When do you tell your employer about your diagnosis?

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Eigna
Eigna Member Posts: 438
edited November 2019 in Just Diagnosed

I’ve been diagnosed about a week now and I’m starting to think about how everything will take place with the surgery, treatments etc.

So at some point I need to tell my boss about this. When do you say it and do you ask a medical leave? And for how long? Do you disclose that you have cancer or not?I can’t picture myself going to work during chemo. But just want to know what others are doing with juggling everything or not?

Comments

  • Sjacobs146
    Sjacobs146 Member Posts: 770
    edited August 2019

    Unfortunately I had to tell my manager fairly quickly because I got the call with my biopsy results in the middle,of a meeting with her! I was able to do everything with only 7 sick days. I filled out paperwork for an intermittent medical leave, but I never had to take an extended time off. You won't know about chemo until your surgery and the Oncotype results. Personally, I would wait until you know what the treatment plan is before you go down that road with your employer.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited August 2019

    Sorry you are going through this. You will need to know about recovery time based off the surgery treatments you chose. Lumpectomy is minimal time off and you may be able to take a day or two of sick time depending on when it is scheduled. If you can manage to do a Friday and have weekends off that gives you 3 days to recover and only 1 day off. For mastectomy though you will need a lot more time off.

    You will also need to know exactly what Sjacobs146 just said....do you need chemo? Time off for radiation? Until you get more information you may want to wait to make that decision.

  • IAmACat
    IAmACat Member Posts: 108
    edited August 2019

    I requested a meeting to talk about work hours, then bam, told them I had cancer and needed time off to get surgery. They told me to talk to HR. I emailed HR that I needed to go less than full time because of health issues. HR was accommodating, asked me how many hours, asked for a medical leave letter from the doctor. I went part time up until my surgery, then took leave. After the first medical leave for surgery, I took another medical leave for chemo. What I did was, I asked them to let me do one chemo cycle to see if I could work. I couldn't, so I got a doctor's note for another leave. 

  • AngieB92
    AngieB92 Member Posts: 323
    edited August 2019

    I told my boss as soon as I received the biopsy results. I don’t have a treatment plan yet (first meeting with onc on Wednesday the 4th) but I wanted to give her a heads up. I hope to be able to work through chemo but I told her I wouldn’t know until I take a few treatments. My surgery is after treatment

  • sweetp6217
    sweetp6217 Member Posts: 365
    edited August 2019

    Eigna, it does sometimes take time for things to start rolling. For example, do you have a BC team yet? (health care professionals, nurses, oncologist, etc.). In my case, I was introduced fairly early to a coordinator who was helpful on how to approach work and hooked me up with people who knew a lot about leave etc. I'm hoping all goes well for you.

  • sweetp6217
    sweetp6217 Member Posts: 365
    edited August 2019

    AngieB92, I hope you get to do what you want throughout your treatment. I worked practically full time through my chemotherapy, but lost some of my little benefits at work because my work hour average dipped below the FT minimum. Thank god I was able to keep my company co-funded medical insurance and not have to take leave and have to take a cut in pay during leave. If long-term leave would have provided better pay, I would have taken those 4 months off, or maybe just the last two months. It seemed to get worse the closer it got to finishing my TCH treatments. P.S. chemo brain can be a factor too.

    Oops, almost forgot. When the full-on chemo started I was on Perjeta too, but was allowed to drop it because (for me) I wouldn't have been able to work running to the bathroom often (and probably not making it). Depends briefs were my friends for a while. Hope I'm not frightening you all.

  • gb2115
    gb2115 Member Posts: 1,894
    edited August 2019

    My boss was with me when I got the call, so that kind of said it all. I found it helpful that people at work knew everything.

  • gretchy
    gretchy Member Posts: 106
    edited August 2019

    I've told my boss I have cancer and will talk to him about impact on work after I get treatment plan. My previous boss I was very close to and she was aware from my abnormal mammogram before I was diagnosed. Read up on your rights. Hugs.

  • edj3
    edj3 Member Posts: 2,076
    edited August 2019

    All the diagnostic appointments happened in about 10 days (things moved super fast), so I'd had to share a little already before I got the dx. My manager was traveling for work, and I was going to be out for another half day to meet with the care team, so I called and told her the day after I got the dx.

    I manage a large team, and this was my second cancer dx. My work calendar is open to my team so they'd already noticed those medical appointments and a couple of them had leaped to the conclusion that my first cancer was back. Plus we had some reorganization going on at work so they were all a bit nervous. I decided to share with them right away and let them know I'd be out for more medical appointments but planned to work normally unless something drastically changed.

    Then I met with HR, completed the FMLA paperwork at my manager's request. I ended up not needing that (no chemo, radiation fatigue was real but manageable) although I did take a week off with the lumpectomy. General anesthesia and I are not best friends.

