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  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited April 2019

    here’s the link whitelight! Your people are there!

    https://community.breastcancer.org/forum/121/topics/852086?page=18

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  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited April 2019

    https://community.breastcancer.org/forum/121/topics/852086?page=18

    Here is the link whitelight. Your people/support is in this thread. Hope you find more appreciation of your choices thwre

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  • hapa
    hapa Member Posts: 920
    edited April 2019

    whitelight - I'm with Peregrinelady. We have tons of people come on here once and announce they are only going to do alternative or holisitic treatment, then we never hear from them again. On the flip side, we have people who come on here five or ten years after deciding on alternative treatment telling us how great we're doing (usually posting links to some or other alternative treatment website or talking about some alternative treatment center which is just as expensive as conventional). Which, great for them, but there could literally be droves of people who did alternative treatment and died as a result but we'd never hear from them. I can think of exactly one poster who came BACK to this forum, years after deciding on alternative treatment, to update us and she is doing well, though she has also done surgery and radiation so perhaps not the best example. I truly believe there is a subset of patients who could forgo all treatment and live a normal lifespan, but we are not getting that data because those patients aren't followed by doctors. Best of luck with your choices.

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  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    hapa

    It was for this reason that I have posted in here post diagnosis. I had posted before I was diagnosed, which was of great comfort to me, but . knew that my decision to refuse any conventional treatment would not be popular here. Even so, since others had engaged with me when I needed comfort and reassurance, I came back to let them and anyone else who is interested, know both my diagnosis and my decision on what to do about it.

    I should imagine now that my journey will be very different to most people who come here - it will not be dramatic. i will not have any clinical problems to discuss or share but I shall pop in now and again - I will not leave you in suspense ( I say that with a smile) but I know that my journey might be a slow one so if I am silent for a while please don't think that I have dropped off the planet. In October I will probably pick up my law degree, which I deferred on recently, again and so shall be busy - til then I am just going to enjoy life, lumps and all.

    My life will go on much the same as it is now - though I have to say I am enjoying the large beautiful bunches of flowers I am getting from loved ones, which hadn't happened for a while - I am not expecting it to last ( smile).

    At the moment I am putting out feelers for a GNM practitioner. It is an hour or twos consultation, as I understand it, to find the root cause of the cancer. The root cause being an unexpected shock which has not been resolved - but I have left a link to newmedicine and am still learning about it myself.

    I am not clutching at straws here, it was actually a long journey for me to find Dr Hammer but as soon as I did, that was it, the missing link which had eluded me through many many - too too many - loved one's illnesses.


    What ever path any of us takes the only thing that I know is that it must be taken without fear - in the knowledge that what ever it is, since it is our body, it is, it must be. our own decision. The oncologist I saw would have rushed me into hospital before I had time to take a breath if I hadn't said --- 'wow there, Neddy! I need time to think about this' - I had of course been researching before the diagnosis and come across Dr Hammer's name but only, as in, him being mentioned by others. That night I was too shaken and tired to read so I just watched a video of a lecture on him - it was a revelation - 'no woman can die of breast cancer'. Fear was gone, I relaxed - and read and listened and ............ now my journey may be difficult, as life so often is, but it will be a journey on the quest to resolve that which brought these lumps into my breast and thereby heal myself. For what my body made my body will release - experience tells me this.

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  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    IchangedMyName


    Thank you and I did follow your link and go there.

    I don't mind if people criticise or doubt the method of my decision, it was the tone which upset me. It was unexpected and shocked me a bit - therefore I might have over reacted but don't apologise for that - we are all vulnerable at this time - the critic and the criticised.

    I wish you great warmth xxx

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  • PebblesV
    PebblesV Member Posts: 658
    edited April 2019

    whitelight - I'm so sorry that you came onto this site to post about your alternative journey (in the 'alternative' thread no less!) and then ended up being met with judgement and debate and so on. I just wanted to post here just to say that I support you in your decision! These forums are supposed to be an outlet of support and shared experiences and learning from one another's experiences, even if our experiences are different.

    If you wanted examples of other people who also chose a fully holistic route, I can think of 2 examples for you. Theresa Dinallo - read her story here: https://www.geaugamapleleaf.com/news/overcoming-the-cancer-odds-a-womans-holistic-journey-to-health/. She's got a website now and I actually spoke to her and she's thriving today, 6 years later, no sign of cancer! Also, my friend's Aunt chose alternative treatments - I posted what she did here: https://community.breastcancer.org/forum/79/topics/868911?page=1

    I respect you and the women who choose their own alternative path. I also respect the women who have chosen to trust themselves to the conventional medicine route. I just don't understand when someone who chose one path has to judge or deride someone who chose a different path. We are all going through a very overwhelming thing and we all have the right to educate ourselves and be shaped by our own experiences and choose the path we feel is best for us. The more informed we can be about it the better, and the more positive the better, which is why I've found examples of successes on all sides, those who did conventional treatment, those who did alternative treatments, and those who chose an integrated path somewhere in between.

