Stage IV and losing weight intentionally

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finallyoverit
finallyoverit Member Posts: 382

Has anyone had success doing this? Thankfully I’m stable but I have not been able to make the needle on the scale move.

I’ve tried Keto, I’ve tried just cutting back on portions. Nothing seems to work.

I know the meds that keep mets stable can make it more difficult to lose weight.. but wasn’t expecting it to be near impossible.

Has anyone been able to make this work? I’m talking like 30lbs or more.. care to share your secret(s). I’m desperate and all ears.

Comments

  • vlnrph
    vlnrph Member Posts: 1,632
    edited April 2019

    Maybe your scale is broken (bad joke)! I can tell by how my clothes fit...

    For weight loss, increasing physical activity is another part of the strategy. I like warm water pool exercise classes.

    My theory about why it is so difficult to shed those extra pounds: after menopause, our bodies are craving our favorite female hormone for all the health benefits related to bones, heart, mood, etc. Since estrogen is formed in fat once our ovaries stopping making it, we hang on to every cell of adipose tissue with a vengeance.

  • finallyoverit
    finallyoverit Member Posts: 382
    edited April 2019

    This might not be the best night for me to discuss this. I’m not in natural menopause.. made that way by Lupron shots. I can walk about a mile.. but the spine mets, and after effects of emergency spinal surgery makes a lot of exercise impossible. After the mile walk, my back and leg (nerve damage from surgery) are screaming. Water exercise not an option

    I wonder if it matters natural vs medical menopause.

  • pajim
    pajim Member Posts: 2,785
    edited April 2019

    I tried several times to lose weight and couldn't do it. In fact, I blame Faslodex for 7 pounds of my weight gain. the other 8 was the 'feeling sorry for myself' syndrome.

    Anyway, I had zero success. So I feel your pain.

  • finallyoverit
    finallyoverit Member Posts: 382
    edited April 2019

    Thanks, Pajim. I’m not on Fasoldex, but I’m wondering if the Femara/Lupron/Gabapentin are working against me here. It’s so frustrating.. glad to know I’m not in this boat alone.

  • pajim
    pajim Member Posts: 2,785
    edited April 2019

    I don't know if it's the Lupron. 10 years ago I was on tamoxifen and Lupron. I calorie-counted and exercised like crazy. Dropped 25 pounds. When I got MBC I was now on Femara, Lupron and Faslodex. Gained 15 pounds immediately. Could not for the life of me get rid of them.

    Now I'm on Halaven I'm losing a pound every 3 weeks ago without any effort. LOL. I figure I have a full year before I need to worry about it.

  • finallyoverit
    finallyoverit Member Posts: 382
    edited April 2019

    I wonder if it’s the Femara.. hmm. It’s doing it’s primary job, so there’s that. I think I’d rather it help keep the mets at bay than help me to drop a few lbs

  • Nkb
    Nkb Member Posts: 1,436
    edited April 2019

    I gained 15# with natural menopause- then decided to lose it. Besides cutting down on calories, I increased exercise and started some mild home weight lifting. you can also get stronger using your own body weight like push ups against the wall at first, plank pose etc. Some researchers believe that 10-20 minutes of exercise BEFORE breakfast leads to more weight loss. I did that with the exercise bike I have at home. The other important thing is to try to go 12 hours or more without eating. It restores your gut biology. So dinner at 7 pm and no food again til 7 am or later. no snacking etc in the 12 hours. The IV chemos slow down your metabolism which leads to weight gain for more than half the people who need them post diagnosis. I also gained 15# over the 6 months of chemo- did the same technique to lose the weight. For me it is important to cut down on carbs, especially sugar. For others it is cutting down on the fat that leads to weight loss. Keeping a food journal can help you pinpoint some of the food issues.

  • finallyoverit
    finallyoverit Member Posts: 382
    edited April 2019

    Thank you, nkb. That was really helpful. I’ve hear about people doing intermittent fasting and how helpful it was. I usually don’t have an issue in the evening (I rarely eat dinner because I’m just not hungry).. it’s the mid-morning hours that get me. If I can get past lunch.. I’m good for the rest of the day.



  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2019
    A recumbent bike is a good alternative to walking. The way you sit takes the pressure off the many joints. I’ve considered getting one. They’re sold sporting good stores and other places that sell other exercise equipment like treadmills and ellipticals. You could always check a few out and see what you think.

