Rads and Lungs

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Need a little help deciding whether or not to do Radiation. Because I had 2 IDC tumors on the L and 1 IDC tumor plus DCIS on the R, I think it's wise to do rads, but.... I need to know if anyone here has suffered any injury to your lungs via rads. I guess I could still back out but I've signed up for 16 treatments starting in a couple of weeks. 16 doesn't seem like much comparatively speaking, but I'd like to hear the outcome from others who've done rads but also might be a little or a lot of lung compromised.

Both my surgeon and RO think rads is appropriate and the RO pretty much assured me that the rads wouldn't really touch my lungs much. I'm assuming she knows my lung status. I'm told I'll probably want to do AI's as well. I do realize with treatment, quality of life may drop just a tad bit (yikes) but really think I'd rather do these therapies and not be defenseless.

Anybody know of any studies done on lung damage w/breast rads? Thanks in advance to anyone who can help.


Comments

  • jessie123
    jessie123 Member Posts: 532
    edited September 2019

    I was worried about the same thing, but knew I had to do the radiation. When your radiologist does the CT scan setup he/she can tell you how much lung involvement there will be. The radiologist showed it to me on the screen and there was very little involvement and no heart involvement even though it was my left breast. Research has determined recently that some women over 70 can get along without rads --- but I wasn't over 70. Good luck

  • carmstr835
    carmstr835 Member Posts: 388
    edited October 2019

    Well. I was told there would be very little lung damage. I now have asymptomatic pulmonary fibrosis. My pulmonologist believes I will eventually have symptoms, but so far so good. It has been about 2 years end of October since my rads. I had tomography, a CT scan daily for set up, then 30 doses. I had my sternum, my collarbone, and my underarm as well as the right chest and scar. I was thinking about proton and I believe they have now approved breast cancer for proton radiation therapy. I was going to be a part of the clinical trial, but I decided against it because the nontreated arm would not have been tomography and it was random whether I got the proton or not, and rather than take a chance, I decided on the sure thing with tomography, besides I really liked the radiation oncologist.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited October 2019

    thisiknow, I'm 10 years out from radiation and have had no problems with my lungs. I had left breast, 2 o'clock. I also did the 16 rounds and it was so easy. Skin was fine and you don't go crazy having to go there so much. Good luck. Btw, I'm 73.

  • thisiknow
    thisiknow Member Posts: 134
    edited October 2019

    Thanks to all of you for responding. You're making me feel better. Maybe the mere fact of only getting 16 treatments is what will keep any significant damage at bay? I sure hope so. And I'm happy that you 3 had a good experience with rads. I just don't want to go defenseless, or with just AI's.




  • pink_is_my_colour
    pink_is_my_colour Member Posts: 308
    edited October 2019

    When I had my rads I had to take a deep breath and hold it to move my lungs and the heart out of the way of the radiation. Holding my breath was only for a few seconds. If I took in too much air I was told to let some out which told me that they can see prior to the dose where your heart and lungs are before giving you the radiation. I had no issues at all. I also had BC in both breasts at the same time.

  • thisiknow
    thisiknow Member Posts: 134
    edited October 2019

    pink... so glad to know you didn't have any issues with rads at all. Yes, I guess holding your breath moves the heart and ribs/breasts further away from each other? Whatever, that shouldn't be too hard to do. :) Thanks.

    I think I had bilateral tumors because I was mammo deficient.


  • RatherBeSailing
    RatherBeSailing Member Posts: 130
    edited October 2019

    thisiknow, with a lumpectomy, seems almost all ROs would recommend radiation.

    The truth is, they don't know really know for sure what the dose will be to your lung until after they've done the simulation and devised a plan. It's dependent on your particular anatomy, so anything the RO tells you ahead of time is really just a best guess based on averages.

    Do you know if they're going to radiate your nodes? Both supraclavicular and internal mammary nodes coverage increase the dose to the lung. So if you don't need those, that should help. Since you were grade 1 and node negative, you might not - especially internal mammary nodes if your tumor was lateral (on the outside of the breast.)

    After the simulation, you can ask what the mean lung dose is, and also what the V20 is - what percentage of the lung is receiving 20 or more grays of radiation. The standard is to keep that number under 35%. Some think there is damage at 20Gys, others think 20gys is okay, that damage doesn't really occur until the dose hits 40gys or more.

    I had lung damage after rads. But for reference, while my v20 was under 35% but my v40 was over 20%. No wonder I'm having problems. Also, they didn't put me on steroids when I had symptoms a month or two after rads.

    Hope this helps, and good luck!


  • thisiknow
    thisiknow Member Posts: 134
    edited October 2019

    RatherBeSailing... I can see I need an education. Sad to say your numbers baffle me as I've really not learned anything about radiation dosage at all yet. Any additional info here or in rad articles might help. I'm assuming that they won't irradiate any nodes unless they're part of the "whole breast."

    Sorry you were damaged! Did it subside? What are/were your symptoms? I'm being set up for radiation on Monday so I need to know more to really understand better what's going on. Thanks for your informative response.



  • RatherBeSailing
    RatherBeSailing Member Posts: 130
    edited October 2019

    thisiknow - You really shouldn't have to educate yourself on dosages. That's what the doctor is for. I just had a bad experience, but I believe it's not common.

    There are three sets of lymph nodes that breast cancer usuaIly spreads to. Most common is the axillary nodes - the ones under your arm, and where they did the sentinel node biopsy. It can also spread to the supraclavicular nodes, which are above your clavicle (it's at the top of your rib cage, running toward your shoulder.) And the third group is the internal mammary nodes, which are basically behind your sternum. Parts of your lung are underneath the latter two groups, and a small portion of the lung may get radiation when they cover them. But please know it's usually fine! And because your tumor was small, Grade 1 and you had negative nodes, they may not radiate your nodes anyway. If they were, the order would probably say "whole breast and lymph nodes."

    So please don't get too worried! Just ask them when they do the set-up. If they say they are covering the nodes, and you have a pre-existing lung condition, make sure your RO knows it. Never presume s/he is aware of it.

    Best of luck to you. You should be fine!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited October 2019

    Left breast, 6 o'clock position, 33 sessions. 12 (plus) years out with absolutely no problems. They are very, very precise with the area they radiate nowadays, and since you are Stage One they won't be radiating an extensive area around the breast (which might be part of the treatment with lymph node involvement). You truly should be fine.

  • TB90
    TB90 Member Posts: 992
    edited October 2019

    Absolutely no SE’s. RO’s have different techniques and different technologies to work with. So comparing is not relevant. But it is overwhelmingly in your favour that you will not suffer SE’s. it also depends on your health coming into rads. Lots get blamed on rads that may not be associated at all. All the best.

  • mocame
    mocame Member Posts: 669
    edited October 2019

    Glad to hear that a number of you have not had any lung SEs from rads. I found out that I wouldn't benefit from the breathing technique and that was making me a little nervous about possible SEs.

    Thank you for the information! Now I know of more questions I need to ask on Monday when my radiation treatments start.

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