Is radiation fatigue worse than chemo fatigue?

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My RO has explained to me that the radiation fatigue is very bad especially for folks like me that have had chemo, surgery then radiation. I was able to work through my 20 weeks of chemo therapy (4 weeks of AC and 12 weeks of Taxol). Most of the time I worked 6-8 hours a day. I will be having 6 weeks of radiation. The RO told me that most folks who have chemo before radiation aren't able to work at all during the last few weeks of radiation.

Has your experience been that the radiation fatigue is worse than the chemo fatigue? I just want to prepare myself (and my employer) if it is the case.

Thanks for your insight.

Comments

  • TB90
    TB90 Member Posts: 992
    edited October 2019

    Stenotio:1221: First of all, I am very impressed that your RO acknowledges SE from radiation. So many women on these boards feel that radiation SE’s are minimized or even denied. I did not have chemo, so my situation really is not relevant, but so many women over the years on these boards also state that compared to chemo, rads was easy. Hope others chime in, but because you already have done so well, I think the odds are that you may manage rads very well also. Just want to add that rads for me were very doable. I easily could have worked through them but had to travel 4 hours daily in Feb in Manitoba, Canada for treatments. My challenge was the weather. But I treated myself daily with a flower from the hospital gift shop each day and enjoyed a house full of flowers to get through it. Hugs to you.

  • Xxxxxxxxxxxxxxx
    Xxxxxxxxxxxxxxx Member Posts: 609
    edited October 2019

    To me they were two very different experiences. Chemotherapy did not made me tired but rather body aches (in addition to the nausea, neuropathy, etc.) I am finishing the radiation and what gives me is very sleepy (I have to take a nap necessarily) but there's not physical fatigue or pain, except in the irradiated area of course. A vitamin B complex can help a lot. They hae also told me that the fatigue of rads was cumulative, and in my case it was not so. I have experienced the same amount to "sleepy" from day 1 until today that was my session 29 of 33. Good luck!

  • Legomaster225
    Legomaster225 Member Posts: 672
    edited October 2019

    I too had chemo, surgery then radiation. I did not have any significant fatigue during radiation although it was mentioned as a possible side effect. My side effects from chemo were tolerable. I worked from home through my treatments so it maybe a different situation and I am an accountant so my job is not at all physical. The hardest part of radiation for me was the skin breakdown during the last couple weeks. I was glad I was home at that point so I could just wear a loose T-shirt.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2019

    I think it’s a different kind of fatigue. With chemo you may feel yucky. Both times with rads for me, I was tired from going Every.Single.Day. I’d want to lie down, but not necessarily sleep. Just rest. As said above, I am surprised your RO even mentioned it. Most don’t.

  • DogMomRunner
    DogMomRunner Member Posts: 616
    edited October 2019

    I had surgery, chemo and now rad therapy. So far the fatigue and other SE are different from each other. With chemo, I was also nauseated and I think that took more out of me. Radiation is every day and I have to get up earlier in the day to get there and then get to work. I worked full time during chemo and I am working full time through radiation.

    Of course your mileage may vary, as they say. Good luck

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited October 2019

    Compared to chemo, rads were boring. I did get pretty red and felt like I had a sunburn. But, the worst part of rads for me was the positioning. They kind of push you around on the table like a piece of meat. (Plus, I had a male rad technician -- very nice, but still.) Chemo was more social. A friend came with me to infusions so it was a big gossip session. Also, we got to know some of the other patients, and how they were doing. Good luck!

  • Colleencoombes
    Colleencoombes Member Posts: 1
    edited October 2019

    Wonder if anyone can help. Last year I had surgery for a Ductal Invasive Breast Cancer stage One. I had radiotherapy for 15 sessions over Three weeks. I was very lucky as I didnt get the burn, but felt unwell during my treatment. I am just over a year since I finished my Radiotherapy, but now I am feeling extremely achy and like I have the flue and also very tired all the time. I have to go to the breast unit next week for a check up and see weather it has returned and how the site of surgery has healed. Is this fatigue normal after all this time. I would appreciate some help here if anyone can help. Thank you.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited October 2019

    I had very little fatigue with rads, literally 2-3 times each time I went through it. I noticed it mostly hit after I'd had a really big day (in 2016 we were getting our house/property ready to host a wedding--busy times!). I didn't have any fatigue with chemo. Feeling tired/heavy from chemo is very different. With fatigue, I have an overwhelming need to get off my feet.

