. They called me today to come in for a repeat test that i'm already terrified about, never mind having to go into that office. Several other doctor's offices are completely closed around here. My doctor also works rotation at the ER.

  • spiralforest
    spiralforest Member Posts: 31
    edited March 2020

    I emailed my oncologist last night as I was concerned about going into the clinic to get my zoladex shot this week. He said to stop it for now (and the AI of course since I can't take that without the ovarian supression) and resume in 8 weeks. Although who knows what it will be like in 8 weeks. But I actually felt relieved that he said not to go. I also asked him about lower estrogen increasing risk if you get COVID-19 and he said no one really knows. Some people think estrogen is protective in preventing an extreme reaction to it. There was a study with SARS with mice back in 2017 that seemed to indicate that also.

  • jessie123
    jessie123 Member Posts: 532
    edited March 2020

    Spiralfores -- What a wonderful doctor you have. He was honest with you and actually answered your question. The estrogen benefit is interesting.

  • spiralforest
    spiralforest Member Posts: 31
    edited March 2020

    Jessie123 - yes, I know. I was surprised that he just said no one really knows. Other MO's people have asked on here say "there is no evidence.

    Others who get zoladex/lupron shots still went in last week. I think they are mostly in the US (I'm in Canada). Some said it was a bit different with staff using masks, etc. But others said it just seemed the same. So it depends on your location.

    In Montreal, we have the most cases in Canada and it was all really shot up quickly as a week ago, we were the largest city with the least. There is also community spread.

    Then I read this: https://montreal.ctvnews.ca/nurses-at-the-montreal-general-hospital-say-they-were-told-to-withhold-information-after-contact-with-covid-19-patient-1.4864918

    This was the final straw that made me not want to go and why I emailed my MO about it. I go to a medical clinic and not a hospital, but still.....

  • jessie123
    jessie123 Member Posts: 532
    edited April 2020

    Spiralfores --- We often hold our medical people on a pedestal, but that's an example of "you just never know". Now that we know 25 to 50% of Covid cases don't exhibit symptoms it's really not safe to assume anything. I cancelled my radiation doctors appointment this week as I can't figure out why I even see him. What is he looking for on my breast????? I'm just glad my treatment was last year. Not sure I could have stood the stress of coronavirus and breast cancer treatment at the same time. You really made the right choice not to go for your shot that day.

  • Togethertolearn
    Togethertolearn Member Posts: 278
    edited April 2020

    no way am I delaying. I only got my right breast Mammo after six months even though I literally begged and bribed them to do both breasts. I get a mammo for both sides in May and they said it'll be happening. If it wasn't I would've been calling around clinics other doctors whatever - for me today, a mammo of both breasts a year after diagnosis is more important than much else. Of course my governor will likely close down cancer centers too like he's shut all the other non-corona sites (many medical staff laid off here, medical buildings shuttered).

  • honeybair
    honeybair Member Posts: 746
    edited April 2020

    I have had two squamous cell carcinomas removed last summer, had a biopsy four weeks ago and have a malignant melanoma in my right palm which will undergo an excision now scheduled for late May but have developed most likely another squamous cell carcinoma between the toes on my left foot, and now have the dark growths of malignant melanoma on my left foot and the same which just popped up on my lower right lip. I am feeling somewhat anxious about having to wait another six weeks before being treated, but I guess I prefer that to be being exposed to this virus. I suppose I am paying the price for the sunburns and extensive exposure to the sun during my youth. There were no sunscreens during those days unfortunately.

  • hopedreams
    hopedreams Member Posts: 85
    edited April 2020

    hi Sal.. when I read your post..I just knew that U had to be from NY..I am also and NONE of my drs. are seeing any patients at my cancer center unless its and emergency... and here we are mid April.. they are doing phone calls to check up and maybe appts in JUNE??? this is our" new normal" ..I pray it will change.. take care & be safe to all of u gals.. ~hope


  • ErenTo
    ErenTo Member Posts: 343
    edited April 2020

    My annual mammogram which was scheduled for May 4, is now postponed to late August. My Zometa infusion was scheduled for late May, now it's been postponed to late July. Zoladex shots are still ongoing at a small clinic.

