Freaking out from 3d Mammogram Nodule+Microcalcifications

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Anxiousworriedmama
Anxiousworriedmama Member Posts: 16
edited February 2020 in Not Diagnosed But Worried

Hi Everyone,

I am beyond myself with worry about a 3D mammogram that has come back with abnormal results. I am 45 years old and my doctor doesn't like to do mammograms until 50 (but last year, I convinced another doctor to order one for a baseline). Well, about a week ago I had my second 3d mammogram (they are doing 3D on me because I have dense breasts and my sister was just diagnosed with breast cancer 3 months ago). The results showed on the left breast: a small nodule (not able to be felt) in the 11:00 position towards the nipple with a cluster of microcalcifications (or maybe it was clusters) I took notes and was nervous.They called and told me the results on Valentine's Day (fantastic day to call, NOT!) Anyway in two days I am getting a spot compression mammogram on this area and an ultrasound. It has been a very long weekend and I feel stressed and depressed. Hard to hold it together, but I am trying to, since I have two kids. I see a lot of posts about nodules or microcalcifications but never with both hand and hand...Has anyone had anything similar and did it turn out okay? I read it could be DCIS.. Thanks and sending healing to all. <3

Comments

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited February 2020

    First, good for you for pushing to get a baseline. Especially now that you have a 1st degree relative that has been diagnosed. My sister also has/had BC before me at age 50. I didn't get my 1st mammogram until I was 56 and I had a lump, got the 3D diagnostic one and failed.

    I know it's hard but try not to panic just yet. Just from what you wrote odds are good it maybe nothing. If it is something, it will suck, but seems it may be small, early stage, and you will have good - if not a very good prognosis. I know, again, this isn't helping you much now, Good luck on next tests. Ask them for a copy of your results. They should be able to give them to you right then and there.

    Just for clarification IDC=Invasive ductal carcinoma. It's not in situ

    DCIS = Ductal carcinoma in situ, which is cancer that has not escaped outside of the ducts. It is a Stage 0 cancer.

    How is your sister doing? I would also ask that your sister, or you get genetic testing done. It's a blood test to check for certain gene mutations.

    Only other advice is to keep busy while you're waiting. Go do something fun! Best wishes to you, and your sister.

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Hi thanks for the reply. Oops I know I posted insitu wrong (I will change it in my post). Both my sister and I had the genetic testing done. Mine was all negative (hers had a couple inconclusives). Yes, I keep trying to remind myself that if it's cancer, most likely it is very small, since I can't feel it and they called it small. Hard to relax though. My sister has stage 2 IDC, she is doing alright. She discovered hers by finding a big lump.

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited February 2020

    Hi. That's OK. All of us here get the worry and can't relax. Do let us know how you make out.

    Your sister sounds a lot like me, big lump stage 2. I am also doing fine. I was also found to have other benign conditions in both breasts too. Hoping you get good answers soon. I tested negative for any mutations. My sisters cancer is ILC-invasive lobular.

    We're here to help if you have any questions, or just need a place to worry while you're waiting.

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    I will keep you all updated. Am interested to know if nodules in the nipple can be benign and have microcalcifications...waiting is killing me. Thanks again and glad you are doing fine!

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Update for those coming here with a similar situation: I had spot compression and ultrasound today. It turns out the spot they saw today was also there 14 months ago but had not changed. They just didn't spot it because it was very faint. Had trouble spotting it at all on spot compression but finally did, was faint again. Couldn't see it at all on ultrasound. It has four punctate microcalcifications. Bi-rads 3. Spoke to radiologist (I actually wrote a letter and had them deliver it to him so he would come out as this radiologist never will speak to patients) He came out! He is pretty sure that it is most likely nothing. Follow up 6 months. So good news 🤗

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2020

    Great news Anxious!!!

  • Aviva92
    Aviva92 Member Posts: 34
    edited February 2020

    great news!

    I'm curious, is this doctor who claims you shouldn't get a mammogram until age 50 from the US? Because I had never heard of that here. 40 seems standard for regular mammograms with one baseline in your 30's.

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Thank you minustwo! just wanted to make sure to document this in case anyone else ever comes on this thread looking for answers. I will lurk here and there and update in 6 months. 🤣

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Aviva, Yes I am located in the US. So there seems to be two standards going on...some doctors around here want to do mammograms at 40 and then there are some like my doctor who thinks that too much radiation is a bad thing and to do them at 50 unless you have a first degree relative, as I do now.

  • Aviva92
    Aviva92 Member Posts: 34
    edited February 2020

    that makes sense. I didn't give it a ton of thought since I also have a first degree relative, so it was a no-brainer for me to start at age 40.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2020

    The industry and docs keep changing their minds on the parameters, and likely will again. I got my first mammo at age 30. No family history, and of course no genetics then, but dense breasts. Glad someone was watching.

    Edited to add - I had a call back EVERY YEAR for 40 years until they actually found DCIS. I had lots of time to learn not to panic.