    Colleen--I had a weird thing happen a few weeks ago. I was at a wedding and started to feel *so* weird--again, that overwhelming desire to get off my feet. It wasn't until the next morning that it dawned on me that was fatigue! I've been out of rads for almost a year. No idea at all why it hit me, and it's only been that one time since I finished rads.

  • GraceB1
    GraceB1 Member Posts: 213
    edited October 2019

    I didn't feel unwell like I did during chemo but the fatigue was real. I had to stop and take a nap on my way home from appointments and I only lived 20 minutes away.

  • msphil
    msphil Member Posts: 1,536
    edited October 2019

    hello sweetie I say for myself both were draining I had to take leave of absence from my job at city medical center I worked at. Both made me extremely exhausted tried to work at first but couldn t walk to back of clinic without holding on wall went to our nurses station doctor there recommended I go home and take leave. msphil idc stage2 0/3 nodes 3mo chemo before and after Lmast got married bald and all thank God for my now husband of 25yrs then 7wks rads then 5yrs on Tamoxifen

  • ruthbru
    ruthbru Member Posts: 57,235
    edited October 2019

    As you can see from the comments above, everyone's experience is different, and I don't think you can predict what will happen. For me, radiation was a piece of cake compared to chemo. I actually felt my energy returning. My tip would be, no matter how you feel, to get some light exercise every day. It will help with whatever fatigue you may feel (and if you don't feel fatigue, it will jump start your return to normal). Best of luck!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited October 2019

    I too had chemo/surgery/more chemo then radiation. I drove myself every day for 5 weeks. It was the relentlessness & the driving distance that was most exhausting. I wasn't really fatigued until the last week or so, but then I truly was dragging.

    Colleen - sorry I meant to address your post. You didn't include your treatment dates - but you said a year out? If you already have an appointment for next week, I would try not to worry until then.

  • thisiknow
    thisiknow Member Posts: 134
    edited October 2019

    Those with radiation fatigue, let us know how many days of treatments you had... and where along that line you began to experience fatigue. Thanks for everyone posting here

  • Polly_Ester
    Polly_Ester Member Posts: 34
    edited October 2019

    I have chronic fatigue and could never tell a significant increase in my normal fatigue while on radiation.

    I remember just feeling so much better that I was done with chemo. Compared to chemo, radiation was nothing.


  • Ingerp
    Ingerp Member Posts: 2,624
    edited October 2019

    I’ve had both protocols (20 sessions in 2016; 33 sessions last year) and, again, it was just a few individual days for me. It’s not like it was cumulative. The first time was several weeks in, on a Sunday, and I realized I’d been doing a lot of yard work the day before. Fatigue is very different from being tired. It’s not something you can power through. I needed to listen to my body and get off my feet for an hour or two—then I’d feel better. I’m sure many women get through without any fatigue.

  • VL22
    VL22 Member Posts: 851
    edited October 2019

    For me chemo was an absolute nightmare, so in comparison radiation was a breeze. The going every day for 33 sessions was obviously tiring, but I did not have fatigue. Hopefully, the same experience for you.



  • mike3121
    mike3121 Member Posts: 410
    edited October 2019

    How long does radiation fatigue last? My wife is TNBC with extensive bone mets. In May she had several violent seizures; the cancer had gone to her brain, the Dura (brain lining). What followed was a brain operation and the most cancerous portion of the Dura was removed and a titanium mesh installed. Next she had 11 days of WBR. After that she went back on her Halaven. However she kept having seizures. It seems there's scare tissue left in the brain and that is enough to cause seizure. A recent MRI showed the cancer gone.

    My wife is extremely exhausted. She's so exhausted and frail her MO has halted all chemotherapy and recommended palliative care then hospice. She has no energy and sleeps all day. Her anti-seizure meds, Keppra, also cause fatigue. After several months I see no change. I've tried lot's of things but nothing, well pain pills, is the only thing that sort'ta, kind'da works.

  • gb2115
    gb2115 Member Posts: 1,894
    edited October 2019

    I did not do chemo, but did 6 weeks of radiation. I think the fatigue started by the end of the first week along with weird nausea that they denied could possibly exist. It was like morning sickness without the vomiting. The fatigue got worse as time went on but I seem to remember it was really only at the end of the week. Like Friday afternoon and evening were the worst. By Monday morning I felt a lot better. I was also working full-time (ish)---I left early a lot of days, I have a job where no one really cared as long as my work got done.

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