Double mastectomy on Wednesday. How to mentally prepare?

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orangeflower
orangeflower Member Posts: 146

Hi all. I'm 42 and was just diagnosed with IDC. ER+, PR+, HR-, Grade 1. Tumor may be 1.8cm but there is extensive DCIS so I require a mastectomy. The cancer is only in one breast but I opted for a double mastectomy.

I'm so scared, I can't even tell you. I'm afraid of the moment I'll drift off under anesthesia, knowing I'll wake up with no breasts. I'm scared of the first moment I can feel that there are no breasts anymore, and of the first time I look at my chest after surgery. How can I prepare for all this? It's all so awful, I wouldn't wish this on anyone.

I'm getting expanders put it, and I'll be sent home the day of surgery. I'm going to take some Klonopin the day of surgery to calm my nerves.

I don't know yet if I need chemo/radiation, but I'll be put on Lupron and Aromasin, which both sound horrific.

I just feel like I could cry.

Comments

  • HeartShapedBox
    HeartShapedBox Member Posts: 172
    edited February 2020

    I'm so sorry you've found yourself here. Just know that the stage you're at right now, freshly diagnosed, before any treatment, and terrified of everything you do know and don't know, is in some ways the very hardest time. Truly. Not to say that treatment isn't challenging, but it's a different mental space, and you'll actually be doing something actively to rid yourself of cancer, which is a different battle mode.

    I would advise you to focus JUST on one step of treatment at time; the whole picture can be too overwhelming and can made you spin your wheels in despair. One step at a time, one treatment at a time, will get you there! So focus on surgery now. It helped me to check out breast cancer blogs and hear other women's stories of double mastectomy. Hearing others' experiences can help familiarize yourself with the process and desensitize how scary and foreign the concept feels right now. And it's OK to mourn the loss of your natural breasts; allow yourself the space to celebrate them and grieve their loss. ❤

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited February 2020

    Hi Danee,

    While everyone’s experience is different, I think many will agree that a bmx wasn’t as painful as we imagined. I did not have TE’s, but had one step implants, so I just had healing skin to contend with. As to your comment about Lupron and Aromasin, they are not horrendous for everyone. Folks who are having no issues tend not to post so, in general, you’ll see far more negativesbecause people are looking for support regarding those issues. I have been on Lupron (before bc) and am currently on Exemestane (Aromasin). Neither of those drugs prevented me from living my life as I wanted, so horrendous is not a word I would use to describe those drugs. And if you go into this assuming you will have bad side effects, you probably will. Focus on things going well. I am an optimist by nature but I spent a lot of time focusing on the best possible outcomes. I faced some adversity but am still living fairly normally after over 8 years at Stage IV. Wishing you all the best!

  • T-Dahl
    T-Dahl Member Posts: 20
    edited February 2020

    Danee78 - I wish I could be there with you right now and hold your hand and let you know that everything is going to be okay. Because it truly is! You sound exactly like I did 5 weeks ago. This was exactly my fear that I was terrified to express. I mediated ALOT. I couldn’t even go to work prior to my surgery because my anxiety was so bad.
    I am here to tell you my friend.... if you truly feel you have the best doctor & plastic surgeon then trust me when I tell you, you will be pleasantly surprised when you finally wake up and see the bumps on your chest. It was not as traumatic as I kept playing in my head. You will feel a lot of pressure so the thought of not having anything there wasn’t a consideration. My plastic unwrapped me the next morning & even my husband was like whoa!!
    I am happy to share my photos with you if you want to see what I looked like right afterwards? Send me a private message.
    Just take deep breaths & like the other ladies have said..... you have to look at this one step at a time. Trying to figure out how you are going to feel over everything is super overwhelming!!
    Please keep us updated! 💖💪🏽

  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited February 2020

    Danee, of course you are scared and overwhelmed but as the others have said, take one step at a time and focus on the fact that you are doing what you can to rid yourself of bc. The surgery, while not easy wasn’t nearly as painful as I expected and I have many years on you (68), so recovery is likely to go much easier than you think. You will have to grieve and this is a good place to come for support. As for taking Klonapin on surgery day, check with your surgeon first to be sure it doesn’t interfere with or exacerbate the anesthesia. I don’t think it has a very long half life and if your surgery is later in the day, they may agree it is a good thing to help w anxiety. If surgery is early, they may want you to forgo any anxiety medication. My sister also had bmx and her anesthesiologist gave her a pain blocker and it significantly improved her recovery process—she took only otc Tylenol and made Christmas cookies on day 2, so it may be worth asking about this. If she had gone before me I would have asked for it! Hang in there and move forward one step at a time.