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Thank you ladies for chiming in with support. I think 44 was a good age for me to start (sort of in the middle.) Radiologist is recommending more 3d every 6 months which is fine. Ultrasound on my dense breasts was pointless though, they could not see the possible faint nodule as it's deep in fibroglandular tissue.

  • Aviva92
    Aviva92 Member Posts: 34
    edited February 2020

    I actually started at 43 (almost 44) after the baseline I did at 37, but was supposed to start at 40 and kept putting it off. Also 45 now (almost 46). So far, they keep finding things to biopsy that turn out to be benign, so I guess that 43 was an okay age for me to start in retrospect. I've had 2 screenings. The first one at 43 found suspicious calcifications on a mammogram that needed to be biopsied. The 2nd at 45 found a nodule on an ultrasound that didn't show up on the mammogram at all which needed to be biopsied. Also dense breasts. So I suspect that it is difficult for them to see everything on me too. I found this website while freaking out about the 2nd biopsy which turned into an excisional biopsy when the needle core biopsy resulted in discordant findings, but didn't get around to posting until I got results.

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Aviva, I had three or four punctate microcalcifications as well and they're not sure if it's going around a teeny tiny nodule or just tissue because it's buried in denseness. The radiologist said he could order a needle biopsy for me, but he didn't like to be poking around in there when he was pretty sure it was normal (said he wasn't even sure if they could find it) and unchanged in 14 months. That's why I guess they're going to follow up in 6 months & if it does look a little bit different then I guess we could do the needle. I found it funny that the spot was also showing up 14 months ago and they didn't notice till today. Different radiologists I'm told.


  • Aviva92
    Aviva92 Member Posts: 34
    edited February 2020

    interesting. They never watched anything on me for 6 months. They just ordered the biopsy immediately. This last time it was for a suspicious nodule. With the needle bore biopsy, the radiologist who was doing the biopsy seemed pretty sure it was benign while he was doing it. He said it was moving around a lot which was a good sign. The technician who was in the room helping thought that the only reason they ordered the biopsy was because of my family history (my mother had breast cancer that was diagnosed at 48 and I'm 45). So I was shocked when 8 days later I saw on the patient portal, that the results were "benign fibrofatty breast", but this was considered discordant and the radiologist suggested a full surgical excisional biopsy to remove it and test it in his write-up. I was wondering, if they seemed so sure it was benign and the results showed it was benign, why would he recommend I now go through a full on surgery to remove it??? At this place it is impossible to get these radiologists on the phone. I really wanted an explanation, but couldn't get the guy on the phone. By this point I didn't know if I had cancer for almost a month and managed to get an appointment with a surgeon pretty fast and scheduled it to be removed 6 days after that appointment. The surgeon too thought it was a low chance of cancer, but thought I should have it removed to make sure. At this point I really just wanted answers, but now in hind site, I wonder if I did the right thing. I might have a scar, and it is costing me a fortune since insurance didn't entirely cover it, and I removed something that was benign and not bothering me at all. But had it been cancer, I suppose then it would grow if I was just doing the watch and see method and my mother having cancer so close to my age scared me into getting this done immediately. I don't want to constantly be getting things removed unnecessarily though.

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    I think every situation is different. I think my spot, they weren't even sure was a spot so what would they be biopsing? They would just be stabbing a needle into deep tissue. Maybe they would get a sample or maybe they wouldn't?They're not even sure if my spot is a nodule or just tissue that's normal, they can't even get a good picture of it, it's so small & deep. I was able to look at all the imaging pictures as well with the radiologist so I felt more confident about the decision. If I would have seen anything that looked like a definite mass then I would have had a different opinion. The radiologist said he thought it was probably just more fibroglandular tissue. I also wanted to add for other people reading this post, if you want to talk to a radiologist immediately after a scan, try writing a letter like I did. Have the nurses deliver it to him/her. I explained the situation in the letter as to why he needed to come out right there and talk with me. My sister has breast cancer and my family has already been through a great ordeal. The nurses were all surprised when he came out. They said he doesn't come out for anyone, you have to wait a week or two to get the report.

  • Maple1509
    Maple1509 Member Posts: 2
    edited February 2020

    Good Morning - I am 58 yrs. and had my annual mammogram 1-2020. I received a call back for a spot check and ultrasound.

    3 x 2 mm circumscribed hypoechoic -lesion containing no internal color flow. The lesion is quite small to characterize however suspect reflects a very tiny cyst or possibly an intramammary lymph node. BI-RADS CATEGORY 3-probable benign finding'. follow up in six months.

    I know this isn't the worst news but I feel like six months is way to long. and reading on google my conclusion or impression on my ultrasound is not very reassuring. Has anyone had a similar situation? I am thinking about getting a second opinion I am seeing my GP next week.

    This waiting is so hard!! Thanks in advance.

