I want to quit

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Comments

  • Annie60
    Annie60 Member Posts: 328
    edited May 2019

    santabarbar and Frog - Well said!!

  • notdefined
    notdefined Member Posts: 286
    edited May 2019

    I'm only on 3, but I can completely relate to how you are feeling.  I have 7 year old twins, and I am questioning my parenting of them during this time.  I keep trying to remind myself that this is temporary, but I keep coming back to it.  The other day I listened to Oprah's Super Soul Conversations Podcast, and it lifted my spirits.  I don't know if it will help, but wanted to share if by chance it does.  

    Hang in there, and I wish you positive vibes.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited May 2019

    You know, I just want to to give a shout out to Erin for starting this thread. The wording of it...everything. Such a safe place to dump it all and in between such good posts about making it through and things getting better. I wouldn't be surprised if this thread keeps going on for years. And I've been on here 10 years. Thank you Erin and all who have posted.

  • erin_t
    erin_t Member Posts: 77
    edited May 2019

    that's really sweet of you cowgirl :)

    33 days till last treatment. So it's true, time keeps passing. Tomorrow is my daughter's 5th birthday and I managed to pull together a few things for a tiny family party. We'll have a bigger one with her friends after chemo. I sure wish I had more energy. I'm just killing hours every day, very slowly, and I always feel like I should be doing something useful or with my daughter. Fridays are my worst day so maybe tomorrow will be better.

    Every day that's what I think: maybe tomorrow will be better. Maybe it will because of the antidepressant, maybe it won't because of the cumulative effect of it all. I just never know.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited May 2019

    I am so glad you are able to have that party!

  • erin_t
    erin_t Member Posts: 77
    edited May 2019

    Thanks :) it was short but sweet and she liked all her gifts. Unicorn balloons and light-up mermaid sneakers, that's what 5 year olds like.

    Any minute these gd antidepressants are going to work. right?

  • erin_t
    erin_t Member Posts: 77
    edited May 2019

    Hi everyone. I want to quit again. I've done 8 of the 12, and I'm so so so tired and bored and I want my life back. 8 should be enough! Why isn't 8 enough?!

  • DawnS1962
    DawnS1962 Member Posts: 205
    edited May 2019

    Erin, you're 3/4 through. Hang in there. If you quit now and God forbid something reoccurs in the future, you'll wonder if it was because you didn't finish.

  • L8Blmr
    L8Blmr Member Posts: 133
    edited May 2019

    23 days until last treatment, Erin. You GOT this. It's ok to be tired today, but tomorrow is 22 days. You're almost there. Hang in there and be proud of yourself everyday you cross off. Sending enCOURAGEment!!

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited May 2019

    Binge watch a wonderful tv series! You are almost there.

  • WC3
    WC3 Member Posts: 1,540
    edited May 2019

    erin_t:

    I'm wondering if they can switch out your last 3 or 4 taxols for one infusion of taxotere. I don't know if the side effects would be any less but you would be done with the infusions. It might be something to talk to your MO about if sitting through 4 more infusions is just too daunting.

  • erin_t
    erin_t Member Posts: 77
    edited May 2019

    I don't know. I don't know if I got this. How would I know? Dawn is right that if it recurred later I would always wonder if quitting early was the reason why. But I feel like I'm going insane. I know I have to do this for my daughter, and really I'm only suffering from the fatigue and boredom. But it's driving me out of my mind.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited May 2019

    I really, really did not want to have chemo...I had watched my mother go through it 30 years before. But I knew that if I didn't throw everything at it and if I had a recurrence I would never forgive myself.

  • erin_t
    erin_t Member Posts: 77
    edited May 2019

    That's all anyone can say i guess. If i don't do it all I might regret it. And it's just a month. But God Almighty how am i going to get though.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited May 2019

    erin, you're stronger than you know... This is the backhanded gift of chemo. You will realize how freaking strong you actually are. You are surpassing yourself and doing something much harder than what you've done before. You are sooooooo close. We are here for you!

  • notdefined
    notdefined Member Posts: 286
    edited May 2019

    I agree with getting into a tv series or maybe a game/app? It's distracting and time consuming. Assume you have watched everything on Netflix, Hulu and Amazon? Amazon just released the second season of Sneaky Pete which is a good series.  Hulu is getting ready to release the Handmaid's Tale, and it's a good time to watch season 1 if you haven't seen it. I just finished Dead To Me on Netflix, and it had some good twists. What about a good book?  Movies that you really love? Candy Crush?

  • DiagnosisDisruption
    DiagnosisDisruption Member Posts: 108
    edited May 2019

    I am not binge-watcher. My daughter got us Netflix and I watched Moana and The Jungle Book. However, I do like being outside. Go outside and just wander (tell someone where you are going - freaked my husband out more than once). I ended up planting 340 onions between chemo 2 and 3 (I had TCHPx6 every three weeks).

    I am exactly one year out reading all this and still can't believe I did all that crap. I still can't believe I'm the one who has to sit in that fake brown chair at the infusion center also.

  • erin_t
    erin_t Member Posts: 77
    edited May 2019

    So I told my MO that I want to quit. He's not in favor of it, says there's no evidence either way, gave me this week off chemo and said we could discuss at my appointment next week. I have a second opinion from a colleague of my dad's, who is an oncologist, who thinks it's okay to stop now at 8. I don't effing know at this point. Most of me thinks it's fine to stop now, I did almost all of it and I'm ER+ so in some world i might never have done chemo at all. Part of me worries about dying young. But the fatigue problem is real.


    Do you think I'd "reset" after the week of no chemo? Like the side effects would be less bad? He offered to reduce the dose also though since there's no research on that either I don't know what the point is.

  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited May 2019

    Erin I did AC + T too. I wanted to quit at 8 as well.. I was just sick of it, but I didn't and I'm glad I didn't. At least if this dreaded beast comes back I can say I did everything I should and won't worry that quitting early caused the cancer to come back. Just my thoughts. It's only 4 more weeks. You can do it!

    Nancy

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited May 2019

    I recall at the end of chemo feeling "how can I feel this bad, and I am not getting a transfusion yet????" It's incredible how bad you can feel and they're still ok with throwing more chemo at you..

  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2019

    I quit before even starting chemo. My mo pressed me really hard based on oncodx scoring. I just had an overwhelming instinct that said NO. In my case, doing chemo would reduce my risk of recurrence from 23% to maybe 12%. My pr was negative er 95% her2 negative. I did 4 years on AI drugs. Now on year 8, my risk of recurrence is less than 10% now according to mo. I believe I made the right choice for me.

  • erin_t
    erin_t Member Posts: 77
    edited May 2019

    Meow13 what was your oncotype score? Mine was 25 but I'm under 50 and node positive so the mo wanted to do chemo.

  • Meow13
    Meow13 Member Posts: 4,859
    edited May 2019

    Mine was 34. I had no nodes involved.

  • Mansi_Singh
    Mansi_Singh Member Posts: 1
    edited May 2019

    I have taken up for the breast cancer test. How long does the FISH test results take to come up?

  • Amyadipose
    Amyadipose Member Posts: 38
    edited June 2019

    Now THIS seems reasonable to me!! lol Im Packing my bags and moving to mothers, or to live in a yurt on a mountain top away from everyone until the sun and God heal me. Or I'll sit on my couch and cry.

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