Mastectomy and Implant on one side only.

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Plum
Plum Member Posts: 10
edited November 2019 in Breast Reconstruction

I recently (2 weeks ago) under went a mastectomy for DCIS after two lumpectomies were unable to remove cells that went right up to the margins. My plastic surgeon inserted a tissue expander and the plan is for an implant in 6 weeks. Is it better to have two implants (one also in the unaffected breast) so the breasts match in look, texture and feel? The affected breast will be covered by insurance and the other will not and that is fine. Any guidance is appreciated.

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  • Magari
    Magari Member Posts: 354
    edited November 2019

    Many issues to consider.

    Is your existing tissue expander under or over the pectoral muscle and how will the implant be placed? Was the mastectomy nipple sparing or not?

    Will you be having radiation? If so, assume that will be prior to implant placement?

    What kind of implant will you receive? What size, and what type of build do you have?

    How old, and how healthy are you?

    Do you have sensation on the mastectomy side?

    Would mastectomy and implant placement on the non cancer side involve additional, separate surgeries?

    It's true that it's difficult to "match" reconstruction to a natural breast so that they appear identical unclothed. But in a bra or fully dressed, you should be able to get a result that is undetectable.

    Any surgery involves risks and possible complications, time off from work, and at least some pain/discomfort.

    Mastectomy often results in significantly reduced sensation, and reconstruction often involves revision surgery(ies). Implants eventually need to be replaced, which means further surgery in the future, when you are older and perhaps not as strong. These are reasons why you might not want to remove the healthy breast.

    I'm sure others will weigh in. There are lots of women here who have had unilateral mastectomies and my sense is that most of them are satisfied with their results. But each of us must do what feels right for ourselves.

  • Runrcrb
    Runrcrb Member Posts: 577
    edited November 2019

    i had a unilateral mastectomy and have not regretted it. The first plastic surgeon i saw told me that an implant will never match a natural breast. If you are looking for symmetry you won’t get it with a unilateral implant. A double mastectomy, when not medically necessary, doubles your risk of surgical complications and the reconstruction on the healthy breast could be problematic (there’s always risk with any surgery). Have you considered flap reconstruction? Using your own tissue for reconstruction.

  • Plum
    Plum Member Posts: 10
    edited November 2019

    Thanks for your response. I wasn't clear in my post - I don't want to have a mastectomy on my breast that is healthy, that would be reckless. What I am wondering is if I put a smaller implant in the unaltered breast and then a larger implant in the breast that had the mastectomy so the breasts have a similar look. I was wondering if anyone had gone that route.

  • Plum
    Plum Member Posts: 10
    edited November 2019

    Thanks for your response Magari. I don't want to touch the healthy breast as that would be reckless in my opinion. What I was wondering was if anyone had experience with putting in an implant in the unaltered breast so it matches the implant in the breast that's had the mastectomy.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2019

    plum - are you in the US? Federal law provides for surgery to create symmetry in your natural breast to help it match better - and should be covered by insurance. Many who elect unilateral mastectomy do a lift and/or small implant to achieve that.

  • AnnC2019
    AnnC2019 Member Posts: 203
    edited November 2019

    SpecialK,

    What about removing the healthy breast to prevent cancer spread and achieve symmetry. Can they deny that? I want the other one removed during my diep flap especially since you can only do this once. I also don’t want to go through this all over again

  • Plum
    Plum Member Posts: 10
    edited November 2019

    Hi - I am in Canada and not sure what our health care covers at this point beyond the implant for the affected breast. I don't think I will be happy with just a lift so will likely go the route of a small implant. Thank you for your response!

  • Scrafgal
    Scrafgal Member Posts: 631
    edited November 2019

    Plum...Thst is exactly what I did for symmetry...totally covered by insurance. Your plastic surgeon should be guiding you on this issue.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2019

    I had both breasts removed with a diagnosis of DCIS in only one. It was totally paid for. Best decision I ever made because they found things in the 'good' breast too.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2019

    annc - bi-lateral mastectomy should be a covered option, the way the law is written - and that is also what I did. I had a long history of cysts and aspirations, had bi-annual surveillance for many years, and a palpable 2.6cm tumor that was completely missed by mammography. I was originally offered a lumpectomy by my surgeon, thought about what to do while waiting for my genetic testing to come back, decided to do the BMX. My rationale was that imaging failed me and I had “busy" breasts. My surgeon was totally on board and offered a skin and nipple sparing procedure. Turns out my “prophylactic" sidemastectomy revealed both ADH and ALH, the cancer breast had IDC, DCIS, cancerization of the lobules, and I had surprise positive nodes, missed by MRI. While breast cancer doesn't spread from one breast to another - contralateral disease is considered a new primary - I figured if my body could make cancer on one side, it could sure do it on the other. For me, BMX was a form of personal risk reduction, but for others preservation of the unaffected breast is important - this is definitely an individual decision. There are also some surgeons who will refuse to remove a “healthy" breast, so finding a supportive surgeon is key. It is important to note that bi-lateral mastectomy does not always prevent local recurrence, it can still happen.

