Waking up from mastectomy anesthesia concerns

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poisedandpink
poisedandpink Member Posts: 66

Hi All,

Can you please share your experience waking up from anesthesia after your mastectomy. I'm having surgery on Thursday and this is giving me so much anxiety.

For some reason my anxiety about surgery in general is manifesting itself into a fear of waking up from anesthesia and saying completely crazy and untrue stuff. I blame this on the all the weird videos you see of people acting crazy after anesthesia.I think the whole not having control scares me. I have far worse things to be anxious about like having a major surgery in general, waking up and potentially not being able to spare my nipples or having to do the expanders under the chest muscle instead of over.

I don't know why I'm obsessing over this random fear of saying wild stuff when waking up. I'm considering telling my medical team to not let anyone back until I'll fully awake and aware so I feel like I have some control. I'd love to hear from others to put these fears at ease.

Comments

  • gb2115
    gb2115 Member Posts: 1,894
    edited April 2019

    I had a lumpectomy but had general anesthesia for it. I don't remember waking up from the anesthesia to be that big of a deal. I remember I was trying to pull the oxygen nasal cannula off my nose and the nurse putting my arms back down and telling me to leave it alone, then then next thing I remember they were giving me pain pills and trying to get me to eat a cracker. Then I was back in the regular room with my husband there.

    The thing is, if you say crazy things as you're coming out of it, you'll probably never know. The nurses won't tell you, they're probably used to seeing all kinds of things. Plus it's not like anyone is going to video you and put it on youtube, and if they do, you have awesome grounds for a lawsuit... :-) Think of anesthesia as a way to have a nice long sleepy nap.


  • LeesaD
    LeesaD Member Posts: 383
    edited April 2019
    Such a valid fear and I was the same way. I had never had a surgery before my mastectomy except a C section where I was awake so I had never been under anesthesia. Now two years later, I’ve had eight surgeries/procedures under anesthesia and I’ve always been aware waking up. You’ll be in a recovery area and they will not bring any family or friends in until you are aware of what’s going on. If you have any worries, yes just reiterate to the doctors nurses your wishes. Your worries are perfectly normal. Best of Luck!
  • poisedandpink
    poisedandpink Member Posts: 66
    edited April 2019

    Thank you both for the replies! I had twilight sedation for my egg retrieval. I remember waking up spilling the cranberry juice I requested - twice. I don't even remember asking for cranberry juice to drink and something I would never normally drink. I also then remember professing my love to my boyfriend. Which isn't a bad thing! But just an example of how I had no control over what I was saying

    That was only being under for 5-10 minutes. I'm just envisioning the general anesthesia being heavier and a lot longer (4-5 hours) being much worse with not having control and having conversations I don't remember.

    It makes me feel better that they won't bring people back until I'm fully aware though. I just don't like the idea of having conversations and not remembering them. It's the whole not having control aspect.

  • Trishyla
    Trishyla Member Posts: 1,005
    edited April 2019

    Another thing you can do is to tell your team beforehand that you don't want anyone to come in to recovery until you are fully awake. That's something you do have control over.

    Good luck with your surgery. It'll be over before you know it, and you can concentrate on dealing with the dreaded drains. ☹☹ Blech.

    Best wishes and warm hugs.

    Trish

  • B-A-P
    B-A-P Member Posts: 525
    edited April 2019

    When I woke up, my gurney was moving lol . I had been in recovery for an hour or so but was unaware. I just remember the bed turning and feeling fairly nauseated ( which always happens to me when I'm put under general). I remember when I got to my room they asked if I could move to the other bed myself which I groggily said "no way" lol I then dry heaved and they asked if I wanted a patch behind my ear and gave me one. Then I think they did something with my bandages. I kinda wished I was gonna be that hilarious person coming out of anesthesia, but I ended up being groggy, mumbly, and heaving lol

  • poisedandpink
    poisedandpink Member Posts: 66
    edited April 2019

    It took about an hour to regain awareness? When you remember waking up was it just the medical staff around you a that time or was your friends and family back then?


    Is that typical that it takes about an hour after surgery to regain awareness?