    Now I just put doctor's appointment on my calendar for the neverending follow up appointments.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited August 2019

    Other than 3-4 hours off for the actual infusions, I worked full-time through chemo. It really helped that I mostly work from home. I also scheduled rads for midday so didn’t take any time off for those appts at all. Depending on your treatment plan, this may not have as big an impact on your work life as you think. I took 2-3 days off for each surgery

    As to when to tell, I told my boss very early on—before many friends and family. I wanted him to know I’d be having random medical appts for a while, and I did have to miss one big meeting because it was on a treatment day.

  • Eigna
    Eigna Member Posts: 438
    edited August 2019

    thanks for the replies. I just don’t want the rest of the company to know. I find it should be confidential. Yes boss needs to know and HR and upper administration but the rest don’t need to know. Am I thinking right?

  • Elephant
    Elephant Member Posts: 88
    edited August 2019

    I decided to tell my employer only when I needed to take an extended period of time off work. It turned out that I did not need to take off any time. For the radiation, I just told my boss that I had a medical condition that required me to go to the hospital for treatment every day for a couple of hours for about 2 months. My boss obviously did not ask what the problem was and I was only gone from the office for a couple of hours a day and was able to keep on top of my work. I am sure that they would have been fine at work, but I just could not deal with the questions and looks of concern or whatever from people.

  • Elephant
    Elephant Member Posts: 88
    edited August 2019

    I agree Eigna that primarily only your boss needs to know. Maybe when you talk to your boss you can decide together who else needs to know: HR and upper administration. Certainly you can tell your boss that you want this kept confidential.


  • Ingerp
    Ingerp Member Posts: 2,624
    edited August 2019

    Keep in mind that, on the far end, you will have acquired knowledge that might help someone in future. I was slow to share my news with friends and family, and had a slow roll-out at work, but I didn't try to keep it secret long-term (plus there was the no-hair thing). I have had people approach me with questions about their own or friends' situations, and I'm happy to offer whatever help I can.

  • rlws
    rlws Member Posts: 40
    edited August 2019

    I went to my HR first to get policy. I am a professor and had no surgery date yet but knew it would happen first week of classes so out of respect to my students went and talked to my boss. I had my lumpectomy and reconstruction together. But two weeks later had to have another surgery. With the help of HR, I decided what is called intermittent FMLA as I have sick leave to use. I am teaching 2 of my five classes but doing them online from home to have the surgery and to have the radiation. My treatment plan after surgery did not get decided until yesterday, 3 weeks after first surgery because of needing a second and the Tumor Board to discuss what was best.

    I would say it depends on your relationship with your boss, but I personally would start with HR so that you can have your privacy. I know my direct boss very well so I was comfortable telling him but my HR person said if I did not want to, they would do it for me.

    Good luck with talking to your work. I know it is very uncomfortable but there are laws to help protect your job and your privacy which is comforting.

    rlws

  • AngieB92
    AngieB92 Member Posts: 323
    edited August 2019

    sweetp thanks for the response! You didn’t scare me. I’ve read a lot of stories from other bc patients regarding how they handled chemo. I’m trying to be so optimistic but realistic at the same time. Fortunately for me, I have over 700 hours of sick leave built up. I plan on having a double mastectomy after chemo so I don’t want to use up my leave taking days off that I could have worked. I have a desk job with very little access to the public so it’s not that difficult. I do worry about chemo brain but I’m already learning the mantra “this is just temporary” to help me through the not-so-fun times. I’m just ready to get this part over with. And the more I can function in my daily life, the better it will be on me mentally.

  • Eigna
    Eigna Member Posts: 438
    edited August 2019

    for the chemo I’m not sure I would be able to handle both chemo and work. I don’t want people looking at me weirdly and asking questions. I could wear a wig but not sure. Rather stay home for that part. For radiation therapy I wouldn’t mind doing half days if my boss permits me.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited August 2019

    You have no idea at this time as to what treatments will be required.or how much time you will need off. I’d wait until I knew more

  • kber
    kber Member Posts: 394
    edited August 2019

    I had a good relationship with my boss and told her about my biopsy before I got the results. When I told her the results, she cried and hugged me.

    At first I asked for a full time leave of absence. I had an extremely stressful "front line" kind of job and knew there was no way I could work and do chemo, surgery and radiation. She agreed, but countered with an offer to reassign me to less immediate and stressful duties and suggested a "let's see how it goes approach".

    As it turns out, I took 20 days off for chemo (once a week for 20 weeks), 8 days for surgery and no time for radiation. Although I applied for intermittent FMLA for the legal protection (which every eligible employee in the U.S. should do!), I had enough sick and PTO time to cover my days. Besides, I had been working 60+ hours a week before I got sick and my boss and team actually remembered that and cut me a fair amount of slack.

    I also had the flexibility to work from home on days where I was extra tired or when my white blood cell count was low (and was therefore immuno- compromised).

    I lost my hair and didn't like wearing a wig, so my cancer became common knowledge quickly, which I was fine with. I had more important things to worry about than whatever office gossip was going on. My team and clients rallied around me, though, and looking back, I'm really quite touched at the response.

    For me, work was a welcome distraction. It was also a necessity. I carry our family's health insurance and provide about 60% of household income. Loosing either would have been difficult to say the least.

