Yes, you can get a unilateral mastectomy w/reconstruction

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swg
swg Member Posts: 461

In case anyone is trying to decide whether to get a UNILATERAL rather than bilateral mastectomy, I wanted to share my experiences.

I had 2 tumors in my right breast. Left breast clear. Genetic tests showed no positive genes that were known at the time to cause bc. No lymph node involvement.

If I had had positive genes, I totally would have done bilateral. But I didn't.

I was initially leaning towards a double mastectomy. I chose to do unilateral instead, and I'm glad, 2 yrs later, that I did.

Here's why:

1. The recovery from a bilteral would have been worse. I had a very fast recovery. In fact, I felt pretty good just 1 week from my surgery. I also prepared for it as well as I could..eating very healthy and taking zinc to build up my immune system.

2. I didn't want to lose sensation. Honestly, I'm used to my right breast not feeling anything now..at first, it felt so odd. I honestly was glad I still had sensation in my left, just because it was so hard to get used to. Now I'm used to it, but I'm still glad I kept my left breast.

3. I was able to find a plastic surgeon who I thought would do a good job of making my right side match. I live in Philly, and we have great medical care and resources here, because there are so many universities doing cutting edge research. I had ACA insurance at the time, and I had a choice of 2 plastic surgeons who were affiliated with Einstein/Jefferson. I checked out photos of their previous work. I went with the one I felt most comfortable with. He knew I was a model for a living, and was very conscientious about not making me look like frankenstein! I was very lucky.

4. I had no idea what the aesthetic outcome was going to be. I knew if I got bilateral, it wasn't going to look like these women who get augmented breasts. In fact, my right breast with the implant looks very weird at certain angles. But it gets the job done in clothes, and even naked, it looks perfectly fine standing straight up. It's only when I bend, a dimple will show up. And the size is pretty good..it's a little bigger than my natural breast, but the original breast wasn't the same size, either.

5. I was wary of having two implants. I know they're pretty safe, but I am very into not altering my natural body if I can help it..I just didn't want 2 strange objects in me. 1 is enough.

Two years later, I do not regret my decision. I just had a clear mammogram, and will be vigilant about my diagnostics on my left breast.

The right one every once in a while does something weird, either looks-wise, or I get a little pain, or there will be a pucker..I am just glad I'm only dealing with that, with one breast rather than 2.


Comments

  • DeeDeeT405
    DeeDeeT405 Member Posts: 44
    edited January 2020

    Thank you for posting this. I haven’t seen many posts by those who have chosen a single.

  • Lovethebeach609
    Lovethebeach609 Member Posts: 1
    edited March 2020

    Thank you for posting! I'm scheduled for an unilateral mastectomy and have been struggling with it. Like you, my right breast has the disease and my left breast is clear. My doctor says there's no need to remove my healthy breast and my plastic surgeon does great work. I still have fear of the unknown ....

  • Lajonesin
    Lajonesin Member Posts: 23
    edited March 2020

    I chose a single with Deip flap reconstruction because I had no lymph node involvement, BRCA was negative, and tumor was stage 1 so there would be no chemo or radiation. The surgical risk of two outweighed the odds of a cancer recurrence in my right breast, and my oncologist recommended leaving it alone. So far I’m glad I chose the one over both. I’ve had the use of one side of my body which has been so helpful as I live alone. I’m willing to answer any questions!

  • Runrcrb
    Runrcrb Member Posts: 577
    edited March 2020

    I had a unilateral mastectomy 3.5 years ago and have NO regrets. My breast surgeon assumed I’d want bilateral with implants but I couldn’t find a reason to remove a healthy breast. I did have lymph node involvement and several spots of ILC yet my left breast was totally clear. My plastic surgeon would have supported bilateral had I chosen that but was helpful in my decision making- bilateral doubled the surgical risk and didn’t improve my risk of recurrence. And the reconstruction of the healthy breast could have failed. I have no family history of breast cancer and no genetic markers. I have annual mammograms and see my oncologist semi-annually. I have never regretted my decision.

  • dono7392
    dono7392 Member Posts: 28
    edited May 2020

    I had a bilateral mastectomy (the right one was preventative) and currently have expanders in. Now, the preventative side is failing; the affected side is perfect (of course). I’m not sure what my options are now, but it pains me to deal with complications and possibly losing the reconstruction because of the purely elective side. I wish I had seen a posting like this when I was making my decision. I was so blinded by fear, anxiety and confusion in deciding; I’m sure your post will help a lot of women.

  • ijl
    ijl Member Posts: 897
    edited May 2020

    I had a unilateral left breast mastectomy with DIEP 12 years ago for DCIS and has been diagnosed with IDC on my right.

    Chances of this happening were small and I do not regret not doing bilateral at the time. Sometime I wish I had done so but my rational self still believes I made the right decision. Now I just hope that my implant reconstruction would look ok next to my beautiful DIEP one :)

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