how were you diagnosed...if you feel comfy sharing?
Hello,
If you're comfortable sharing, what test gave you your diagnosis? I am wondering because my mammo/us is not showing what my mri just showed. Thanks!
Comments
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Biopsy confirmed my ultrasound findings. MRI pretty much showed the truth(confirmation via pathology after mx) accept the MRI showed a suspicious area that turned out to be normal but the 2 1cm tumors were true to MRI findings.
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Thank you for responding! Did they refer to your tumors as "suspicious masses", I am being told there are two of those. However my US shows a lot of complex cysts, based on the mri, i am now pending biopsy. I am wondering if a cyst and a mass are the same thing? my head is spinning a bit...
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MRIs are more sensitive and pick up more true positives than other forms of imaging. But they also pick up a lot more false positives than other forms of imaging. At least, that's my understanding.
I did not have my MRI until after my biopsy proved malignancy. I'm wondering how you got to the MRI without it? Were the radiologists on the mammo/US not able to pick up a lump found by you or your doc?
(My doctor found a lump on a manual breast exam and sent me for mammogram, which sent me for us. Those came back Birads 5 and I had a biopsy the next week, which confirmed cancer).
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The word suspicious was only used on an area that turned out to be normal. They had biopsied the 2 tumors before I had the MRI, so those were known malignancies.
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I've had fibrocystic breasts since my twenties, with tons of testing along the way, and I have a breast surgeon that monitors closely annually. My mammo's were moved up, are comprehensive, and I always get an ultrasound due to the density. This past year there have been some changes, a few scares, turned out to be complex cysts. Another us/mammo in April 19 due to bloody discharge from the left breast, and white discharge from the right, mammo picked up more changes but nothing solid. More complex cysts...my dr was concerned with the nipple area in particular, and she didn't trust the way things looked. So I had the mri yesterday and got my results same day.
If something does come back positive from the biopsy, thanIll be super grateful for my dr getting ahead of this. And if not-at least we're trying to figure out the nipple iseue
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about 3 months after a clean mammogram:
felt lump -> had another mammo plus an u/s -> had biopsyall 3 imaging modalities show slightly different things and have different sensitivities so I think there can be disagreement but I think if anything is suspicious on any modality it likely warrants a biopsy
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moth, you are right they did offer to do a biopsy on my suspicious area but my surgeon had already recommended a mastectomy because of the 2 tumors one being ilc and he thought the tumors were connected. After the mastectomy pathology was done I could have had lumpectomies afterall. But I wouldn't have had that detailed info if I went the lumpectomy route. Well I did save my self radiation and diep fixed the damage. I hate that we can't get rid of cancer without drastic measures. I wish that I would live to see a day when surgery, chemotherapy and radiation were no longer needed to get rid of it.
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My tumor was discovered during my annual mammogram. I had a breast exam by my GYN about a month before my mammo and he didn't notice the lump. I have really small breasts but the lump wasn't felt because it was right behind the nipple. An US was ordered and then an US guided biopsy -- which confirmed the dx.
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I finally went for a mammogram after about six years of procrastinating. My PCP encouraged me, but although she had done a manual exam, apparently she didn't feel anything. The mammogram a few days later picked it up, confirmed by an a ultrasound and biopsy about a week later. I also had an MRI, and a CT scan, which was not specifically for the breast cancer, but gave another confirmation of it. It was about six weeks from mammogram to surgery, but my surgeon was out of town for a week during that time.
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I had mammos and an ultrasound which didn't show anything suspicious.
My biopsy showed Paget's and MRI showed enhancement, which they thought was just Paget's but it turned out after surgery,there was a lot of DCIS, too.
The MRI showed a suspicious area in my other breast that, after a biopsy, was shown not to be cancer.
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Hi Alto...
what got you to the biopsy, was there a lump that could be felt but not seen...issues with nipple discharge or something like that?
thanks!
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In 2013 sono confirmed a cyst in my left breast, 2018 intense pain in left breast, was sure that it was the cyst that was bigger and painful, my gyno did breast exam and couldn’t feel any lump , he wanted to give me pain killer and send me home, I insisted for sono as I was sure my cyst was bigger, sono day,, SURPRISE ,, the painful breast came up with nothing but a smal cyst, the right breast 18 mm BIRADS 4c mass, 5 days later biopsy was done, and boom breast cancer at age 38 with no family history.
