Confused about most recent Mammo

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nstets823
nstets823 Member Posts: 4
edited December 2019 in Not Diagnosed But Worried

Hi,

I am new to this forum. For history: I'm 43, single mom of 3 kids (2 are adults now). Silicone implants (2008). History of breast cancer on Dad's side - his mother and both sisters were positive for BRCA1. Grandma and 1 aunt passed away from breast cancer, the aunt still alive had elective mastectomy and hysterectomy and is doing great. My Dad was negative for BRCA1 so my doctor said my chances of being positive for it are slim to none but I have not been tested. I recently had my 3rd mammogram, just going in for my annual check and had results that I haven't had on prior mammo's and I'm not sure how to interpret or go forward with annual mammo's. Here are the findings and then I will ask my questions in bold:

Breast Density: The breast density is extremely dense, which lowers the sensitivity of mammography (Category D) Question: I have not been told this previously, is this something to be concerned about that it changed? Also, should I assume this applies to both breasts since it wasn't specified R or L?

There are no suspicious masses, distortions, or calcifications to suggest malignancy in the left breast Question: If I have Category D density, can I rely on these findings?


There is an asymmetry in the lower right breast on the full-field MLO view

There is an asymmetry in the inner right breast on the implant displaced CC view

IMPRESSION:

1 - Right breast asymmetries warrant diagnostic imaging evaluation

2 - No suspicious mammographic findings in the left breast

ASSESSMENT:

ACR BI-RADS 0

RECOMMENDATION:

1 - Diagnostic mammogram with tomosynthesis Right

2 - Ultrasound Right

I have an appointment on Dec 3 for the diag mammo and ultrasound and am not getting myself worked up/worried just yet, but want to be able to go in armed with as much information as possible so I can ask the appropriate questions. My understanding with Category D density is that going forward I should do an ultrasound or MRI in addition to an annual mammogram, as many cancers can be missed due to density, should I just insist on this going forward? Should I ask for them to go ahead and look at the left breast if density is compromising mammogram findings?

The only physical symptom I have is that my inner right breast does appear a tad swollen and misshapen than the left one and I have only noticed that recently, but I can't feel any mass and neither did my doctor on my breast exam.

Any information or experience you have had would be so appreciated, thank you!!

nstets823

Comments

  • djmammo
    djmammo Member Posts: 2,939
    edited November 2019
    nstets823

    I have not been told this previously, is this something to be concerned about that it changed?

    If this is your 3rd mammogram the reports of the prior two should have indicated your density. Did the prior reports say fatty or scattered?

    Also, should I assume this applies to both breasts since it wasn't specified R or L?

    Yes both.

    If I have Category D density, can I rely on these findings?

    "The breast density is extremely dense, which lowers the sensitivity of mammography" and this has always been the case for small abnormalities. The more priors you have to compare, the more likely it is to find a small abnormality early on in each subsequent mammo.

    Should I do an ultrasound or MRI in addition to an annual mammogram should I just insist on this going forward?

    Some states have laws that make it easier to get the additional screening exams for density. Not sure which ins companies will pay for them without question but some will.

    Should I ask for them to go ahead and look at the left breast if density is compromising mammogram findings?

    It has to be ordered as a bilateral exam by your doc if you want the other breast evaluated on US as well

  • WC3
    WC3 Member Posts: 1,540
    edited November 2019

    nstets823:

    I also had extremely dense breasts. This caused the radiologist to miss the tumor (which was palpable) on my first mammogram when it was about 4mm. It was also missed on the ultrasound. I think it was a probe placement issue. I think an MRI would have imaged it and personally I feel they should be routine for extremely dense breasts.

  • djmammo
    djmammo Member Posts: 2,939
    edited November 2019

    Just a quick comment on MRI of the breast in general

    The value of cross sectional imaging modalities is based on their ability to show us the cancer and this ability relies on the two main physics-dependent attributes of each of them: contrast resolution and spatial resolution.

    The advantage of MRI in finding breast cancers is its ability to show a larger difference between the signal of the mass and the signal of the background making it more conspicuous to the reader. This is contrast resolution.

    Cat Scans are high in spatial resolution and lower in contrast resolution, especially without contrast. If you want to see if a bone mass has sub-mm thick septations in it, or want to see highly detailed images of facial fractures, CT is the way to go. The difference between the interiors of two similar soft tissue masses is less clear.

    In MRI of the breast, things that are 5mm and smaller all look alike. The problem is normal glandular tissue looks like large collections of 5mm enhancing nodules so if you have a 5mm or smaller cancer and dense breasts it is possible that it might be like trying to find a ping pong ball in a basket of golf balls... while squinting. The good news is a 5mm or smaller cancer is not life threatening. Statistics show there is little or no difference in prognosis when the cancer is first discovered up to 1.4cm in diameter according to a lecture i attended given by László Tabár (the world's foremost expert on mammo).



  • nstets823
    nstets823 Member Posts: 4
    edited November 2019

    Thank you so much djmammo - I was able to find one prior report and it noted fibrous breasts, but not this level of density. Since your message I have been trying to locate all of my previous mammo reports as all I have been able to find are my doctor's notes and not the actual reports (except this latest one).

    @WC3 thank you for your response as well. I have read both that MRI is best for very screening dense breasts, but also ultrasound, although that seems fallible in your case. I'm going to ask for at least 1 additional test now (either MRI or ultrasound) in combination or in place of my annual mammogram.

  • WC3
    WC3 Member Posts: 1,540
    edited November 2019

    djmammo:

    Thanks for the information. Do you know how many Teslas the 5mm limit was for?

  • nstets823
    nstets823 Member Posts: 4
    edited November 2019

    @djmammo - I just received my other prior mammogram I had been waiting on and it says:

    "There are scattered fibroglandular densities. There are no masses, distortion or clustered microcalcifications to suggest malignancy"

    Should I be concerned that the density seems to have increased significantly?

  • djmammo
    djmammo Member Posts: 2,939
    edited November 2019

    WC3

    It applies to MRIs in general. I believe the 3.0T units have better spatial resolution than 1.5T units but its still not good enough to tell a 5mm mass from a 5mm spot of normal tissue in extremely dense breast if the density is due to enhancing normal tissue If the breast is extremely dense due to abundant fibrous tissue, its less of a problem. This is why we try to schedule the scans during a part of the cycle when the hormonal stimulation is lowest.

  • djmammo
    djmammo Member Posts: 2,939
    edited November 2019

    nstets823

    Density will vary with changes in weight from year to year and from reader to reader as well as any hormone supplements taken that year. There are some companies who make software to judge density trying to standardize it but breasts are like fingerprints, going to be hard to standardize density. Too many variables IMO.

  • nstets823
    nstets823 Member Posts: 4
    edited December 2019

    Hi just posting an update. Had my 3D mammogram, followed by an ultrasound today. They did find the 2 spots referenced in my original mammogram but believe they are probably benign! So I will follow up in 6 months for a repeat of all to confirm. I am confident that the odds are in my favor, but will continue to follow up here so there are follow-ups to outcomes on some of these posts.

    I did talk to the radiologist about what I should do on a go forward basis due to my breast density and they do recommend 3D mammograms for me. Thanks again for your input djmammo and WC3.

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