    As for me, I probably fall into the integrated path somewhere in between. At each stage, I weighed my own personal "risk/benefit" scenario and made a decision - am I willing to take on the risk of side effects for the benefit of treatment? I decided yes on surgery and opted for a lumpectomy that all went very smoothly, and yes on radiation which I managed well with barely any side effects, no on chemotherapy as that had the greatest risk of chronic side effects - and luckily I came out with an oncotype score to indicate it really was of no benefit to me, no on an axillary node dissection (because of the 40% risk of lymphedema and studies like this https://www.breastcancer.org/research-news/many-women-dont-need-axillary-lymph-node-sx and this https://www.ncbi.nlm.nih.gov/pubmed/30322228 showing women who just did the sentinel nodes fared just as well if not better), and yes to the hormone therapy (tamoxifen) but with lots of studying on how to tolerate that with minimal side effects as well (so far so good). And I've adopted a lot of nutrition and lifestyle changes (I lost 30 lbs, there are a lot of studies on foods and exercise that can help heal breast cancer or reduce the risk of recurrence) on the 'alternative' side.

    I don't know how things will turn out for me, I just know I feel good about the decisions I've made, I still feel very much like "myself" which is important as I fight this, and ultimately I think that everyone one of us going through this just has to make our best decision for ourselves and then, once we are there, feel good about it and go forward with confidence.

    I look forward to you keeping us updated.

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  • Yndorian
    Yndorian Member Posts: 263
    edited April 2019

    whitelight - I strongly recomend you the euphorbia turicalli latex. It's amazing reducing tumors by apoptosis. There are some information in youtube, mostly in portuguese but you can activate subtitles. Low dosis naltrexona seems to work very well too. I support your decision. Good luck!

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  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    It is late here and I must sleep - I thank you both and shall answer you better tomorrow xxx

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  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    PebblesV


    Today's alternative medicine practitioners are yesterday's witches. They are assasinated, bought off with a gun to their heads, threatened, imprisoned, ruined and when all else fails they are discredited. Not only was such a campaign aimed at Dr Hammer over his revolutionary findings - turning all that we have been conditioned to think about cancer ( and other ailments/diseases) up side down, in addition, another campaign aiming to destroy was him coming from the very powerful quarter of the man who shot and killed his only son. The man who would be King if Italy still had a monarchy --- so it isn't, I suppose, surprising to receive the welcome that I did - says I in hindsight - the propaganda against him is twofold - perhaps I should have been ready for the 'critics' but I wasn't.

    Well done darling, well done for sticking to your guns. I know how hard it is to swim against the tide for what one knows to be right - especially for people who are under pressure from others to do what is not right for them. My own family have reservations about my choice but so long as they keep them to themselves that is fine, I get it. People do tend put their own fears on to other's at times like these, I fear. Part of me wishes now that I had told no-one but I'm such a blabber mouth - half the county knows so I'm going to have to defend my choice quite a lot in the coming weeks. Luckily the English are quite reserved about such things so I expect I'll get pitying looks as opposed to lectures.

    Countless people have beaten cancer outside conventional methods. Thank you for the links xxx

    You will be fine - much of the battle is to find our own peace with ourselves.

    I believe Dr Hammer's findings to be correct. That cancer is brought on by, and only by, an unexpected emotional shock.

    http://www.newmedicine.ca/overview.php

    My plan is to consult a GNM practitioner ( tey are few and far between) to establish the root cause of my cancer and take it from there by finding a way to resolve the conflict and help and allow my body to dispose of the tumors.


    Love and peace xxx




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  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    Yndorian


    Thank you, I shall look it up. I have ordered some Essiac tea which is another amazing story. Look up Rene Caisse.

    A happy ending:-

    https://realfarmacy.com/teen-who-ran-away-from-home-20-years-ago-to-avoid-chemo-is-still-cancer-free/


    Thank you too for your support xxx bless you xxx

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  • Irishlove
    Irishlove Member Posts: 82
    edited April 2019

    Hi Whitelight. I can tell you that I went off label to treat MS with Low Dose Naltrexone. It has been and is being studied for usage in breast cancer and pain management. It has zero side effects and for someone with MS for 18 years, a blessing. I had started the traditional drugs for MS when first diagnosed, although I refused interferons due to depression risk. My MS worsened rapidily and so we went on to a chemo drug that had first been used for breast cancer years ago. It worked and I went into remission. I then needed to figure out where to go from there and after a lot of research LDN was the answer.