    About two years ago I started walking about an hour 20 days a month. In 6 months I lost 20 pounds. I really needed to, the scale had kept going up. Then I broke a foot bone, needed surgery and was out of commission for awhile. The weight came back and when I got back into walking many months later, it’s been harder to take the weight off again.
    Now the weather is getting nicer I’m hopeful to drop a few pounds by getting out more. But I feel like the main thing is to try to keep a certain level of activity.
  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2019

    I gained a lot of weight on gabapentin when I was on it for nerve pain around 15 years ago. So, there could be multiple factors playing into it. I have found it very difficult to lose weight ever since my hysterectomy & cancer treatments.

  • Nkb
    Nkb Member Posts: 1,436
    edited April 2019

    Finallyoverit- I remember one more important aspect to the weight loss issue. Your brain wants to maintain homeostasis- in general when you start losing weight it gets alarmed and wants to hold on to the weight. It does this by making you hungry, making you crave certain high calorie foods. Telling you that you are doing so well you DESERVE the high calorie food. I do notice this every time I lose a few pounds-the brain tells me to go out to dinner, have a hot fudge Sunday etc- you have to use incredible will power and remind yourself that this is a trick of the brain to not derail the weight loss at this moment. ( I'm not talking about when you are ill, depressed, side effect of drugs etc)

  • illimae
    illimae Member Posts: 5,710
    edited April 2019

    I’m trying too but no luck. Not sure if it’s the Tamoxifen, thyroid meds or my love of bread and cheese. I’ve been doing weights, elliptical and cycling at the gym 4-5 days a week. I’m stronger but not thinner and I use the DailyDozen as my base for meal planning, although I do enjoy meat, just smaller amounts.

  • NineTwelve
    NineTwelve Member Posts: 569
    edited April 2019

    I lost 15 pounds pretty easily when I gave up dairy four years ago, out of concern over estrogen and growth hormones feeding the cancer. If you think about it, milk was designed to take a 90 pound newborn calf to a 500 pound calf in three to four months. It was made for weight gain! And it has way more estrogen when it comes from a cow in its last stages of pregnancy, as opposed to from a cow which has given birth and is lactating to feed its young. This Harvard study is interesting:

    https://www.motherjones.com/politics/2014/04/milk-hormones-cancer-pregnant-cows-estrogen/

  • KLeeR
    KLeeR Member Posts: 14
    edited May 2019

    I gained for the last 5 years on various chemos. I finally tried vegan low carb and have lost 35 pounds. I need to lose another 15 before we go to Hawaii in a few months. I hope starting methotrexate doesn't mess everything all up. I tried laetrile for 4 months. All my cuts from xelod a went away and I feel stronger for starting chemo soon. Xeloda worked the best for me so far- 2 years and 4 months.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2019

    I had taken off almost 60 pounds with diet and exercise in 18 months before I was diagnosed. I stuck to my diet and exercise (and ate less due to anxiety) while on chemo and took off another ten pounds. I had about 20 lbs to go to reach a 25 bmi.

    Went on Arimidex a year ago, slacked off on exercise, ate more and gained 15 pounds back.

    I am now making a serious effort to take it off. I went back to tracking with My Fitness Pal, ***trying*** to get back on track with exercise, cut back on calories & got rid of "keto" food that was really just over indulgence. I may have lost two pounds this week :D I say may because the scale fluctuates but I've had some lower days this week.

    I had started my big weight loss with Nutrisystem but I did plateau after about 25 lbs. Also afraid to go back to NS because it's all process food with a lot of soy protein. But the portion control helped immensely with getting started.

    After NS, I just counted calories using My Fitness Pal to track and stepped up my exercise to at least 30 minutes walking a day, with some weight training and machines at the gym when I could.

    Really hoping I can at least get these 15 off and after that, maybe eventually get back to a 25 bmi.

  • CursiveStars
    CursiveStars Member Posts: 23
    edited May 2019

    I lost 70lbs about a year and a half ago doing low carb and walking 20000 steps a day. I used a food tracking app and tracked EVERYTHING. I believe it was called lose it. After awhile I no longer craved snacks and sugar etc. I was on ibrance/femera at the time and didn't have the physical limitations I do now. I had gained a huge amount of weight after my cancer diagnosis by eating my feelings. Weight loss is such a challenge, I honestly don't know how I stayed disciplined for so long to do it.

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