  • LaughingGull
    LaughingGull Member Posts: 560
    edited April 2019

    When I had my cancer surgery (mastectomy + axillary node dissection) the surgery started at 7am and it was supposed to last around 4h, so I knew I should be out around 11am. Woke up in the operating room, some nurses where cleaning up, and I asked where I was and what time it was. They told me I was in the operating room and it was 11 something, and from there I was awake, they told me they would move me to recovery etc. Once I wake up from anesthesia I am awake.

  • poisedandpink
    poisedandpink Member Posts: 66
    edited April 2019

    Good to know, thank you!

  • B-A-P
    B-A-P Member Posts: 525
    edited April 2019

    It's not like they had a hard time waking me, it's just anesthesia makes me really groggy and I felt like sleeping lol. They just let me sleep in the recovery area. There was really no reason to fully wake me up per se. They did wake me as they were about to move me, but I kept my eyes closed . I knew I was being moved somewhere.

    When I was awake and aware , it was just the nurses there moving me to my room and doing the stuff I mentioned above. But it wasn't long before my husband came up. The dr had personally went to see him in the waiting room and let him know how things went. Once they moved me to my room he was allowed up. I suppose it's different everywhere, but they don't let family back in recovery where I am from.

  • Ladyofthelake
    Ladyofthelake Member Posts: 45
    edited April 2019

    When I had my surgery, I remember waking up, the nurse asked me what level my pain was at, and then I went back to sleep until they were ready to move me out of recovery and into my room. Overall I was just really sleepy, rather than not in control. Family members are not allowed in recovery areas. I was reunited with my husband when we both arrived at my room at the same time.

  • hapa
    hapa Member Posts: 920
    edited April 2019

    I started waking up while they were still rolling me to the recovery room. I told them I was hot and they turned the blower thingy down to cool me off. I was groggy at the beginning but came to pretty quick. I asked if I had a catheter, which I was not happy about but I guess it's part of the process. I also remember my lips being numb and asking why (I guess they put lidocaine on the breathing tube they shoved down my windpipe, the breathing tube was out already). After a few minutes I asked the nurse to take out the catheter and I think she did and then told me I had to go pee before they could let me go home. So I got up and went to the bathroom to pee and after that they brought my husband in. I was definitely groggy but I wouldn't say I was ever not in control of the words coming out of my mouth. I think I was pretty with it, especially considering the long list of hard drugs they apparently had me on during surgery. I think I hung out for about two hours before I was able to get dressed and go home.

  • DesertPup
    DesertPup Member Posts: 53
    edited April 2019

    No worries!! I get weird too about going under and the anethesologist was amazing. I dont even remeber falling asleep and when I woke up, I was being wheeled into my room and very relived and happy. It's going to be all good!

  • poisedandpink
    poisedandpink Member Posts: 66
    edited April 2019

    Thank you for all the replies! It's really helpful reading all your experiences! I'll be staying over night at the hospital. Right after surgery, I'll be wheeled to a private recovery room where I'll actually stay the whole night so I won't be transferred to another room. From what I was told there is a screen in the waiting room that shows the progress of my surgery, when I'm in recovery and then will change to when I'm allowed visitors. This is in addition to the healthcare team providing updates.

  • toni333
    toni333 Member Posts: 25
    edited April 2019

    Poised,

    The only thing I remember is seeing my family in the recovery room for a split second and falling back asleep.  I think the medication makes you relax or tire that you won't feel anxious.  I too get nervous and I wasn't at all afterwards! Nor did I get sick.  Tell the anesthesiologist about your concerns.  They can give you a premed for nausea somehow.  Maybe pre or IV.. 

  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited April 2019

    I had really crazy reactions to the versed they give preop. I declined it for the latter surgeries. I wake up in better shape without it. Trust me, no one pays attention to anything you say before or after surgery. I was totally lucid pre surgery and was talking but I could tell the docs thought I was out of it. My first surgery ever was a breast biopsy. I've had quite a few since. I always tell myself I am in great hands, all the medical personnel are singly focused on me having a good outcome. I tell myself surgery is one of the safest places I can be.

