Liver mets...now bone too...feeling very scared

Yes, you are in shock and mad! You express yourself well, which is a good thing. It will help get you through treatment. Since you are on Lupron, I assume you are premenopausal. Has anyone suggested genetic counseling in order to inform others, children or siblings?

Your doctor is being very logical in selecting therapeutic agents and letting you know that radiation is a possibility for the pain of bone mets. I also sought out an orthopedic specialist who gave me an oral steroid regimen which worked temporarily. When I went back for follow-up and finally got an xray, we found a fractured vertebrae that I realized was from metastatic disease.

In time, you will wrap your head around these diagnoses and continue to live. You probably already know that survival statistics are dated and don’t take into account new therapies like Ibrance. Gentle hugs to you and your husband as you address all of this.

It's really hard to wrap one's head around this when all of the news keeps getting worse.If it helps, I've been in Stage 4 officially since 2011, and according to my doc, probably even from the beginning. (2008) because when they found my bone mets they were everywhere. Liver tumors popped up in 2015. Yes, you will be in treatment for the rest of your life, but to think it will only be 5 years is most likely wrong.

I'm still here. I will repeat what vlnrph said in that the data out there is old and outdated, and no longer applies with all the newer treatments. It sounds like you have good care, as your doc already has sent in for Foundation One.

Take a deep breath and realize that no one has an expiration date stamped on their foot. You will soon be on a new treatment plan and knocking those liver tumors back. Once you get over the shock and start living again, you will have a new appreciation for everything good in your life. Since I was diagnosed, I lost my mother, my mother-in-law, and my son, all of whom I thought would outlive me. You just never know what's around the corner, so don't make any assumptions. Take each day as it comes. Best of luck to you.

Oh NicoleRod, in my opinion the worst thing about this disease so far has been the fear and uncertainty around the future... But to try and encourage your heart, my doc said the other day we live in the time when living another year is enough to expose you to a breakthrough medicine, and with each year that possibility grows exponentially... So in two to five years time you would be able to get meds that will turn this condition from terminal to chronic, like diabetes. I know its hard, man do I know it, but this is more of a mental and emotional stamina issue now.. One foot I front of the next, if our current meds can give us another two to five years then wow, by then something new will be there, which will get us to grey hair and wobbly knees!

NicoleRed. The shock will eventually lessen.

Please know that newer treatments are extending our lives.

At the beginning, my DH and I talked about this dx nonstop. We needed to have a plan of action, new goals. I got organized..clearing out accumulated crap and made sure my Will, power of attorney and medical power of attorney were updated. I made sure precious family items were designated to my kids with written history.

Now we chose to discuss my health only when necessary. It was hurting him. He was grieving while I was still living. We both decided that was just wasting precious moments. He said he would have plenty of time to grieve later..IF I went first!

So we chose to live and enjoy everything..grandkids, camping, sitting on our deck with iced tea or wine! I work part time at a winery, volunteer with Hospice, sit at endangered sea turtle nests and jog/walk..okay, really just a fast walk. I really do think my life has been more enriched with this dx.

You will get there..promise!

It took me 9 months to get a complete response to Ibrance/Letrozole. It is a slow process, don't be discouraged. Routine scans, labs and "how you feel" will tell you and your MO when to change to next treatment. My MO doesn't want me to change meds too soon.

I did have IV chemo (AC) at diagnosis as I was in crisis mode with mets in both liver lobes..too numerous to count. Once I was stable, I went directly to Ibrance 100mg/Letrozole.

You and your MO are in a partnership now. Get educated about your specific cancer. Don't be afraid to get a second or third opinion. Change your MO if he/she is not listening or not a good fit for you. IT IS YOUR CANCER AND LIFE.

Take notes..good info on BCO. Write questions for your MO visit and do not leave until they are answered. Get copies of your scans and clinic notes/labs with each visit.

Read Bestbird's book. Search under her name to get the free PDF download instructions or order the hardback thru Amazon. I did both.

We are living longer with good quality of lives.