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The above study might help explain “masses” and “complex cysts”....The bottom line is that complex cysts need to be biopsied.
My mucinous bc was missed for three years on mammography and seen on sonogram, but mistaken as a simple cyst.. The fourth year, the gyno felt it and said, let’s get this “worked up.” The “mass” was FINALLY identified as a “complex cyst” on sonogram and was biopsied which confirmed a mucinous bc tumor.
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thank you so much-and that is my fear. These "complex cysts" actually being left to fester and never biopsied. I changed from a male PCP to a female and she was like no wayyy...we are done waiting. I am so thankful for her. So yeah, I have a higher BIRAD in less than 60 days, but I'm ready to just get this figured out. thanks so much for the info...I do appreciate it all!
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My mammo did not show anything because of dense breast tissue; ultrasound picked up something and was BIRADS 4A; biopsy showed IDC. There was no lump and the BS could not feel anything.
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aseal, I had an eczema-like irritation on my right areola that wouldn't go away and started growing. The biopsy proved it was Paget's and the extra imaging was to check for anything else (with Paget’s there’s a 95% chance of additional cancer, DCIS or IDC,with about 50% chance of invasive cancer)
The area of suspicion in my left breast was a surprise, but turned out to be nothing. I still had it excised, as my team recommended that, just to be sure
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I wanted to have a breast reduction and needed a recent mammogram for the plastic surgeon
My primary care physician ordered the mammogram - BIRADS 3.
Back for a compression mammogram - BIRADS 3.
Back for an ultrasound - nothing.
She said, you need to have a biopsy and off I went to a surgeon that suggested an excisional biopsy of any areas that raised questions.
II had three lumps of tissue removed. It was in one of those lumps that a tiny, highly aggressive tumor was found.
I had bilateral mastectomies and thus overachieved on my breat reduction.
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Sassa...wow, that is scary, and a blessing all rolled into one! Interesting that the US showed nothing...they've been relying on US's for me, and now the MRI is showing something completely different and I am awaiting the biopsy date. Its very confusing, different opinions, tests, but I'm hopeful I will get answers soon. thanks for responding!
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I had a flipped implant due to excessive pull ups at the gym. Had to have a mammo prior to the plastic surgeon re-flipping it back into position. It is that mammo that noticed the calcifications.
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In my regular pcp physical- she did a breast exam (as did the gyn the month before) and she found the lump-- never had a problem, no family history-nothing--- off we went to biopsy and lo and behold---had a clear mammogram just 6 months before--but then onc said that it had probably been there for 6-7 years (very slow growing) and it was ILC so as I learned, mammograms are one step short of useless.. so there was also an MRI that confirmed what we knew... I think my pcp saved my life. It was also she who insisted on a ct scan 5 years later that picked up my thyroid nodules that turned out to be very slow growing malignancies. A good pcp is really the key!!
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Sassa, this cracked me up:
I had bilateral mastectomies and thus overachieved on my breast reduction.
In a similar way, my husband calls me an overachiever b/c I've got two cancers
This year I opted for a 3D mammogram because the FDA had just announced they'd changed their recommendations for women with dense breast tissue--they now recommend 3D mammos. So I paid the extra $, and the radiologist said hey we need another look. Nothing showed on the diagnostic mammogram, but she said well you're here so let's do an ultrasound to be sure. Something showed up, barely, and she recommended an ultrasound guided biopsy. That came back as invasive ductal cancer. I had a lumpectomy & sentinel node surgery on May 6.
Start to finish on this timeline was insanely fast (which I appreciated): mammo on March 29, surgery on May 6. I see my RO this week.
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I started finding “lumps" in my breasts at age 22, and started having mammograms and ultrasounds because of this. I had numerous fibroadenomas removed between ages 22 and 27. At 27, I found another lump, went for ultrasound and mammogram and a biopsy. My pathology came back with 2 areas, one a fibroademona, and the other IDC.
In 2016 I was dx with ADH, found via mammogram and US then ultimately a biopsy. In 2018 I was Dx with ADH, ALH, and DCIS all also found via mammogram, US, and ultimately biopsy.
I just had my regularly scheduled mammogram in April, followed by an US, and they found a suspicious area that could be scar tissue or new malignancy. It also flagged 2 lymph nodes as abnormal. Radiologist and oncologist ordered an MRI, which I had 5/21. MRI showed suspicious mass and 2 suspicious nodes. Had US guided core biopsies of the nodes and mass on 5/29, and got preliminary pathology 5/31. The report shows benign nodes, but the mass in the breast is IDC.
