Onpro Neulasta

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DMHGF
DMHGF Member Posts: 72

I am starting my 6 month chemo journey next week. They are going to be giving me Neulasta with the Onpro technology. Has anyone got experience with it? Have you had any problems?

Every time I go in there is something new to Google haha

Comments

  • MoonGirlJess
    MoonGirlJess Member Posts: 267
    edited October 2019

    For my DD AC chemo I had the Neulasta with OnPro, which just is a throw away machine they stick on your arm or stomach. I chose my stomach so I could hide it. When your done with your chemo session they fill up the OnPro with the Neulasta and stick it on you. Roughly a little over a day later the OnPro will start up and deliver your Neulasta. It just takes few minutes to administer and then you check the level to see that it infused and then peel off the OnPro and toss it. Works like a charm for me. Please, be sure to start the Claritin a day before you get the Neulasta. I have a picture of it on my phone. I will add it to this post.

    PM me for ANYTHING! I'm always around. I certainly don't mind being a BC OG and helping anyone out.

    XO

  • MoonGirlJess
    MoonGirlJess Member Posts: 267
    edited October 2019
  • MoonGirlJess
    MoonGirlJess Member Posts: 267
    edited October 2019
  • OnTarget
    OnTarget Member Posts: 447
    edited October 2019

    No problems, easy peasey.

  • DMHGF
    DMHGF Member Posts: 72
    edited October 2019

    MoonGirlJess you rock! They didn't say anything about Claritin. What does that prevent?

  • MoonGirlJess
    MoonGirlJess Member Posts: 267
    edited October 2019

    Neulasta can cause awful bone pain in some. My bone pain was ridiculous. The Claritin helps decrease that pain. I took it a day or 2 before chemo then about 4 or so days after.

    You are very welcome!

  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited October 2019

    For whatever reason my nurses put it on my arm. One thing you can't do with it is get it wet, so no shower until it goes off (24 hours after treatment). Actually, one time I was craving a shower bad enough, so I just used a flexible shower and washed every part of my body but the arm. I liked it on my arm because of that. My AC was during the winter, so I was wearing long sleeves and no one could see it anyway. It was a bit awkward sleeping with it, I was afraid to accidentally rip it off. Mine looked just like what Jess showed. One time it was falling off so I stuck a big bandage over it.

    It would beep several minutes before going off, the beeping would get more frequent, then you would hear a sound like gears turning, the beeping would stop, and the Empty light would be on. It was a sign I could take it off and go shower (yay!)

    So, the goal of neulasta is to stimulate your bone marrow to produce more red and white blood cells. It's a must if you are on dose dense schedule (every 2 weeks), otherwise your body just doesn't recover in time.

    However, not to scare you, but since I like to google too, I found out that AC raises a chance (very slightly) of a blood disorder (cancer) called MDS and AML. There is some evidence that growth factors like neulasta contribute to this slightly raised risk. Since I had AC after Taxol, my last AC was my last chemo, so I asked my MO to skip neulasta after the last infusion and she agreed. Just something to think about.


  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited October 2019

    I didn't have bone pain with Neulasta. I took Claritin once, because what MoonGirlJess describes is pretty common, and nurses told me to do it. However, the second time I decided to skip it. I had general fatigue and pretty bad nausea from AC, but no bone pain, so I didn't take Claritin after that.

    If I can give one suggestion about AC is to stay on top of nausea. It was really a problem for me. Have your doc prescribe several anti-nausea drugs and have them filled ahead of time. Perhaps even try to take on several days before to see how you feel. Zofran (the most commonly prescribed one) gave me an awful headache, so my onc had me try granisetron (Kytril). Worked well and no headache. I still had some breakthrough nausea the day of the infusion (had it mornings, by 6 pm I needed to be in bed, not moving my head). By morning I was all better. I also bought motion sickness bracelets and used them, I think they helped.

  • WC3
    WC3 Member Posts: 1,540
    edited October 2019

    I went in to my MO's office for the injections but I'm curious, can you feel the needle with the onboard injector? I think a beep down to a needle stick would kind of freak me out.