  • PAKNC
    PAKNC Member Posts: 72
    edited April 2020

    I am currently scheduled for a first appointment in late May - I had to wait for two months. When diagnosed in late March, it was very stressful for me to have to wait. I had hoped to get treatment while between jobs and on COBRA. Now, I'm starting to think I may be better off with appointments in June or July because I have to self quarantine for two weeks starting in mid May and if things keep progressing with a job I'm interviewing for, I will probably need to start my new job in May. Needless to stay, I have to count on my State enforcing shelter in home through May because I can't self quarantine if I have to go into an office to work. I may need to postpone treatment until my treatment center lifts the self quarantine requirement for new patients - this may be a better option overall, I'll be able to make a decision in a few weeks.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited April 2020

    i cancelled an appointment with my PCP in late March, now it looks like I'll have to cancel my regular 3-month appointment with the MO in late April. Next up is a boatload of scans and appointments in early June. I'm a little nervous going without blood tests on a regular basis, and same with the June CT scan, which was already kind of far from my last one. Those are more for the kidney cancer check than breast cancer, but my oncologist monitors both. I also have my annual mammogram scheduled the same week as the CT, and appointments with the BS, the urological surgeon, and a cardiothoracic surgeon who is monitoring a possible aortic aneurysm - although that original finding may have been a mis-read, but I'd like to find out! Getting all those rescheduled in the right order will be a logistical nightmare.

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited April 2020

    I had a phone appointment-- annual "wellness" visit-- with my PCP's office (nurse practitioner) and a Zoom appointment with my oncologist. I'm at the end of my five years and will be going off Arimidex (YAY!! CAN'T WAIT!!) when this prescription runs out in July. I had my annual mammogram originally scheduled for March, then I changed it to May 4, but I called yesterday and changed it again to end of June. I really want this one over with and want it to be okay! Of course, I'll still get one every year and will see both the oncologist and the surgeon every year, too, but this is a milestone.

    Honeyblair, your sitch is scary. Fingers crossed for you and please check in again.

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited May 2020

    I'm going through with my mammogram in June after putting it off repeatedly. I'm really anxious to get this five-year one over with. I figure the doctors' offices have got the security precautions fine-tuned by now, which they might not have in late March. A girlfriend went for her gyno appt and everything was locked down tight. She waited in the car until they called her to come in. She only saw one other person besides the doctor and all three of them were masked. The whole appointment went a lot faster than it would have in the past. Maybe that speed will continue to be a feature after the COVID thing is over.

    Of course, the doctor peering between your legs isn't the same as the mammo tech with her face in your face as she prepares to squish your boobs. <shrug> I just want it over with!

    Has anyone else gone for a mammogram in the last two months? How were procedures different from the past? I'm assuming there's either no waiting area or else most of the chairs were taped off.

    I had one more month of Arimidex to bring me up to five years. I had the lumpectomy in March 2015, so It's been 5+ years since that. I started Arimidex in July 2015, and I guess to bring me precisely to five years I should take it til the end of June. But you know what? I decided two days ago that I've taken my last one and I'm done! I don't see how one month can matter. A superstitious part of me says I'm tempting fate, but I really want to get started on my post-Arimidex life. Fingers crossed this mammogram will be all clear.


  • jessie123
    jessie123 Member Posts: 532
    edited May 2020

    jane -- see if you can find an N95 mask. I've heard that they are available now. That's what I will use if I ever get up the nerve to have a mammogram. My surgery was in Feb 2019 and I'm sure my mammogram is due, but my MRI was supposed to be first and I haven't even had that yet. I have been waiting for them to get a hold on this virus and maybe have some medications available before I chance going out. I probably should have done the MRI during the third week of the lockdown since now my state is completely open and the cases are growing quickly. This is a nightmare!!!!

    Alice -- Are you going ahead with all your appointments in June? My MRI machine is in a very small room and I'm worried about Aerial transmission from the previous persons appointment so I guess I'll try for the first appointment of the day or maybe the first one after the staff lunch break. I did get the courage up to have my regular doctor blood work done last week --- the guy drawing the blood was really, really close to me and I had forgotten to take my N95 mask. How can I have forgotten the most important thing.