  • illimae
    illimae Member Posts: 5,710
    edited August 2019

    I had a great relationship with management too and told my supervisors and immediate staff within a week of confirmation. I was kind of a workaholic, rarely took vacation and was leader of my section, so my absence would not go unnoticed. Everyone was supportive and sympathetic, I used accrued sick leave on chemo day but worked otherwise.

    If you think you might not have the understanding you need, you could alway send an email about requiring intermittent leave for a medical issue. That way you should be protected from any issues with HR and could still keep the exact diagnosis private, if you choose. Good luck.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited August 2019

    There are too many variables for a one-size-fits all approach. I'm retired now, but when I had cancer previously when I was still working, my situation was that my division head - and many of my co-workers - were also my close friends. Our HR guy, on the other hand, was a complete dick, and the division head and vice-president above him did all they could to minimize my interaction with HR.

    In this latest cancer adventure, I had my radiation treatments early in the morning, around 7:30. They only took about five minutes total each day, perhaps ten on Mondays when new x-rays were included. If I had still been working, I wouldn't have lost any time since my house, hospital, and employment were all within a few miles of each other.

  • GyzmoesMom
    GyzmoesMom Member Posts: 4
    edited September 2019

    I told HR the day after I got the call that they'd found cancer in both breasts. My immediate reaction was "well then get the bitches the f off of me!" so I knew I would be out at least for a double-mastectomy. Unfortunately, there was a lot more cancer than expected and it turned out to be Stage IV. 5 1/2 years later and I still haven't been able to return to work. They held my job for me for a year and have promised that if I'm ever able to come back, there will be a spot for me.

  • edwards750
    edwards750 Member Posts: 3,761
    edited September 2019

    I turned in my notice when I was DX and knew I would have 33 radiation treatments. I did schedule them early.

    My situation was different though. I worked the late shift, many miles from my house and a very stressful job although it did pay well.

    My DH and I calculated what it was costing for gas and mileage on my car not to mention working in a not so safe neighborhood for FedEx Freight. Plus I could only work PT because I was already receiving a pension from another fedex company so the decision for me to hang it up wasn’t such a hard one to make. I liked the work and that part I miss but just not worth the negatives.

    Alice is right though there is no one size, fits all answer.

    Diane

  • WC3
    WC3 Member Posts: 1,540
    edited September 2019

    In my case, I had to tell my boss in the first month, because my cancer was a bit of an emergency and I had to keep my schedule open for appointments and imaging so I essentially had to skip out on work.

    I just sent an e-mail, which was the preferred mode of communication at my work. But my responsibilities were easily covered by my coworkers.


  • Karen2019
    Karen2019 Member Posts: 98
    edited September 2019

    Reading these posts is making me even more grateful for my work situation and my generous bosses. I work in a four person office - two bosses, two employees - and I told them all as soon as I was diagnosed. They have all been amazing since. Both bosses and my coworker immediately said "do whatever you need to do, we'll deal with it". There was never any question of them continuing to pay me while I'm out and going through everything, which is beyond wonderful as I am single with no other source of income and would have a very hard time managing with any reduction right now.

    As I still have two weeks before my surgery, I still don't know if I will need chemo, but my BS is insisting on a hard two weeks off after surgery, possibly three, and then I will definitely have radiation. Even though my coworker is adamant that she will cover my work while I'm out, I plan to work part time from home after the first week off following surgery to keep her from going insane. Then I hope to schedule radiation for mid to late afternoons, so I can work at least half days, then go home and rest after each treatment.

    For a small firm like ours, this is going to be a long haul, but I am hoping that I can do enough while I'm dealing with all this to both keep my coworker from quitting under the workload and keep my bosses from questioning their generosity


  • CleomeRuth
    CleomeRuth Member Posts: 5
    edited October 2019

    I told my boss right away when I was originally diagnosed in 2015 and in September when I had a recurrence (or second primary cancer- waiting for pathology results). I am lucky that my workplace has been very accommodating. I mostly worked through the first time (taking time off for lumpectomy and chemo treatment days, and having radiation early in the am) but was able to use vacation and sick days. Not sure what I will do this time; had axillary node dissection last Friday and the general anesthesia has knocked me for more of a loop than I expected. Will try to work this week - from home if I don't feel okay enough to go to the office. Truthfully, I prefer the distraction of being in the office as long as I don't feel too tired and sore to handle.


  • msphil
    msphil Member Posts: 1,536
    edited November 2019

    hello all I worked on medical field most of my life first in the O R 15 yrs then when diagnosed was working at city clinic medical center got call before work that day spoke with manager and decided to take leave of absence for 6 mo. Glad I did treatments gave me side effects fatigue etc but went back to work after treatment was complete staff surprised with Welcome back party. Retired now a Praise God A 25yr Survivor and 25th wedding anniversary was planning our 2nd marriage at diagnosis. msphil idc stage2 0/3 nodes 3mo chemo before and after Lmast then we got married then 7wks rads and 5 yrs on Tamoxifen

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