Does your cancer center have a patient advocacy board?

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Larkin
Larkin Member Posts: 58
edited May 2019 in Stage IV/Metastatic Breast Cancer ONLY

Does your cancer center have a patient advocacy board made up of patients? If so, and you don’t mind saying, would you tell me the name of your center. I’m especially interested in any of the big name centers.

As I’ve mentioned before, I’ve been trying to impact change at my center as they made a huge change (Decoupling) without any patient imput. We finally got a dialogue started today and I’m looking for real life examples of centers that put patients first. I’m at Rocky Mountain Cancer Center in Colorado

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  • EV11
    EV11 Member Posts: 127
    edited March 2019

    Try St. Lukes Koontz Metastatic Breast Cancer Center Phone: (844) 522-2201...they are supposed to be remarkable, patient-centered clinic.

    Good luck. I admire your efforts.

    Elizabeth

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  • Larkin
    Larkin Member Posts: 58
    edited March 2019

    Thanks EV11

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  • illimae
    illimae Member Posts: 5,710
    edited March 2019

    MD Anderson has a patient advocacy group but I don’t think it’s actual patients, just MDA employees. I’ve only had to utilize them twice, both were efficient and trouble free. I had a nurse that failed miserably in an emergency situation and a cardiologist with unacceptable communication practices.

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  • Larkin
    Larkin Member Posts: 58
    edited May 2019

    Just wanted to update this thread to let you know that I have been able to work with the administration at my cancer center to ensure that new communications to the patients will be much more patient centric and will go through a checklist before they are published or shared to ensure

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