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited May 2020

    Jessie123 wrote: I did get the courage up to have my regular doctor blood work done last week --- the guy drawing the blood was really, really close to me and I had forgotten to take my N95 mask. How can I have forgotten the most important thing.

    It's more critical that HE was wearing a mask. Your mask doesn't protect you. HIS mask protects you.

  • Boston12
    Boston12 Member Posts: 22
    edited May 2020

    I'd like to share another perspective. My nonessential doctors' visits were cancelled, as was a nonessential GI test. My PCP appointment was done via Zoom and was better than an in person appointment - more time, no driving on a jammed highway, etc.

    However, I decided to go to my MO appointment that includes a blood test and a Zometa infusion for a few reasons. First, I'd heard via friends who'd gone to appointments and from the hospital that it was deserted, and the cancer center is in a separate building from the regular hospital. My concern is that once restrictions are lifted, more people will be in the hospital catching up on cancelled appointments. I have three cancelled appointments that require me to enter the hospital and I know I'll be very concerned about having to wait in a room with a number of other people, walking down hospital hallways where you can't social distance because they aren't wide enough, etc. Finally, I'm at fairly high risk for recurrence (according to Oncotype and some clinical features). The blood test results and talking with the MO via video ease my mind. All this being said, I will admit I don't think we're close to being out of the woods with COVID and even with restrictions lifted, I'm not going out to grocery stores, etc.

    So I went to the appointment and there was just one other patient in the waiting room and no one in the treatment rooms. Just two other people were in the infusion room, all distanced from one another. The blood test results were good, I'm all infused and don't have to go back for six months. That was over two weeks ago. My July RO and BS appointments will most likely be via Zoom and that seems fine to me.

  • Yself
    Yself Member Posts: 44
    edited May 2020

    I'm going through the same dilemma. After having had bc twice, the last time two years ago, I rescheduled my mammogram on May 12 to July 15. I lay awake most of last night wondering if the virus won't be worse in July. I will see my oncologist 28 July.

  • Yself
    Yself Member Posts: 44
    edited May 2020

    Thank you for making me smile. I'm nervous. Rescheduled my mammogram from May to July. After seeing pictures of all those rubbing shoulders on Memorial Day, I wondered about my decision.

  • Veeder14
    Veeder14 Member Posts: 880
    edited May 2020

    I’m keeping my June MRI appt but nervous about getting in that machine unless it’s disinfected to high standards since my face will be in that hole, after others have been in the machine. Apparently not that many patients are keeping appts. Unrelated to bc I went to the dentist yesterday. Talk about being anxious. The hygienist wore 2 masks and a face shield

  • jessie123
    jessie123 Member Posts: 532
    edited June 2020

    Veeder14 -- have you had the MRI yet? I am like you -- that hole we have to put our face in. I was so traumatized when I had my first MRI I can't remember what's in the hole. Is it the under part of the MRI? I don't want to breath in that hole if someone else just had a breast MRI before me. Unfortunately, I don't want to do any of the breast cancer after care tests or visits. It brings back bad memories and during Covid everything is worse.

  • edwards750
    edwards750 Member Posts: 3,761
    edited June 2020

    I’m in the same boat with you guys - the Medical appointment dilemma. I have a mammo scheduled this month. I’m undecided whether to postpone it for a bit. I don’t wait well but the numbers are up where I live in Tennessee. I’m 9 years out this August God willing.

    I am going to hav my blood profile done though. I don’t need to see my doctor but I take steroids and they need to be monitored/checked every 6 months.

    Good luck everyone. Stay safe.

    Diane

  • jessie123
    jessie123 Member Posts: 532
    edited June 2020

    Diane -- I know what you mean -- I also want to wait a little longer until they find a better treatment, but we can't wait too long because there is supposed to be a second wave. Alabama's numbers are also starting to go up a little.