    As for breast cancer, I chose a mastectomy based on family history and two prior lumpectomies. I trusted my surgeon, who herself has breast cancer and was going thru treatments when I was diagnosed. I think the trust or bond you establish with your care team is critical. I don't have anything to add to your decision except best wishes.

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  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    Irishlove

    18 years is a long time to have suffered, you poor thing .Thank goodness you finally found something which works I am really pleased for you and to hear that for others too that there is now some relief to MS.

    My sister too chose a mastectomy after successfully fighting breast cancer for years by the Gerson method and she too trusted her surgeon. I now realise that her lump had probably calcified by the time she decided she didn't like lettuce anymore but she was and is happy with her decision. She was diagnosed nearly 20 years ago now so her surgery must have been about 15 years back..

    I am listening to everyone else's take on this and what has worked for others but until I have had a consultation with a GNM practitioner; mean while learning more about Dr Hammer's findings, all I am doing is improve my diet and my emotional well being. I am happy - it is so very very odd but I am.

    I knew that I had cancer and before my actual diagnosis I was prepared for agreeing to a mastectomy but after that last consultation with the oncologist - where I was given the diagnosis and their plans for treating me I was repulsed - everything in me revolted against that man and his intentions. I was never going to allow him anywhere near me with a knife and that is all that I knew as I, in a condition of outrage and shock, came home that day. But how could I not was the question - the answer I found that night. I am a great researcher and will spend and have spent years and years and years of intense/obsessive research to find my answers - I had come across Dr Hammer's name, in reference, a few times during research into various diseases ( done over many years for others as well as recently for myself) and he was on my list for investigation. I had not yet found my answer, close but not quite, there was always something missing. That night too shattered to read, I fell into bed with my lap top and watched videos of a lecture on his findings - eurika - it was an instant enlightenment - the missing link - so often in life one simply has to ask the right question ( but how?) and the answer comes. Through my journey with these lumps, so far, I have felt no fear other than the unknown ( before going to the Docs) - it is odd but I just haven't 'there is nothing to fear but fear itself'.

    Thank you for telling me of your relief - one day I shall come back and tell of mine.

    All the best sweet heart xxx

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  • wrenn
    wrenn Member Posts: 2,707
    edited April 2019

    i have an aggressive cancer and was cut off chemo after the first dose. I am doing fine going into the 6th year and I attribute that to having had the cancer cut out. Knowing it was not there any more gave me peace even if there was a chance of it returning. I think immune systems are less taxed with the heavy load of a tumour to take care of taken away.That said I am ok with whatever anyone chooses and wish you well.

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  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    wrenn

    xxx

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  • whitelight-
    whitelight- Member Posts: 49
    edited April 2019

    wrenn


    I don't feel like that, not at all. My sister said the same to me, even before diagnosis - have a mastectomy, just get it out of your body.

    But, I do not think of my body as my enemy - it made these lumps for a reason - on the whole I think of what ever is going on in my body as my body protecting its/myself. I have never felt antagonistic toward the lumps, I just didn't understand why they were forming and growing. Instinctively though and out of experience I do know that what the body can make, itself ( not an outside influence), it can unmake. I have both time and patience and also no longer believe that we have an immune system, as such - an army of workers, working 24/7 - but that when needed from messages from our brain healing bacteria goes to where it is needed --- which is perhaps how we should also think of cancer - as a healer which over reacts because the crisis is unresolved - it is an over medication to an ongoing unresolved emotional trauma - not some malign alien at all.

    If we are working hard to feed, based only on a hypothesis, our immune system or cutting and poisoning and burning tissue, without understanding why it grew, how it grew - what it is doing there - it just seems a pointless venture to me. That is for me .... each to their own and that I never criticise because we can only work with the information that we have --- I am just looking for more information/understanding, having ditched the fear, before making any drastic decisions.

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  • wrenn
    wrenn Member Posts: 2,707
    edited April 2019

    My take on it was something like If I step on a nail it doesn't matter to me how the nail got there or how I managed to step on it but the wound in my foot heals faster if I remove the nail.

    I know myself well enough to know that as long as I felt my tumour I would want it out of there. I was curious about it happening but wanted it gone.

    I wish you the best and you do seem comfortable with your decision so that has to give you peace.

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