*Edited 5/31 to update recent biopsy
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Partner noticed "Nipple dimpling" coming out of the shower. Next my dog jumped up and had the worst breast pain I've ever felt. Felt like a softball sized firm round hard lump. Called next day to get in to gyno. He saw me a few days later. I had skipped the annual mammogram had one the year before. He performed a breast exam and recommended I go in for a mammogram, patted me on the shoulder and said "good luck" right there and then I knew. Mammo was done radiologist asked to wait around and there were additional films taken. Sent out for biopsy which confirmed 7cm mass.
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Mine was discovered on a mammogram. I have diagnostic annuals because my mother had BC. I remember the day like it was yesterday. I realized that morning I hadn't gotten the all clear postcard I usually get after my mammogram. It had been two weeks. Then I got the call one breast was larger than the other. I knew then. I had never been called back in to do an ultrasound and eventually biopsy. Never felt the lump. I did start losing weight fast months before which turned out to be a sign but I attributed that to my doing without sugar.
Another thing I did is something I wouldn't advise. I was so nervous during the ultrasound I peppered the tech with what she was seeing. She said you are fine you can get dressed. Five minutes later the radiologist came in and said you won't like this you have breast cancer. So the techs see things but are not really supposed to comment and of course they aren't doctors so their opinions shouldn't be taken as gospel. Lesson learned.
Btw I've never had a MRI as it relates to BC and I'll be 8 years out this August God willing
Diane
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I knew I had cancer the instant my fingers touched my breast lump. Sitting on my shower bench, a breast in each hand, I felt a lump on the left that wasn't on the right. I'd survived bone cancer as a teen 19 years before, osteosarcoma in my left leg, so the possibility of cancer coming back was never far from my thoughts.. Been there, done that, now I had to do it again. I called my primary the next day, they pulled some strings because of my cancer history, and got me right in to see the breast surgeon. You know the drill: mammogram, biopsy, diagnosis (multifocal DCIS), then off came the boob. There has to be a better way than this. Wish you the best, aseal321
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Felt a lump in my left breast -> mammogram (both breasts) and ultrasound (left breast) -> biopsy (benign result, fibroadenoma) -> excision (confirmed IDC inside a fibroadenoma in left breast) -> MRI -> found suspicious mass in right breast and "many areas of concern" in both breasts -> biopsy on right mass -> confirmed IDC.
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aseal321,
You have posted a question asking women how they were diagnosed. As a result, you are hearing only from women who've been diagnosed with breast cancer, and you are getting lots of answers that are scaring you as you try to equate your situation with what happened to others.
What you have not asked is how many women have had imaging results like yours and have ended up with benign findings on their biopsies. You won't find those women here because you have asked your question in the "Diagnosed" forum, so only women diagnosed with breast cancer are reading and posting here. You also are unlikely to find many of those women anywhere on this site because most women with benign results aren't hanging around a breast cancer discussion board.
What you have to remember is every situation is different, and most women who have biopsies are not diagnosed with breast cancer - most biopsies are benign. If I understand correctly, it appears that you have a number of complex cysts, along with some other concerning symptoms. This certainly presents a risk of breast cancer and warrants a biopsy. The best and most relevant advice on your specific situation has already come from djmammo, who is a breast Radiologist and who has answered some of your questions in the "Not Diagnosed" forum.
Good luck with the biopsy. Hoping for benign results!
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Quite accidentally, I found a lump. I had to find it for my PCP who then sent me to get an ultrasound. Took them a few minutes to find it. Then had a biopsy. Result confirmed malignancy. My breast surgeon ordered an MRI, telling me that it may result in false positives but he wanted to avoid two surgeries. Had biopsies of the two spots found by the MRI, both malignant. This changed the surgical plan from lumpectomy to mastectomy.
Mammogram the previous fall had shown nothing suspicious.
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Thanks so much everyone for sharing your experiences! It does actually help someone in my situation, to hear from those diagnosed. Specifically the MRI testing, because it seems it can go either way, and the biopsy and actual surgery seems to show the real story.
Beesie, I asked people to share if they felt comfortable, I didn't expect to get a response like yours. Thank you for your input.
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Beesie's right. One of my direct reports had a mammogram, got a call back and it was nothing. She wouldn't be on this site
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