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited June 2020

    Just an FYI I had to go for an Ultrasound a few weeks ago, and of course I was super nervous. I have to say everything was fine and the hospital protocol made me feel much better. You had to hand sanitize and wear a medical mask that they gave you (even if you had your own) when you first walked in. And there were very few people spaced out quite far from one another. The appointment went smooth and quickly.

    The unfortunate thing is this pandemic is getting worse in many states and may come back with a vengeance in the fall. So it’s hard to decide when you should go, but at the same time you don’t want to hold off or wait too long.

    Hope everyone stays safe!

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited June 2020

    I think doctors' offices really have the safety protocols down now in a way they wouldn't have back in March and April. I'm going for my mammogram originally scheduled in March (as I said in the OP that started this thread) next Tuesday and to the podiatrist on Thursday. I have something stuck in my foot and with type 2 diabetes, I really can't let it go. Then to my regular annual followup appt with the surgeon the following week.

    Friends of mine who have gone to the doctor recently say the waiting rooms only have a couple of people and they're masked and sitting far apart. If they even have a waiting room. Some are doing like hair salons and asking you to wait in your car until they text you to come in. I'm much less worried than I would have been back in March. I do so want to get this one over with! (Hopehopehope it's okay.)

    I'll report back afterward.

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited June 2020

    I had my mammogram this morning and all safety protocols were in place. Only three people in the waiting room at any time. Everyone masked. Of course, when the technician is smashing your boobs in the machine, she is right in your face, but watcha gonna do?

    On the down side, I have to have a biopsy. The radiologist said there were some changes in a area where I had a (negative) biopsy a couple of years ago. He said the chance of it being cancer are very slight but not zero. It will be on June 25.

    Ratsratsratsrats!

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited June 2020

    JaneQPoppy I am so sorry you are having to go through this ordeal. Hopefully will be ok but better to be safe and find out early and treat early.

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited June 2020

    The thing is, wasn't 5 years of Arimidex supposed to protect me???

    Maybe it did...

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited July 2020

    HI, y'all! I"m back with an update. And seeking more advice. I'm going to stay with this thread instead of starting a new one because my question is related to the original topic.

    The biopsy found atypical ductal hyperplasia, which isn't cancer (YAY!) and really isn't pre-cancer, but is sort of "might some day maybe turn into cancer." The surgeon recommends an excision/lumpectomy. (This is on the right side. I had my original lumpectomy on the left.) And after reading around the board, that seems like a good thing to do...

    BUT...

    I don't want to go into or spend any time in a hospital right now. Or even in an outpatient department of a hospital. I had the mammogram and biopsy in a cancer center, not a hospital-- no inpatients. If I could have the procedure in that building or in a standalone outpatient facility, maybe, but right now COVID cases are booming in San Antonio, Texas, where I live. Texas is a national hotspot. Hospitals are reaching capacity and COVID patients are overflowing to other areas, like rehab departments.

    This isn't elective surgery and, yeah, it needs to be done eventually, but do y'all agree that the dire COVID situation takes precedence over the need to do this right away? When I had my first lumpectomy, it was three weeks after the biopsy. That was pretty quick from what I've heard from other women. I haven't seen the report on this latest thing, and was borderline too freaked out to ask many questions when the doc called with the news. I think he said the area was about 3 mm-- does that sound reasonable? Strikes me as really small. Maybe not, as my original IDC was less than 1 cm. Of course, there wouldn't be any radiation this time (didn't have chemo at all), unless something else was found. I've already been on Arimidex for FIVE YEARS-- don't want to go back on it. (But I guess I could, grudgingly.)

    There's no way of knowing how long COVID is going to be raging through this city, but I'm guessing it could be many months or even a year before we're anywhere close to normal (if there ever is a true normal). I don't see putting it off for a year, unless the oncologist thinks that makes sense. A few months, maybe?

    I have a Zoom appt on Friday July 10 ( a week from today) with the surgeon who would do this (if I do it), and then I'm going to run whatever she says past my oncologist the following week. I have a list of questions written out. But I'd like to know from the trenches, what do y'all think? How would you think this through? Thanks for your thoughts.

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