Newly diagnosed to inter mammary lymphnodes metastasis

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Summerspring
Summerspring Member Posts: 37
edited February 2019 in Stage IV/Metastatic Breast Cancer ONLY

I was just diagnosed with my tnbc coming back in my inter mammary nodes. I was diagnosed in October 2017 with stage 1 no node involvement. Totally shocked to find myself here. Does anyone have experience with a similar diagnosis??

I’m 39 -feel totally fine but had a lump appear on my chest. Thank you

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  • wam
    wam Member Posts: 168
    edited February 2019

    Sorry you find yourself here. There are many people here with your diagnosis who are thriving. The shock is hard but you will feel better!

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  • jackboo09
    jackboo09 Member Posts: 920
    edited February 2019

    Hi

    I was dx in March 2017 with internal LN in my mediastinum. I am currently NEAD and doing well.

    It is a terrible shock. It does get easier. This board helps. Hopefully you will soon hear of a treatment plan.


    Liz

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  • Summerspring
    Summerspring Member Posts: 37
    edited February 2019

    thank you for replying! So encouraging to see you are NeD. :) an inspiration!! Did you feel like you could feel them?

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  • jackboo09
    jackboo09 Member Posts: 920
    edited February 2019

    No not palpable. I started with arm pain and the veins on the left side of my chest were visible. I had a blood clot which was the result of a mediastinum tumour compressing the left internal jugular vein. The arm pain was because blood flow was restricted to the left arm.

    After chemo I had a CR and so far have NEAD. I scan again on March 4. For a good year I was on blood thinning medication but scans showed that the vascular picture was normal, like a patient without any of this. So I was very lucky. How long that will remain is of course the question.

    Good luck, have they staged you as 4 as I was always a bit unsure about this as it doesn’t involve distant organs.


    Liz x

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  • Summerspring
    Summerspring Member Posts: 37
    edited February 2019

    hi! Thanks for replying. They did say stave iv bc it recurred in some soft tissue and nodes. I don’t get it either?? Am looking to start chemo in 2 wks. Abraxane/immuno or carboplatinum/immuno. Anyone have experience with these??

    I’m still in a state of disbelief.

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  • Summerspring
    Summerspring Member Posts: 37
    edited February 2019

    also Liz, how long did you do chemo for? I can’t believe the tumor was pressing on the vein!!! Yikes! This is all so scary.

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  • Sue2009
    Sue2009 Member Posts: 228
    edited February 2019

    Summerspring, in 2009 I did chemo for a large tumor left breast that never showed up on mammograms or U/S. At the time my youngest was 12, oldest was teaching HS, I have 6 kids. That thanksgiving break I had bilateral mastectomy, 9/16 positive nodes. Radiation was done in 2010 for at least 3 months. The R/O was a bit of a jerk, so I cut ties with him when I was done. Come May M/O sent me for PET. I was so optimistic all would be clear, esp after all I had been thru the past year. My DH bought me a new car, that is how optimistic we were. I had brought the car in for window tinting & the courtesy driver was taking me to the near by mall to wait when my M/O called to say I had mets in my right intermammary chain. I sat there crying, the driver was so sweet about it.

    Luckily, my mom was office manager for a group of surgeons, the doc who started the practice kept offering to make a call to his buddy Norm, an R/O. So I said mom, time to make that call. Dr Norm called me himself within 15 min, I was in his office the next day. He was so positive & continues to be. He said just consider this a bump in the road. So radiation to that spot & I haven’t had any problems w/that area since. I did say that was 2010, right

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  • jackboo09
    jackboo09 Member Posts: 920
    edited February 2019

    Summerspring,

    I had 4 Taxotere alongside Perjeta and Herceptin as I am Her 2 positive. The original plan was 6 Taxotere but stopped at 4 due to SEs. I am now continuing on Herceptin and Perjeta every 3 weeks. This just gives me short term fatigue and some intermittent neuropathy.

    Sue,

    Thanks for your story and such a hopeful one too. It gives me hope that I may also do well many years out. I wanted rads to the IMLN but it was too risky. I was put forward for the CORE trial for SBRT but there was no evidence of disease by that time and so on both counts I was not eligible.

    Liz x


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