  • Beesy_The_Other_One
    Beesy_The_Other_One Member Posts: 274
    edited February 2020

    Danee, I want to second Yogatyme's suggestion to ask for a nerve block. I had one for my BMX and I was like Yogatyme's sister and popped right back--surprisingly so. By the time your nerves start waking up, you'll be on your way to healing. Also, don't forget the stool softeners--the pain meds they give you during surgery can constipate. By the time I was home I was only on Tylenol.

    None of us wanted to be here but we all certainly understand your feelings.

    xo, Beesy

  • orangeflower
    orangeflower Member Posts: 146
    edited February 2020

    Hi Beesy. The surgeon told me she's giving me a shot of a lidocaine-like medicine in my chest that will reduce the pain for up to three days. Maybe that's what you mean by nerve block.

  • Beesy_The_Other_One
    Beesy_The_Other_One Member Posts: 274
    edited February 2020

    That's it! Glad it was offered to you!

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2020

    I woke up thrilled to have that over with. My PS surgeon filled me to 200 cc so my first thought was “ hmm looks pretty good”. I tooksome pictures and we even made a bust of my bust before surgery day. Later when I was a bit more healed emotionally, I deleted the pics and threw the bust out LOL. It was cathartic and it helped, so what the heck. You’re going to get through this. I promise. One step at a time. Just focus on the next step.

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited February 2020

    and you should cry. Cry, then cry again. Feel exactly what you feel. Come here often (hopefuily you’ve joined the feb 2020 surgery sisters thread).



  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited February 2020

    I want to throw one thing in here. Although we all wish for a fast, easy recovery, remember that your body needs to heal after major surgery. I was very active from the the time I got home from the hospital but with a modified meaning of active. I started out with walks around the block and built up my walking time as I regained stamina. I made sure to get plenty of sleep and took rest breaks during the day (not my usual habit). Be very kind to your healing body by finding a balance between activity and rest

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited February 2020

    Danee cry if you need to. I was a mess the two days before surgery all I did was cry. There's really no mentally preparing yourself for how to feel after the mx and with your new body (I actually handled things much better than I thought I ever would). Like you've said we are all thrown into this scary situation which we would never wish on anyone.

    I too got the nerve block, but when it wore off the next day I was in a lot of pain. Everyone's pain tolerance is different. If you need your pain meds take them! I certainly did the first few days.

    There are going to be many emotional and tough days but just know that no matter how you feel, you will be okay and you will get through this.

    Take it easy, be easy on yourself and rest when you need to. Good luck with your surgery.

  • IdahoGal
    IdahoGal Member Posts: 1
    edited February 2020

    I just had my bmx and immediate implant reconstruction on Feb 25th. I am writing to highly encourage the nerve block—though there are pros and cons. The benefit is that post surgery my pain has been manageable. Now two days after surgery i have some occasional shooting pain on the sides of my torso which I think is near where the drains are....but its hard to tell because my whole breast/chest area feels very vague. Since waking I have not needed the Oxycodone and am trying to get bye with Tylenol and Aleve. The downside of the nerve block is that the two blocks are basically catheters inserted on either side of the spine. When the doctor was injecting the original numbing solution and the plastic catheters I had a vagul (Vagal/) response that has been the worst part of this whole ordeal. I felt like i had the worst combination of hangover and morning sickness and overwhelming nausea. Felt like I was going to die. My pulse went down to 47 and BP to 75/51. The nurses said it was a normal response, and pumped ephynephran (sp) into my IV and I felt better. Not everyone has that response. I still am glad I had the nerve block as the nurse on rotation in the hospital said she can really see the pain experience difference between those who get the block and those who don't. I am in pretty good health overall so they discharged me just after noon on the second day because they seemed more concerned about what infections could be floating around the hospital. Best of luck t

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