if sentinal node cant be found-?

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HereToHelpMyMom
HereToHelpMyMom Member Posts: 38

Hi Everyone,

Im posting on behalf of my mother. Here's her info: She is 80 and was just DX with IDC in her right breast (1.4cm, ER+/PR+, HER2-).

So we just spoke again with the surgeon, because a mastectomy is scheduled for next week. The Dr said that there is a risk, increased by my mothers age, that the sentinal nodes will not "light up" from the dye.

She said the gold-standard procedure for a young otherwise healthy person, would be to then take all of the axillary nodes. However, for an elderly person who has mobility person, she would not risk lymphedema. The complicating factor is that my mother is very mobile and in somewhat good health, but just learned she has severe osteoporosis. So my mom is somewhere in the middle of healthy/not healthy.

We cannot decide whether to be aggressive with the axillary nodes or not, in the case that a sentinal node cannot be identified. The Dr suggested we do a MODIFIED version, where she takes many nodes, but leaves the ones under her arms. Any thoughts?

Thank you!

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  • Salamandra
    Salamandra Member Posts: 1,444
    edited May 2019

    My thoughts would be to get a second opinion from someone who has a lot of experience with patients your mother's age. Maybe a third opinion even.

    I'd also want to know about the option of prophylactic radiation to the axillary nodes, which I believe has been shown to be comparable in efficacy to dissection.

    I would want to ask about options for conservative treatment plans. Get the tumor out, check the genomic characteristics (oncotype). If it's aggressive, re-visit, but if it's low risk, consider that the whole picture (small HR+ tumor in a woman 80+) is likely to be not aggressive, and go with that.

    TBH, I might even want to revisit the mastectomy part. Lumpectomy is much less invasive and lower recovery time than a mastectomy, and unless it's in an unusual location or there are other complicating factors, lumpectomy should be an option.

    Second opinion from an NCI-designated facility! Worth the time and trouble.

  • HereToHelpMyMom
    HereToHelpMyMom Member Posts: 38
    edited May 2019

    Hi Salamandra

    Thanks for responding. The surgeon said that radiation on the nodes can also cause lymphedema, but Im sure a surgeon has a surgical bias! she said the gold standard was to remove all nodes when the sentinal cant be found.You make a good point though.

    We are going with a mastectomy for a few reasons, although lumpectomy was an option. Although the mass is small, it's location is behind the nipple, which wouldnt be able to be conserved at all. Her breasts are quite small, so cosmetically, it's a draw. Also, my mother has dense breasts, so finding new growths can be difficult. Third, there is a second suspicious area that a biopsy found to be benign, but in my opinion, the biopsy itself may have had an inadequate tissue sample, and was rushed. We basically want to avoid another surgery, if possible. 2 surgeons said they leaned toward mastectomy, but agreed it wasnt mandatory . Thanks for the thoughtful and detailed response. A lot to think about.

  • Salamandra
    Salamandra Member Posts: 1,444
    edited May 2019
  • HereToHelpMyMom
    HereToHelpMyMom Member Posts: 38
    edited May 2019

    thanks :-) I thought more about what you said. How you mentioned looking at the tumor characteristics and then deciding how to proceed with lymph nodes. I'm also troubled by not ever KNOWING what is or isnt in those nodes. Once they are out, we could properly stage it, but at what cost? Very difficult choices.

    Thank you again and I wish you the best.

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