  • MountainMia
    MountainMia Member Posts: 1,307
    edited October 2019

    I had Neulasta after each of 4 AC. I had it applied to my belly, just above my pants waistline. I used Claritin (it is allergy "season" most of the year, anyway) and had no problem with bone pain.

    Agree on the comments about staying ahead of nausea. I didn't have much trouble but mostly had "I feel icky" feelings to "I feel VERY icky." For the lower end of that, I didn't take anything. For the upper end, it helped a lot to take the medicine. Can't remember which I used, as I also had a couple of things to choose from. Fortunately for me, it only last a couple of days.

    If you're having trouble with nausea or anything else, CALL the doctor/clinic. You will have a number to use for off-hours, too. Don't be afraid to use it. That's what they are there for.

  • DMHGF
    DMHGF Member Posts: 72
    edited October 2019

    WC3 I was wondering the same thing. The "countdown" will freak me out the first time until I know what it actually feels like! If it's painful maybe the stomach would be better but I like the idea that on the arm I might be able to shower and just keep the arm dry. *Sigh* so many decisions lately haha.

    I am a bit worried about nausea. I can deal with pain much easier that feeling sick.

    Thanks everyone for the wisdom and advice.

    Love this group!



  • LMS458412
    LMS458412 Member Posts: 301
    edited October 2019

    The injector of the OnPro is inserted into your body when they attach the unit to you. They have about 2 minutes to stick it on before it goes in. It sounds and feels like a rubber band being flicked onto your skin. That's it. The next day, when the injection of the Neulasta starts, you shouldn't feel a thing.

  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited October 2019

    Yep, like LMS is saying - a rubber band snapping feeling. I actually didn't know that the needle is inserted then, or maybe I just forgot. It's NOT painful at all. The day it goes off - no sensations whatsoever.

    Accessing your port, while also not terribly painful, especially if you apply the numbing cream they should have given you by now, is a lot more uncomfortable.

    Some people feel more nausea than others. It's impossible to say, and every one's side effects differ. Try not to worry beforehand, it's not going to make SE any better. But don't skimp on the drugs, if they are making you more comfortable, is my advice.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2019

    This device is the same thing as my OnmiPod insulin delivery system. A rubber band snap is an excellent description. My Pods are water resistant can be worn for showers and swimming. Ask your nurse. Been on Pods almost 10 years.

  • DMHGF
    DMHGF Member Posts: 72
    edited October 2019

    FarAwayToo I'm definately less worried now... except for what you said about port access. My port is getting placed next Tues and chemo is starting 24 hours after. They said it's going to "more uncomfortable" than usual and not think it will always be like the first one. They didn't say anything about numbing cream. How much pain can I reasonably expect do you think??

  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited October 2019

    It's going to be tender for several days after port placement surgery, but overall port access was a non issue. Just to give you an idea - I had to get an MRI 2 days after I had the port inserted, and for MRI you are face down, pushing on your chest. They just put a pillow under my port and it was not too bad.

    I definitely recommend getting Lidocaine cream that you can put on your port 1-2 hours before they access it for blood draws or chemo. My drill on chemo days was usually blood draw first (and they would leave the port accessed) then see oncologist, then on to infusion, where they didn't have to re-access the port as everything was ready since blood draw. I would put the cream on the port when I was leaving the house and I have over an hour drive. Can't say that accessing the port was 100% pain free, but several times I forgot to put the cream on and they did it without, I could tell there was more discomfort. In any case, blood draws through the port were a lot less uncomfortable than through the vein in the arm. The pain is very short when the needle goes through, and not as bad as when they dig into your vein. I had mixed feelings about my port: it made things a LOT easier, but it would freak me out having something inserted into my vein.

    Port placement surgery was a breeze. I was under twilight anestesia - I could still see things and heard conversations, but there was zero pain and I was super calm. Honestly, the calmest 45 minutes in the first month since DX.


    Also, I was told about the cream at the "chemo school" - an appointment they usually set up for you with a nurse, where they explain ins and outs, but then it took me several reminders to my doctor's nurse to actually get a prescription for it sent. I was treated at a breast clinic at a hospital with a large cancer center, so if I forgot to put the cream on, I could always ask a nurse at the infusion or the breast clinic, and they always have it on hand. So, don't worry, just ask, and you'll get it.

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