Gastroparesis

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LuvMyFam
LuvMyFam Member Posts: 101

Hi everyone, I have been doing well since my liver tumor was removed in 5/16. I’ve had issues, but they’ve all been pretty easy to deal with until now. I was just diagnosed with gastroparesis last Friday and it is no fun. I see my oncologist tomorrow, so I was wondering if anyone here has any question I should ask him while I’m there.

I have been having “issues” with my intestines since January of this year. Hospitalized in January, ER in August, hospitalized in October - all this year. They finally had me do a gastric emptying study last Thursday and that’s when they diagnosed me with gastroparesis. I have had a hard time eating from lack of appetite and food makes my stomach hurt - like an 8 pain level. I vomited once and even though it had been about 5 hours since I ate, the food was undigested. I have nausea and am losing weight daily because I just can’t eat.

If anyone has any suggestins or wisdom, I would love to hear it.

Blessings! Erica

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited November 2019

    Diabetics can get that too. I’m thinking a GI dr would be the specialist who could best treat it. It’s a miserable condition, hope you improve.

  • LuvMyFam
    LuvMyFam Member Posts: 101
    edited November 2019

    Thank you, yes it is. I don’t have diabetes, thankfully. I can’t get in to see a GI doc until the 2nd week in January. I’m hoping my MO can speed up the process.

  • LuvMyFam
    LuvMyFam Member Posts: 101
    edited November 2019

    I saw my MO who conferred with my neurologist. They believe the gastroparesis is caused by radiation damage to my Vaso-Vagal nerve. And, it doesn’t sound like there is much they can do about it. I will have a PET scan just to rule out mets

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