  • edj3
    edj3 Member Posts: 2,076
    edited February 2020

    First, ditch Google. Use this site to read up on all things breast cancer related. Why? Because the information here is fact-based and specific to breast cancer. Also, Dr. Google tends to spin people up with fear and worry, which is a rotten place to be in.

    Six months for follow ups is very normal and not at all alarming. Second opinions are great, but you might want to get that second opinion with a breast specialist, not your general practitioner.

  • Maple1509
    Maple1509 Member Posts: 2
    edited February 2020

    Thank you for your feedback!! It's weird I had fallen about eight weeks prior to my annual mammogram. I was walking my dog and she lunged toward another dog which caused me to fall. I noticed a bruise on my breast in question. The bruise went away and I completely forgot to mention this to the radiologist, I am not sure if this injury would reflect new findings on my mammogram and ultrasound. I will make an appointment with a breast specialist. Thanks again for reading my email, truly appreciate.

  • Aviva92
    Aviva92 Member Posts: 34
    edited February 2020

    interesting to see that I'm not the only one who had a radiologist that didn't want to talk to me. Just reading an assessment on a portal and I question if a human even wrote it! Probably wasn't the worst idea to have this thing removed. Now I don't have to follow up in 6 months. I can just go for my annual screening again and not worry about this particular finding. Google did have me pretty certain I had cancer in comparing my image from the portal to the images I found of cancer, but it turned out that it was pretty low in suspicion level and I didn't realize that. My screening place only categorizes suspicious findings as Bi-Rad 4 or 5. They don't specify 4a, 4b, or 4c. Mine was just 4, which has a huge range. Google eventually led me to this website which is far more helpful than others out there. It's great that there is a resident radiologist on here who gives his opinions. Almost wish I asked him for his opinion before I did the excisional biopsy and I'm tempted to ask him now if I did the right thing based on the description.

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited February 2020

    Maple-----Yes! An injury to your breast will show up on imaging. It could be tissue that is damaged or dead (no blood flow)-lesion containing no internal color flow. I would try not to worry too much. In my experience (no medical back round whatsoever!) these tests aren't full proof, but were pretty damn accurate in my case. Last year I had a birads 3-probably benign and I was like, what does "probably" mean?? I felt like is it, or isn't it??? That night I read a whole study on how they set up the Birads scoring system and that made me feel a little better and I did the short interval follow up. Mine was an MRI. I went in December and was called back with now a Birads 4 as my spot had an +0.1mm different measurement than before. It could have been the way I was in the machine, I could have been breathing deeper when they took that image, and yes it was a different radiologist reading the report than my prior test. I did not argue, went in and had it biopsied and it came back as fat necrosis. It is caused by surgery, radiation, and injury. I had all 3. I too had a bruise on my breast a few months before the Birads 3 MRI and had forgotten about it, and sure enough it did show up on imaging.

    I don't know if that helps you much, but it is likely a B9 finding. Even getting the higher Birads 4 score the % of it being cancer was still low enough that I actually made it through the process not really worried. I was nervous for a minute though. Best wishes to you.

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Am I the only person whose abnormality was so deep, they could never get as clear of a picture as they would have liked....My radiologist said the reason why it popped up more this past week had something to do with film, sometimes the tech can get a tighter fit on compression (better picture) etc. So that my nodule or whatever it is was faint 14 months ago, brighter a week ago and faint again yesterday. Radiologist still thought the 4 punctate microcalifications were probably normal (he was able to see them on one photo).

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited February 2020

    Anxious, very happy to hear your results ! yay

  • Aviva92
    Aviva92 Member Posts: 34
    edited February 2020

    Not sure if this is similar, but my nodule didn't show up on a mammogram at all. It only showed up on an ultrasound. It wasn't deep though. It was close to the surface even though I couldn't actually feel it. I think it not showing up on a mammogram has more to do with having dense breasts than it being too deep inside. They also found other non-suspicious findings on the ultrasound that weren't on the mammogram at all. The mammogram found pretty much nothing this last screening.

    The calcifications they found 2 years ago were deep inside as it was near the chest wall. That was found on a mammogram. I don't think that calcifications are visible on any ultrasound though.

    I think with dense breasts, they just don't always find everything, which is a bit horrifying.

  • Aviva92
    Aviva92 Member Posts: 34
    edited February 2020

    If surgery itself causes suspicious findings on a mammogram, that makes me concerned that this excisional biopsy will result in my having suspicious findings next time due to scar tissue.

    Going through a biopsy every time I have a screening is draining.

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Aviva mine showed up on mammogram barely but not on ultrasound so maybe I don't have a module just those four microcalcifications. I'll go back in 6 months. I want no surprises!!

  • marric77
    marric77 Member Posts: 20
    edited February 2020

    I go back in 6 months too. Maybe we need a 6 month come back thread

  • Anxiousworriedmama
    Anxiousworriedmama Member Posts: 16
    edited February 2020

    Yes someone start a thread! :)

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