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited April 2019

    My first experience was C sections for my kids in the early 1980's.

    I personally was not really "awake" until I was in my hospital room. My husband may have been able to go into recovery but I did not know it. I was very drugged up when they moved me. Then I was on a pain pump I know and controlled it at that point how much pain meds I took.

    I also needed it for gallbladder surgery and then I did general and was out for oral surgery as well twice last year since I had major oral surgeries done and it was recommended.

    All the times I had it at no dime did I act "crazy" at all afterwards. Sometimes it can make some people nauseous. You can ask them to give you something so you do not get sick afterwards if that is a worry to you and it works wonders.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited April 2019

    I've had several surgeries over the years at different hospitals. It's always the same, I wake up in recovery and get a chance to get somewhat alert, then I get wheeled back to my room, where I'm usually pleasantly sleepy. If it's a lighter surgery like the lumpectomy, I wake up faster and become alert pretty quickly. Big surgeries like a hip replacement or nephrectomy leave me fuzzier longer, for which I'm grateful.

  • 2002chickadee
    2002chickadee Member Posts: 129
    edited April 2019

    Hi Poised, good luck with your surgery -- you're going to make it through just fine! And I'm sure whatever you say or do they've seen crazier. I've been under propofyl for a few things now, but I'm guessing you'll be under general anesthesia which is a little heavier. I had that for my MX with immediate DIEP reconstruction. I remember being really nervous I would be nauseous when I woke up, and I was -- I'd suggest you ask about that if you think it might be a concern, they can give you a pill called Emed I think. I remembered the nausea from when I had my wisdom teeth pulled about 20 years earlier. I woke up as they were wheeling me to recovery and my plastic surgeon was kind of leaning into my ear as he walked and was telling me the happy news of clear lymph nodes and I just kept telling him I thought I was going to puke. Then I was in the PACU and had IV pain meds and someone came around playing a guitar and it was a much happier place. They let my family in maybe an hour after that to say hi.

    Completely normal to have anxiety heading into this, and in general throughout the cancer process. I never had any anxiety before cancer but trust me those Ativan were really needed many times throughout the journey. Don't feel bad about feeling anxiety or fixating on seemingly random things -- that's your mind helping you cope. And also, I wasn't sure about my nipple going in either, it ended up coming off and honestly it doesn't bother me that much anymore. Might get a tattoo nipple one day but really I almost don't notice it except when I'm changing at the gym.

    Sending hugs and good wishes!

  • jessie123
    jessie123 Member Posts: 532
    edited April 2019

    Since I had a lumpectomy I was not "under" near as long as the mastectomy folks, but I was still just as terrified of the anesthesia. I remember being in the middle of a sentence in my room and then the next thing I knew I woke up in the same room and the surgery was over. I wasn't groggy at all. Got dressed and went home. I was under about 2 hours. Oh, and they put that thing behind my ear before surgery to prevent nausea.

  • DebAL
    DebAL Member Posts: 877
    edited April 2019

    poise,

    No worry is silly, they are real. I work in pre op/ recovery. You will have a chance to discuss your fears with the anesthesia team. There is usually an anesthesiologist and CRNA assigned to your case. Be honest and share your concerns when you meet them. When a patient tells me concerns such as yours when I am pre-oping patients I let the recovery room charge nurse know so its communicated. Family can wait to see you once you feel more awake. Again, communicate your concerns to the preop nurse so she can pass it on. Many patients that worry about this are totally fine in recovery. I wish you a speedy recovery.

  • poisedandpink
    poisedandpink Member Posts: 66
    edited April 2019

    I'm home from my mastectomy and happy to report it all went well. Anesthesia was extremely uneventful! I almost feel silly stressing over it so much now. I remember being woken up in the ER and told my results. It feel like a dream so I asked nurse in my recovery room twice to confirm as I dosed on and off. They didn't let any visitors up until I was awake. That took about an hour. I wa really groggy, but that's all.

  • DebAL
    DebAL Member Posts: 877
    edited April 2019

    I'm so glad surgery is behind you and you are doing well!!. Each day will get a little better. Wishing you a speedy recovery!

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