Port or No port with Cytoxan and Taxotere

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margo53
margo53 Member Posts: 165

Hi,

So I just had my first appointment with my MO. My Mammaprint came back high risk. He recommends getting TC regime , Taxotere and Cytoxan, 4 treatments, 3 weeks apart. He said I didn't have to have a port and I'm just wondering what your experiences are with these drugs and no port? I'm really scared not to hAve one. I have 1-2 good veins. Still somewhat in shock as I was expecting only radiation. First treatment is December 2. Thx for any advise you can give


Comments

  • WC3
    WC3 Member Posts: 1,540
    edited November 2019

    I only had one or two veins and I think I would have had problems with receiving chemotherapy through them. I was happy to have a port. I had to have my port replaced (rare) and had targeted therapy through my vein between ports. The targeted therapy doesn't have anything in it that is irritating but my vein ached from the coldness of the fluid and I can't imagin having to do the chemotherapy that way.

    I only agreed to have the port removed when I was finished with treatment after the i interventional radiologist promised they would be able to put one back in if needed.

  • Fairydragonfly
    Fairydragonfly Member Posts: 194
    edited November 2019

    I didn't have a port. IV poke for each infusion. I did fine.

  • MountainMia
    MountainMia Member Posts: 1,307
    edited November 2019

    I had 6 infusions and didn't have a port. If I'd had more, I might have needed one, but as it was, it went fine.

  • Krose53
    Krose53 Member Posts: 148
    edited November 2019

    I had your exact same chemo plan. They didn't recommend a port and I didn't get one. I had no problems. They felt it was one less area for possible problems and complications.

  • margo53
    margo53 Member Posts: 165
    edited November 2019

    Thanks Krose and Mia! wow! What does it feel like during the infusion ? Did y’all have more than 2 good veins

  • SarahSmilesatMe
    SarahSmilesatMe Member Posts: 69
    edited November 2019

    I have the same treatment plan - TC for 4 treatments every 3 weeks. Before my first treatment, my MO looked at my arm and said “you don’t need a port.” I said “OK,” and that was that. I just finished treatment #3 and haven’t had an issue yet. Hope it stays this way !!!

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited November 2019

    Margo, if it were me, I'd go for saving my veins, especially if you only have 1 or 2 good ones. Something to consider is that sometimes down the line in life we may have health changes and we will need our veins even more. Just a little piece of the equation to consider.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited November 2019

    My first time around, BS said I would be getting a port. My situation was different from your, but glad I did. No poking, missing, trying again. No wrecked veins

    7 years later, it’s still there. There is no question now, it will stay put. I may need it. But again, my situation was different. I by passed taking it out, back in, the surgical risks, and copays.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited November 2019

    I'd get a port. You need to protect your 'good' arm because that's the arm you will always need to use for any IVs, blood pressure checks, shots etc. etc. in the future.

  • dmjmom
    dmjmom Member Posts: 79
    edited November 2019

    As Cowgirl13 mentioned, I've had to access my veins many more time than I expected since I finished my BC treatment. The year after, I had a total of 9 IVs (2 Zometa, 1 colonoscopy, 4 kidney stone procedures, and 2 scans with contrast). The next year, the current year, I've had 6 IV's (2 Zometas, 2 carpal tunnel release procedures, and another 2 scans with contrast.) My veins are wrecked and IV's have become a lot of trouble often needing 8 or more attempts by multiple medical professionals. I've had contrast fluid extravasation, and an IV in a vein that broke during a surgical procedure and had to be moved while I was asleep. If I had known how often I would need to access my veins in the two years after chemo, I think I would have had a picc line. I was told I could have either a port or a picc, but neither was necessary. I had my 4 chemo infusions without incident, so my MO was right about that. But there was no way to know what else was coming. Good luck with your decision.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2019

    As you can see, to port or not to port is a very individual decision. If you have a limited number of good veins in your arm, you really need to weigh possible venous damage into your decision making process. The problem is that you have no way of knowing whether using your limited number of veins will work out or not. Essentially, you’re taking a calculated risk. So only you can decide how much risk you’re willing to accept

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited November 2019

    The last surgery in April they couldn’t use my LE arm, couldn’t use my “good” arm as that’s where he’d be cutting. So used the port. Much easier for all.

  • Lou10
    Lou10 Member Posts: 332
    edited November 2019

    The veins in my good arm were blown from IV antibiotics I needed for a post-surgery infection. I didn't want a port, so I got a PICC line instead. Worked for me (6 chemo infusions, 3 weeks apart).

  • OnTarget
    OnTarget Member Posts: 447
    edited November 2019

    I didn't get a port, but they did have some trouble finding my veins each time. 2-3 attempts each visit.

    They don't use the inner elbow vein, which is very easy on me, and I was using the ice gloves, so they couldn't go as close to my hands. It was annoying, but not a huge deal.

  • smiling_brenda
    smiling_brenda Member Posts: 23
    edited November 2019

    I did 6x TC (just finished) and did not have a port. I really didn’t want the surgeries to place and remove it, plus the scar. Had no issues with my veins but I then I also have “good” veins. The nurse used three different locations for 6 treatments

  • Hmbscit19
    Hmbscit19 Member Posts: 15
    edited November 2019

    It’s a challenge to find a good vein on me so very glad to be getting a port.

  • Euphoriaa
    Euphoriaa Member Posts: 235
    edited November 2019

    I had Adriamicyn, which is implacable with the veins. My veins were very good before chemo, and I was lucky to be able to use both arms since I did neoadjuvant chemo. Now they have worked very hard to place the IV for my post treatment CT and my arm still hurts 5 days later... Do the veins heal over time or is the damage permanent? Because this is just the beginning

  • Jackster51
    Jackster51 Member Posts: 357
    edited December 2019

    Can't comment on the port, but I would suggest cold capping as I never got my hair back after Taxotere 7 years ago.. Just an FYI!

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited December 2019

    I had a port and never had issues. I have never had bad veins and don't remember questioning the recommendation. I guess I was still trying to wrap my head around things at the time. It was annoying at first with the seat belt, but I got used to it pretty quickly. As soon as I was able to have it removed, it was gone. A mental thing, I guess. Good luck with your treatment and good for you for looking at your options.

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