  • AnnC2019
    AnnC2019 Member Posts: 203
    edited November 2019

    Thanks SpecialK. I wanted both off but the bs was cautious because I have MCAD deficiency so it was uncertain how I would do under anesthesia. I did fine. The mammogram and ultrasound did not pick up two small tumors in my right breast. I had a total of three/multi-centric. They said nothing lit up on my left side during the MRI,but I don't feel confident with lobular.

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2019

    Plum, when I had my MX 14 years ago, I had a small implant added on the 'good' side. It provided a similar shape/fullness to my implant reconstructed breast, resulting in a better match in appearance. Texture and feel, not at all. An implant that is placed behind the breast tissue can't be felt - the breast still feels like a natural breast and still has the movement of a natural breast. By contrast, an implant reconstructed breast is all implant with no breast tissue, so it will feel somewhat firmer and will have much less movement.

    That aside, I was glad that I had the small implant added both from a symmetry standpoint, and because it allowed me to go just a tiny bit bigger (more fullness, really, rather than a larger cup size) which was a bit of a bonus for someone with very small breasts - I look better in clothing with this slight increase in breast size.

    Where are you in Canada? Healthcare is provincial so each province has it's own rules. I am in Ontario and here OHIP covers everything related to the breast with breast cancer and anything done for symmetry on the contralateral side.

  • Plum
    Plum Member Posts: 10
    edited November 2019

    Thank you Beesie for the response. I am in Ontario. My PS has only mentioned a lift for the unaffected breast, but I am seeing him next week and will tell him that I want a small implant instead of a lift. Good to know this is covered!

  • Scrafgal
    Scrafgal Member Posts: 631
    edited November 2019

    I had a lift and an implant....you don't need to choose because the procedures are for different issues. I got an implant on the mastectomy side and a small one on the natural side for size symmetry. I got a lift on the natural side for vertical symmetry because at 50 plus, the natural one hung lower than any sub pec implant would hang.. I got fat grafted and transferred to help the issue that Beesie mentioned...the fat gave me more softness and natural movement on the mastectomy side and lower shaping symmetry on the natural side. I had a lot done but I was totally worth it...love my breasts as they are now!

  • Plum
    Plum Member Posts: 10
    edited November 2019

    Thanks - fat is not an option for me as I am a tiny woman with very little fat..

  • Scrafgal
    Scrafgal Member Posts: 631
    edited November 2019

    I understand...the fat was just an added benefit. The lift and implant on the natural side had the biggest impact on symmetry.

    Again, your plastic surgeon, who works with reconstructive patients everyday, can guide you on what might work best. So rather than telling my doctor what procedures I needed, I told him what outcomes I needed to feel good about the results. He then told me what procedures would get me what I wanted. He also told me, from the beginning, that what I wanted could best be delivered via more than one surgery. I was all in from the beginning....it was not necessary to get what my friend calls the Cadillac version...but I just wanted certain results for myself.

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2019

    Plum, here is what it says on the OHIP payment schedule. This is from a 2015 document but it was still current as of last year, which is when I pulled if off the OHIP site, so I'm assuming it is still current as of this year. Of note is that contralateral balancing surgery is approved without pre-authorization provided that the patient had a mastectomy. Someone a while back asked about having a contralateral procedure after having a lumpectomy, and that is not covered by OHIP.

    SCHEDULE OF BENEFITS

    INTEGUMENTARY SYSTEM SURGICAL PROCEDURES

    Operations of the Breast

    # R143 Contralateral balancing mastopexy or reduction, to include nipple transplantation or grafting, if rendered....

    # R144 Contralateral balancing augmentation mammoplasty....

    Note:
    1. R143 and R144 are only eligible for payment when performed for post-mastectomy breast reconstruction. Prior authorization of payment from the Ministry of Health and Long-Term Care is not required.


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